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bluemeanies

HealingWell Forum
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Member Profile
Display Name
bluemeanies
Profile Created
6/2/2004 1:18 PM
Last Seen
1/6/2010 11:56 AM
Total Posts
1372

Last 15 Posts

update to the clinical trial I am in

My update: I am in a clinical trial for MLN0002 for my crohn's disease. I've been in it for about 4 months now and am on the maintainance phase, which means an infusion about ever 4 weeks. Right...

1/6/2010 11:56 AM

Crohn's Disease
Cimzia not working, heard of Vedolizumab?

Thanks for the replies. I have to be off the Cimzia for 2 months before starting the trial, so it will be late September when I start. The drug is suppose to not cross over into the brain, thereby...

7/31/2009 10:05 AM

Crohn's Disease
On Cimzia? How much do you pay?

I was able to qualify for free Cimzia and the home nurse who gave me the injections. Contact Cimplicity, the maker of Cimzia....

7/31/2009 10:01 AM

Crohn's Disease
Cimzia not working, heard of Vedolizumab?

I've been on Cimzia for 6 months and it is not working for me. My gi said today there were no other treatment options for me (I do not have insurance). She suggested a clinical trial for Vedolizumab...

7/30/2009 4:11 PM

Crohn's Disease
Gatorade Alternatives?

G2 is much better than regular gatoraide....

7/30/2009 4:07 PM

Crohn's Disease
Pentasa

I took it for about 5 years and it never helped me. As I tapered off of it my symptoms got better....

5/8/2009 7:16 PM

Crohn's Disease
Cimzia

I just had my first 4 week injections. I haven't really had injection site problems. I'm not sure it is helping me yet, I have been under a lot of extra stress and going 5-10 times a day. Still...

5/8/2009 7:15 PM

Crohn's Disease
Feeling great on Cimzia so far, but do they have to have the word death in all the warning labels!

I'm on Cimzia, I've had 3 sets of shots so far. I try not to think about the bad possible side effects. Just wash your hands in hot water alot and go to the doctor if you feel sick....

4/24/2009 12:15 PM

Crohn's Disease
Cimzia home nurses

I am on Cizmia free and they pay for my nurse also. If I had a problem I would call Cimplicity, but I also have the number of the nurses who come out....

4/8/2009 10:51 AM

Crohn's Disease
cimzia

I was approved for financial aide for Cimzia, I do not have insurance. I get my third set of shots this afternoon. So far my joint pain is much worse, my tendinitis is worse and my guts are no...

3/31/2009 9:08 AM

Crohn's Disease
Does anyone use Entocourt?

I was on it. It is supposed to not have the bad side effects of pred but it is still a steroid. I had the bad side effects same as I did on the pred, including worsening of my depression. I will not...

3/25/2009 5:01 PM

Crohn's Disease
Thyroid disease and Crohn's

I have crohn's, about 10 years now and I am hypothyroid. Mine is due to nodules growing on the thyroid and slowly killing it. I have been on synthroid for about 5 years....

3/25/2009 4:53 PM

Crohn's Disease
Hi

Hi TBW. I hope the Humira helps you. Today I get my second round of Cimzia shots. I had the first shots 2 weeks ago and then again in two weeks. It may be making my joint pain worse though. I'm...

3/17/2009 1:47 PM

Crohn's Disease
Been off my Remicade for 10 weeks!!!!!!!

Hey Teddybearweiser. I am going to my gi today to see about starting Cimzia. I have been unemployed and uninsured for over a year now and should be able to get it free from the drug company. After a...

2/19/2009 9:48 AM

Crohn's Disease
Anyone here with crohn's at terminal ileum that caused ulcer?

I have crohn's in my small intestine. I was on prednisone for about a year and the last scope I had done they found 2 ulcers in that area. I am going to gastro today and I am going to try Cimzia if...

2/19/2009 9:43 AM

Crohn's Disease



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