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jujub

HealingWell Forum
>
Member Profile
Display Name
jujub
Profile Created
3/16/2003 10:56 AM
Last Seen
11/4/2022 1:36 PM
Total Posts
10424

Last 50 Posts

And now I hear: No Fruit!

I've been told by multiple dietitians that if you're going to eat fruit, it's best to choose something other than grapes, because they will push the blood glucose higher than other fruits. Also,...

11/4/2022 1:23 PM

Diabetes
Vaccinations recommended and how they impacted you

I know your medications affect this. I am on Inflectra (fake Remicade), and my GI and primary have told me I should not take live vaccines....

11/4/2022 10:56 AM

Ulcerative Colitis
Pfizer or Moderna?

I have had first dose of Moderna, with no adverse effects. Hearing about all the people who have "recovered" from Covid who are still having issues months later, I will definitely complete whatever...

2/28/2021 5:19 AM

Ulcerative Colitis
Entyvio infusion in 2 weeks and COVID-19

I just received a letter from my infusion center today, outlining the extra measures they are taking to prevent infections. I'm a little worried, but I do know they'll protect me in every way...

3/27/2020 6:47 PM

Ulcerative Colitis
Prior approval now needed for pain meds?

Another issue with pain management is that the FDA seems to be reclassifying most pain medications as scheduled drugs. Two years ago, Tramadol was no problem - it was not scheduled and no extra hoops...

11/13/2019 1:35 PM

Ulcerative Colitis
Puzzled..."festering" symptoms

This is an interesting discussion. I never considered my symptoms highly diet-related, although when they were at their worst there were a number of foods I eliminated or restricted severely (mostly...

10/9/2019 6:51 PM

Ulcerative Colitis
Psoriasis and water!

My psoriasis is predominantly on my face and neck - not the best location. Sometimes in the middle of a flare my face will start to burn and tingle like a first degree burn. This doesn't surprise me,...

7/9/2019 6:59 AM

Psoriasis
Newby to this forum

Zen Hen, thanks for your comments. I'm so bad; haven't logged in here for months. My psoriasis continues to be consistently active, but varying in degree. This week, it decided to try something new....

4/22/2019 6:51 PM

Psoriasis
Newby to this forum

I was on Prednisone off and on for about 6 months. Then, because my flare was still bad, my doctor put me on Endocort, which is released in the colon and supposedly not absorbed systemically so is...

12/16/2018 8:01 PM

Psoriasis
Toes get no respect

Lanie, don't be like Judy. Judy broke both of the bones in her lower leg several years ago and still has no idea how it happened. Judy walked on the leg for more than two months and it was 95% healed...

12/3/2018 11:06 AM

Diabetes
Newby to this forum

Thank you for asking, yes, I'm now about 80% clear with topical steroids. I hope they continue to work for me....

11/12/2018 7:53 PM

Psoriasis
and its back...

simon71, as a 22-year veteran of ulcerative colitis, let me tell you I don't think anyone with UC, whether it be mild or severe, flaring or in remission, is obligated ever to feel "lucky." I had a...

11/12/2018 7:50 PM

Ulcerative Colitis
I'm having surgery

Good luck, Andrina. I know this is a decision not taken lightly. I hope you are as happy with the results as everyone else who opted for surgery....

10/28/2018 6:49 PM

Ulcerative Colitis
I Cured My Psoriasis By Diet

As a user who has frequented several of the forums here over time, I have always found it interesting how the same foods and environmental substances are perceived as causative for so many of these...

10/24/2018 6:19 AM

Psoriasis
So your doctor says you're "pre-diabetic"

Not to be a Debbie Downer, but I wouldn't rely too much on that blood sugar above 140 leading to organ damage. I have worked very hard to keep my blood glucose down. Fasting is rarely above 100, and...

10/24/2018 5:37 AM

Diabetes
New medicines

Another issue is that the biologics can have some serious, if rare, side effects. I remember when they first started appearing, we were all sure if we took them we'd get lymphoma or something equally...

10/24/2018 5:11 AM

Ulcerative Colitis
Newby to this forum

I have been a HealingWell member for many years, and hung out on the Ulcerative Colitis board until a couple of years ago. With that issue in a long and stable remission, I've not been around since...

10/24/2018 4:53 AM

Psoriasis
New here (my name is Z)

Of the biologics, I believe Remicade still has the best statistics for inducing and maintaining remission in people who have UC. You might want to discuss this option with your doctor also. I hope...

1/29/2018 4:01 PM

Ulcerative Colitis
I'm back!

I've been absent for far too long. As some of you may know, I went through a long period last year of trying to heal up some skin sores. Flashing forward to fall, I was well and feeling sassy again....

1/29/2018 3:51 PM

Diabetes
Hip Pain from Remicade?

I agree that Prednisone is a possible culprit here. Longer-term use can cause a condition called osteonecrosis, which is degeneration of the bone with significant pain and eventual loss of function....

10/21/2017 3:52 PM

Ulcerative Colitis
Another battle won (I think)

Our weather has actually been pretty mild, Lanie. And winter was so mild I sort of missed it completely. At least this year we're getting plenty of rain so we shouldn't have a recurrence of the...

7/6/2017 4:40 PM

Diabetes
Ulcerative colitis recovery through urine therapy

OMG, I can't believe this discussion has been revived. I can only hope this has helped anyone who actually tried it....

7/6/2017 4:24 PM

Ulcerative Colitis
Another battle won (I think)

I'm not sure if I discussed this here, but I've suddenly been having problems with skin wounds. I have some loose skin on my abdomen (a lasting effect of steroid therapy), and I developed open,...

7/6/2017 4:17 PM

Diabetes
Feeling guilty for having UC

What you describe sounds very much like depression. It's very common for those of us who have chronic health issues to be depressed. I encourage you to discuss this with your primary care doctor. A...

6/2/2017 11:32 PM

Ulcerative Colitis
Recent diagnosed avn

I had similar treatment for AVN in my shoulder. I don't know how old you are, but spontaneous AVN (not caused by injury or medication) is sometimes seen in adolescent and young adult males. The usual...

1/17/2017 7:50 PM

Osteoarthritis
Doin' my happy dance

The thing is, I don't have vertigo. There's no sensation of dizziness or of the surface under me moving, and no faintness. I'm thinking it seems more like a CNS thing, like my body just continues...

1/17/2017 7:46 PM

Diabetes
Prednisone and side effects - are they as severe as everyone says they are?

Most of the weight gain is from water retention, although it does stimulate your appetite. Resist the urge to increase your food intake and limit your salt intake; that's about all you can do to...

1/17/2017 7:36 PM

Allergies
6 Months Into the IBD Diagnosis, What Happens Next?

I agree with notsosicklygirl. If your GI doctor is talking about getting you off medication for your IBD, you may want to get a second opinion and consider a change in doctors. Do you know what parts...

1/14/2017 10:21 PM

Ulcerative Colitis
Doin' my happy dance

Hello, all. I'm continuing to do well as far as my BGL goes, however have a new challenge. Over the past 8 months I have been falling more and more frequently. I don't pass out, I'm not dizzy, I...

1/14/2017 9:57 PM

Diabetes
I'm starting vedolizumab (Entyvio) on the 2nd November

I always nap during my Remicade infusions. It's very relaxing for me....

12/17/2016 6:42 AM

Crohn's Disease
Emotional support dog for chronic pain? In apartment

I have two small dogs (Cavalier King Charles spaniels). They make me laugh every day, no matter how bad I feel. When I'm having joint pain, they are like little heating pads that come to me. They...

12/5/2016 6:09 AM

Chronic Pain
Pain beyond raw

Ooh, I used to call that "lava poop" because that was what it felt like to me. My anus was finally cleared up by a cream my GYN(!) prescribed. It is named Lotrisone, and it contains both an...

11/16/2016 4:54 AM

Ulcerative Colitis
What does the election mean for us

And, less than a week in, he's already saying he wants to keep the coverage for pre-existing conditions and adult children living with parents. I don't think he has any concrete idea of how he's...

11/14/2016 11:15 PM

Ulcerative Colitis
MY GI suggested lowering Balsalazide amount-wait what?

I decreased mine from 9 a day to 6 (3 capsules twice a day) about ten years ago. The full dose seemed to make my stools much softer, and they're better on the lower dosage....

11/14/2016 11:11 PM

Ulcerative Colitis
Jujubee1 writes: blood sugar running high despite meds

The first thing is to look at your daily diet and your activity level. Sometimes it's easy to fall into thinking that once we're medicated, everything is taken care of and we don't need to worry any...

11/14/2016 10:59 PM

Diabetes
Steroids versus biologics

Sometimes steroid side effects aren't at all visible until they are. Then you have a completely collapsed head on your femur or humerus, likely with intense pain. Or your vision is fading due to...

11/7/2016 4:09 PM

Ulcerative Colitis
Is it UC or not?

Please be sure to be tested for C.diff before you take steroids. This nasty little bacterium can make us very sick, and steroids would only make it worse....

11/7/2016 4:04 PM

Ulcerative Colitis
Seizure triggered by an emotion?

Strong emotions are associated with changes in brain chemistry. So it makes sense that yes, they can trigger seizures in some people....

10/31/2016 5:41 AM

Epilepsy
Do you test positive on the Romberg Test

I fail this test big time because of the peripheral neuropathy in my feet....

10/24/2016 6:13 AM

Fibromyalgia
There will be Less Opioids in 2017

The FDA's creeping tentacles keep engulfing more of the market, also. This year they put Tramadol, which is not an opioid, on Schedule II. Now I have to make a trip to my doctor every time I need a...

10/24/2016 6:10 AM

Chronic Pain
Dry mouth from allergies?

My dentist noticed my extremely dry mouth and recommended a product called "Spry." It's an OTC spearmint-flavored spray that stimulates your mouth to generate saliva. It really helps me....

10/15/2016 3:18 PM

Allergies
Azithromycin

I just finished a z-pack a week ago. It has never hurt my stomach. I think often we can tolerate it because it's only a 5-day course of treatment so our colons don't have as much time to get wound...

10/12/2016 10:51 PM

Ulcerative Colitis
Paying for Biologics in Canada

I'm not familiar with the Canadian system, but in the US if you have any insurance that's government-funded (such as Medicaid, Medicare, etc.) you aren't eligible for the pharmaceutical company...

10/12/2016 10:29 PM

Ulcerative Colitis
Anyone get worse after antibiotics?

Antibiotics terrify me these days. For years they didn't seem to bother me (I was already going 20 times a day with heavy blood, so maybe I just didn't notice.) As time goes by, there are fewer and...

10/3/2016 7:44 AM

Ulcerative Colitis
Allergy to bacterial infection Yay!

Today I can finally reliably produce an audible voice. Husky, but audible. I saw my PCP Thursday, got a shot of Rocephin and a prescription for Zithromax, which I finished today. Just a reminder for...

10/3/2016 7:15 AM

Allergies
Allergy to bacterial infection Yay!

Finally home. Everything peaked yesterday while we were driving, and today I feel like I just might live. I managed to enjoy the visit despite the challenges, but haven't been able to speak above a...

9/26/2016 12:30 PM

Allergies
Delzicol dropped by Express Scripts

There's something just fundamentally wrong with an insurance company deciding what treatment we need or can have. Very few of their employees are M.D.'s and they usually aren't the ones making the...

9/26/2016 12:27 PM

Ulcerative Colitis
Allergy to bacterial infection Yay!

Last Monday my allergies flared up. Burning eyes, runny nose, productive cough. No fever and all drainage clear. Sometime during the day yesterday the bacteria moved in and set up housekeeping Still...

9/24/2016 9:24 AM

Allergies
Finally scheduled surgery

I was in rehab for four weeks, off my walker after three weeks. Two months after my knee replacement, I was able to do everything I could do before I had knee problems. I will say, however, on a long...

9/24/2016 9:12 AM

Osteoarthritis
How was summer

Summer was hot and dry. So now autumn is brown and crunchy. I know there are a lot of areas getting too much rain. Could you please send a few inches to East Tennessee? Thanks....

9/24/2016 9:05 AM

Diabetes
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