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Subzeromambo

HealingWell Forum
>
Member Profile
Display Name
Subzeromambo
Profile Created
9/3/2009 10:38 PM
Last Seen
2/21/2023 4:04 PM
Total Posts
1147

Last 50 Posts

Financial Diet Problems-Need Help!

What country, province or state do you live in? I can give you advice on how to obtain healthier food with that information. I am also dairy intolerant and will be happy to share recipes for low carb...

2/18/2023 8:57 AM

Diabetes
Ozempic Shortage

What substitutes have worked well for others? I am thinking of trying Trulicity. Ozempic brought my A1C almost to a normal range and I lost 18 pounds. Victoza has too many side effects for me/...

2/17/2023 9:42 AM

Diabetes
Freestyle libre 2 meter

It only comes with a 2 year warranty. Four years is a pretty good life but I would call Abbot anyway. Both my dog and I use the readers, sensors and Libre view report system. We are extremely happy...

2/16/2023 5:36 PM

Diabetes
Is everyone being forced off of Remicade?

I am being forced to switch too. It feels pretty scary....

1/31/2023 4:25 PM

Ulcerative Colitis
Telling people about uc

Eminent, with a 504 plan, your principal or your school advisor/counselor is required to inform your teachers so that you do not have to be telling everyone. The teachers are also required to be...

7/29/2014 8:10 PM

Ulcerative Colitis
Aquatherapy not allowed for people with ostomy!! Help

I had no problems swimming with a bag. For my own sense of security I used an ostomy swim belt from Ostomy Secrets but I never needed it. I would talk to the manager and perhaps the owner. Ostomies...

7/29/2014 7:54 PM

Ostomies
Jogging accessories

I use a Nathan belt with two flip-top water clips that can go in the back or front. It has a separate pocket for id, cell phone and keys. I see them every where at running and outdoor stores. There...

7/29/2014 7:44 PM

Ostomies
Total proctocolectomy recommended even though my UC is mild

Get a second opinion! The surgery is not a panacea. My life with a colon was much better than without one. Every day is a struggle to keep my dreams and dignity alive....

7/29/2014 7:36 PM

Ulcerative Colitis
How do you prepare for or cope with accidents?

I just had this happen today. Crap-kit contains: Depends Flexfit Underwear, alcohol free-wipes, 2 zip-lock bags ( 1 for dirty clothes, 1 to dispose of soiled underwear and wipes), change of clothes,...

7/29/2014 7:31 PM

Ulcerative Colitis
Does anyone have good j-pouch jokes, comics or stories?

Great stories about cats! The second story was definitely lol-kward. Loved it though....

7/26/2014 4:48 PM

Ostomies
Does anyone have good j-pouch jokes, comics or stories?

http://www.youtube.com/embed/V_gOZDWQj3Q?rel=0 This another funny one...

7/25/2014 8:59 PM

Ostomies
Does anyone have good j-pouch jokes, comics or stories?

Here is a funny ad called "Girls Don't Poop" http://youtu.be/ZKLnhuzh9uY I am on an iPad and do not know how to make the hyperlink so please copy and paste the URL. Any poop related humor would be...

7/25/2014 8:44 PM

Ostomies
Feeling Blue - Life Changes and UC

Every once in a while I give myself permission for a pity party. It helps me to stay positive the rest of the time, if I give me myself permission to feel overwhelmed and depressed every once in a...

7/25/2014 8:19 PM

Ulcerative Colitis
Does anyone have good j-pouch jokes, comics or stories?

I find humor to be helpful during painful times so I am searching for jokes, comics or stories. My GI and surgeon are not sure what is wrong. I bleed every time I exercise abdominal muscles then I...

7/25/2014 8:04 PM

Ostomies
Migraines

I take immitrex, Benadryl and oxycodone. I lose my vision when I have a migraine....

7/22/2014 10:51 PM

Ulcerative Colitis
What's your passion?

I am very actively involved in my passions except when my chronic illness brings me to a screaming stop. My passions are: family, friends, reading, multimedia production, and race walking....

7/2/2014 7:28 PM

Depression
IBS: Vomiting, Depression, Anxiety, Groin pain. All Related???

My son had the same symptoms. We have spent many thousands of dollars of tests and hospital stays and incorrect diagnoses. He was thrown into the IBS catch all before I finally took him to a...

7/2/2014 6:28 PM

Irritable Bowel Syndrome
4 different doctors, 4 different diagnoses! What to do now?

Once I figured out what was "safe" for me eat I had no problems with business lunches. Before that, however, lunch could be very treacherous with limited healthy choices. What country and region do...

6/28/2014 9:50 PM

Irritable Bowel Syndrome
4 different doctors, 4 different diagnoses! What to do now?

I suggest seeing a gastroenterologist (GI) and having an endoscopy. Many of your symptoms could be due to mild dehydration and food intolerances but it is always best to have a professional view the...

6/28/2014 1:57 AM

Irritable Bowel Syndrome
JMS School...

I am very sorry you are having such a rough time. I hated eighth grade. Kids don't realize how cruel they can be to their peers. You have my support....

2/13/2014 11:47 PM

Depression
Cyclosporine Experience?

If I had cyclosporine at the beginning of my last hospital stay I believe I would still have my colon. I had a very bad hospital doc assigned to me who only gave me steroids. It worked extremely well...

9/7/2013 9:04 PM

Ulcerative Colitis
FODMAPS anyone?

You probably already know that FODMAP is a scientifically based elimination diet. It helps you identify problematic or " trigger" foods. The first few weeks were hard but after you finish the...

9/7/2013 8:59 PM

Ulcerative Colitis
Toxic megacolon

I don't know if you need it but a physical therapist helped shorten my recovery time dramatically. We worked on slowly re-engaging core muscle groups while I was still very weak. Is the pain any...

8/21/2013 7:18 AM

Ulcerative Colitis
OT- What are you guys watching on tv?

I like many bbc shows from soy studs list. I also like bbc's Orphan Black. Sibby, Grimm is often filmed outside my home. The crew is great. The directing staff are totally L.A., not sure why they...

8/20/2013 1:44 PM

Ulcerative Colitis
Interesting reading, dehydration a trigger!

I found even mild dehydration combined with descending from a high altitude (12,500ft) to be a guaranteed trigger for a three-day migraine. I doubled my water intake and take Excedrin migraine before...

8/19/2013 7:59 PM

Migraine Headache
VSL3 consumption not having effect on gut microbiota

This is an old study from 2011 that used a very small population sample of 24 people. There was no placebo group used for comparison. The studies that have used large sample sizes used VSL 3 DS. It...

8/19/2013 7:48 PM

Ulcerative Colitis
Anyone never been in the hospital due to UC?

I am amazed at how few hospital stays have been posted. During 16 years I was hospitalized 22 times. Average stay was 10 days. Longest stay was 30 days. Hospital stays were due to severe blood loss...

8/18/2013 9:47 AM

Ulcerative Colitis
Toxic megacolon

I am relieved that you are improving! Congratulations!...

8/14/2013 8:43 AM

Ulcerative Colitis
Toxic megacolon

Different people respond differently to pain killers. I should have expressed that earlier. Dilaudid did not work on me when my colon fell apart. The maximum dose of morphine was more effective for...

8/13/2013 7:45 PM

Ulcerative Colitis
Toxic megacolon

My husband just reminded me of two other things that helped in little ways. A heating pad on both the front and back helped the pain a little. I was allowed to sip white grape juice to help clear a...

8/13/2013 3:31 PM

Ulcerative Colitis
Toxic megacolon

The pain will stop and you will go on to have a wonderful life. What pain meds and dosage are you on?...

8/13/2013 10:34 AM

Ulcerative Colitis
Toxic megacolon

BeatUC, I still have flashbacks to what you are going through. Things that helped: 1. Switching from dilaudid to morphine. The dilaudid did not decrease the pain enough. 2. Interview a colorectal...

8/13/2013 10:06 AM

Ulcerative Colitis
Toxic megacolon

BeatUC, Why aren't they using the transplant rejection drugs on you? Cyclosprine was what saved me. I am glad it has not gone toxic! Just an fyi to another poster: My colon "burst" 16 hours before...

8/11/2013 1:32 PM

Ulcerative Colitis
Toxic megacolon

TMC is a scary ride but as long as your doctors treat it very aggressively and immediately you may make it through without losing your colon. The second time I had it the doctor misdiagnosed me and...

8/10/2013 7:59 PM

Ulcerative Colitis
In what state was your disease when you had surgery?

My colon fell apart before the life-saving surgery....

7/21/2013 10:03 AM

Ostomies
Sushi?

I agree that diet will not cure uc but there are and were some foods that would cause me increased D during a flare. I could eat those same foods when I was not in a flare. Nowadays, I am working my...

7/18/2013 6:37 PM

Ulcerative Colitis
Sushi?

Wow! i am surprised at the bad reactions to sushi. I have been eating it for more than 40 years without a problem. I make my own as well as eating at sushi restaurants. I have never had a parasite or...

7/18/2013 2:24 PM

Ulcerative Colitis
My stoma died.

I have read about necrotic stomas and partial small intestine necrosis as a possible complication of an Ileostomy. It is due to not enough blood flowing into those sections. The treatment is usually...

6/23/2013 10:51 PM

Ostomies
Remicade or J-pouch

They are formed but soft....

6/17/2013 10:40 PM

Ulcerative Colitis
Remicade or J-pouch

I drink alcohol, rock climb, kayak, canoe and run. I use the bathroom 4 to 6 times day. I did not respond well to any preventive medications. I follow the FODMAP diet and take VSL 3 DS daily. There...

6/17/2013 10:08 PM

Ulcerative Colitis
Article about the rational behind one offices pain managment practice

The referenced article helped me understand more about pain management before 2013. Thank you for posting it. In January of 2013 the opoid reporting laws in my state became very restrictive. Now GIs...

6/15/2013 7:34 PM

Chronic Pain
REM Behaviour disorder

My husband has a severe case of REM BD. His symptoms started 7 years ago. He takes Clonazepam. He sleeps soundly now. He still dreams but he stopped breaking furniture in his sleep. He used to play...

6/14/2013 3:03 PM

Parkinson's Disease
Rifaximin, C-Diff & progressed UC

In two months I went from a clear colonoscopy to mega toxic pan colitis. When my colon fell apart I was only ill for 6 weeks. UC is not at all predictable. Beware of any GI who thinks it is...

6/6/2013 9:21 PM

Ulcerative Colitis
Pill skipper, flare inducer... Frustrated and self loather

Mrsfurthnv, Thank you for your congratulations. I am sticking to 5ks and yoga right now. Half marathons turned out to be too much for my immune system. Every time I completed one, I would end up in...

5/27/2013 11:21 AM

Ulcerative Colitis
No idea what's wrong...getting scared!

This may sound weird but I had similar symptoms due to an allergy to the anti-nausea patches I was prescribed. Were you given any new meds before this started?...

5/26/2013 9:32 PM

Ostomies
Pill skipper, flare inducer... Frustrated and self loather

I second Steven's suggestion of setting alarms on your phone. It is a system that works for both my son and I. We also use the GI Buddy app to keep track of symptoms, diet, and meds. It creates a...

5/26/2013 9:09 PM

Ulcerative Colitis
Need support and not even sure where to post Anymore!

Lizzie, It sounds like we were admitted to the hospital at the same time! I wish we were in the same city so I could give you more direct support. I lost the vision in my left eye from a bad migraine...

5/5/2013 2:59 PM

Ostomies
Need support and not even sure where to post Anymore!

Dear Lizzie, I am very relieved you are going back to the hospital. You have already been through so much! I am a little confused about what intestinal tests were done on you. Your symptoms are...

5/3/2013 10:34 PM

Ostomies
What did I do...signed up for a half marathon

Runners World has a Couch to Half Marathon Training Program. One of my team members used it and did very well in our first half marathon. Good Luck!...

3/23/2013 8:50 PM

Ostomies
Is vigorous tennis a nuisance with ostomy bag?

I also like the lycra shorts. I found core stretches to be very helpful before playing long matches....

3/14/2013 6:31 PM

Ostomies
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