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confused Okie

HealingWell Forum
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Member Profile
Display Name
confused Okie
Profile Created
4/8/2009 5:37 PM
Last Seen
11/1/2010 6:34 PM
Total Posts
164

Last 50 Posts

Zanaflex

I take it along with other meds. It does help me fall asleep, I can't take it during the day like I was told to. I have to break one in half during the day but was told to take 2 at night. It is the...

10/27/2010 6:11 PM

Fibromyalgia
I'm confused........

There are many types of inflammatory arthritis, are you seeing a rhuematologist? Keep trying, if your sed rate is high then you need to find out why or at the least be on meds to lower the...

10/3/2010 4:57 PM

Fibromyalgia
Anyone been on Savella?

I haven't tried it, but if you hit the search button above you will get all post related to it....

10/2/2010 7:52 PM

Fibromyalgia
Angry

It doesn't really matter what your pain is called when there are no outward signs of it, I have fibro and AS and still get talked about behind my back. I just stay to myself, I don't need other...

9/28/2010 7:06 AM

Fibromyalgia
why do we get fibro fog - where does it come from?

I don't have time to find the page right now, but google brain and pain and you will get an answer for the fog. Chronic pain changes things in the brain.........

9/28/2010 7:01 AM

Fibromyalgia
question, sort of or advice

Ouch, been there. Try to take it easy, doing too much can make the coughing worse. Use a pillow when you cough, just hold it tight where that pain is in your chest and it may help. Also, make sure if...

9/25/2010 2:06 PM

Fibromyalgia
flu sots

I got my first last year, after I had what they think was the H1N1. That was the sickest I have ever been in my life. I'm on immune suppresants, so I guess I need to go get it again. I didn't really...

9/24/2010 6:55 AM

Fibromyalgia
Gabapentin

I take the 300 mg, was supposed to up it to 3x a day and just couldn't handle it. It put me to sleep, so now I just take one at night with my other meds and it does help me sleep....

9/24/2010 6:49 AM

Fibromyalgia
Me and my cane

I was actually seen for the first time today by some of my family. I did the same thing, like it was something to be ashamed of. It isn't, gosh if nothing else at least I didn't look like a wounded...

9/18/2010 6:08 PM

Fibromyalgia
Will have to put our dog down in the next few days

So sorry, I had to do the same thing about a yr ago with our precious 16 yr ol beagle. It does get better, just keep in mind that he is no longer suffering. For a long time we would hear a bark,...

9/10/2010 3:51 AM

Fibromyalgia
Finally got an appt. with Rheumy.... but it's not until Nov. 9th!

I once waited 7 mths to see a rhuemy that turned out to be a big disappiontment, lol. I have a great one now (waited 3 mths to get in and have gone to him 19 mths now) that I was referred to by my...

9/6/2010 6:29 AM

Fibromyalgia
savella nearly killed me

Try iguard online to keep track of the meds and interactions, it is very informative. I learned which meds to take in the morning and which ones to use at night to keep the interactions down to a...

8/30/2010 10:23 AM

Fibromyalgia
Neurontin side effects

Ask your dr about it, sounds like there is something else going on. Not sure if neurontin would cause that, but I can't take it during the day or I would be asleep all day....

8/30/2010 7:04 AM

Fibromyalgia
Foot Pain?

I have plantar fasciitis and achilles tendonitis and sometimes my whole feet feel like they are broken in many places. My big toe on the left also swells, turns red and makes it almost impossible to...

8/30/2010 7:01 AM

Fibromyalgia
The Deer

Here are a few things that work. 1. bar soap in stockings hung from tree limb (irish spring works good) 2. tie a white shopping bag on a stake at corners of your garden (or anywear) 3.marigolds...

8/11/2010 7:46 AM

Fibromyalgia
arms hurt when walking on treadmill?

fibro fog really bad today, lol. I read the title and was thinking how is this person walking on there hands on this treadmill time for sleep, lol. No answers or suggestions, but thought i'd make ya...

8/10/2010 9:10 PM

Fibromyalgia
does anybody go to a renaissance festival in costume?

Where a long dress that covers your shoes and then you can wear whatever. Alot of people go dressed the part to the one around here. I have never been myself, my daughter was involved one time and...

8/10/2010 7:06 AM

Fibromyalgia
High Sed Rate of 57

Your welcome, hope you get some answers. If it get too unbearable try an OTC medication like motrin or aleve, if you don't have any stomache issues. Remember the dx isn't as important as getting...

7/31/2010 8:08 PM

Fibromyalgia
High Sed Rate of 57

High SED rate means inflammation, some sort of arthritis. Your best bet would be to get to a rhuemy and have all your history, they should be able to identify the cause. It is possible to have fibro...

7/31/2010 2:03 PM

Fibromyalgia
Cymbalta vs. Savella

I haven't tried the Savella, yet. I was on Cymbalta a few years ago, gained alot of weight on it. Tried Lyrica soon after it was approved, gained more weight and eventually stopped it. While waiting...

7/29/2010 7:20 AM

Fibromyalgia
Grazing

What may be fine in the tests may be low for you, I mean if you eat it would be higher right? So even though the test says its fine, it would be low, does what i'm trying to say make any sense??...

7/28/2010 7:08 PM

Fibromyalgia
I have the bestest brother

A brother like that is priceless, he sounds like a wonderful person....

7/28/2010 10:47 AM

Fibromyalgia
Neck Basket... how useful it could be

My first thought this morning was that I sure couldn't do the neck basket today, my neck hurts something aweful. My back isn't up to it either so I guess i'll just continue to lose things. I did see...

7/28/2010 10:43 AM

Fibromyalgia
Neck Basket... how useful it could be

Lol, only we would think this is a good idea. The first time I just heard this commercial I looked up to see this wondermous contraption. I thought it was just me who thought it sounded like an ok...

7/27/2010 8:18 PM

Fibromyalgia
heel and ankle pain is making me depressed

I have chronic plantar fasciitis and achilles tendonitis, sounds alot like what you describe. Steroid injections in the heels helped for short periods and I have heard that it fixes this for some...

7/19/2010 8:57 AM

Fibromyalgia
Lyrica experience

It worked well for me, just had to increase the dosage more and more over the year I took it. I felt alot better, but decided to stop it instead of upping it again because of the weight gain I...

7/19/2010 7:42 AM

Fibromyalgia
just another day in lala land

I use to have drawers under my bed and hid some things for christmas for my small nephews. I found them 3 yrs later (never used them drawers because they were so low), didn't even miss them at...

7/19/2010 7:38 AM

Fibromyalgia
Fibromites are abducted by aliens!

RLFLMAO, man I wish I could write half as good as you. That is great!! More More More!!!...

7/17/2010 7:59 AM

Fibromyalgia
I need some advice

I don't think anyone here is qualified to tell you she will be ok in time, but all things get easier with time. Hopefully she regains more of her ability to talk. It is great that you are there to...

7/16/2010 7:14 AM

Fibromyalgia
My grandfather

That's not far away at all from where I am, less than 100 miles. I'm sure we will see something on the news on his birthday......and I agree, a note would be great....

7/15/2010 11:48 AM

Fibromyalgia
My grandfather

If you had nothing to do with him for all this time, that part of the family may think that you are trying to make contact because you think there is inheritance involved. I have seen that before,...

7/15/2010 7:40 AM

Fibromyalgia
High SED rate anyone?

From what I have heard and read Cousins didn't have AS. He also believed he healed his self with laughter. AS is an autoimmune disease and no matter how much I would love to believe laughter or any...

7/5/2010 6:14 PM

Fibromyalgia
High SED rate anyone?

Most arthritics can be treated with NSAIDs or DMARDs or at least TNFs. Steroids are great for flares, but should not be taken continuously unless last resort for quality of life. Some people do get...

7/4/2010 5:08 PM

Fibromyalgia
How do I get past receptionist to dentist - fibro related, sort of

There is a kind of credit card thing for health care, I think it is called carecredit. I seen it in my dentist office. I think it is easier to get than a regular credit card and the interest and...

7/4/2010 7:46 AM

Fibromyalgia
High SED rate anyone?

Search for spondylitis, it is arthritis of the spine. It does spread to other joints and none of the joints are safe from it. It presents mostly in the low spine for men, but can present in a much...

7/3/2010 6:15 AM

Fibromyalgia
High SED rate anyone?

See if they will run the HLA-B27 test, if you don't have RA or something it could be spondy with the low back pain. Hope they get it right so you can get treatment....

7/2/2010 12:19 PM

Fibromyalgia
Oh sleep where are you?

Prednisone can make you not sleep, especially if you take it late. I take it early (with food) and have to take something to help sleep. I sure wish I had a Medrol pack right now, uuugggghhhhh...........

6/24/2010 8:22 AM

Fibromyalgia
So much pain and nausea

I lived on popcorn when I was in so much pain I was sick to my stomache, lost alot of weight. I could keep the popcorn down........

6/23/2010 10:22 AM

Fibromyalgia
Visit to Pain Clinic a Bust!

Karen, maybe you can make an earlier appt long before you run out of meds and see what this new dr is like. Ask the new one if he/she will continue your current treatment and if not what the plan...

6/21/2010 7:08 AM

Fibromyalgia
Visit to Pain Clinic a Bust!

When my pcp gave me narcotics and she went out for health reasons, I could not find a dr that would give me anything. I didn't really shop around, but most of the drs here will not. I had to go off...

6/20/2010 2:37 PM

Fibromyalgia
Visit to Pain Clinic a Bust!

I just went back and read the post about the hydrocodone and zanaflex, I take both of these. The zanaflex only at night (will take one if i'm really bad and would rather go to sleep). I didn't know...

6/19/2010 6:38 PM

Fibromyalgia
Visit to Pain Clinic a Bust!

It is just a game, not a fun one. I have other stuff besides fibro, I went to pain clinic and it was a few months before he gave me hydrocodone. I had to do alot of drug tests also, and still do. It...

6/18/2010 4:01 PM

Fibromyalgia
savella and weight loss

I took a med that helped my AS so much, lost weight on it because it made me sick. I couldn't eat anything except popcorn, lol. I haven't tried Savella, but I took Lyrica and gained like crazy. I was...

6/17/2010 9:58 PM

Fibromyalgia
Prescription Assistance

This is the site for Johnson and Johnson's prescription assistance............there is an 800 # to call. http://www.access2wellness.com/a2w/hcp-pap.html...

6/17/2010 7:11 AM

Fibromyalgia
I am SOOOO out of the loop!

Lol, my family makes fun of me 'cause I can watch the same movie over and over since I forget it. I usually recognize it toward the end. I can watch City of Angels over and over and I know I have...

6/16/2010 2:41 PM

Fibromyalgia
I love my boys but:

I have the same problem, I think it is because I always done everything. I never made my kids help with anything other than their own laundry and rooms. They always came first, I went the total...

6/15/2010 8:38 AM

Fibromyalgia
SSD

If you have to get a lawyer check out Allsup. I can't remember the details for sure, but if you need one to show up with you they send someone. They also do not take cases they don't think they can...

6/12/2010 7:28 AM

Fibromyalgia
Vit. D level

Not sure, it was the regular dr, not the rhuemy or pain specialist. I'll fax the results to the pain dr monday and see what he recommends. My B was low also and he did give me a script for the...

6/11/2010 5:07 PM

Fibromyalgia
Lightheaded and numb

Don't assume everything that happens to you is fibro related, you may have something else going on. Please talk to your dr, and if your dr blames everything on fibro find another dr. There are many...

6/11/2010 8:41 AM

Fibromyalgia
Friday Fun for Koffee Klatch

They are envious of the condiments that always get to go first! How do cell phones carry your voice to another phone?...

6/11/2010 8:35 AM

Fibromyalgia



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