I would like to hear exactly why you removed a link for useful information. I checked your "rules" section and I do not see any violation. It was not "defamatory" "flaming" or "advertising" So why...
I have been off all the forums for a while, but I am writing this to encourage those of you who are still seeking a solid improvement to give this stuff a try. In August of 2009 I began with 1mg at...
Thanks for posting this! I posted some time ago looking for experiences with this drug. I have not found a doc willing to try it tho' /community/emoticons/eyes.gif I currently get twice weekly AMP...
I did searches on this topic and came up with nothing, anybody ever been on this treatment? It is an alternative to the very expensive IV version....
Also called Pramipexole - I have been on this at a very small bedtime dosage for a month, and it seems to help with sleep. Have any of you been on this a can you share the particulars? (dosage,...
Some friends have been pumping me to try this stuff - they claim it really helps their autoimmune related issues and is touted to be great for fibromyalgia. What bothers me is, that in my preliminary...
dagger - thanks for the clarification! Tried so many drugs this past year, hard to keep it all sorted out. I prefer the Percocets myself, can hardly tell I took anything with Tramadol, but such is...
I have tried a few SSRI's Prozac, Lexapro, and some tricyclics, Now I tried Cymbalta, seemed to help with pain and energy - but I have read many many forum posts at medical sites saying it loses...
Sounds like a tramadol/Tylenol combo which is called "Ultram" I believe. I found Tramadol to be "OK" but not nearly as effective as Percocet. But Percocet is a heavier duty painkiller. Their method...
http://www.immunesupport.com/library/bulletinarticle.cfm?ID=4874&PROD=N0237 Check this link out /community/emoticons/smile.gif ...
Hey - just started glutathione injections after a year of abject misery...They do seem to be helping :turn: I have gone back to work - I had just gotten my GP to fill in all the paperwork for...
I have found during my misery tour of the past year since I became ill, that "fibro" is the default diagnosis when they(docs) don't know what it is - and have exhausted the possibilities of things it...
I tried it recently and found it to be AWFUL. But these meds are very individual - you may love it. I tried 15 mg for two nights, it helped somewhat with better sleep but amplified my pain and mental...
Tyno - the only stuff that helps my pain (constant, every day) is Tylenol 3 (Percocet) and to a lesser degree Ultracet - which is a more lightweight med, but easier to get your doc to prescribe in...
There are very specific ABX for Mycoplasmic infections like minocycline http://www.shasta.com/cybermom/asimple.htm An interesting read on the topic What is the "natural " one you take?...
I have seen some online write ups by Professor Garth Nicholson, I am very curious - Can you describe the protocol? How long have you been taking doxycycline? How long are you expecting to take it?...
I am going to start getting glutathione injections next week in the hopes of improving my condition - Anybody on this forum ever been this route?...
I feel your pain! /community/emoticons/shakehead.gif Really - I wonder myself about my "fibro" diagnosis for similar reasons, as some symptoms fit - others don't...I have no joint pains, no "trigger...
Gotta find a doc who will do it! The Rheumie and the immunologist both said "no" as it is "unproven"... I may have to find a more adventurous NYC doc... Here is the site about it...
I just did a test script of this stuff - it was AWFUL for me! You may well do great with it. It did improve sleep but actually amplified my pain and brain fog during the day. That was with a rather...
low dose naltrexone - reading very hopeful things about it....
I have been on Lyrica since last November - Doesn't do a whole lot unless I go past 100mg a day then it seems to literally "lock up" my brain! Takes the edge off pain at 75mg a day but does not stop...
Sherrine - thanks for the input! Yes, saw a LLMD - member of the ILADS board as a matter of fact. He is the only doc of the 14 or so I saw who said Lyme - he was "60% sure"...I did 6 weeks of Doxy, 4...
Thanks to all - I am so discouraged at this point after a year of this. Started out believing it was Lyme, originally signed up here for the Lyme boards. There are days when i feel like going back to...
For the past year - been in and out of work sick as a dog... First was suspected as Lyme - did 12 weeks of 3 diff ABX Then after seeing 14 different doctors - now only one thinks Lyme the rest say...