Just a side note too to make sure you don't have a severe UTI - I used to get them chronically and it turns out I have interstitial cystitis - a chronic pelvic pain disease (along with the fibro and...
Has anyone else ever had this kind of pain? I also have lupus so I have intense hip, and ankle pain - but mostly severe knee pain. However - when it gets bad it starts with my lower legs between my...
I have the exact same problem, and at first I thought it was because I started fallin asleep with my contacts in sometimes or a new mascara...but I think it may also be related to some of the...
Hi Dani - I have faced this question a few times - and even before I was officially diagnosed with lupus and "just had fibro" (say that because half the time the fibro causes worse pain, but a lot of...
Hi danijay - I'm new to being "diagnosed" with lupus and I also have pretty severe fibro. This post really caught my attention because the biggest problems I used to have was back pain. Lately I've...
Hey guys...just an update for a few of you that were following my fatigue/broken bone feeling flare. I ended up being told my the rheumy on call in my office to go to the er yesterday...which of...
Oh I really hope your daughter doesn't end up with lupus but it sounds like you're on top of it so at least it will be caught really early. I feel like my rheumy isn't connecting the dots that maybe...
Yes, I tried lyrica for a while. Unfortunately it didn't help at all. Now I'm on savella which has definitely helped more with the muscular and skin pain and I have vulvodynia and vulvar vestibulitis...
I actually have the lupus book...well my grandfather is borrowing it at the moment because he's been going to upenn for years for interstitial lung disease and platelets etc. So we are thinking with...
I was actually just going to start a new link on this because I'm constantly in so much pain. I tried tramadol which didn't work and with my fiber being so bad I take soma as my muscle realxer and...
Hi butter flake - don't apologize for length as I always go on...I totally get the type A...I can't believe you did so much! I was just grateful i got my MBA before the worst of this started. Turns...
Have you started any new medications? I have interstitial cystitis and experience tons of bladder problems, but sometimes when I start a new medication, until my body gets used to it, or if I'm in a...
Oh...and I meant to ask, what did you mean by 'even though I was type a'? I'm 26 and got my masters degree and can work from home so I'm really trying to hold on to it...but I feel like even though I...
Hi butter flake...thank you soooo much for answering my post I was starting to think I wouldnt get any answers to this one. My pain gets so bad at times just like many others, that I almost felt bad...
So I always struggle with energy - even before I was diagnosed with lupus - understandably since I have Chronic Fatigue syndroome and Fibro as well...but as many of you read I went through a heck of...