thanks for the advice everyone I would like to try the melatonin I think I tried to take a nap but my body just doesn't want to settle down its like it wants to keep going....
I haven't been around hardly over the last year here because I was getting used to the idea that I probably had ms..its funny how many symptoms of ms I have but in the end its fibromyalgia. I went to...
I don't know all the rest of the autoimmune testing comes back great except elevatated total complement. I am so complicated they think it could be ms cause of brain lesions but I also had...
I don't know they are not on there the only titers on there are for the anca and they are 1:20 but no titers for the ana...
my neurologist wrote positive ana at <70 but I've had the same ana testing and rheumatologist said that these are negative <80 and <70 so I'm confused one of they maybe reading them wrong?...
some days it really hot and sometimes it isn't sometimes I don't think its ms or its ms and something else. My regular neurologist doesn't know so he sent me to an ms doctor who thinks its ms so he...
it seems to have a mind of its own..twitching ..this has just started two days ago usually its my left ear. the main thing that I am having a hard time with right now is the feeling of not being able...
I feel like I have adult attention deficit disorder. I read things and I whiz right by without getting the full content of what I am reading....
I have that problem but ms neuro says I need a c spine mri cause he thinks I also have cord compression...
that is terrible,praying for strength to get you through this. I am new to ms and I don't think I will ever take that....
I had my second ms specialist appointment today. He said he will put down clinically isolated syndrome until I can get the mri's done I am waiting on my insurance to kick back in. He prescribed me...
I have osteoarthritis in my hip and have all these symptoms but I am also getting close to getting diagnosed with ms..all he says right now is quadraparesis...
I wish I could get rid of this head pressure all the doctors office says is go to emergency or walk in clinic....
here is an ms question since I can't figure out what is ms symptoms and what is regular symptoms.Head and ear pressure. Also did you ever had quadraparesis from the ms?I am trying to figure out if...
thank you I think I am going to be one these boards alot more that I have figured it out. I think I have both ms and fibro...yay double whammy but atleast I am here and I still can do things a little...
I have a brain lesion in the frontal lobe the ms specialist is going to look at it he said my regular neuro didn't do the right mri's they have to be done in certain splices whatever that mean so he...
It turns out all this time that I probably have ms.I went to see an ms specialist today and he said I have myelotic quarapalysis which is weakness in arms and legs coming from the central nervous...
I went to see a ms specialist today my neurologist finally referred me to one. He said that my neurologist was doing the wrong kind of strenghth tests and maybe the wrong kind of mri's. He says that...
did you have spinal fluid anaylisis done too?...
okay...
an oband is short for oligoclonal band in the spinal fluid.The neurologist said that these are common in people with ms. My foot is stiff and cramping and has been for the last two years. I have on...
I have managed to just live with the pain but I am reconsidering trying something I've had it for more than a year....
I was wondering if anyone has had a lumbar puncture that turned out abnormal like oglioclonal bands in their spinal fluid? I am trying to figure this out and there can be any number of reasons from...
o bands are short for oglioclonal bands and they form in blood and spinal fluid as a part of immunoglobulins. They should not be present in the spinal fluid they only are when an antibody crosses the...
I feel the same way.My left foot and lower leg are bad they get spacicity and I have to elevate it every few hours so if I go to the bar it can't be for too long....
it's ironic doctors prescribe drugs that cause terrible side effects if you have to miss them for awhile...
I know how you feel it seems like one thing after another...
Ever since I got diagnosed with fibromyalgia I have been getting other mini diagnosis such as schambergs disease. My neurologist also found o bands in my spinal fluid which alot of times could be ms...
I have been on a whirlwind ride without a stop so far as diagnosis go. I have had status asthmaticus,been diagnosed with fibromyalgia,critical illness polyneuropathy(thats been supposedly resolved)...
Chemo can make fibro symptoms worse but you have to have it,hope you won't have to need it for too long.My husbands aunt went through it without lasting effects but it must be so hard when you also...
For the last year I have gotten by with not alot of pain but for some reason for the last few months its been increasing to the point of pain day and night...I can relate....
I have already been diagnosed for a little over a year with fibro but now I may have ms. Does anyone else here have ms too?Having a problem getting any answer in the ms forum thats why I am asking...
I also had on again off again pain thats now devloped into constant pain(over worked muscle type pain) without working out...
does anyone have 2 or more o bands?I get dizzy for three days atleast once a year. I have numbness that is constant in my left foot. I have an eye exam and the only thing they saw was what looked...
I know others that had ards and were better too.were you completely paralzed. I think that they goofed I've done alot of research I was intubated and they used midlozam and it increases cranial...
The problem is in my case its difficult because all my symptoms could be left over from accute respiratory distress syndrome,in 2010 I had respiratory failure and was paralyzed from system shut down...
theres no natural doctors or llmd's where I live and these doctors rely on standard elisa and western blot tests. I think there is some a few hours a way from here that someone told me about. I...
yes but what is making me crazy is the gamma bands everywhere I read it says ms....
I am still trying to figure out whats wrong with me I thought if I got a csf fluid anyalysis it would come up with something but I still don't know whats wrong. the neurologist did an ms panel and...
Has anyone had an abnormal lp? I have 2 gamma oliogclonal bands but no increased igg or albumin so the neurologist has no idea,said it could be early ms but not sure I was just wondering if those...
I've been having a bunch of symptoms that could be ms or something else so the neurologist did a lumbar puncture. igg and albumin levels were normal but I have 2 gamma oligoclonal bands. He says...
that sounds plausible. if your hypemobile but some joints have arthritis you probably wouldn't be as flexible in them...
the difference between ehlers-danlos and hypermobility is that the skin is involved in ehlers danlos it is more stretchable like the rubber band man....
thanks for the input I was just wondering if it was just me or if others had this problem...
My pcp just gave me a script for water pills I'm a little hesitant in taking them though because they can deplete potassium...
I found that I have hypermobility. My shoulders pop in and out of socket when I'm laying down and my left leg is always swelling at the knee. I was just wondering if anybody else has this(I know its...
I have been tested for lupus,wegener's,sarcoidosis and everything under the sun for autoimmune disease and it all comes up negative except one thing a high total complement but the other ones are...
can they figure out what it means...
can't they tell what is wrong with your csf I am only asking because I do not know I am only assuming that the csf should show something. I myself just had a lumbar puncture done and am waiting for...
my bras make me feel like I'm having chest pain...