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Akkami

HealingWell Forum
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Member Profile
Display Name
Akkami
Profile Created
11/23/2013 4:12 PM
Last Seen
8/16/2021 10:04 AM
Total Posts
346

Last 50 Posts

Is this familiar to anyone here?

Ah yes a spirited round of doctor ping pong. I know how you feel. When I first started having symptoms I got bounced from Neuro to Rheumy to you name it. I saw so many doctors I lost track....

8/14/2021 8:25 PM

Fibromyalgia
I want off Cymbalta ...

I went through quite an ordeal when weaning off of Cymbalta. It took me several months to very, very slowly lower my dose and frequency and I still had tons of withdraw symptoms like the zaps,...

8/14/2021 8:01 PM

Fibromyalgia
They finally have a test for Fibro

https://www.fmtest.com/ "The FM/a® Test analyzes your immune system’s white blood cells for their chemokine and cytokine protein patterns. Those who suffer from fibromyalgia will show an abnormal...

8/14/2021 7:50 PM

Fibromyalgia
Any new Fibro treatments?

Thank You for the suggestion. I’ll look into it. 😎...

6/29/2021 7:06 AM

Fibromyalgia
Any new Fibro treatments?

Thanks I’ll look into it! Yes I forgot to mention I do also take magnesium and D3 daily....

6/23/2021 1:22 PM

Fibromyalgia
Any new Fibro treatments?

Hello, I haven’t been here in quite some time. I’m a 38 year old male and I’ve been dealing with Fibro for about 9 years now. I was just wondering if anyone knew of any new medications or treatments...

6/21/2021 2:12 PM

Fibromyalgia
Year long remission?

Thanks Sherrine. It just hit me like a ton of bricks is all. Last week I was lifting weights, walking a few miles a day and taking care of house work no problem. Today I can barley lift my arms and...

6/14/2018 2:06 PM

Fibromyalgia
Year long remission?

Hello, So for about a year I had about a 90% reduction in symptoms. I had attributed it to the testosterone replacement therapy I started around the same time. About a week ago I essentially reverted...

6/14/2018 10:11 AM

Fibromyalgia
Worst flare in years!!

Thank You...

6/12/2018 3:32 PM

Fibromyalgia
Worst flare in years!!

Thank You! I feel slightly better today. So maybe this will be a relatively short flare. I wish I knew what triggered it so I can avoid that in the future....

6/12/2018 7:12 AM

Fibromyalgia
Worst flare in years!!

Oh yes this is Fibromyalgia pain. I am a little scared to use heat. I’d hate to make it worse. But if this keeps up I’ll try it. I live in Florida so there is bad weather pretty much ever day this...

6/11/2018 7:35 PM

Fibromyalgia
Worst flare in years!!

I have been having a full body flare for several hours now. It feels like a million burning needles are all over my body. My muscles are twitching, and by vision is is bad. I haven’t had a flare like...

6/11/2018 6:20 PM

Fibromyalgia
Back to work..

Thank You Sherrine! yes I have extensive records regarding all my medical issues including the optic neuritis. I will touch base with my lawyer again before my court date to make sure he brings it...

3/1/2018 9:53 AM

Fibromyalgia
Back to work..

Thanks for the comments everyone. I was at my previous job for over 10 years and it was office/phone work. When my symptoms started my supervisor fudged the numbers for as long as she could to keep...

2/28/2018 11:27 AM

Fibromyalgia
Back to work..

Hello, After two long years of waiting for my disability hearing, it is finally approaching. Even though I've been to some of the best doctors in the country and I have a binder of medical records,...

2/27/2018 4:38 PM

Fibromyalgia
Move to Florida?

I was born and raised in FL. I'm still here so there must be something good about it. ;-) If you aren't sure you can manage the summers, why not plan a trip during July or August? If you can manage...

2/27/2018 4:30 PM

Fibromyalgia
CYMBALTA WITHDRAWAL!

Getting off Cymbalta was one of the hardest things I have ever had to do. I had to slowly taper myself off over the course of several months. There really isn't any easy way around it. Please make...

2/27/2018 4:24 PM

Fibromyalgia
Fibro Men, Testosterone is working wonders for me!

I’m sorry to hear you have to deal with medical stuff on top of Fibro. Fibro is like a full time job already. The doctor said I was low but not like “another medical condition” low. More like, I’m 35...

10/12/2017 11:36 AM

Fibromyalgia
Fibro Men, Testosterone is working wonders for me!

I haven’t been on in a while because I basically gave up on ever feeling even slightly better again. I’ve had Fibro for about 5 years now. In that time I tried all the meds (Lyrica, Cymbalta,...

10/11/2017 10:39 PM

Fibromyalgia
Cardio for Fibro!?

Yeah i did the whole IgeneX, LLMD things. IV antibiotics for 3 months the whole deal. Didnt seem to help me at all and it was very expensive....

3/22/2017 4:20 PM

Fibromyalgia
Cardio for Fibro!?

Thanks Sherrine! Yeah I've seen about 50 doctors in 3 years so I don't see new ones often anymore. He is the first one to suggest something so radical. I have tried all the prescriptions with no...

3/20/2017 10:26 AM

Fibromyalgia
Cardio for Fibro!?

Hello, So I saw a new doctor the other day. I have no insurance or job thanks to Fibro so it was very expensive. The doctor said he'd refund my money (which he did) if I tried to do 45 minutes of...

3/18/2017 5:30 PM

Fibromyalgia
Fibromyalgia rash

Yes i have a "rash" that I have asked many, many doctors about. Most of them don't have any answer. I went to the Mayo Clinic and the rheumy there said it wasn't really a rash. It's more like the...

3/18/2017 5:21 PM

Fibromyalgia
Gabapentin

It reduced some of my neuro pain for about 3 months or so. Then it stopped working completely. It did nothing for my muscle or joint pain. Only good thing I can say about it, is that it is cheap....

9/29/2016 4:56 PM

Fibromyalgia
Lyrica questions

Hello, I haven't been here in a while. I pretty much gave up on any sort of treatment since 1) none of the many I've tried so far have worked and 2) I have next to zero funds while I wait for my...

9/29/2016 4:53 PM

Fibromyalgia
Good Fibro doc in South Florida?

Thank You!...

7/21/2016 4:24 PM

Fibromyalgia
Good Fibro doc in South Florida?

Looking for a good Fibro doc in Palm Beach, Broward or St. Lucie counties. Thanks!...

7/16/2016 12:23 AM

Fibromyalgia
Good Fibro Dr in South Florida?

Thank You for all the info. Unfortunately Gainsville is prohibitively far from where I live. I do appreciate the input though. A...

7/7/2016 5:38 PM

Fibromyalgia
Good Fibro Dr in South Florida?

Hello, I stopped working a year ago. As such i have not been to a doctor in about as long. I am told it will really help my disability case to see a doc regularly. I have seen so many doctors and...

7/6/2016 1:08 PM

Fibromyalgia
Has anyone gotten even marginally better?

Thanks guys. I pretty much take all the supplements you listed. I don't have a doctor anymore because I don't have a job or insurance and honestly they were no help. The rheumatologist at Mayo said...

7/2/2016 10:34 AM

Fibromyalgia
Has anyone gotten even marginally better?

Hello, I was diagnosed about three years ago. I think since that time I finally stopped getting worse so hooray for small victories. Has anyone on this page gotten at least a little bit better? I'm...

7/1/2016 2:54 PM

Fibromyalgia
Is all over pain normal with fibro?

For me it sure is. I can't think of a slot on me that hasn't hurt....

7/1/2016 2:37 PM

Fibromyalgia
Opioids for pain management?

Honestly if you are already on all those scripts and not having any issues, I would suggest not rocking the boat. It sounds like you have more functionality than most of us here so try to enjoy it...

4/2/2016 8:41 AM

Fibromyalgia
Fibro doesn't cause damage? Why do all my joints pop then?

Thank You for the replay and link. No more docs for me. I saw 40+ in two years plus the Mayo Clinic. I'm pretty much over doctors. Also I am waiting for disability so I currently have no insistence....

4/2/2016 8:19 AM

Fibromyalgia
The worst pat is waking up in the morning

Hello, Of the 30+ symptoms I've had since this all started, the only ones that are consistent are pain, fatigue, vision problems, burning hands and morning stiffness/pain. It takes me at least an...

4/2/2016 8:11 AM

Fibromyalgia
Fibro doesn't cause damage? Why do all my joints pop then?

It's been about 3 years now. In that time all my joints have gotten worse and now they all sound like a bowl of rice crispies. I am 33 years old. The only things I ever hear from doctors is "We don't...

4/2/2016 7:50 AM

Fibromyalgia
Strange Symptoms

Thaks forthe question Betty. I have been tested yes. But based on the CDC criteria I am negitive. Also, various Lyme treatments have not helped me at all....

4/28/2015 1:08 PM

Lupus
Strange Symptoms

Thanks Revive....

4/28/2015 12:59 PM

Lyme Disease
Strange Symptoms

I forgot to answer your first question. Yes I do get a rash, though some might call it inflamation. It ws the first symptom I had. i moves around and only stays for a few minutes. It is not raised...

4/25/2015 2:13 PM

Lyme Disease
Strange Symptoms

Elmesanoya- Well I do live in South Florida so I am constantly being bitten by Mosquitoes. I do remeber pulling ticks off myself about 20 years ago, but I didn't start having symptoms until 2 years...

4/25/2015 12:03 PM

Lyme Disease
Strange Symptoms

Thanks Revive. E-mail sent....

4/24/2015 4:47 PM

Lyme Disease
Strange Symptoms

Thanks Bill. I've seen 6 neuros at this point. Thay can't decide whats wrong either....

4/24/2015 3:44 PM

Lupus
Strange Symptoms

Hello, I originally posted this on the Fibo board but I didn't get any answers. This tells me that nobody who read the post has had these issues. Just wondering if anyone here has had them. Note: I...

4/24/2015 12:54 PM

Lupus
Strange Symptoms

Thanks for the offer Magoo. It says your e-mail is unavailable currently....

4/24/2015 12:44 PM

Lyme Disease
Strange Symptoms

Girlie-I feel awful all the time. No treatment seems to make that better or worse. I am currently on my 2nd LLMD. I am in South Florida so the pickings are very slim. I have been taking something...

4/24/2015 12:40 PM

Lyme Disease
Strange Symptoms

Thanks everyone. I was tested for the gene mutation and it was normal. As far as Lupus goes that's the first thing I thought and continue to think currently. I've been tested about every three months...

4/23/2015 9:34 AM

Lyme Disease
Strange Symptoms

Thanks everyone. I have been treating w a LLMD. I have been on oral abx for over a year. For a 2 month span I was on IV Rosephen 3 times a week. I also tried Zhang Herbs and the Bhoner herbs for 2...

4/18/2015 12:00 PM

Lyme Disease
Strange Symptoms

Hello, I originally posted this on the Fibromyalgia forum, but I thought I'd check here too. Been treating for Lyme for about a year with no improvement. Same thing with Fibro. No changes....

4/17/2015 3:47 PM

Lyme Disease
Strange Symptoms

Hello, I have been sick for almost 2 years now. At the very beginning I was told I had Fibro but because of many odd symptoms and the fact that none of the Fibro treatments worked, I started seeing...

4/17/2015 1:43 PM

Fibromyalgia
How are you surviving financially?

Thanks Daxwell, I'll look into it. I'm going to see if my doc will work with me. Otherwise I'll only be able to do this for a month or two. Girlie- I think you have to see a Rheumy who will no doubt...

11/26/2014 10:19 AM

Lyme Disease
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