Very true, the UC itself could have caused the Pancreatitis and there’s no way of knowing if Lialda played a part or not. From what I understand, Imuran takes at least a month to reap some...
We are weighing our options; of course FMT being first choice once the inflammation is under control. We tried FMT when he was flaring and saw no improvement. The only medicine that he’s ever been...
Quick update We have decided not to stop the Prednisone. Today is day 8 and I think more time on prednisone is definitely warranted. There may be a slight improvement as of today being that he only...
I panicked when I saw the Calprotectin result. The biopsy results have me baffled, as I thought he had definitive UC....
Some results from sons recent hospital stay Calprotectin over 5,000!!! ESR 21 CRP 4.2 Sigmoidoscopy: nonuniform chronic active colitis, no granulomas, no dysplasia Prior to hospital admission, he had...
He has been on prednisone once or twice in his life and that’s been 6 years ago....
Thanks for all of the input. I messaged his doctor yesterday and he said we can begin the prednisone taper now since he is not noticing any improvement and has developed a cold on top of everything...
Not an easy thing to see your child in pain, but we’ve been down this road a few times and we know that better days are just around the corner. I’m thinking that by Wednesday he should notice a huge...
He has taken flagyl in the past and it always seem to help pull him out of a flare. He just started on it yesterday so it might be too soon to tell if it’s working...
I’ve been wondering that myself; maybe a higher dose is needed or maybe there is some infection. I did notify his doctor today and he said to basically hang tight until biopsy results come back. He...
My son has been flaring for about a month now and the effects were taking its toll on him, so I took him to the ER 5 days ago. He was admitted and started him on 40 mg of Prednisone…2 days later they...
Can anyone tell me how long it generally takes for Uceris to start working? Doctor gave my son a script and he started on it 3 days ago....no improvement at all...
Once a biologic is started, would it have to be continued forever or is there an endpoint?...
DBwithUC I agree that surgery is a rush decision to make. What would be a good medication to start with? Asacol and Lialda didn’t do anything for him and potentially caused his pancreatitis back in...
Hello and I hope you all have been well. I haven’t posted or even been on this forum in years because my son was doing so well after FMT’s. We did the procedure in 2013 and he was symptom free for...