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hep93

HealingWell Forum
>
Member Profile
Display Name
hep93
Profile Created
7/11/2005 9:14 PM
Last Seen
11/26/2013 1:24 PM
Total Posts
12014

Last 50 Posts

Partner cirrhosis just diagnosed

Welcome to the forum. Sounds like he is having an episode of hepatic encephalopathy (HE.) Hugs, Connie...

11/26/2013 1:23 PM

Hepatitis
Post-Transplant Blog, Pt. 10.

I overslept. Only had 3 hours' sleep and had to get up at 5. I completely slept through the alarm. Didn't wake up until 1:30 PM. The van left me a no-show notice on my door. I will take cabs...

11/26/2013 1:09 PM

Hepatitis
Post-Transplant Blog, Pt. 10.

Was at Mayo today for labs and Wound Care. Since there is no infection, there is nothing that Wound Care can do, and is leaving it up to my TC and hep doc to order HH. There really is no need, except...

11/25/2013 10:14 PM

Hepatitis
Message from MamaLama/Carol

Casrol, I'm sure that's much more comfortable for Mike than the contraption he had last time. It sounds like he is doing well. Happy dance. :yeah: :yeah: :yeah: Hugs, Connie...

11/24/2013 6:01 PM

Hepatitis
6 days sober!!

Unfortunately, we have not seen mummy again, so I suspect that she has relapsed and struggling with getting and staying sober. I do wish she had gotten treatment or at least gone to AA. She cannot do...

11/24/2013 5:57 PM

Hepatitis
Surgery so far....

Syxx, thanks for the update. I am sorry you are in so much pain. You said at the entry site, but did they take bone from there? They often take it from the hip or other area of bone, to use in...

11/24/2013 5:53 PM

Hepatitis
Results from Hepatologist

Ziff, beautifully written. Kierstin, Ziff did have persistent ascites with many "taps," until he finally had a TIPS placed. Hugs, Connie...

11/24/2013 11:26 AM

Hepatitis
fda

Mine would have to be paid for by Medicare or my Part D (not likely.) I don't have regular Medicaid, so if Medicare won't pay, or something can't be worked out with the manufacturer or otherwise, I...

11/23/2013 8:45 PM

Hepatitis
Message from MamaLama/Carol

So glad Mike is returning to his old good self and that his pain is minimal. Does he have that shoulder brace thing he had previously? Hugs, Connie...

11/23/2013 8:40 PM

Hepatitis
Post-Transplant Blog, Pt. 10.

I should be here unless I'm down the hall doing laundry. Hugs, Connie...

11/23/2013 8:38 PM

Hepatitis
fda

Carol, as you can imagine, that wsa a real disappointment to me, as I feel that may have been my only chance to beat the HCV and to survive much longer. Everything I have going on now is somehow...

11/23/2013 11:09 AM

Hepatitis
gift ideas/suggestions...

Carol, I would try sending it to her there...maybe to the Personell Office. Hopefully, they will forward it to her. Hugs, Connie...

11/23/2013 10:57 AM

Hepatitis
Results from Hepatologist

Zo, Xifaxan, Xifaxan, Xifaxan. It ain't that difficult. I agree to continue taking your meds. Your doc is obviously keeping an eye out for HCC. They used to check mine every 3 months, alternating...

11/23/2013 10:54 AM

Hepatitis
Post-Transplant Blog, Pt. 10.

They also want me to have labs again Mon. AM, prior to Wound Care. If things have not improved, the hep doc will be the one to admit me. No action necessary by me. I do have to set someone up for the...

11/23/2013 10:22 AM

Hepatitis
Post-Transplant Blog, Pt. 10.

A big day at Mayo, starting with Transplant Coordinator RN and hepatologist. As mentioned, they hadn't seen my legs until today. The doctor was pushing for me to go into the hospital today. I managed...

11/22/2013 10:45 PM

Hepatitis
6 days sober!!

Mummy, how long sober now? I hope you will get a referral to a GI doc. Pop, I don't see any medical terms in these posts except edema. What treatment are you speaking of for yourself? And what does...

11/22/2013 10:04 PM

Hepatitis
gift ideas/suggestions...

I think Mayo discourages gifts. They did recently send me a card to be mailed to a medical professional who had been of great help, so I sent it to my TC (postage paid by Mayo.) I usually send a...

11/22/2013 9:58 PM

Hepatitis
fda

Thanks, Barry. I just found out that I didn't make the sofo/ledipas trial. Too many people applying, and not nearly enough slots given to Mayo. He mentioned that there are new things coming to...

11/22/2013 9:38 PM

Hepatitis
Not sure how to get treatment

I agree with Ziff. Hugs, Connie...

11/22/2013 12:53 PM

Hepatitis
Message from MamaLama/Carol

Carol, he's had this before, so should have known what he was in for--unless he forgot it. It sounds like a little HE kicked in from the anesthesia and pain meds. And he's a transplant patient with...

11/21/2013 7:08 PM

Hepatitis
Wrong diagnosis

The left-sided pain could be from pancreatitis caused by drinking too much. The other symptoms do point to hepatitis: Either alcoholic hepatitis or Autoimmune Hepatitis (AIH.) You say you stopped...

11/21/2013 11:40 AM

Hepatitis
alt, ast and alk phos are elevated....

Please, folks, is it too much trouble to use capital letters where needed? I have spent the last half hour correcting these posts, and still don't have time to do them all. It's a simple thing. Look...

11/21/2013 9:53 AM

Hepatitis
Long term devastation

You definitely should not drink with the Zoloft. Ask your doctor about adding Celexa to Zoloft. It should be more effective. Also, alcohol is a central nervous system depressant, which you definitely...

11/21/2013 9:35 AM

Hepatitis
Results from Hepatologist

Ziff, thanks for sharing your results. You have great numbers. Your AFP is in a good range. Your alk phos is a little high at 155, with normal being 55-142. Mine is 144. But yours is not dangerously...

11/21/2013 9:14 AM

Hepatitis
Update--Dad with Hep C

Thanks for the update, LS. If this is a "bug" that your dad has, wait until he is over it and then have him get a flu shot )if not allergic to eggs) and pneumonia shot. He should be taking omeprazole...

11/20/2013 10:00 PM

Hepatitis
Message from MamaLama/Carol

Carol e-mailed me today about Mike's shoulder surgery and asked me to share it with the forum: Hi We were at surgi center at 5:30 AM Tuesday. They kept him over because of aortic stenosis. They...

11/20/2013 9:43 PM

Hepatitis
Living with AIH and looking for advice on dealing with prednisone side effects

Prednisone use over time can cause bone issues, such as stress fractures of the spine and a condition called osteonecrosis (bone death) which hits large joints such as hips, knees, ankles. I had to...

11/20/2013 2:36 PM

Hepatitis
Long term devastation

Pop, there is no shame in seeking and getting help for your stress when you desperately need it. I am very opposed to antidepressants, but when I was overwhelmed with medical problems I did go to a...

11/20/2013 9:29 AM

Hepatitis
End stage Liver disease ?

We are glad to get updates from you, Alantra. I do not think you want to or should put your self in the position of caring for her. This is extremely difficult, even for spouses. Things will get MUCH...

11/19/2013 9:52 PM

Hepatitis
Living with AIH and looking for advice on dealing with prednisone side effects

Hi, Amanda, and welcome. I will notify Dany (co-moderator who has AIH) to alert her to your post. Meanwhile, try typing in Dany or AIH in the search feature above right in the blue bar. Hugs, Connie...

11/19/2013 9:38 PM

Hepatitis
I have a very important question.

I agree that you are the one who should dole out the meds, if possible. Make him understand that he will get MUCH sicker if he doesn't take them. He should be having 3-4 bowel movements a day. If...

11/19/2013 9:34 AM

Hepatitis
Update

Hang in there, gal! Hugs, Connie...

11/18/2013 8:13 PM

Hepatitis
End stage Liver disease ?

Alantra, welcome to the forum. Sorry for the late reply...I just saw your post. It certainly sounds to me that she has ESLD and is dying. She will surely die within months if she doesn't stop...

11/18/2013 8:11 PM

Hepatitis
Recent dx alc hep

Welcome to the forum, Rose. I liked the taste of Glucerna (chocolate) better. Either that or Ensure or Boost will provide extra nutrition and can be used as a replacement lunch. Hugs, Connie...

11/18/2013 3:12 PM

Hepatitis
Recently contracted Hep B -- Getting Vertigo Like Symptoms among others!

EzAl, if you have the antibodies, you are protected. Sometimes B is handled by the immune system....sometimes not. Mine was, but before TP, they still gave me vaccinations against B, and also A....

11/18/2013 12:44 PM

Hepatitis
Not sure how to get treatment

Unit, welcome to the forum. It is very dangerous to self-diagnose. It takes YEARS of heavy drinking to develop cirrhosis, unless there are other factors involved...such as overuse of ibuprofen or...

11/18/2013 12:40 PM

Hepatitis
Post-Transplant Blog, Pt. 10.

The problem is that my docs haven't seen my feet and legs. This all happened after I was discharged. I told my TC about it a couple of time and emphasized how inflamed they are, with open sores, but...

11/17/2013 9:27 PM

Hepatitis
Post-Transplant Blog, Pt. 10.

SOB has improved greatly since I've been draining. Drainage is still at 600 ml every other day. I went 3 days last time and still only got 600 ml. This works on suction and only will go to 650 at...

11/17/2013 10:57 AM

Hepatitis
Post-Transplant Blog, Pt. 10.

Carol, I'm not at all anxious about the EEG results. I don't think there's anything wrong. Remember that the CT of my head was clear. This test was just a matter of them covering their behinds. I AM...

11/16/2013 9:38 PM

Hepatitis
Update

Sandi, thanks for the update! So glad to hear that things are going well in general. If you are truly unhappy with the pay, etc., at your current job...find another. With your qualifications, I...

11/16/2013 9:29 PM

Hepatitis
Post-Transplant Blog, Pt. 10.

I finally have an opportunity to update and tell you about Wed.'s appts at Mayo, where I had an infusion of albumin and an electroencephalogram (EEG.) I was given a time of 11 AM for infusion on the...

11/16/2013 9:56 AM

Hepatitis
6 days sober!!

Also avoid ibuprofen. It's terrible for a diseased liver and even a normal one. Also hard on the kidneys. Canned foods are loaded with sodium. You have to become a label reader. Many products (beans,...

11/16/2013 9:22 AM

Hepatitis
Need help with results:

N18, I am SO glad that you got with a good specialist who answered your questions, did further testing, and put your mind at ease. So no treatment at all? Given your childhood background, that is...

11/16/2013 9:14 AM

Hepatitis
Confused

DHolmes, best of luck to you and do keep us updated. In the future, would you do me a favor and not use "Twitter speak" in your posts; i.e., c, n, u. Please spell out the actual words. It's really...

11/16/2013 9:04 AM

Hepatitis
cured of hep c, Part 2

Congrats, Def! Hugs, Connie...

11/15/2013 8:46 PM

Hepatitis
alt, ast and alk phos are elevated....

Alk phos is high at 338. Mine is now 144 (normal is 55-142), but has been close to 300 in the past. And this is with a liver transplant. Your other questions need to wait for the doctor. Do get a...

11/15/2013 10:08 AM

Hepatitis
Sofosbuvir and Ledipasvir Treatment

2015? I didn't know that! In fact, what I keep hearing is next year. So I'd better pray doubly hard that I get into this trial. I'll know more about all this next Fri. Hugs, Connie...

11/15/2013 10:03 AM

Hepatitis
alt, ast and alk phos are elevated....

It won't "disappear" but mistakes are made. Also, it could shrink. It really depends on the reason for the blockage. What I'm saying is there is nothing to be done right now, so he's not going to...

11/15/2013 9:38 AM

Hepatitis
6 days sober!!

Mummy, I certainly didn't mean to imply that you are cocky. I think you have every right to be proud of your 6 (now 7?) days. What I meant was to not become complacent about your sobriety or let your...

11/15/2013 9:32 AM

Hepatitis
Sofosbuvir and Ledipasvir Treatment

I didn't say that, Barry. I said that Mayo expects the new drug to be available sometime in the first half of 2014. Right now, they are submitting names for the trial...or maybe have finished that by...

11/14/2013 10:16 PM

Hepatitis
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