Thanks for all the responses. We are doing the recommended stuff...it is important...Mike wears gloves to pump.gas AND going in doors...and wipes at grocery stores. I hadnt thought about the keys i....
My partner, Mike, has dpne very well since his liver transplant 9 years ago. But now this pandemic virus has me nervous. Is he more likely to get horribly ill is he catches it? We are pretty much...
My partner, Mike, has dine very well since his liver transplant 9 years ago. But now this pandemic virus has me nervous. Is he more likely to get horribly ill is he catches it? We are pretty much...
Brian, have we lost you again? Mama Lama...
Brian...I don't check in so often anymore, but WOW, I am so glad to hear from you. Though not so glad to hear about the recurrence of AIH or a rejection episode for your wife. They happen, and I am...
Mark, Being an advocate for your son is sooo helpful. Most with Hep C or cirrhosis from other causes are not quite in the right frame of mind to advocate for themselves. My partner of 37 years has...
Happy New Year, Wishing you the best. Losing weight is really hard...good luck with that. As your numbers normalize, HOW ARE YOU FEELING. Keep us up to date....
My yhoughts are with you. Hearing is the last sense to fail...let gim hear your loving words as you face this together......
Oh, my, Susan, I have worried and worried about you as we had little news after you were in such a bad way... And now POST TP you are doing so well. Best News of the DAY!!! Things good here...Mike is...
hi raggadyann, when a patient has decided it is "enough", i have realized, as my friends are of an age (70s and 80s) that death is a reality we all must face, and that we have some control of our...
liver failure can be caused by multiple reasons...some that progress over time and others that can have rapid onset. alcoholic cirrhosis can cause liver failure over time, but some poisonings our...
Welcome to the forum Srah. If you are near a major medical center and have any concerns about the care your wife is receiving at at community GI practice, be sure to escalate or get a second opinion...
Ziff...worried about you...things seem uncertain in your part of the universe...health issues, relapse, and family stuff are a heavy load. When you put your mind to it, you do your best work. Things...
The press has been following a new NON live virus shingles vaccine called Shingrix. Mike is post liver transplant on the Immuno-suppressant PROGRAF (small dose now after 7years). He has always been...
Emma, I am so glad to hear from you, but sorry to hear that you both have been through multiple horrible medical crises. When liver disease is bad, other systems seem to fail. Mike has had cardiac...
raggadyann17...yes a long road. Mike was sick sick from 2003 til 2010...and since his liver transplant he has had open heart surgery, 7 ortho surgeries, 2 incisional hernias over the transplant...
my heart goes out to you...and yes...both of you are living through this. have you confidence in his liver docs? do you need a second opinion? one member shopped for a center...she lived in ny and...
https://www.healingwell.com/community/default.aspx?f=25&m=52986 This is a good post in the RESOURCES up above. Lots of definitions for things like HE and ESLD. ML = Mama Lama...
hi ymama...the meds are always a balance. I too have CDiff, but am not the liver patient in our family. I acquired in the hospital in 2015 when I went in the hospital with sepsis after a ranging UTI...
Do you know that Meld scores that qualify for TP vary from region to region? Or they did when Mike had his. Here in Florida the average was 22 at his time. In the Northeast and Westcoast Meld may...
RA At our house the path has been just the opposite: liver transplant in 2011. now stage 3 kidney disease. They have changed his rejection meds, but each time his TPed liver gets cranky...so he is...
When/if you DO need Xifaxan, the advice you have been given is good...try a card plan and try to have your doc get a pre-authorization. I wrote a letter for Mike with a line in it like this: "My...
I may have had it upside down. Plenty of articles...check google. Here is one: https://en.wikipedia.org/wiki/AST/ALT_ratio ...
LH, look up the ratio between AST and ALT. With Alcoholic cirrhosis, the ratio is generally 2 to 1...which this one is...the docs will spot that right away. NO alcohol is the best advice. Good luck....
Hey, arneeb...great to hear your "voice" on the forum. Greetings from the great state of Florida, where it was over 90 for a while this week...already! Hugs, Mama Lama...
Ppm...thx...from your lips, as they say... C...
Hugs back to Lanie and Emma....
My partner Mike is 7 years and 2 days post liver transplant. He was transplanted at Jackson hospital at the U Miami Transplant program after a long and difficult waiting period. His liver disease was...
Carbear Mama...I am keeping an eye on this post too. My partner Mike has had it all...cirrhosis, heart disease, kidney disease...high ammonia for a year or two, etc etc. Let us hear more about your...
Hi Mapolonio, My partner, Mike, has been in your mother's shoes im 2010...very ill, every symptom. He had hep C, alcoholic cirrhosis, and eventually liver cancer. Being an active drinker meant he...
Hi ra17, Your other half is having a rough patch. I wonder if he is getting care at a major medical center with a hepatologist who specializes in liver disease. My partner, Mike, was working with a...
bijoux, There are exceptions made on the waiting list for certain liver cancer tumors...giving you extra "points" on the list. There is quite a bit of information on the UNOS websites. Check it out....
At your TP center, what is the Meld Score where they get to the top of the list. What is it now? How is she doing with the wait time? End Stage before Transplant can be difficult...we know, as my...
Kynnb Thanks for posting. I am thinking that as a young, healthy person, your docs don't see anything urgent going on and are giving you the "don't worry about it" approach. But I am a long term...
go to the search bar above and put in a key word...ascites..,and you will see many posts..,good and bad or look up "ziff" he has conquered terrible ascites for years mama lana...
This is a Happy New Year report for sure. ML...
Hope you had a Happy Birthday. You are doing great, an inspiration for others. Keep up the good work. MamaLama...
I went through this sleeping stuff with Mike. When his ammonia was really high. I felt I had a decision to make...let him slip into a coma on the couch and let him pass quietly without the ER drama....
hi fletch 10, welcome aboard the hep forum. I agree with ppm guy, after biopsy, check with the hep docs. I will send our AIH moderator a note so she knows to keep an eye out for your posts. She notes...
Hi Mikey Bjr I think your wife should get a second opinion on the ALT/AST numbers. Those are high for normal stuff like alcoholic cirrhosis or Hep C, which I am most familiar with. However, there are...
Hi Weets. WE are glad you posted in. My Mike has the same type story, diagnosed in the 90's did a YEAR of the Interferon and Riba and nearly did himself in. He was sober during the treatment, but...
shad0w69 ML is back, but not as active as at one time. The combination of issues you talk about...liver, kidneys, heart...are not unusual. We see these reports all the time. My Mike, TP six years ago...
Hi Wstport... check out the list of the specific forums here: https://www.healingwell.com/community/default.aspx ...
My partner Mike just lost is 65 year old brother to liver cancer metastasized to his spine. Nothing could be done. We are in the US. They had treated him for the liver cancer but it was doing its...
Thank you. Since this brother was younger it was a shock...especially since they shared a diagnosis...and Mike is still with us...makes you really think....ml...
I agree with ppm guy. The boing boing boinging sounds are weird but not uncomfortable. Test not long. The mri center will confirm beforehand what they require...nothing like a colonoscopy where they...
AT 9:30 last night, Mike's brother passed....at peace with his God and his brothers and sisters at last. The VA has looked after him wonderfully and Mike was with him for most of the past month. It...
thx...i vote for taking care of yourself, if i get a vote in this! ml...
Aih like other liver diseases, in advanced stages caused cirrhosis of the liver. In the early stages it may not show up like later. But I am no doc and can't diagnose. And, it is episodic so hard to...
Thx...C...