Had my 3 month follow up since my last visit in June 2022. Good news is my insurance is now covering Vemlidy (TAF) again. They had to make a special case for me in order for insurance to cover it....
I'm sure many of you have followed my journey through the clinical trial of TDF vs TAF since 2014. That journey ended at September 2021 as I was actually the very last patient to complete the trial...
October 2021 Update (The Last of my clinical trial): Here were the last and FINAL results from this Clinical Trial. The trial ended and I am now my medication through my insurance. I started this...
April 2021 Update: Hi All, So I wanted to share my latest labs regarding this clinical trial. I have been so blessed to been on this trial for 7 years. This was the last time I am getting any free...
October 2020 Update: Hi All, Just some updated numbers from the trial. FYI, I was told I may be the last person left on this trial so this time next year, it will be ended. I discussed this with my...
I cannot believe I have not updated you guys since May 2020. Wow! So non Hep-B related, I've had 2 neck surgeries since then (One in July 2020 and one in May 2021). I'm still no right there but it's...
Wow what a long 6 months it has been. I actually fell extremely ill from Feb-March. I was doing good trying to lose weight and at some point in January hit below the 200lb mark. Something was going...
Adding more to this as per my results: The liver is normal in configuration without evidence of steatosis or cirrhotic morphology. No mass is seen in the right lobe of the liver in the area of...
Update here for those wondering. Had my MRI this morning and doctor's office called me back same day. Naturally that made me concerned but they shared "Everything came back clean and there was...
Hey all, been a bit since I've posted an update and glad to see so many folks are following this as well. Just an update on my numbers here from my latest labs: HBV DNA IU/mL: < 20 IU/mL HBV DNA...
Wow that is a lot. It is a full arena for sure. Maybe one day I'll be talking about this and how I was cured as well, in front of that many people. Hopefully that cure is very soon!...
Yup, this is still going on for me and I'm happy about it! I think I have 2 more years left. My doctor has been hinting at some of the newer trials in Phase II that are targeting a cure. I may...
Hey everyone, just wanted to offer up my latest test results on this as my trial continues. Looks like I'm done at end of 2020, so 2 years to pray or try and cure myself here before I make a decision...
Been a bit since I updated, figured I'd offer some more and what has happened between my last appointment and this one: I walked in and found out I'm about 15lbs heavier than I was from December. So...
Thanks Barry, yeah I'm watching all these trials to see if I qualify for any and if they cure anything or when they may be available in next phases or even approved by FDA. As far as I know, 1-2...
Sorry all, been kind of quiet here but... Since my trial continues to go (I really lucked out on the 5 year extension) then I'll share my results some more from my last visit: HBV DNA IU/mL: No HBV...
Yup, typo, it was actually 1.07... right within range....
Thank you. Feeling, for me, a lot better each and every day. My mind has been the clearest it has been in a while (and even more so compared to 8 months ago) but I know it's a long journey. I feel...
Want to share more, got my results back today after a 6 month follow up and here's where I am on my numbers: HBV DNA IU/mL: No HBV DNA Detected Total Bili: 0.3mg/dL Dir Bili : < 0.1 mg/dL Ind Bili :<...
Keep in mind that what was done to get those numbers was a "home test". Usually this us just a prick of a finger type of test and the blood gets put on a strip to give the results. How accurate can...
Thankfully, I do not and if I do then I don't notice it. The worst I've had was fatty liver and even that has seemed to subside (as you can see with the numbers in a very long post of mine). I have...
I suffer with a chronic case so want to reply... and answer your questions. How did you get it? Don't know. For all I know, I had it most of my life. I was never tested for it until I wasn't feeling...
As ppm guy suggested, get a test on your viral load. This will give you an indication if your virus is replicating. What can occur in Chronic Hep B infections (such as mine) is that the virus can...
Thanks Barry. Yes, I think more sensitive labs are now at 10 or even below. What I'd like to do is get my HBSAG measured. That will tell me more. Living a normal life is important. At first, it was...
Just an update as to where I am with my numbers: HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected Total Bili: 0.3mg/dL Dir Bili : < 0.1 mg/dL Ind Bili :< 0.3 mg/dL AST (SGOT) - 21 (down 2 point) ALT (SGPT)...
I'd be more curious to know if you did anything to get into "remission" Like you, I'm considered a chronic active carrier. Has been like this since 2013 (at least when I first discovered). Did you...
Thanks Barry! I'm glad it's going the right way so far. If my hbsag went negative, then I'd discuss with the doctor. Typically, what I have read, is that doctors will keep the patients on the...
Wanted to share more results. For those that remember, 3 months ago, my ALT and AST took a huge spike and my CK was at an alarming rate. I decided to not work out AT ALL other than doing some yoga....
The next part will be in November and then I believe one more in January or February before I start going back in 6 months. I'm not too keen on my PCP to be honest, especially after I felt they...
Hey Barry, thanks for the response. They never really looked into the CK issue mainly because it was not an issue. It would always fluctuate. Some tests would be just in normal, some of them a...
Wanted to share some more, got results back after 6 months of TAF. Here is what I can share: HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected Total Bili: 0.3mg/dL Dir Bili : < 0.1 mg/dL Ind Bili :< 0.3...
Thanks MamaLama!...
Thanks Barry.. not on any statins, kidneys are ok and they monitor the ca ox every 6 months I believe. As for the CK, I believe the last answer I got from them was "sometimes with strenous exercise,...
Hey All, it's been a while but I wanted to share some results with you. Before I do so, I have some decent news. I was asked to extent my trial for TAF and it was extended for 5 years. My blood will...
It's funny that you mention this! There are theories, mainly through Chinese medicine, about liver ying and yang causing tinnitus. I wanted to comment because I started to experience this when my...
So here we go, got my results back pre-TAF (I officially started this so now one pill only!). Here is everything you need to know (or at least what they took): HBV DNA IU/mL: < 29 IU/mL HBV DNA...
Hi there, sorry I didn't get a chance to respond sooner. The clinical trial is still going on but it's not "open" any more... meaning that they are not accepting new patients. I think this stopped...
Sorry for not updating you all here. I've actually focused my updates on another forum, since this one mainly focused on Hep C and reading some of the more severe liver issues was VERY depressing on...
Hey all, been a while since I've posted. Nothing much to report so wanted to share the latest: Just got my latest results back: HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected HBsAg Total Bili: 0.5mg/dL...
I guess I can be considered the local Hep B expert at this point since I'm on the treatment. David is right, your PCP will not do much other than reccommend you to a GI. Even with a GI, I'd suggest a...
Thanks, miz! On that note Just wanted to share latest results: HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected Total Bili: 0.3mg/dL Dir Bili : < 0.1 mg/dL Ind Bili : <0.3 mg/dL AST (SGOT) - 35 (down a few...
Sorry I have not been as active, updating more. They are now watching me every 2 months. I got results from my latest DXEA Scan about a month after it happened. Here it is: Region: Spine L1, BMD:...
So wanted to provide another update... before I start, I had this lab drawn on 03/30/2015. During that weekened, I had decided to try Dr. Oz's weekend cleanse program....
Miz, I am always glad to share and willing to answer any and all questions. I love helping people as much as I can who are going through the same thing that I am going through. I have been more...
Sorry I have not posted much. I've been pretty busy with life, but wanted to share the latest with my last appointment on March 9th as we as questions and answers I had from doctor's visit: HBV DNA...
Hey Vickie. The ringing in the ears is still there but very faint. I'm still not sure if this is caused by the virus or is being caused by my bite being uneven after dental work. I may be getting my...
Been a while since I posted here, so I wanted to share: So here is my monthly update. This lab this month did not include a lot, since the schedule did not have it. Here is what I can provide though...
MamaLama, I'll be thrilled when the Viral Load says "undetected" to be honest. This is the closest it has been. I'm feeling a LOT better than I did this time last year though, so that's a good sign....
Wanted to share more numbers and update: HBV DNA IU/mL: < 29 IU/mL HBV DNA Detected HBV LOG 10: 1.46 (It went up from last test? WHY?) Total Bili: 0.6mg/dL (Increase of .3) Dir Bili : 0.1mg/dL Ind...
Believe it or not, I had Periodontal disease with Hepatitis B. Not sure how or why it's related but it's pretty crazy....