Talked to dr today. he said it's sounding more like crohn's than UC flare so will have to scope again... back on Lialda and steroids for control until I can get in for an appt. Argh. My labs seemed...
Yes, was 1.1 in June, now is 91.5...... have yet to hear from the doctor who ordered the test but it's Thanksgiving time, so will probably not be until next week.... aaargh....
My UC was in remission for a few years until recently... it coincided with me weaning off cymbalta and a lot of stress in my life. I weaned off cymbalta cause I thought it was not adequately...
Julie, at what dose of each (cymbalta and savella) did you start to get the symptoms? What ended up working for you?...
I know this is an old thread. I am just starting Savella after 4 years on Cymbalta which was not fun to come off of... Wondering if anyone has positive things to say about it and if so, did it work...
Well I got an appt with my rheumy for the end of the month. I'm hoping to talk about maybe switching to Savella from Cymbalta. Have heard horror stories though about coming off Cymbalta... a bit...
Namian, is Savella available in a generic? Or is it brand name only? I realize nothing will take the pain away 100%... If I can achieve 50% I'll be happier.... I also know it has to be a combination...
I've tried amitriptyline, and Cymbalta. Both worked for a while but now it feels like they no longer work. Does anyone here use Savella? How do you like it? How does one transition from one AD to...
Memory foam bed (fake tempurpedic), heating pad and far infrared dry sauna. Only wish all the help aids kept the pains away, and were not just temporary......
Hi Loring, How are the occipital nerve blocks working for you? I tried those initially and they worked great for me, but only lasted 5 hours at the longest. They were supposed to last a couple of...
I know it's 3 years later from when this was posted, but I'm wondering if the botox helped or not. I just had my first set of shots 3 weeks ago and it's been hell. I also have FMS but developed major...
Cymbalta went GENERIC for those of you who were not told. I still take 90 mg daily and it still helps me....
If you take Lialda, you can sign up on their website for a discount card where your prescription will not cost more than $10/month. I used it for a couple years and they send a new card each year. My...
Have used sinus rinsing daily for the last 5 years since sinus surgery. Twice/day when sick (as presently). I was surprised dr took me off Lialda but he said no more symptoms means I can wean off....
I am suffering with a sinus infection following the flu last week. My dr put me on SMZ/TMP (Bactrim) for 10 days. I think I've taken this before with not a big problem but here we are on day 3 with...
Wait, what do you mean they only cover the second 1/2? I didn't know this.... Anyone out there with FMS get relief from infrared sauna? I have heard it has great health benefits......
Funnily enough, my one rheumatologist wrote me a script for a hot tub/therapeutic spa.... haven't filled it yet as don't have the money... but he said it would be tax deductible... hahaha... not sure...
Yes, have been on flexeril for more than a year now. Originally was alternating flexeril and tizanidine but the tizanidine was not doing much. I sleep great if I take 3 advil but I cannot do it often...
I use a muscle relaxer every night... and heating pad too. I think you're right though, it's the swings in temps. When it's cold, rainy or even foggy, things are really bad. And I live in dry...
I forget every year when I feel improved over summer that fall brings a FMS flare... everything hurts. Hips and shoulders and neck are worst right now and I need to get back to painting the house.......
Not on my neck, but on the front of my chest... arrived after the birth of my son. Only goes away with steroid cream or oral steroids... never been diagnosed but one homeopathic dr said weak...
You might want your dr to test your thyroid and adrenal levels. When they are unbalanced, it can make my fibro worse....
I can comment that I have less pain with higher levels of estrogen (hormones replaced) but I also take progesterone and testosterone. I initially only had uterus removed, it was after ovary removal...
I had the hysterectomy and ovary removal pre-FMS dx. I think it didn't help, in fact it may have stressed out the adrenals even more which led to other issues. Trying to balance hormones is a royal...
Thanks Karen. Never really thought about the barometric pressure... we're so dry here in CO that we've had no rain for weeks.... just wind, sun, hot.....
I was wondering when the worse fibro time of the year seems to be for you all. I have noticed over the past few years that I seem to peak with symptoms in late August... not sure why but pain is...
I drive a Honda Element. I LOVE IT. Seats are at perfect height, can adjust driver seat up and down and can open back up completely. Sadly they stopped making them but I will NEVER part with this car....
That is the generic name for Cymbalta but there are currently no generics available. I even checked at the pharmacy... I think it will be a number of years before there is one out there since...
Was told there are NO generics for SNRI right now... only SSRI which is not as effective for pain.... bummer. You're right... just kills me that so much of our monthly income is going towards meds......
Wow, thanks for your responses. I did talk to my rheumy about alternatives at my last visit. She said that Cymbalta, as a SNRI has helped more of her patients than the others... and yes, why change...
Haven't posted for a while, was doing great. Had been diagnosed with adrenal insufficiency due to primary pituitary deficiency... so got put on hydrocortisone. What a miracle drug. Gave me my life...
I've only been dx with FMS for about a year and a half now. I know I've had it for years though. I am taking Cymbalta 90 mg daily which has helped me greatly. It lost some of its effectiveness after...
Don't worry too much about it... I have discoloration on my belly from long term heating pad use... it mostly shows up when I've been in the shower. My mom has burns on her back from using one too...
Works for me too. I take 90mg/daily. I had the initial weight loss too, then my dr dropped my thyroid hormone dose and the weight crept back.. but it was hormone related, not cymbalta related.. It...
Have communicated with some women who have done it and loved it or hated it. The upside is that when it works well, it works well. The downside is that if it doesn't work well - you get a huge rush...
The amitriptyline was prescribed more for the IBS portion of my colitis... the urgency. It managed to slow things down a bit. Was not Rxed for anti=depressant properties... low dose....
I have ulcerative colitis and have taken Elavil/Amitriptyline. It was prescribed by my gastroenterologist to calm the gut. It did help. I did quit taking it though as it stopped helping my FMS. I...
I am hypothyroid and take Armour thyroid. I had my pain for FMS under control with Cymbalta until my dr decided to cut my thyroid dose (due to suppressed TSH which I now find out may be...
Thanks for your comments... I have looked up massage therapists and am clueless as to which type of massage I'd be looking for... there are so many varieties... so myofascial release is the one I...
Pyridium is the drug that causes your urine to turn orange or dark yellow. Caution though... it is very tough on the liver... so I was told that if I used it, to use no more than a few days at a time...
Yes, multiple white lesions throughout the brain... found in brain MRI. No explanation given.....
Thanks, will look up therapists in my area......
The sweating thing happened for me with Cymbalta too but it DOES GO AWAY with time.. I think it lasted a few weeks before it subsided... thankfully. As did the off/on nausea (lasted less than a week)...
After car accident (hit at a stop sign) last December, have had chronic neck pain. Went to chiropractor weekly for adjustments. I always slept best the night after the adjustment. However, the...
I switched from tramadol nightly to cyclobenzaprine (generic for Flexeril)... helps me sleep more deeply. Just have to take it early or I feel drowsy the next day....
Check askapatient.com to see if it's a symptom others have had with Cymbalta. Headaches can be anything... neck vertebrae out of whack, low estrogen or changing estrogen levels, fatigue, stress,...
I take Armour Thyroid... has more than the T4 only... have you been to the site: stopthethyroidmadness.com? Has tons of great info. I tried T4 only for a few years... felt like crap... still had all...
acheybody, do you use t4 only or armour or t3 or what?...
I think I'm in a "flare" but not sure.. very stressed out lately and now my symptoms have returned. However, I wonder about the thyroid connection too as my dr recently dropped my thyroid dose.. Not...
Follow up: developed a hematoma at the surgery site which ruptured Saturday all over my bed... blood everywhere... ruptured through the incision line... and now has refilled up. Back to dr tomorrow...