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vitaka

HealingWell Forum
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Member Profile
Display Name
vitaka
Profile Created
6/5/2006 6:35 PM
Last Seen
12/10/2019 3:41 PM
Total Posts
916

Last 15 Posts

Crohn's and cancer

Thanks all. I've been on this board for 14 years and have always valued your support so much. I have a MRI tomorrow and my "tumor board" meeting Thursday, so I should have details on the staging of...

12/9/2019 6:11 AM

Crohn's Disease
Crohn's and cancer

Hi all, I was wondering if anyone had insights/resources related to whether/how cancer treatment affects IBD. I recently switched from Entyvio to Stelara (have only had my first infusion). This week...

12/6/2019 6:53 AM

Crohn's Disease
Entyvio and frequent sore throats

My skin is frequently itching, but I get random rashes/bumps and I'm prone to bug bites. Thanks for sharing about saccharomyces boulardii; I'll look into that....

8/8/2019 7:21 AM

Crohn's Disease
B-12 update

That's so weird. I have that sensation too with my hair, but I really think it's my hair most of the time (I also shed a lot). I get a lot of muscle spasms/tics as well, but it's annoying because my...

8/8/2019 7:19 AM

Crohn's Disease
Entyvio and frequent sore throats

Hmm, I get a sore throat pretty frequently but I also have bad post nasal drip and I've attributed it to that. Any immunosuppresant increases your likelihood of getting sick, so maybe you're just...

8/2/2019 6:01 PM

Crohn's Disease
B-12 update

That's awesome! I started getting the shots but it hasn't touched my fatigue. What did the creepy crawly feeling feel like?...

8/2/2019 5:57 PM

Crohn's Disease
Is Entyvio Effective At Treating Crohn's Flares?

I've been on Entyvio for about 2.5 years. Just got results back from latest small bowel endoscopy and I am actively flaring. We talked about switching to Stelara but instead we're going to try adding...

8/2/2019 5:55 PM

Crohn's Disease
Question about Remicade infusion : Does after 4 weeks mean after 28 days?

If infusion day is Day 0, then your next infusion can be on Day 28. So you want a full 28 days between infusions. I agree with Lab, though, it probably doesn't make that much of a difference but...

3/23/2017 7:26 AM

Crohn's Disease
remicade and employment

Lab, what type of job/industry will you be looking for a job in? There's tons of variation across different types of work....

3/21/2017 2:15 PM

Crohn's Disease
Care and infusions while in college

To echo the others, they should find a GI in the college's area (not at the university, as they typically only have primary care docs), at the very least for emergencies. The distance makes it a bit...

3/21/2017 2:09 PM

Crohn's Disease
Rheumy response to joint pains

I've had similar struggles with multiple rheumy doctors. When I first started having joint issues in 2009, the rheumatologist I saw thought there was something going on and put me to methotrexate. I...

3/21/2017 2:00 PM

Crohn's Disease
If these were your stats, what would you push your Dr. for?

Pill cams can be very good at finding disease. This is how I was diagnosed in 2006 and I know there are others on this board who have also been diagnosed via it. My GI then confirmed with a...

3/14/2017 8:11 AM

Crohn's Disease
New to lialda

I have had a similar experience to scifigal in that Lialda is similar to Pentasa for me--it doesn't seem to help at all. I don't remember negative side effects from it and if there were any, they...

3/14/2017 7:40 AM

Crohn's Disease
Started entocort

Here's hoping for quick relief from the Entocort lamb! And is it just corn or anything that's high fiber? Corn seems to be especially pesky for Crohnies because it doesn't really break down *at all.*...

3/9/2017 2:07 PM

Crohn's Disease
Constipation and inflammation

Remicade caused me to have pretty horrible constipation. I found that magnesium citrate worked much better than Miralax for me. I think the version I've used is this:...

3/8/2017 7:24 AM

Crohn's Disease



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