hi! actually, after all the preliminary tests were done, she didn't qualify as her white blood cell count wasn't high enough. With her, you never could go by her blood work. So, she is now taking...
thank you!...
My 20 yr daughter just started Humira on Monday, in the pen form. I am just wondering if anyone has any suggestions to make things easier on her after. She was very tired and flu-ish after her...
I find rubbing on some Polar Lotion [Icy Blue] and then adding a heated grain bag helps me the most. The moist heat is awesome!...
how did you find the care you got while you where on this study? My 20 yr daughter will be starting a trial study in a few weeks............ for MLN0002 Trial -AKA- Vedolizumab...
a really good and easy prep to do is the Pico Salax. I've used it and so has my daughter. Highly recomnded...
My daughter, Jerica, who is now 20, is having another sericous flare and her Gastro said she was a good candidate for the study of Vedolizumab. Any one here partake in any studies? Is this a good...
just wondering if there is a prep that needs to be done when getting this done? DD is going to be getting one, but the dr didn't say, just that they would call when she was to come in. Thanks!...
Does anyone know anything about this? My DD Jerica is going to be starting Humira, but if she fails that the dr talked about the stemcell transplant. Where do these stem cells come from? What is all...
one thing I found for my daughter was when she finished her 2 loading doses and had the rest of her infusions near home they did a longer saline flush than at the other place. when she had her first...
MRI's are supposed to show quite well and you aren't exposed to radiation, but, I guess barium is an important part and my daughter had no problem with it. We won't be getting our results till the...
My daughter has never had "pop rocks" for a SBFT, but I did one time when I had an xray for an ulcer. What they did sounds just like the ones my daughter has had. She just had an MRI in place of a...
Just wondering if anyone has had an MRI to check for Crohn's status, inflammation etc?...
Just wondering if a small bowel follow through would show this? She's had a number of these....
thanks for this info, spasman, never heard of this before. Maybe on to something..... worth checking out anyways :)...
kitt, does he have IBD too?...
well, like I mentioned, at least I think I did, she is having an MRI on Feb 25, GI said it was better as no radiation is involved. I think you can get a better look at everything inside that way too....
oh yes, she was officially diagonised by a GI after colonoscopy with samples taken [can't think of the right word right now]. She definetly has Crohn's. In her TI and large colon. She has totally...
ok, thanks for clarifying what I already thought. We will have to come up with something different. thanks!...
Jericas GI suggested she take Aleve for her pain as T3 constipates her. Is he nuts? That is some pretty serious anti-inflamatory! Not something I thought Crohn's patients were supposed to take....
bump...
I have IBS-C as well, and what has really really helped me is taking Magnesium and Ester C supplements on a daily basis. You need to take a fairly health dose and after a few days things should start...
She is going for an MRI on Feb 25/08 which was scheduled since early January. Her sypmtoms started to return mid Dec and have gotten worse. The colonoscopy was with one days notice, but we'd been...
My daughter who is 18 has Crohn's Disease. Yesterday she had a colonoscopy with the hopes of dilating a stricture she had in her Terminal Ileum. Well, when they got to the spot that is causing her...
well, the day is done. There was a windchill factor of -47C this morning when we started out, and school was canceled. We got there fine, but had alot of trouble locating parking and I had to park a...
She is doing a prep called Pico Salax. We live in Canada and this is a very easy prep too do. I've had it myself. It is a powder you mix with 150 mls of water and it taste like orange. She took the...
thanks Lynn, did you find it very painful after? How long did it take for you to recouperate? My daughter has to work the next day!...
my daughter is on very short notice having a colonoscopy to dilate a stricture tomorrow morning. I only found out today. She hasn't been able to eat anything solid in over 2wks, and before that no...
for someone who Diarrhea isn't an issue, does this surgery always come with D?...
hi styxgurl, My daughter is on Remicade and she gets a 1 hr saline flush after....that makes a world of a difference on how she does after. Her first 3 loading doses were at a different place, and...
my daughter is on Remicade too, had her first double dose last week monday. She started have LRQ pain again....she has a narrowing there..now she can't eat anything solid with out major pain. She is...
I've been on Buspar since the March. I can't take it 3x/day, as the third dose messes with my already messed up sleep. I was taking 7.5mgs 2x/day. about 3 wks ago my dr increased it to 10mgs 2xs/day....
Effexor works for alot of people, but it too, comes with its side effects, and coming off it was the most awful thing I've ever experienced. It totally messed with my already messed up sleep. I don't...
Karen, I think most drs, especially if they are a pdoc know about this problem, they just don't want to do the testing needed as it is expensive, and would be too time consuming to test everyone....
glad this was brought up. On one of my Fibromyalgia boards this is a big concern, as alot of us can't read a post if it doesn't have any breaks in it. Too hard on the eyes and the head. Thanks Harry!...
Harry, thanks for posting this. This is something I have tried to bring to peoples attention, but not too many seem interested. I've posted it here on Healingwell on the depression board and a few...
my dr has put me on Buspar. I am currently on 15 mgs/day. I also take a bit of clonazapam. Effexor was awful for me, totally messed with my sleep and disgestive system, and it extremely hard to get...
This is something I've recently started getting! I tell my kids that its my "spider senses tingling!" Very weird feeling! I've been taking .25mgs of clonazapam and it helps. Still trying to get my...
shortstop, I just came across your thread. Did the clinic say why they wanted a second study done? Do they suspect sleep apnea? If they do, I would strongly recommend following up on it. Is there a...
so I've been taking my Buspar for about[b] 1 1/2 wks now. I am finding it is really messing with my already messed up sleep! there have been 2 nights now where I couldn't sleep until around 5 am. I...
Boomer, Just because you go thru withdrawl when you quit taking it cold turkey[something you should NEVER do] does NOT mean you are addicted! Your body may be dependent on the med, but that is very...
Well, I made it thru the day! /community/emoticons/smile.gif It went quite smoothly , there where 23 people over for supper and for snack later in the evening. I had most things done before everyone...
I know some people use this on their pets too...
does this stuff interfere with meds?...
Well, yesterday wasn't a very good day for me /community/emoticons/confused.gif I couldn't fall asleep the night before till 5am. I think it had to do with my new med busporine. I had to meet my...
maybe we are the "normal" ones, and everyone else are the ones with the problems?? ;)...
Well, it looks like I will be hosting my hubbies Easter family gathering this Friday. He has a rather large family. . I am the type of person that likes to have my house perfect when I know that...
gosh! I am soo sorry! /community/emoticons/redface.gif For some reason I just assumed you where a "she"! Well, we know what happens when we "assume"........ Hope you can forgive me! Heres an idea....
most herbal teas are decaffeinated...
I was going to suggested maybe she needs to decrease her a.m. dosage to .25mgs. When I first went on Clonazapam I couldn't believe the difference it made for me. Of course, I was taking it for my FM....