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jamief

HealingWell Forum
>
Member Profile
Display Name
jamief
Profile Created
2/24/2005 9:14 PM
Last Seen
9/28/2010 7:42 PM
Total Posts
200

Last 50 Posts

Chemotherapy

I do remember reading and researching the stem cell treatment for crohn's. If I'm not mistaken, and correct me if I'm wrong, they are using chemotherapy and drugs similiar to that to kill the immune...

9/27/2010 11:43 PM

Crohn's Disease
Pregnancy question

I am pregnant, very much so, at this moment. My doctors tell me I'm a high risk patient but I still go to the office on regular days like any other pregnant woman. The way the office here works, we...

9/27/2010 11:34 PM

Crohn's Disease
Taco Bell was a bad idea

haha I think this is pretty funny.. I had taco bell as my "last meal" on Sat. before doing my colon prep Sunday. It was the one thing I could think of that usually comes out that way anyways :). It...

1/18/2010 6:50 PM

Crohn's Disease
Dose any one with Crohn's have problem with digest food

Are you eating foods considered roughage? As in, salads, seeds, nuts, fruit peels, raw veggies etc. If so that could be an issue. I found that when I wasn't digesting anything it was usually due to...

1/18/2010 6:44 PM

Crohn's Disease
Resection tomorrow

The very best of luck and well wishes are being sent your way! I hope you get the much needed rest and relaxation you need. :)...

Yesterday 4:45 PM

Crohn's Disease
Colonoscopy prep decisions...

UGH. I wish I would have checked the forum this morning before I got my script filled. Went ahead and got the osmos prep. Hopefully it's not too awful. Thank you guys for the input though! I'll...

Yesterday 4:05 PM

Crohn's Disease
Colonoscopy prep decisions...

Hey guys! I've looked into the previous threads about this subject.. but I really need some hands on advice about this. I'm going to be spending my weekend prepping for my colonoscopy on Monday and I...

1/13/2010 6:56 PM

Crohn's Disease
GI says my only option is surgery and I feel backed into a wall.

I am in the exact same position and almost the exact same time frame. I feel you on the only option, I'm there as well. Too much scar tissue and my chances for obstruction just keep increasing if I...

12/31/2009 6:23 PM

Crohn's Disease
what are your Safe foods?

Plain chicken (not fried, no sauces, skinless), mashed potatos with no skin, toast w/ cheese, Ensure. Strange how cheese doesn't effect me but ice cream and milk hurt me so bad I'm in tears. OH! And...

12/15/2009 6:13 PM

Crohn's Disease
I heard about this on the radio the other day...

That was disturbing... in a sort of hilarious way haha. I do feel like that song sometimes... but mainly it's "sittin on a toilet.. ouch" haha. We should probably make our own remix :D!!...

11/15/2009 5:52 PM

Crohn's Disease
Newb: unsure and suffering.

Dread, I know how scary a colonscopy can be for the first time, especially when you're younger. I had my first one at 19, was the youngest patient the hospital had for that procedure so far that...

11/10/2009 6:59 PM

Crohn's Disease
Mexican Parasite, cause of Chron's???

IMHO I can't see going to Mexico being the cause of crohn's.. but I can see it being an initial trigger. Even though they don't say it is, I'm pretty sure my initial crohn's trigger was the MMR shot...

11/10/2009 4:47 AM

Crohn's Disease
New to this site. So bear with me please!

Howdy! I know how you feel, my recent flare is also like yours. I had a similiar experience when they did a colonscopy and small bowel follow through, I was told that surgery seemed like a good...

11/8/2009 11:34 PM

Crohn's Disease
Colonoscopy during Small Intesting Flare?

My last colonoscopy was during a pretty horrid flare in my small intestines. My biggest advice is when doing the prep, go by what it tells you. Like.. it said that if I didn't have a BM within 6...

11/8/2009 10:38 PM

Crohn's Disease
Achy

When this flare I'm in started in October of last year, it was my joint pain that tipped us off to CD being active again. I do not have a rheumy (insurance reasons) so we just focused really hard on...

11/3/2009 2:40 PM

Crohn's Disease
Eye issues.

Thanks for your replys! I will definitely get this checked out. Always better to be safe than sorry. I'll make sure to find a Opthamologist and not an optomotrist too. Thank you for the tip and I'm...

11/3/2009 2:29 PM

Crohn's Disease
The mod's have request...

((((mods)))) To all of you! For keeping this site supportive and wonderous for all of us :)....

11/2/2009 6:09 PM

Crohn's Disease
Benedryl with Remicade

I'm on a different infusion for CD but it is common practice to give tylenol and bendrayl in capsule form at least half an hour before we start the infusion....

11/2/2009 5:14 PM

Crohn's Disease
Getting a second opinion - does it offend your reg doctor?

My very first GI was actually scared of me getting a second opinion. He wanted to do surgery just to get it out of the way, since I was paying him out of my pocket.. and thought it would be cheaper?...

11/1/2009 7:48 PM

Crohn's Disease
Eye issues.

Howdy howdy all. I was wondering if anyone has experienced this and if you think it may be CD related. I know what a stye is, but this is sort of not the same. I noticed this feeling for about a week...

11/1/2009 7:20 PM

Crohn's Disease
Controlling pain

Hot baths and showers. A heating pad for your tummy. Also finding a more comfortable position to sit/lay in could help. Taking it easy. I hope you feel better soon....

10/27/2009 4:54 PM

Crohn's Disease
need advice for getting back on the market

When I met my boyfriend, I was doing alright with my symptoms. I told him about CD within the first few dates actually. It's only fair to the other person, and yourself, to see how they are going to...

10/27/2009 4:51 PM

Crohn's Disease
garnished poo, lol

That is pretty funny!!! It's good to try to look at the funny parts of this disease. I can't have salad.. but it took me so long to give it up (stubborn). I used to eat it.. then shortly after it was...

10/25/2009 8:16 PM

Crohn's Disease
Weight GAIN with crohn's?

Terry I get the preggo tummy too, but it's mainly when I'm flaring. It's like all the food and gas are backed up behind the inflamed intestines. But that's just how I go from okay to looking five/six...

10/25/2009 8:08 PM

Crohn's Disease
Need help dealing.

Thank you all for your responses. I have looked into those diets before, alot of the rules and making the food yourself doesn't seem realistic in my house hold. For one I burn everything I look at...

10/25/2009 6:18 PM

Crohn's Disease
Need help dealing.

Thanks for the hug Nanners. It's understandable to ask questions :). I actually see my GI once a month, along with the research nurse who do blood work (on site and sent away). There has been no...

10/25/2009 12:43 PM

Crohn's Disease
Need help dealing.

Howdy ya'll! I've been sitting here an hour trying to figure out how to explain my concerns, so I'm just going to throw it out there, please excuse any hard to follow parts. Ever since I got sick...

10/25/2009 3:13 AM

Crohn's Disease
Weight GAIN with crohn's?

My mother and I both have CD. She's an overweight crohnie and I'm an underweight crohnie. Her CD so far has been ulcers scattered around different parts of her small intestines. My CD tends to stick...

10/25/2009 12:42 AM

Crohn's Disease
Will you get the swine flu shot?

I am currently recieving the abt 874 infusion. I actually had an appointment and infusion today. I talked to my GI and my reseach nurse about getting the h1n1 shot. My nurse had had the injection...

10/21/2009 11:14 PM

Crohn's Disease
first death from swine flue in Iceland

On the local news tonight, 2 deaths of under 18 due to the swine flu here in North Carolina....

10/19/2009 6:41 PM

Crohn's Disease
What does everyone do for a living? PART TWO

I am currently an unemployed stay at home mom. Before that I was a machine technican at a fiber optics manufacturer. That job wasn't bad until I hit another horrible flare and had alot of other...

10/19/2009 5:43 PM

Crohn's Disease
CT Results...I'm confused

During an ovulation cycle last September, I was hurting so badly they thought I had kidney stones passing. When they did the CT scan of the kidneys they saw fluid buildup in my abdomen and sent me...

5/15/2009 9:17 AM

Crohn's Disease
Anyone been here? Abscess

Thanks for the responses guys. No, my doctor didn't talk about draining it, I have a CT scan for next tuesday to see if that's what it is. I guess the antibiotics are all preliminary because that's...

5/14/2009 3:10 PM

Crohn's Disease
Anyone been here? Abscess

Howdy howdy all. I've been having a time lately with this DD and need some advice or past experiences on this subject. Right now I'm in my second major flare since I first became ill with CD back in...

5/13/2009 6:50 PM

Crohn's Disease
fatigue

I have the same problem. Even when I fall asleep early I still have trouble getting the kids to school in the morning....

3/24/2009 9:29 PM

Crohn's Disease
Update! Now have ileostomy

I'm glad you came through everything alright! As scary as that had to have been I hope it brings you great relief from this DD....

3/16/2009 7:34 AM

Crohn's Disease
Headaches...

Howdy all! I hope everyone is doing well. I just had a question... I've seen one member was on the ABT-874 study and I didn't know if anyone else had tried this yet.... but here it is. I'll be...

3/14/2009 9:52 AM

Crohn's Disease
What's your splurge food?

Salads and strawberries... although they both hurt tremendously.. I do occasionally sneak one.. or both!...

3/1/2009 7:42 PM

Crohn's Disease
Wii made me wee (and poo too)

!!! Animal crossing! I love that game. I have several different fruits in my town and cherries is the town fruit. Lemme know if you guys want to trade friend numbers and you both can come get...

3/1/2009 7:38 PM

Crohn's Disease
Very tiny hole..

Okay I woke up... haha. The medication is called ABT-874. It's a two year study with the drug administered every four weeks. There is a chance of placebo but I was informed if a patient during the...

12/19/2008 7:52 PM

Crohn's Disease
Very tiny hole..

Another update! I saw him today instead of the ninth of Jan. because he wanted me to come in. He wants me to do a clinical research study on a new infusion drug for crohn's disease. It's a two year...

12/19/2008 10:47 AM

Crohn's Disease
Very tiny hole..

Well, thought I'd update. I had my sbft Monday and of course there is narrowing of my TI. My GI already called my mom (because the phone company accidently killed all the phones in the...

12/16/2008 8:51 PM

Crohn's Disease
just diagnosed with crohns

Welcome to Healingwell sulley! Sorry about your diagnosis but you found the right place to be. For a headache, right now tylenol would be the best bet since asprin, aleve, ibprofen, excedrin...etc....

12/14/2008 1:24 PM

Crohn's Disease
New member - in hospital - questions on Azathioprine and weight gain

Azathioprine help put me into remission the first time. It worked really well for me, didn't have any problems from it. Actually lost my pred weight while on it. I hope this helps a little bit!...

12/13/2008 3:56 PM

Crohn's Disease
Sleep aid when using Prednisone

Do you enjoy reading? I have found that when I curl up in bed with a book I get sleepy alot quicker. I don't know if it's because the act of doing so tires your eyes/mind out or what, but it puts me...

12/13/2008 3:52 PM

Crohn's Disease
What do you all eat on a daily basis

I tend to stay away from roughage. Salads do me in so I steer clear of them. I can't nuts either, but I handle peanut butter alright. Dairy products are kinda funny with me, I can have yogurt and I...

12/13/2008 3:48 PM

Crohn's Disease
New Member.......Mom of 16yr Old and needing Answers......fightingcrohns.

Howdy and welcome! I just wanted to add that my mother has had crohn's disease since she was 20. She's 40 now and hasn't been on meds for crohns for 10+ years. After her dx she continued to raise her...

12/12/2008 8:26 AM

Crohn's Disease
Note to Santa

Awesome poetry Sniper! I hope Santa grants your christmas wish this year! :) Happy holidays all!...

12/12/2008 8:19 AM

Crohn's Disease
Very tiny hole..

Fitzy- that's what I was thinking too! Last real flare I was running to the restroom 20+ a day with a shell shocked digestive system. Now it's.. weird. CrohnsCrone and broomhilda- Yeah, I'm hoping...

12/11/2008 9:48 PM

Crohn's Disease
Very tiny hole..

Thanks for the responses ya'll. That's kinda what I was thinking too, and fearing. Guess I'll have to wait on the verdict next week....

12/11/2008 4:07 PM

Crohn's Disease



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