I sure do know what you are going through! The stomach pains, gas, & reflux is how I started out knowing something was wrong up until the dx of lupus. I have had my gallbladder removed & I...
Thanks knickers, I'll try anything to get rid of the scabs & scars I am getting real embarased over the way my shins look....
HI Annie,Where it looks like pin pricks are there also blisters? The reason I ask is because I have this on fingers & toes. It started on my toe & now is on fingers too. It seems to be getting worse...
Hey Lion, sorry to hear the news. I am very curious about how high your bs goes. I can no longer have any sugar because it causes me to go hypoglycemic. I have a fear of turning diabetic myself....
Carol, I still have them but they are better. I go to the dermy the 30th so I will let her take a look. Now I have this strange rash with blisters on hands & feet. I'll tell you if its not one thing...
Kari, Do yourself a favor & don't worry what others think! If it will help you, GO for it! I am the opposite of you ( scrawney ) But I have had to walk out & leave my shopping cart before (...
Stacey, I'm so sorry you & your daughter are going through this. It is bad enough when it is us ( a parent). I was dx'ed by a dermy through a biopsy. My ana is a very low positive. It also has been...
Hi Hippi, I think I get the marks you are talking about, they look almost like avein pattern & almost like stretch marks on my breasts & stomach. Like you said, they are usually there for a few days...
Carol, If you think you are a whiner I don't know what they would call me! I have not been with the forum for long & already you have helped me alot. I have not had to ask all the questions that I've...
Thanks ladys, I have always had problems with bug bites but this is ridiculous. I have been known to go to ER in the past broke out head to toe in hives to find out it started from a bug bite. The...
Oh Ann, I'm so sorry you feel so bad. Please talk openly with your doc. don't try & hide anything from him. I hope you get to feeling better real soon....
Has anyone ever had trouble getting bug bites heal? I've had bug bites on my legs for over a month. They swell & are infected. I do not know if I am diabetic but I am hypoglycemic & can not...
Here I go sounding crazy again. I have had bug bites on my legs for over a month now, they are not healing. They swell & get pus in the middle of the bite. Has anyone ever had this problem? Is...
Thank you both, I was taking them before I started plaq & I think it would be good idea to start them again. I feel kind of stupid asking about all meds but I would rather be safe than sorry. I'll...
Marji, I'm so sorry you feel this way! This damned disease is terrible! I know how you feel about being around strange people & for that matter anyone who refuses to believe you are really sick. I...
Does anyone take probiotics? I was wondering if it would hurt to take them with plaquenil? I am trying to get my body back to near normal as I can....
OMG, my basement is full of mold! My husband would go sray it with bleach when it would get real bad. I'm not talking regular mold, this stuff would get REAL thick & grow like white cob webby stuff...
Carol, I'm so sorry you are having a rough time. We all know stress is the worst thing on us. It is also impossible to not worry about our children, we are mothers first, that is what we do best! It...
Emmie, I can't help you out much on the scan. I did take my dad in for one once. From what I remember they use the ultrascan to get the biopsy of the exact location they want. He did have to stay at...
Gloryroad, I'm no expert but it seems odd to me alot of people here have had to have carpul tunnel surgery including myself. I also have had to put my finger joints back in place( talk about painfull...
Sheryl, I'm sorry you are having such a rotten time with all this. It feels like we are on merry go round & want off but they won't let us! Hopefully they can get you figured out soon & put you on...
Meph, by all means try the shots first. I have had carpul-t surgery & was never offered the shots. The surgery itself was nothing but it almost took me a yr to get full use of my hand! The docs...
If there is no phone number call your gastro's office, they should have a phone service that can reach one of the gastro doc's & they will call you back. I have never took the mag so I'm not sure how...
thank you everyone. The gyno wants to make sure there is nothing else wrong with me because he said if I needed more than one surgery it could all be done at once. He did tell me it would take me...
Oh Marji, I'm so sorry you are having such a rough time. It is so discouraging when docs can't even figure it out. Don't feel bad about crying, not all people think we are crazy. I also understand...
So much for begging for hysterectomy this wk. I called pcp & asked him if hysterectomy would help, all he could tell me was speak to gyno-c. He wants me to have colonoscopy first, then if...
BAbs, Pat & Carol, thanks for responding. Oh to feel younger would be great! I have had problems with my periods for yrs. They suspect I do have endo. I have even seen the specialist who was going to...
Okay ladys I know this is far from lupus but I was hoping someone has some knowledge of this disease. I was scheduled to have hystorectomy when the biopsy came back as tumid lupus. Pcp told me to put...
Ladybug, you need to check with your insurance co. I have had some insurance where you have to be refered. My current insurance I can schedule appts with a specialist myself. If your dr wants you to...
Chaya, welcome to the forum. I am in your situation myself. I was in so much pain 1 yr ago that they removed my gallbladder, of course I thought I would be a new person after surgery, sad to say the...
Stacie, that is exactlly what I do, then I get that under control then it goes to constipation. When I finally am able to go its like I can't get the D to stop. I finally had bm after 4 ducolax & a...
Thank you to everyone. I have tried the stool softners & still can't go even though it is soft. I guess I will be calling doc today. The swelling has let up some today but I was so miserable last...
Oh I know this is so gross but I'm in terrible pain! I can't have bowel movement because it feels like I'm all swelled up. Yes I do have internal hemorroids but the last surgeon I seen wanted no part...
Ladybug, PLEASE go to hematologist & ask for a hemochromotosis test! My father passed away 3yrs ago due to this. It is where your body stores iron & you become over loaded with iron. This is Very...
Emmi, I'm sooo sorry you are having to deal with this!...
stljack, what other tests are you talking about? When I started feeling the bad effects of lupus I developed cyst in my left breast. I had to have mamo, sono-gram & last doc wanted biopsy. My new doc...
Carol, Just wanted to let you know I do the same thing & when I'm tested it is never a infection. But please do watch your temp. I believe when I do this it has more to do with my bowels than my...
Oh yeah! I have not spoke to my mother in law for almost 1yr. It may not be right but its my choice! She informed me I needed to get over myself! Mind you I thought I was dying! I had just went...
Hello & welcome Lupy. I really can't add much except it really helps to have a group you can come to for support where people know first handed what you are going through. I hope you have good...
Thanks girls. If it gets too bad I will do something. The rhuemy who is feeling in for her told me I was on long term meds so the prednisone would help, so I don't know what the problem was. I have...
So much for calling rhuemy about prednisone! The rhuemy who is filling in for her told me she would be back this week but guess what she's not back until next tuesday! I am so sick of dealing with...
Shame on me for telling you this, I know! I don't think darvocet will hurt you. On 1 of my dozens of trips to ER that is what they have gave me a shot of. It takes the edge off but the pain is still...
Hey city girl, that is great. I'm so glad you posted this, my c3 is also down but I've not been on plaq that long. I'm going to stick with plaq as long as I can. At least knowing your c3 is coming up...
Hippi, Tumid is like discoid or cutanious from what I understand. It is fairly new dx. What I think is I'm probably in limbo between cutanious & sle ( just my thought). My rhuemy wanted to change my...
Stephanie, I am very new to lupus. I have tumid lupus & they suspect sle. I have been losing hair for a couple of yrs also. I do not have bald spots but sometimes I worry because I get real thin. I...
Thanks Barbara. I don't know why I get so scared when I hear sle. From the begining of me getting sick that is what they thought it was & when they told me it was tumid I was so relieved. I do know...
I recieved letter from rhuemy today, anti-double stranded dna negative, C3 low at77 she says normal is 90-180, C4 normal. I do have tumid lupus but they believe it is turning to sle. Can someone tell...
I have been pulled over & asked if I have been drinking!!!! Talk about embarassing!...
My mother tells me I lived more in the hospital than at home with bronchitis & pneumonia. I have allways been sickly. I wouldn't get too worried about your niece yet. My parents was also major cigg...
Oh yes! sometimes it is so bad I feel like I've been on a good drunk only I don't drink! It even hits me when I'm laying down. This is the reason I stopped drinking yrs ago & now I do this & haven't...