My GI increased my entoroct. When my labs came in OK..I was a basket case feeling like such a fraud. He said.. he trusts MY instincts and he said it was a flare! wish all had a GI like mine! the...
Hi;been long time since I have posted. I was actually doing rather well for a long time. Started what I swear was a flare.. pain,., diarrhea... but no fever. Was the SAME feeling I had years ago when...
I need to decide whether to take femera now that i am done my round of Tamaxfen. What side effects did you experience? I already have joint issues and some bone loss. Did anyone gain weight? Lose...
Yes... I am a breast cancer survivor.. seems I don't have good luck with regard to my health. BUT... in remission......
I understand. I guess with the normal CRP I just got back but B12 going down as well as ferritin levels and low RBC.. was wondering if the multiple BR trips were IBS or CD... Going to GI next month...
got this article in an email., today... question.. is CRP the same... does this mean my symptoms are IBS? Berrill JW et al. – The study aims to determine the different contributions of ‘true IBS’ and...
CRP normal but still having 8-12 bowel movements a day.. is this crohns??? Ferritin down.. low B12 Low RBCwhat should I think Prof...
Can you have a normal CRP and still have crohns?Thanks...
I just got my refilled on Thursday. I never leave home without it. Call your pharmacy back and have them check....
what do you do for that? Not happy about that one. How long did it take to work...
Iam new to this... My doctor just put me on Carafe in addition to the nexium.I was wondering about any side effects anyone experienced? Prof...
I LOVE my GI as well!!!!! He is soOOOOOOOOOOO patient and really listens to me! He is always there if and when I need him.. Who could ask for anyone better@...
Well.. the increase in Nexioum did not work... so am now on Nexium AND Carafate 4 times a aday. YIkes.. LOTS of meds. The biggest side effect is constipation.any one have this? May like going all day...
Are there any side effects from Karafate? I read that constipation is a side effect... Lousy night... reflux.. burning throat then in the bathroom from my Cd all night. Is there such a thing as a...
finally called my GI. Definately reflux. Throat is so sore from the acid. He doubled my Nexium and have some dietery restrictions. He spoke about Karafe ( think that is what he said) dificulties for...
I have recently developed very painful Acid Reflux. Yesteray the pain was so severe... I am already on one Nexium a day... now increased to 2. The acid has also been affecting my stomach and feel...
been awhile.... My GI has ordered a CRP blood test for me this time instead of a SED rate. My SED has ALWAYS been normal even when I am flaring. Can you have a normal CRP and still "be sick"?thanks...
Thanks... couldn't believe it when his nurse said to stay on 9mg for 3-4 weeks then drop. I usually try and taper quicker!...
My GI just upped my entocort to 9Mg a day for a few weeks? will my face get round like pred? Prof...
How long do the resutls last? it has been almost a year since my last infusion and things are still ok.......
This is so timely... I have had 3 iron infusions over the past year or so. The first one they did a 'test" drip for about 10 minutes to see if I was allergic. When I was ok.. took about an hour. made...
I was always told that IBS is a diagnosis made by exclusion. when there are NO clinincal findings which are found in IBD via a scope, then the IBS dx. is given. it is not a disease but a syndrome....
Kazbern: I agree.. however... there are SOME docs who do know.. mine is wonderful and really stresses that my "gut" reactions are NOT IBS!...
My GI explains that since the gut is "diseased" when we are stressed etc it acts up. However, he says it it is "crohns" related. For me, when I have a temperature, i get nervous and know my CD is...
I am a bit confused... if i have mucus, I was under the impression that was CD related. prof...
I wanted to know if anyone else have bad mornings with regards to their symptoms. My bowels wake up around 5AM. Once i get up i can be in the bathroom at least 8 times before i can leave the house!...
Go on disability if you can!!!! With a GI on board you can get it ..will take awhi tho!!!! Prof...
I guess I am blessed with a great GI. As soon as I get the notice, I call his office and he sends me a letter to send with my request. doesn;t hurt to ask! prof...
Why put yourself thru that. I believe in doing my civic duty BUT... my GI wrote a letter for me and I was excused from jury duty 3 times now. prof...
Charmin extra soft!!!!!! I can use almost a roll in 2 days!...
Welcome home!!! Now take it easy and give yourself time to recoop!!!! Prof...
Please feel better soon!!!!!! We r praying for you! Prof...
Get well soon!!!!!!!!!...
don't stress.. august is still awhile off... I am hopiing to see my direct deposit as always!!!!...
Welcome to the new world of medicine...,. many docs just don't go in tothe hospital...
GI called today... back on 3 enotcort a day! Definately a flare. I have a temp and all the "flakes" are from the bowel inflammation. BUT good thing i respond quickly so in a day or so will feel...
Don't know..... I am concerned about the feeling of exploding and then spending the next hour going back and forth to the BR passing alittle stool at a time. could this be a stricture?...
Need some advice as to what is going on.... Felt great for the last few months then this past week or so i am miserable. I have low abdominal cramping then feel like i am about to explode. Run to the...
We travel all over the world. Cruises are by far the easiest! IF you are feeling great then go and get off and have a good time, if not you have a beautiful ship to relax ion. but,, if t you do go to...
ASk the lab where you get them to fax them.. I get them the NEXT day!...
I started iron infusion when my ferritin was 5!!!! Could not take pills.... best thing I could do! Go for the infusions, may take a few but will build you up! Prof...
I got infusions because my iron was very low and my ferritin was really bad. Really saved me. Can't hurt to ask!...
Ask for an iron infusion.... I can;t take the pills but the infusions are working great!! NO constipation at all!!! Prof...
I believe there is a genetic link.. my mom was dxed the same age as iI was.. also, we were dx'd with breast cancer at the same age... freaky.. NO genetic!!! Prof...
Look up the group at presby.. Alan Lichtnestein is well known and they are very good. Does your GI at CHOP recommend anyone......
To nanners and all.... Thank you!!! Thank you for letting us know that the feeling we have are valid and felt by others. I feel so alone at times, not wanting to complain..ALWAYS being the poster...
Thanks.. I honestly dont think i am flaring. just think this is MY remission! Sometimes it is like I feel "done" but no way... and have to keep going back....
I just got my blood work back. For the first time it is good. Iron levels up ( due to 3 infusions over the past year) which has helped. BUT.... now I am confused. if my blood work "looks" so good why...
I have been on SSDi for years. No worries. they mail stuff to my GI and he says I am still disabled! Hope your GI does the same....
Debbiekay: Why did your GI tell you to stop the miralax? Thought it was safe to to take?...