Yes. My teeth have been hurting off and on now for a couple months. Been on 6mgs MTX injections weekly since January....
I take my MTX as injections to save the old guts. I don't drink....
I had my procto-colectomy and ileo surgery on 2-14-08. My 55th birthday....
Had a total proctocolectomy last Feb due to UC. Since then I have been DXed with RA,Rheum Dr wants me to go on Remicade. Been on MTX for 10 weeks now with no real improvment. All the research I have...
I had my total colectomy and ileo done at CC in Feb.09. Matthew Kalady was my surgeon. After going thru 3 surgeries at my local hospitals,the care was A-1. I wouldn't go anywhere else now. It was a 4...
Thanks for all the advice on my pain question. www.UOAA.org...
Check the Forums on United Ostomy Association website. wwwUOA.org...
My rectum was removed from the front,and I have a very small stump left. The hole is still there,but very small,and nothing comes out of it. Titanium staples will be there forever. I have a permanent...
Hi mommy and summer. I had my colostomy one year ago,due to diverticulosis and UC. I can't even remember a time I didn't have pain and chronic constipation and dehydration. I am so glad I got rid of...
Our dogs stayed with me every moment when I got out of the Hospital. They were well behaved and quiet. Our 2 cats did the same thing,just laid quietly on my bed with me....
Yes I use the same RX. But the melty ones don't work anymore,so now I have a capsule in a higher dose 0.375 mg. They are called Levbid or Levsin....
Yes,yes,yes!!! Every 6 months or so I go in for an Endoscopy,and my surgeon dialates my esophagus. I have puked my whole life. Protonix has helped some,but all those PPIs stop working for me after a...
I get so sick of hearing about these un-caring Drs and dealing with them.Couldn't even spare one moment to speak to your family. The nerve of that guy.If you must stay with him,you will have to get...
Have you tried Analpram HC cream? Double the dosage of ProctoFoam ,worked pretty well for me....
Get em WITHOUT filters! Mine don't have filters,I hate those things. I swear you can smell thru them. I have never had one leak while I am sleeping. And no hard plastic rings you have to snap or lock...
Hi Rebecca,hope you are feeling better and better everyday! My colo is permanent.I am one of the people that is glad I had it done. Good luck to you either way you decide to go....
Moldable wafers and disposible pouches work great for me....
Buscuit,there is now a test for FVL. You go to a Hemo-Oncologist for it. But it is an expensive test,and takes a few weeks to come back. Your Dr. will decide if he thinks you should be tested. No...
I have Factor V Leiden a genetic blood disorder that causes my blood to clot too quickly. This has complicated my UC . I had a couple big DVTs,one in my jugular from a PICC line. Then a hematoma...
I would ask my Dr about Pelvic Floor Dysfunction and the anal sphincter....
I love them! And the Convetec Esteem Synergy is just perfect for me. I use them all the time,even when I get diarrhea,I can count on them sticking. I like the idea of a fresh clean pouch every...
I took them before my colostomy and still take them. I don't care for yogurt,so the probiotics work well for me. I buy ones that have no gluten. They are digested same as any other capsule. Can't...
I never shower with my stuff on. I like a nekkid shower so I can look at my skin,and wash it. I just wait untill after my stoma has worked for the morning,then shower. I have a colostomy so I can...
I don't regret my permanent colostomy or rectum removal at all,in fact it gave me back my life. I wish you Good Luck in your decision whatever it may be....
I have been using them since last May,and they even held nice and snug with a parastomal hernia. I love em. Hernia is repaired they still fit great....
FOODS THAT THICKEN STOOL: Pudding,Creamy Peanut butter,Baked apples or applesauce,Pasta,Rice,Cheese,Bread,Potatoes. FOODS THAT CAUSE UNUSUAL ODOR: Fish,Eggs,Garlic,Beans,Turnips,Cheese,Cabbage family...
I had my colostomy last May. At first I thought the swelling was just post op,but found out I had a parastomal hernia. I wear a hernia supporter,that helps a lot with the pain, it also keeps my...
They should make scented pouches....
They also make pouches and wafers for children,they are smaller....
I have UC and had my sigmoid colon removed in May. Even though I have a colostomy,I still get the urge to push. My rectum isn't even "hooked up" anymore. I told my GI Dr. about this,and he told me...
You ate FRENCH FRIES???? Oh I sure would like to eat some,too! Then I will eat pizza. But I am scared of the surgery. Guess I am just nervous as the date gets closer....
Yes,thanks for posting your experience! I am having my surgery next Monday,so I would like to hear all I can,bad or good. Scrappyjrt...
Judy,my Dr wants to leave the rectum and anus,but repair the rectum since it is prolapsed and sticks out. What I want to ask you is this,is there any kind of leakage or seeping from the rectum? If it...
Wow,I am starting to get a little scared,too. Dr. will be removing my sigmoid colon and "repairing" my prolasped rectum. However I will have the bag.I can handle that. I have been incontinent now for...
Alison,I have questions if you don't mind answering. My surgery is set for May 7. The whole sigmoid colon will be removed. My rectum has terrible prolapse,I have no more control and the anal...
I am having this surgery also. I understood that when the rectum and anus are removed,you do have the bag permanently. Thats fine with me. I am so sick of wearing diapers,I will be glad I won't have...
I have my surgery on 4-23. I am also thinking dumb things,lol. But the one thing I am thinking is that I can leave my house,and I am planning on a vacation at the end of July. And NO MORE DIAPERS!...
Lisa I am 53 and scared about my surgery,too. But I want the rest of my life not having to wear diapers. We can compare notes on our surgeries. I will post when mine is scheduled. Good luck to you....
I too am having surgery to remove my sigmoid colon,rectum and anus. Things are so bad that I am incontinent and I just can't live like this anymore. My appt is on 4- 24 with the surgeon. I am...
Yes,I get those pains also. I have prolapsed rectum. It is very painful and I get pukey from it too.Sometimes I will lay on the bed,put pillows under my knees,and push the heating pad up against my...
Sometimes when I am constipated,I become faint cold and clammy from bearing down to try and go. A Colo-rectal surgeon told me it is a vascular problem. I just had 3 days of testing at U of Mich. I am...
The only thing that works for me is to quit eating a week before the procedure. And what is this "half litely" stuff? Is it colon blow under a different name? I can never keep any of them...
Tenesmus means the urgency to defecate whether you have to go or not....
I am facing surgery after years of suffering with UC. I am 54,and pretty scared. My GI says I am at the end of the road for being treated medically and I will see a surgeon in April. It helped to...
If I remember correctly,the Dr. told me it is atrophine based. Thats what stops the diarrhea and cramping. If I do not take it,I will get serious diarrhea. Thats why I cannot go off it. I don't take...
I have been on Lomotil for years now. One other side effect is your vision. It will be blurry at times. Another is the chance of impaction,your skin will get dry,you will be cold. Better than the...
Yes it is not a good thing to retain water,I take B/P medication. The drug is helping me,though. I have diurectics,but they seem to dry up my bowels,too. So I have to be careful bout that mix. I...
Thanks 7Lil,you are a kind person and a good moderator. I hope your New Year to be a healthy and happy one for you and your loved ones. Scrappy...
It's okay,7Lil. Now at least I know and can fight it! And I will fight it. It gives you a strange feeling when the Dr you have been going to for 15 years shakes his head and won't look into my face....
Hey! Guess what? I don't have IBS! I have IBD!! Now I have no Forum to go to! Sheesh. /community/emoticons/confused.gif ...