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damo123

HealingWell Forum
>
Member Profile
Display Name
damo123
Profile Created
7/11/2007 8:35 AM
Last Seen
1/14/2021 9:18 AM
Total Posts
734

Last 50 Posts

Enthesitis

I'm in remission for 7 years from UC using Imuran. My bloods are fine and I have no bowel symptoms. I have had a series of soft tissue injuries for last 2 years now. I am active in sports but these...

1/5/2021 11:02 AM

Ulcerative Colitis
OT - HAPPY THANKSGIVING

Happy Thanksgiving from Ireland!! I'm thankful I live in Europe...;-)...

11/26/2020 12:13 PM

Ulcerative Colitis
soft tissue and Imuran

I may have floated this idea before but I'm wondering has anyone noticed Imuran affecting their healing not from wounds or cuts but from soft tissue injuries. I play a lot of sport and lately I've...

7/30/2020 2:34 AM

Ulcerative Colitis
scopes in remission

I'm wondering if anyone had a routine colonoscopy when they assumed they were in remission or were having only very mild symptoms only to discover that in fact they had significant active disease?...

5/5/2020 12:45 AM

Ulcerative Colitis
ribs

I'm a UC-er who has been in full remission since 2013 on Imuran. During the bad days of 2013 my UC presented in my joints as much as my colon. For the last year I've had a nagging pain on the left...

4/29/2020 11:56 AM

Ulcerative Colitis
Prednisone

I have to agree with what others have said re daily journaling of symptoms not being good. I tried this many times and it made me so hypervigilant of bodily sensations that it induced health anxiety...

9/9/2019 10:18 AM

Ulcerative Colitis
Natural Remedies that work

"There can be no justice, there can be no progress and there can be no compassion if all we do in life is believe in absolute truths." - Jean Luc Picard...

8/29/2019 12:43 PM

Ulcerative Colitis
left sided issue

I've been in remission for 6-7 years now using Imuran as my maintenance drug. Life has been really great. For the last 3-4 months I just have not been feeling myself. Bit of fatigue, poor sleep, my...

8/24/2019 12:33 AM

Ulcerative Colitis
floaters

No change in diet. CRP of 1 and negligible ESR. Only going once a day. I've noticed mild joint issues during this 'floater' phase which has lasted 3-4 months now. But with CRP and ESR low and no...

8/20/2019 10:11 AM

Ulcerative Colitis
question for uniform charlie

That is really interesting U Charlie. Does the anxiety have an effect on your sleep pre / during flare?...

8/20/2019 5:42 AM

Ulcerative Colitis
floaters

In recent weeks I seem to produce floating stools which are somewhat narrow. I know that floating stools are associated with fatty food. Aside from this are floating stools anyway linked to colonic...

8/20/2019 4:13 AM

Ulcerative Colitis
insomnia

Does anyone notice that being in a flare, or more generally the presence of inflammation in the body, effects their sleep and causes insomnia and sleep related issues? I'm not talking here about the...

8/17/2019 1:18 AM

Ulcerative Colitis
joint issues

Very similar here....having wrist problems too....how did you confirm that it was UC related...x-rays? bloods? mri?...

8/16/2019 5:21 AM

Ulcerative Colitis
joint issues

Hi Oligodar, That is very interesting. I'm a keen sportsman but for the last few months I've had an unusual amount of tendon and muscle injuries. The physio calls them sprains and strains but I...

8/16/2019 4:59 AM

Ulcerative Colitis
joint issues

MomofUCBoy, Could you describe how your son's joints flare up? i.e.which joints, does the pain move around, how bad is it ...etc? Cheers,...

8/16/2019 12:24 AM

Ulcerative Colitis
joint issues

No worries Tristan. Actually for people with pronounced joint pain do you also have other extra-intestional symptoms....for instance I've noticed I have sinus issues quite often with my UC...

8/16/2019 12:00 AM

Ulcerative Colitis
joint issues

Does anyone's UC flare appear first as forms of joint pains or achey joints and linger for a few months without much bowel symptoms? D...

8/13/2019 7:32 AM

Ulcerative Colitis
question

Just a query people might be able to help me with. Does SS produce a lack of mucus or excess mucus in nasal and sinus passages? Thanks, D...

8/6/2019 8:14 AM

Sjogren's Syndrome
Imuran and injuries

Does anyone notice that Imuran slows their healing from sports related injuries such as sprains and strains? Thanks, D...

7/26/2019 1:42 AM

Ulcerative Colitis
How long UC patient can live?? Can u share some info?

It's actually a little bit of a strange fact but UCers have a longer life expectancy than the general population. Both Crohns and UC reduce life expectancy a little (approx 6 months) on an individual...

1/11/2018 4:29 AM

Ulcerative Colitis
Physical Symptoms

There is a clinical psychologist who posts on YouTube and he describes anxiety or health anxiety as like a person marooned on an island who is told that there is a wild beast after him and he must...

6/21/2017 10:32 AM

Anxiety & Panic Disorders
How is everyone doing? checking in

I'm 4 years in remission now. Imuran put me there and has kept me there. 1 BM a day, no UC symptoms, eat what I like. I had a scope today in fact and GI said no signs of inflammation, polyps or...

6/21/2017 10:12 AM

Ulcerative Colitis
amazing book on dealing with anxiety

Hi, (I hope it is okay to post links here to books on Amazon, Cat). There is an **AMAZING** new book published in Ireland called 'Your Bull**** Guide to Living with Anxiety'. It's written by an irish...

5/31/2017 3:25 AM

Anxiety & Panic Disorders
UC "burns itself out?"

Thanks for the replies. Very interesting. My GI was saying that he sees an increasing number of cases now where UC is burning itself out in his patients - thinks this happens more with people from...

12/6/2016 2:12 AM

Ulcerative Colitis
UC "burns itself out?"

Thanks for your response iPoop. Were you still on Remicade when you flared? Do you think 6mp is now working less well for you second time around? Did you have a c-scope and biopsy before your GI...

12/5/2016 5:54 AM

Ulcerative Colitis
UC "burns itself out?"

Hi, I'm bumping up this old but interesting post from 2015. I'm into my 4th year of remission now. I'm on 150mg of Imuran per day with no symptoms. My GI said the very words that are in the title of...

12/5/2016 4:00 AM

Ulcerative Colitis
I feel much better and productive at night.

Totally with you. We have unseasonably hot weather here in Ireland over last 2 weeks and the heat is really getting to me and making me feel cranky. After a hot day I go to YouTube and listen to one...

6/1/2016 11:48 AM

Anxiety & Panic Disorders
IBD "Cluster" ??

1 in 150 i guess isnt far from pevalence rates ive seen...still seems a little low....and still doesnt explicitly state its a prevalence rate...the trouble with these marketing fliers from epi people...

6/1/2016 1:01 AM

Ulcerative Colitis
IBD "Cluster" ??

Most web statistics on IBD are quite frankly wrong. In most cases they are based on studies from 1980s-1990s and few sites seem to have updated for the new studies that have emerged particularly from...

5/31/2016 4:13 AM

Ulcerative Colitis
Osteopenia --thanks steroids !

IPoop, maybe you should reply and 'not agree' with juststud's reply. If he agrees with this then by definition he will be disagreeing with himself and if he does not agree with this then by...

5/31/2016 4:00 AM

Ulcerative Colitis
TM joint

I've had jaw issues for 4 months now. A little mild pain and noisy, popping TM joint especially when I sleep. I had convinced myself that my TM joint was severly degenerated or that my colitis was...

5/10/2016 11:03 AM

Anxiety & Panic Disorders
OT: The case of the mysterious bladder!!

This is somewhat off-topic but I thought I'd post it here as the kidney forum is so small. All good with my UC. Remission now for over 2.5 years on Imuran. In the last 4 months I've developed an...

4/26/2016 7:31 AM

Ulcerative Colitis
Anxiety, Panic, Benadryl, RA, RLS - complex stuff, perhaps this will help someone

Tim / All, Good post interesting reading. At the same time as saying that not everyone's panic will present the same neither will everyone's RA, or Lupus or even Cancer for that matter present the...

4/2/2016 6:01 AM

Anxiety & Panic Disorders
sleep

Been doing very good with my health anxiety lately and feeling like my old self. My only issue is insomnia now. I can get to sleep for 3-4 hours but after that it is broken sleep at best and just...

3/26/2016 1:29 AM

Anxiety & Panic Disorders
anti-spasmodic meds for bladder

cheers for that. he did actually prescribe it for overactive bladder. just wondering if by chance the spasms were being induced by an enlarged prostate or an infection would the drug still work to...

2/29/2016 3:00 PM

Ulcerative Colitis
An interesting insight into Health Anxiety

I think they are reading the exact script that the actual HA sufferers spoke during the 'real' interviews....

2/29/2016 1:49 PM

Anxiety & Panic Disorders
An interesting insight into Health Anxiety

They really are a fantastic series of videos. Very professionally done. The 2 people they interview at the end are actually actresses standing in for 2 HA sufferers who they interviewed before the...

2/29/2016 1:13 PM

Anxiety & Panic Disorders
anti-spasmodic meds for bladder

Hey it's Vesitirim 5mg a day...

2/29/2016 12:21 PM

Ulcerative Colitis
An interesting insight into Health Anxiety

To see the utube videos related to my post above search for "HIC study" in utube itself. There is a series of 9 utube clips about Hypochondria under this link. You will hear the doctor talk through...

2/29/2016 9:04 AM

Anxiety & Panic Disorders
anti-spasmodic meds for bladder

My doctor has prescribed me an anti-spasmodic for overactive bladder. I've had blood, urine and prostate tests which all came back normal. He's equated the bladder symptoms with some high stress I've...

2/29/2016 9:00 AM

Ulcerative Colitis
An interesting insight into Health Anxiety

I've only come to realize lately that I go through flare ups of health anxiety. This produces weird symptoms and irrational thinking which then creates new weird symptoms and you you get caught in a...

Today 5:17 AM

Anxiety & Panic Disorders
slightly OT - looking for advice on bladder issue

Hi, I'm in remission from UC for 2.5 years now. No symptoms over this period. 1 BM a day and blood test results come back perfect every 3 months. I take standard Asacol and Imuran doses. About 2...

2/24/2016 4:00 AM

Ulcerative Colitis
Anyone with health anxiety have a chronic illness?

What are your bladder symptoms Rrakkma?...

2/23/2016 12:27 PM

Anxiety & Panic Disorders
Anyone with health anxiety have a chronic illness?

Hi. I suffer from ulcerative colitis. It's well under control and I've been symptomless for 3 years. I too have Health Anxiety but the strange thing is that I have no health anxiety in relation to my...

2/22/2016 1:51 PM

Anxiety & Panic Disorders
No Am Blood only Pm

I wasn't no. Was on asacol dose. I analysed everything like u might be doing now but could find no logic. UC waxes and wanes and flares can present differently. Looking back my advise to me would...

2/16/2016 5:21 AM

Ulcerative Colitis
No Am Blood only Pm

Hi Sporty, I had exactly the same symptoms as u described in your first post when i was recovering during my first flare. I think I was caught somewhere in the middle i.e. the meds had reduced the...

2/16/2016 2:31 AM

Ulcerative Colitis
Exercise Anxiety

We have students who do presentations at end of year for some modules I lecture on. Some of these students get very very nervous during the presentations. They sweat, heart starts pounding,...

2/16/2016 1:34 AM

Anxiety & Panic Disorders
bladder issues with anxiety

Hi there. I don't usually post on this forum but I do read the posts here from time to time. 10 years with ulcerative colitis (UC) which thankfully is in remission now for a good many years. I did...

2/3/2016 9:16 AM

Anxiety & Panic Disorders
Really need help understand anxiety....I have health anxiety

Hi C Green. Just to say the exact same thing happened me with a misdiagnosis based on a blood test in 2013. Well it wasn't just a misdiagnosis it was more that i assumed from the result I had a...

2/3/2016 8:58 AM

Anxiety & Panic Disorders
How many auto immune diseases do you have?

There may be an issue here with the homogeneity of different autoimmune diseases. The 1 in 12 and .25 are averages over ALL autoimmune diseases. They could vary a lot by autoimmune type so if only...

1/29/2016 11:56 AM

Ulcerative Colitis



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