Great advise - Many thanks for the kind words and support. I think I might be having a slightly better day than yesterday. Thanks again....
How can one tell the difference between Anxiety and Depression? I have been having what i would call anxiety coupled with feeling down and out. I have a few life events going side ways - mostly...
I wound up in the ER with a bowel obstruction due to a bad hernia. Long story short the Docs found a small solid mass (1.4x1.3 cm) in my left Kidney after a CT scan of my abdomen. They followed up...
I went through the same kind of BS with Walgreens, CVS way back and Winn Dixie pharmacies. I had a script in hand and they flat refused to even look at it. Somehow Publix pharmacy seems to be much...
This morning about 3 am I awoke to loud snoring; I nugged the wife said roll over Dear. In the dark it was then that I realized our 50lb puppy was the offender and had his head on my shoulder snoring...
Naltrexone??? Are you kidding me....
Appreciate the feedback... if it gets to bad I might try that Stelara... so far the Sulfasalazine makes me feel like I have a hang over. Gonna try and take it at night....
May not guarantee it but I can personally account for the simple fact that discontinuing a Biologic and going back on it can produce a bad reaction. :) When I quit Remicade and went back on it 1.3...
Thanks Kieth, over the last 16 years I have been on almost every biologic there is so I no doubt have antibodies built up. Sounds like you have had a rough time as well with this terrrible disease. I...
Thanks Old Mike, Connor77 - Appreciate the support. I am having some intermittent pain in the ankles and knees - sometimes wakes me up. No edema or weight loss. I was able to get the levels off my...
Thanks iPoop. The Hydrocodone is keeping it livable for now. Sadly I cannot seem to tolerate any of the NSAIDs. I just started the Sulfasalazine pills - hoping for a miracle. Im not sure what bag of...
Its me again! So I am now living with no colon and a working JPOUCH for 10 months now. Its been a wild ride. For the last 8 months after my last Prednisone pill I began to have an increase of overall...
Ive been there.. It sucks... Take over the counter pain med - Tylenol if you dont have prescribed pain med from the Doc. However in my experiance nothing will stop sharp rectal pain. Maybe try a warm...
Hill - Im not sure how you derived your opinion of the so called paragraph above... I never indicated or stated that steroids were the worst thing of all time. I only point out while they are in fact...
For the short term you have no option but to take the IV steroid to get you over the hump. Sorry to say sounds like you are on the same path I was on. Meds are not working as well as Oral Prednisone...
Many thanks for the replies - very interesting about the potatoes. I have been trying to increase intake daily. Im hoping time will make things better. For now Im continuing with the bidet,...
I am post 2 months now after my final Jpouch surgery. Things have improved somewhat from my 16 trips a day - I now go about 8-10; however the output is still horribly acidic. The doc gave me a script...
Thanks all. I managed to get a little better sleep last night. Turtle, I really like that quote!!! Describes me 100% Myself09 - I think you are absolutely correct with the trauma theory. I got it for...
I am having waves of emotions since my ordeal with a 3 stage jpouch surgery. Have had 3 surgeries and 2 emergency stays at the hospital over the last 6 months. The surgeries themselves have been an...
Many Congrats. I am 2 months post from my last Surgery #3. Getting some better each day. Really suffering with acid output and the ol but burn though. Have you suffered with this any? Does it get...
Folks I am gearing up for the final Surgery #3 aka take-down - tomorrow morning. Oddly I am less anxious and afraid of this surgery than the previous 2; really glad the surgeries are coming to an end...
I am on day 4 at home from hospital. Spent 7 days in hospital. Day 10 post sugery #2. The pain this round I would say was worse with the NG tube. I was fortunate they let me have dilodin via push...
Well the Doc succeded in removing the rectum and creating the jpouch. Only thing is I had a complication. He had an issue geeting the loop ieoostomy\stoma to stay attached to the outside - had to...
The ol man is heading back to the Hospital for surgery#2 this Thursday morning. Last day at work for a while. I told my co workers I was going on vacation at the Hospital again. Its all inclusive,...
As many of you know I am in the process of a 3 surgeries for my J-Pouch. I am gearing up for surgery #2 in my case the removal of rectum, creation of the J-Pouch and loop ileostomy. The surgeon has...
Nausea is on the list of Pred withdrawal symptoms. I am suffering with my taper, Joint Pain, Skin rash, itching, fatigue, etc - just dropped from 10mg to 5mg... now at day 2 of 5MG cutting 1mg per...
Apreciate the input. Today I gave in and started 2.5mg Pred pills back. I cant continue with the flu like symptoms and joint pains. Gonna go 2.5mg daily and see if it helps. If it does not help ill...
Folks I took my last 5mg Prednisone 48 hours ago. So far I am still alive, my joints hurt bad.. sore all over, some horrible fatigue but no Pred.... Hippp Hipp Houra!!! I have heard folks mention you...
Folks I am down to 5mg daily on Prednisone after being on it off and on for 5 years. However for the last week I have had extremely dry skin. My whole body itches... My forehead and face are behaving...
Apologies for the late reply - I have really been busy. I think I have figured out what retired folks that are sick do with all the free time they have. They simply go to the doctor all the time. :)...
I am now on my 3rd pouch from the new batch. The velcro does not line up evenly but I have had no leaking. I did experience a failure of one of the wafer after day 2 on bag #1 but I think it was my...
OMG a cure for UC!!! I wonder if they can grow a new colon with stem cells? :) I wish I would have known and or wish this was a viable option in the USA. Figures with my luck the year I give in and...
WOW notsosickygirl... You had a rough time :( I understand low blood pressure; I went through this one time when I had an ischemic attack. (They actually took me to the ER by ambulance) Really...
Many thanks for the input. notsosicklygirl - what was it about the loop- ileostomy that was difficult? Was it challenging with the wafer? Did you have to use convex? Any details will be helpful. I...
I am about 6 weeks away from surgery #2 of 3. This will be the removal of rectum, creation of a JPouch with loop ileostomy. Im a bit nervous about this one as it naturally seems more involved than...
I noticed the same thing with my order I received yesterday. I thought maybe it was just me. So far so good though... No leaks....
Folks I am at post surgery #1 of 3 - day 29. Still sore, back hurts but much improved. Left the hospital at 40mg pred... dropped 10mg a week. Now at 15mg Prednisone... at doctors orders now tapering...
Normal, I had the same thing. It actually scared me when it first started moving stuff into the pouch. Had mine done about 3 weeks ago surgery 1 of 3...
I am a recent ileostomy person had surgery about 3 weeks ago, 16 years of UC - no meds worked at the last and finally had to have surgery #1 of 3. Removal of colon with ileostomy. Every time I change...
NCOT, Hang in there - you are having a rough time for sure. I now understand frustration with surgery somewhat as I just did step #1 -2 weeks ago. Mine has been challenging as I have been suffering...
Anyone ever have this happen? About 3 days ago started having bad tail pain right below my tail bone in the crack of my but. This morning it was so painful around 8 on the pain scale. I asked the...
Hi Notsosicklygirl, I am slowly improving. Still suffering with the back and abdomen pain. I can get up and down better now and even walk a little bit without a stroller. I was able to change my...
Day 6 post surgery #1 Ileoostomy with removal of colon, left rectum intact till surgery #2. I had daily rectal discharge including 3x on day 3. It has now been 3 days with no rectal discharge. Not...
I'm home now, still fighting pain and such but I think I'm on the road to recovery. Many thanks for all the kind words and ileostomy advice. Im emptying the bag ok now, even got a crash course and...
Ol man report day 5. Im hanging in there. This has been challenging to say the least. Gotta say the worst surgical pain I have ever endured. Is getting better though more soreness than throbbing pain...
Yeah this evening was a mess, tried to make it from the chair to the bathroom. Hit the floor like a bomb. This has happened 2x now. Major depression after. Only positive note today I'm unhooked from...
Thanks Notsosicklygirl, the fancy strolling machine is on wheels adjustable heights. It's really a something. Puts no pressure on abdominal while walking. They are offering home health when I get...
Thanks Kieth, That's what I thought, just wanted to confirm firm with another fellow UC veteran. :) Had about a 1/4 cup discharge maybe. Otherwise I'm hanging in there, pain is slightly better but...
Good M. My colon has been removed, ileostomy created- they left my rectum intact untill surgery #2. This is day 3; 2 mornings in a row I feel like I am having pressure in the rectum like I have to...
The surgery was a success. My colon is gone. Surgery took 4 hours had a mishap with the urine catheter - false passage. One thing that is shocking is the Pain. I awoke to the worst abdominal pain I...