So random spots on my neck are "normal?"........
Well initially it didn't look quite like it does now... it was more red and prevalent and to me it almost resembled imperfect circular patterns of what I thought could've been ringworm which I have...
I obviously do not know how to work the image option on this website lol Help!...
Hello, I actually have not been on this site in years. Life has taken over lol I actually had my 3rd child back in January 2015 and ever since then between the pregnancy and breastfeeding I was...
So, I went to see the Endocrinologist for the first time today. She took my history after the nurse did my BP and HR,etc. It was really just an assessment at this point because being on 10mg of...
Hi there. @ Joy: I have had my thyroid checked several times and had normal results. I just saw the Endocrinologist today ...putting up a new post of that on here! @ Amy: My heart rate finally went...
Hello all. Last week I made a trip to the ER one night because I was having anxiety type symptoms again for the 2nd or 3rd night in a row. This time it was accompanied by a sweat and low grade temp,...
Yeah I know what you mean I've hurt bad the past couple of days...last night almost brought me to tears but luckily i got a massage and some comfort from my boyfriend....I didn't sleep well last...
Hey there. I ended up going yesterday to the emergency care center instead of the ER at the hospital just because I knew it'd be quicker. My bp was elevated 139/76 compared to my usual 90s-100/60....
So for the past week I have had symptoms of what seemed to be a sinusitis. My daughter is being treated for it currently and so I think I got it from her. My rheumy also said my last labs looked ok...
:) .....I think the smile says it all don't you? ;)......(((GOD IS GOOD))).........And so is faith! :) P.S. Quick question for you though, are you sun/light/photosensitive and get the malar/butterfly...
LogansGrammy, I am glad that my story helped you and in more ways than just one. I went through the same process as you are right now with the realization that you are definitely not alone and that...
I never paid much attention to the temperature in the beginning so for the first few years I couldn't tell you. The past 2 though I have and notice I do run low grade fevers with my flares as well as...
http://labtestsonline.org/understanding/analytes/ena-panel/tab/test (Anti-RNP) http://labtestsonline.org/understanding/analytes/anti-dsdna/tab/test (Anti-dsDNA) These 2 links will explain the tests...
Well LogansGrammy I think it is wonderful you are writing a book. I too love to write so if you need any help please let me know! I am home all day with my 2 children. I'm great with poetry/song...
Okay, thanks that is a good rule of thumb to have! So today would be day 4 then I believe....
So I've had a scratchy/burning/irritated throat that's made it tickle and makes me want to cough for the past 3 days. This morning I woke up(slept a little longer than usual too)with a slight...
When I was first being tested nothing showed up positive for me in blood work but I was severely iron deficient and anemic. After that was fixed I was sent to my first rheumy because I had burning in...
Hi there Stacy! We do sound a lot alike! Even some of the meds we take lol....(wonderful what we have to compare ourselves to with one another haha) I am hoping the Endo gives some answers and if you...
yes and my ANA's have been positive for a few years now..in fact the last one done was the highest it's ever been at 1:160 and the pattern has changed from speckled to homogenous. My c3 and c4...
Hello all, I kind of touched on this subject a while back in a post but I wanted to create one specific to it in hopes that someone else has some specific answers or experience with it. I have been...
I guess I am an oddball. I have burning pain and tingling in my hands, arms, feet, legs, lower back and stomach and the back of my neck and shoulders. It started out in the fronts of my upper thighs...
I had posted earlier on that I have yet to see the Endocrinologist..made the appointment over a month ago and the soonest they could get me in was June 6th...so when I eventually get there and they...
Yes couchtater that's exactly what it sounds like..not only does steroid withdrawal mimic lupus flaring itself but it also can reactivate the overactivity of your lupus because you don't have the...
Hello all. I've not posted anything new on here in a bit since I had the increase in Methotrexate. It's only my 2nd week on the increased dose(7.5mg-15mg)and while it helped last week for a day or...
Here's some more links so you have an idea!: http://arapaho.nsuok.edu/~castillo/Addison'sdisease(autoimmuneadrenalitis).html...
It can be life-threatening if the adrenals do not work the way they are supposed to and you are not on enough supplement. You can literally go into shock....here's some things for everyone to read up...
By the way I have ALWAYS had temp issues as well. Both hot and cold but hot is worse especially heat combined with sun! I can't function. I also have lost weight on prednisone rather than gain any at...
Yes it IS funny you should mention this, as I am due to see an Endo myself June 6th because I've been on Prednisone since Feb. 2011 and the 3 times I've tried to come off it I've had adrenal issues....
So, we got the repeat labs back yesterday and everything is now normal minus a few bacteria and the protein level....it went from a 2+ to a 1+ though so it did go down some. Any ideas?...
I had been told Creatinine shouldn't show up in the urine with a kidney infection....and I don't have antibiotics yet because we haven't gotten the repeat labs back yet....
So, today will be my 3rd week on Methotrexate...still at 2 pills/week because I've had issues which make it hard to determine if I'm having side effects or not. I recently got labs back that showed...
Hi all. I decided to start a new post instead of posting in the 3 or 4 others I have had floating around recently. (LOL) First off, The densities/Tumors in my liver are benign vascular tumors called...
Hey there. Thanks for the post Butterflake. Just curious as to what you were referring to when you said "unusual circumstances?" I'm not one for beating around the bush so feel free to put it out...
So I'm starting to get on my own nerves with having all these posts LOL.....On a more serious note, I got an email from my rheumy today about the results to my ct scan that was originally done to...
Laura, That's how I am with Prednisone! I feel great on high doses but it doesn't work for me on low doses and when I get low enough I start having withdrawals as well as adrenal insufficiency. It's...
No I have not been coughing at all. The one time I got pneumonia it was walking pneumonia and the only way i knew i had it was from he pleurisy that came with it. I have had a PFT done probably 3 or...
So, I've been posting about MTX since I started taking it a week ago tomorrow. I noticed earlier today when I reached my hands above my head to stretch I got pain in my chest in the middle where your...
So if you read my most recent post before this one you know I was started on Methotrexate Tuesday April 10th. I took it that night (5.0mg the first week and the 2nd week and then it will be uped to...
Unfortunately I have not been on either up till this point. I just started Methotrexate Tuesday night. I was wondering how it made you sick? I'm having a hard time distinguishing Lupus symptoms...
What is the prescription sunscreen you have? I am allergic to the chemicals in the regulars and even the baby stuff that's supposed to be "natural." I wear clothing that covers mostly but it doesn't...
Thanks Nova. I have been tired and hand headaches and nausea here or there but really no appetite and spaciness. I don't know if it's lupus or not due to having had a temp and chills...
Hi all...I had posted on here a few weeks back...My rheumy started me on Methotrexate. I've been on 5.0mg because of my weight(96lbs...i'm underweight and we don't know why and I haven't been able to...
Thank you for the reply, what Im wondering is how long after taking your first dose did the symptoms/side effects start? I was thinking it'd take a bit (maybe a week or so?) since the MTX has to...
Hello all. I hope you are well. I had my Rheumy appointment yesterday and she said my latest labs showed disease activity. My ana was the highest titer it's ever been with a homogenous pattern. My...
I meant to also say that the symptoms in 2009 resembled a mini-stroke...brain fog never fails me ehh...but they never did any scans or anything so i won't ever know i guess....tried to say it was...
Hey LupusMomma, I have been to the cardiologist numerous times and had a monitor etc too but it didn't show anything. So whatever palpitations and everything I was feeling didn't show up or maybe it...
So yesterday I was driving in the car and I had been having issues with lupus symptoms being on 7.5mg prednisone. I had a light facial rash, leg aching/burning and fatigue, etc. Then, in the car i...
I have many symptoms of POTS...Orthostatic Hypotension has been confirmed....have you had any luck talking to the docs about it?...
What would make you think that other than my other million allergies? lol...