Hi!!. When I first started having symptoms of lupus nephritis I noticed I was getting up anywhere from 8-13 times a night to use the bathroom. My urine was very foamy and also coke or tea colored no...
Sorry, I misunderstood when you said you had it awhile back! I thought you were talking about lupus nephritis. The only way that can be diagnosed correctly is through a biopsy! A creatinine of 1.06...
Hey!! Your numbers do not look bad at all. I have a few more questions to help get the full picture. What is your BUN, are you spilling in RBC in your urine, and what is your albumin? What...
My first ANA was 1:640. I was having horrible joint pains and my lupus was going out of control. When it started attacking my kidneys, my ANA dropped to 1:180. Even when it was to the point of...
hi! Welcome to Healing Well!! From the look of your labs, you definitely have something going on. I wouldn't dismiss the fatigue and joint pain just yet...maybe change your habits to a more routine...
How often are you having labs done?...
I think what couchtater meant to say is not one single blood test will tell you that it is lupus. Yes, they can do more labs to rule out other illnesses and other labs that can point towards lupus...
I used to feel the same way. I woke up in pain but as day went on, I could hardly walk and at night I could even pull up a bed sheet because of the widespread pain all over my body. Flares are...
Hi! Welcome to healing well :)! There's a lot of good people here to encourage and support each other! As far as your creatinine, I think I converted it to the US creatinine which would be 2.2...
Hi there! Welcome to healing well forum! I agree with your choice to see new rhuemy! You need to find one you feel listens to you thoroughly and spends plenty of time with you each apt. Are you on...
I would advise staying on steroids to save your kidneys. I haven't heard of many causes of eye issues from it but I am not a doctor. Yes, cellcept is a great drug but needs to be taken either on an...
Oh...I ended up having 3 biopsies through out the journey to figure out how bad things had gotten. It helped determine the best treatment :)...
I had diffuse proliferative nephritis. With a lot of scarring and permanent damage along with heavy inflammation. For me, at this point is when my nephrologist stepped in and managed my lupus and...
The kidney numbers are ok, could be better and hopefully will be with the recheck. To put the numbers in perspective, I started dialysis when my creatinine got to 6.1 and my BUN was well over 100....
I wouldn't be concerned unless the creatinine keeps rising! How often do you have labs done?...
It sounds like the kidney stone is the sorce of blood! Is your urine red or Coke colored?...
Those are good numbers for 75 :)! Is the diabetes well controlled?...
Hey starfishy! I have lupus nephritis and when I was first diagnosed, I was started on the exact same meds your boyfriend has been put on! With the pulse therapy of solu-medrol at a gram and...
Yes! I am permanently on 5mg and moon face has gone away! I had a pretty good one being on 80 mg orally for a year and then IVs of it weekly along with 60mg daily...Eventually I weaned down to 0 but...
Do you have both diagnosis? I have lupus and was diagnosed by eye doctor and rhuemy a bit after my lupus diagnosis. They tend to run hand and hand with each other!...
On peritoneal dialysis they no longer look at creatinine and BUN to tell how well the body is getting cleaned of toxins! They will look at clearance marks in testing they will do each month to see...
With a creatinine that high, he needs dialysis pretty soon...I'm guessing has already started it by this time. I would suggest a CKD diet (if not on dialysis) and you can find those at Davita.com...
Did you have kidney stones?...
Hey! I was on dialysis for 3 years before I had a successful kidney transplant! As far as pain, the worst part is getting stuck with 2 14 or 15 gauge needles. The pain is 10 seconds or less. If you...
No!! Normal is usually considered .6-1.2...
Unfortunately the rules have changed in most states making it difficult to get pain meds, if you do you have to get a new script every 30 days! Having the same docs for over 7 years, they know I am...
I stayed away from caffeine (another drug my body came to crave) for years! (Well not chocolate) Since September I have let myself have it occasionally when I need a boost of energy or such. I have...
Ask to get a power port!! Google it! It allows you to get IV's, blood, have blood taken and basically anything that would need to stick you for! I've had mine 4 years and love it!!...
It depends on the type of cancer and what your transplant teams says! Hopefully all will go well for both of you and you can be transplanted in a few months!...
Hey! Welcome to healing well! I have to be honest with you and tell you any drug they want to use to treat lupus nephritis has some pretty scary side effects! Your rheumatologist/nephrologist is...
Hey Lynn... I wonder if what you are experiencing is nerve pain that could be helped with gabapentin? My friend describes heard nerve pain as tingling that is painful and she gets it really bad and...
Hi there! Have you been to a rheumatologist anytime since your labs and symptoms have gotten worse? Lupus is an autoimmune disease and many times autoimmune diseases run in the family! My grandmother...
Barb, you know I am always praying for you! I am praying your doctors can get your diseases under control and manage properly. I am praying you can live a "normal life" and enjoy watching your...
I have never had the butterfly rash with Lupus! I also agree with Lynnwood that you probably need to see a rheumatologist to diagnose lupus for sure! As I am sure you know Lupus is the great...
Hey everyone… I just wanted you to know that after seven years of battling kidney issues, on May 20, 2014 I finally had a kidney transplant. if anyone finds himself needing a transplant or finding...
Hey there! Make a B issue started when I was 21 years old. I am currently 27 and everything is going great! I just wanted you to know if you need someone to talk to feel free to email me. I have had...
2000+ or when creatinine started rising!...
Yes behave 👍😄! And have a safe time away!!...
Hey everyone! Just wanted to give an update! First thank you for all the support and encouragement you all have given me! This has been an incredible process and very emotional one! Jerome (the...
In life, we our blessed with friendships and we our blessed with loving family! Along with those, I am blessed with an extra special person, an angel sent my way who is going to give me the gift of...
Welcome Welcome Welcome :)!!...
So glad :)! YAYYY...
Yup...I was very unstable for awhile. Haven't been hospitalized in 11 months now. Its kind of nice. :D!!...
Hey! Anyone else on dialysis on this forum? If so, how long? I have been on it since October 2011. I started of with Peritoneal dialysis and I ended up doing dialysis 24/7 and was exhausted and not...
Great news :D...
Been thinking and praying for Barb!!...
yup....just got over it. Had the pneumonia vaccine last year....
Hey welcome back! Sorry it has taken me so long to reply! Been battling ear infections and pneumonia. Oh the joys of lupus ehh! If your urine was more red and wbc and such I would be led to believe...
Hi there! Sorry you are having this scare! Sure isn't fun waiting for the doctors to get back with ya! A few questions....Is your urine Red or more coke/tea colored? Also, how many times do you get...
couchtater, please familiarize yourself with the rules. They are known to change periodically. As this has become legal in several states, it is to only be discussed for medical purposes, any...