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Ginny

HealingWell Forum
>
Member Profile
Display Name
Ginny
Profile Created
2/5/2003 6:00 PM
Last Seen
11/28/2015 3:54 PM
Total Posts
5514

Last 50 Posts

Cymbalta and Savella

I sure will. Thanks for the reminder!...

11/28/2015 3:53 PM

Fibromyalgia
Cymbalta and Savella

Thank you for your reply, Heart. I appreciate it. I was wondering if maybe the Cymbalta wasn't working as well anymore. It's been a life saving med for me. I will ask my doctor about trying Savella....

11/27/2015 6:28 PM

Fibromyalgia
Cymbalta and Savella

Hi everyone, I've been taking 120mg of Cymbalta for my Fibro pain and depression, for about 5 or 6 years now. I'm at the max dose and I'm far from getting enough relief from the pain, etc. Anyone...

11/23/2015 6:03 PM

Fibromyalgia
Which weather patterns are the best/worst for you?

I guess it's true it's not all about the weather is it. So many factors play rolls in how we feel. Booklvr, that is so cool you're in Calgary too! I think this winter and last winter have been extra...

3/11/2014 8:51 AM

Fibromyalgia
Which weather patterns are the best/worst for you?

Best case scenario for me would be to spend summers in Calgary and winters somewhere else. But that's not logistically feasible. Sean, you are very fortunate to live in a good climate for fibro! Even...

3/10/2014 10:29 AM

Fibromyalgia
Which weather patterns are the best/worst for you?

Thank you for all the replies! Here's why I need to move.... Calgary is a wonderful place to live in the summer and early fall. It's very dry here, much like AZ. It's the deathly cold winters and...

3/10/2014 8:39 AM

Fibromyalgia
Which weather patterns are the best/worst for you?

Hi everyone, it's been a couple years since my last post! I'm struggling terribly with my fibro. After more than 10 years of living in probably the worst place to manage fibro, (Alberta, Canada),...

3/9/2014 6:03 PM

Fibromyalgia
What med has been your best one so far for pain?

Cymbalta has been a life saver. It's my miracle pill for sure! I take oxycodone during flare ups....

3/9/2014 5:50 PM

Fibromyalgia
Scrubbing the toilet is a pain in the *ss!

. Ginny ...

8/17/2012 5:20 PM

Rheumatoid Arthritis
Is this a normal part of recovery?

Hi everyone, I had Ureteroscopic surgery on Saturday for a 4mm stone in my left kidney. OUCH! I got home the next day and about an hour later all the pain came back as though the stone had never even...

1/9/2012 4:01 PM

Kidney Diseases & Disorders
Weight gain taking Lyrica

Thanks for the responses gals, I saw my pcp yesterday and told him about the weight gain and he wants me to ultimately come off the lyrica if I gain any more weight. Right now I'm gaining 2lbs a...

11/19/2011 6:42 PM

Fibromyalgia
Weight gain taking Lyrica

Hi everyone, I started taking Lyrica in July and I've gained 15 pounds. I'm wondering if that amount of weight gain is normal or if it's even possible to know how much weight gain is normal with...

11/16/2011 9:53 AM

Fibromyalgia
muscle contractions/twitches/jerking

Thanks again Jerrie!...

8/25/2011 6:42 AM

Fibromyalgia
muscle contractions/twitches/jerking

Ginny...

8/25/2011 12:29 AM

Fibromyalgia
Travelling with Lupus

[color=#0000ff>Blessings, Ginny[/color]...

8/4/2011 6:59 PM

Lupus
Ongoing pain after strain?

In January, I slipped on some ice getting out of my car and strained my left calf muscle pretty bad. I'm still dealing with it!! Hurts like a son of a gun when I walk. I've noticed that with other...

5/25/2011 11:42 AM

Fibromyalgia
Can't have children...

it all. Right now I don't. However, I do have peace knowing that there isn't a child feeling neglected by a mom who is sick and in bed all the time. I made the right decision even if it does feel...

5/16/2011 7:04 PM

Lupus
Anyone here from Hawaii?

Haha, Carol! Yeah, I had a dream last night that I was living in Hawaii. I was surfing. Haha. Someday maybe! Yeah, no bracelet yet. I'm surprised it didn't come on Friday. Darn customs or Canada...

4/30/2011 7:45 PM

Lupus
Anyone here from Hawaii?

life in paradise with Lupus. [img]/community/emoticons/scool.gif /community/emoticons/scool.gif /community/emoticons/scool.gif /community/emoticons/cool.gif /community/emoticons/cool.gif...

4/29/2011 2:50 PM

Lupus
MS and Lupus

MS is autoimmune as well. So it will have a positive ANA result too. The only way to know for sure if it's MS or Lupus, is to have a spinal tap and an MRI of the spinal cord (to see if there are...

4/29/2011 2:47 PM

Lupus
MS and Lupus

[color=#0000ff>Blessings, Ginny[/color]...

4/27/2011 8:50 AM

Lupus
splinter hemorrhages

I get splinter hemmorhages. They don't go away though. Eventually they disappear but that's because I trimmed my fingernails. They're a definite sign of vasculitis in my case. I hope you get your...

3/16/2011 7:24 PM

Lupus
ANA 1:5264 Do you feel worse the higher it gets?

Hi there, wow, that is a high titre! I haven't heard it go that high either. I was diagnosed at 1:640. Had my ANA tested a few times over this last decade and I can't really say either way how was...

3/16/2011 7:21 PM

Lupus
Cellcept

ion! [color=#0000ff> I was on Imuran for 10 years and it just stopped doing its job. Now I don't know what I'll be taking.... Cyclosporine is overkill as I don't have any kidney involvement. Cytoxan...

3/3/2011 7:42 PM

Lupus
Cellcept

before I need to order my next prescription. [color=#0000ff> I hope it works as well for me as it has for you both![/color]...

3/1/2011 3:09 PM

Lupus
Cellcept

I've been on it for 16 days after starting on 500mg twice a day for 2 weeks, and now 1000mg twice a day. Not sure how I'm feeling to be honest. I'm having quite a bit of hair loss, bloating, gas...

3/1/2011 2:50 PM

Lupus
Cellcept

For those who are or have been on Cellcept, how long did it take for you to notice improvements/deficits? Thanks!...

3/1/2011 9:14 AM

Lupus
weight loss surgery

I can't believe this. I'm not sure what to say either. This is shocking. I'm glad to hear that Donna is making positive steps in her recovery....

2/18/2011 4:29 PM

Lupus
Checkin for 2008 & earlier members

[color=#0000ff> [/color]...

2/18/2011 7:06 AM

Lupus
Masses from possibly from lupus

6 or 7 of those masses under my skin on my thigh and lower back. The biggest is about the size of a quarter. I had an ultrasound done on them and the results came back saying it was inflammatory...

12/15/2010 7:35 PM

Lupus
Imuran and dental work

...

10/24/2010 5:46 PM

Lupus
Is the Plaquenil working?

10 months to really notice any big improvements. I just hit the one year mark and my energy levels, brain fog, and overall disease activity is hugely improved. ...

10/4/2010 9:28 AM

Lupus
Imuran and weight effects

[color=#0000ff>Blessings, Ginny[/color]...

9/21/2010 6:42 PM

Lupus
has anyone ever experienced IV steroid mania???

a week. Your reaction to the high dose is completely normal. Sorry to hear your symptoms are comig back though.... ...

9/18/2010 7:48 PM

Lupus
Ginny has colored poop!

...

9/6/2010 2:17 PM

Lupus
Bone pain?

[color=#0000ff> [/color]...

7/25/2010 6:42 AM

Lupus
Bone pain?

Has anyone had what feels to be bone pain rather than muscle or joint pain? I'm having a very painful aching in my right arm the last 4 days or so. Not in the joints, but along bones. Not sure what...

7/24/2010 7:35 PM

Lupus
new symptom: bruises

Carol, platelets are what I thought of right off the bat too. I'd get another CBC done. I'm covered in small bruises due to my thrombocytopenia (low platelets). This is just me, but my numbers can go...

6/15/2010 2:45 PM

Lupus
Heel and elbow pain

Hi NA NA, Sounds like Plantar Fasciitis. I have that. The pain is horrible isn't it? A lot of us have that issue. For me, it took losing 40 pounds to get rid of the pain. I'm okay now, but a year ago...

6/12/2010 7:23 PM

Lupus
prednisone question

Hey Amy, congrats on the taper!! That is a huge accomplishment! Tapering below 10mg requires a gentle touch so to speak. Dropping the dose by 1mg every week is the standard that I've been told by my...

6/7/2010 6:19 PM

Lupus
New to Forum

Welcome to the forum! If you have any questions just let us know. There are a few of us here (not me) who has advanced kidney involvement. We're a supportive bunch!...

6/3/2010 5:31 AM

Lupus
I think I need to see the rheumy again

I find that if I'm on an increased prednisone dose for only a few days, my fibro doesn't flare up. It's the long term prednisone use at increased doses that make fibro go crazy. So, you might still...

6/3/2010 5:29 AM

Lupus
Still having issues- please help

Hi Alli, Oh yes, autoimmunity can cause a lot of issues with our periods. I had a hysterectomy 2 years ago to rid me of the curse. LOL. Ablations don''t always work 100%. The uterine tissue can grow...

6/2/2010 7:04 PM

Lupus
I think I need to see the rheumy again

Hi Jeanneac, So sorry you're dealing with so much pain. Plaquenil usually takes up to 6 months to really kick in and see improvements. I've been on it for 10 months and I don't see any improvements...

6/2/2010 6:58 PM

Lupus
MAJOR VENT!!!

Oh Amy, what a doofus. People like that are ignorant and completely absorbed with themselves - hense the lack of compassion towards others. I've had people say things like that to me too. I usually...

6/2/2010 6:53 PM

Lupus
Plaquenil and diarrhea

Yes, that's pretty normal. I started on 400mg daily and holy smokes, I was a pooping machine. LOL. Stomach upset was really bad too. I split the dose until my body adjusted. Now I can take it all...

5/20/2010 3:28 PM

Lupus
Prednisone vs. Bone Health

There are no interactions with Didrocal that you have to be concerned about except for the first two weeks of each dose pack (which is a 3 month pack). Those first two weeks, you can't take any iron...

5/18/2010 6:15 PM

Lupus
Prednisone vs. Bone Health

I'm in complete agreement with you Lynnwood. I've been on prednisone for 10 years now. I can't live without it. I get the same symptoms you do if I'm at 10mg or lower. I went up to 15mg a couple days...

5/18/2010 2:23 PM

Lupus
Shaking on the insides

Hey girlie girl! I get the internal tremors fairly often. My psych doc told me it was anxiety. I doubted him at first, but now I know he was absolutely correct. It felt like low blood sugar to me as...

5/9/2010 7:21 PM

Lupus
Positive ANA

Hello ALgirl, Having an existing autoimmune disease (Chrons) will give you the same symptoms as what we have. Unfortunately, they all mimick one another. You can definitely have a positive ANA with...

5/9/2010 7:18 PM

Lupus
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