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okie

HealingWell Forum
>
Member Profile
Display Name
okie
Profile Created
12/14/2006 7:09 PM
Last Seen
3/16/2014 1:26 PM
Total Posts
2818

Last 50 Posts

hi it's okie carol

Hi Mary Ann, I didn't realize you were in Mesa, I live right on the boarder of mesa and tempe, baseline and price rd! Yeah I started getting sick when I was about 40 but I didn't know why. most...

11/15/2013 11:57 AM

Lupus
hi it's okie carol

Hi everyone, I just wanted to thank you all for your input. Couchtater I am so sorry to hear about your aunt. that doesn't give her much to work with that's for sure. I had a CT scan done less then 2...

11/15/2013 9:00 AM

Lupus
Only 2 treatments left

Barb, I'll catch ya later today. I hope you don't have a terribly painful time of it. love ya...

11/14/2013 5:41 AM

Lupus
hi it's okie carol

Just thought I would check in with an update. I know its been ages but I wanted to let you know I am still here. I found out sometime back that I have systemic sclerosis, scleroderma. it has left me...

11/14/2013 4:01 AM

Lupus
Walgreens refused to fill medication.

seems to me if the doctor is telling you that you can take a pill every 8 hours PRN then he should be giving you 90. Doesn't mean you have to take them all it just means they are there if you need...

8/13/2013 12:40 AM

Chronic Pain
Just HI

Not around much but keep you all in my mind and my prayers. God bless!carol...

5/28/2013 7:14 PM

Lupus
Need prayers please

Oh Barb, I'm sending prayers your way. I'm sorry you are having such a rough time. But I know how much you love your daughters and the sacrifices that you have made for her. and I know she loves you...

5/28/2013 7:12 PM

Lupus
Hi everyone it's been forever

Mary ann thanks for the email address. I'll put it in my book. Hey Fran Long time! how are you doing? I'm praying that God will be in control of what comes next in my life. because I sure have no...

7/24/2012 7:34 PM

Lupus
Hi everyone it's been forever

Hey Mary Ann, actually I'll be in tempe. so that's even closer. I know a few A/I's in phoenix. it's gonna be weird since there is no one out here. Yes klonopin is just a stop off getting off of...

7/24/2012 9:55 AM

Lupus
Hi everyone it's been forever

I just had you all on my mind. I know most of you have no clue who I am I can't remember the last time I posted. I have a question about klonopin. I told my doctor I wanted to get off the xanax so i...

7/23/2012 10:05 PM

Lupus
Barb asking for prayers

Good morning everyone. Our friend Barbara asked that I let you know what was going on, and asked that you send prayers and possitive thoughts her way. I'll let her tell you the whole story when she...

5/28/2011 5:50 AM

Lupus
lupus symptoms

Hey angel, you have to excuse me I'm an old bie but I havn't been around in awhile so I'm not really up to speed with everyone. It's sounds like a typical nasty flare to me. Are you walking outside?...

4/29/2011 7:03 PM

Lupus
Hi everyone it's been awhile

Hey Emmi, did you see some of my bracelet work? Stacie was wearing one in the news paper. It was pretty cool. it's so good to hear from you. I didn't realize how bad I messed you guys. Lynnwood hey...

4/29/2011 6:52 PM

Lupus
Anyone here from Hawaii?

Hey no sign of your bracelet yet? I can't beleive it is taking so long. I'm getting worried. I only had two flames! LOL....

4/29/2011 6:48 PM

Lupus
Anyone here from Hawaii?

Yep Ginny, every night in my dreams. I lay on the beach and when the tide goes out it washes all my sickness away. love ya...

4/29/2011 6:45 PM

Lupus
High SED rate and need dental work?

Hi daisy, i agree with the others. Not only for this situation but I think you should have a chat with your rheumy before any type of surgery. High sed tae or not. I guess my thought of the bat would...

4/28/2011 7:39 PM

Lupus
Hi everyone it's been awhile

Hi redwolf, LOL well considering you don't know who you are it's kind of hard to respond like we know each other LOL. /community/emoticons/tongue.gif But i sure get the fog. I swear sometimes I got...

4/28/2011 7:17 PM

Lupus
Hi everyone it's been awhile

Hey girlfriend how are ya? good to hear from a young old friend lol.! I took pics of some I did on facebook. It's also been good therapy for me. Gives me something to do when I can't get out with the...

4/28/2011 2:40 PM

Lupus
Barb is in the hospital

So I just talked to Barb, they moved her to another floor. They had to do another blood transfusion. She's had several in the past 6 months. Apparently she had tests done last night and one came back...

4/28/2011 2:33 PM

Lupus
Barb is in the hospital

I was just going to post that. She called me and I got a room phone number but because she's on the heart floor she can't use her cell phone. She said she passed out on her way to the doctors and a...

4/27/2011 4:18 PM

Lupus
New med

Hey Frank, glad to hear your doing better sorry you have been having trouble. It's actually a shock you have done so well for so long. gentle hugs carol...

4/27/2011 10:35 AM

Lupus
Hi everyone it's been awhile

have to apologize for not being around I have really been batteling what the right thing is to do. I step away from the group and then I come back just about the time I get back in the swing of...

4/27/2011 10:31 AM

Lupus
Lupus ANA Test Results Intrepetation

Hi hun I don't know where your from. I know different clinics have different ratings. I don't beleive my lab goes over 2560. My ANA stays between 1260 and 2580 weather I feel good or not. I've always...

1/29/2011 1:45 PM

Lupus
Dr.'s Bed Side Manner

hi welcome to the group. I have a few friends that are nurses and her response to that question would be very simple. EGO!!!!!!!!!! I've met doctors that are such jerks that I never got to figure out...

12/7/2010 3:34 PM

Lupus
For better or worse?

Hi sue, thanks for responding. I am so sorry that you had to quit your job but I'm glad you are going to get your disability.. I don't know what I would do without mine. My dust bunnies just run...

12/7/2010 7:54 AM

Lupus
For better or worse?

Hi Lucy, wow did you just tell my bio or what. I feel so bad for always saying no I can't go. then I get remarks like carol you wouldn't be so depressed if you got out more. Well yeah that's true....

12/5/2010 8:59 AM

Lupus
For better or worse?

Hi lynnette sending you huge hugs. I'm sorry about this xxxxx disease taking your piano away. It's self and just wants everything. I loved camping and there is no way I can do that anymore. I can't...

12/5/2010 8:37 AM

Lupus
For better or worse?

I everyone, I've read all your responses and thank you so much. I will write more soon but I just had a blood draw because either the pottassium is to high or to low I have terrorible cramps just...

12/2/2010 12:45 PM

Lupus
For better or worse?

Hi Fran and sonyalee, Fran it's been awhile. Thank you both for answering. Fran I assume it's your joints bothering you? You're right christmas is stressful. I've done most of my shopping already but...

12/1/2010 2:27 AM

Lupus
For better or worse?

Hi everyone. First I know many know me and many don't. I used to come here every day and shoot my mouth off about something. I really looked forward to hearing from everyone. It's what made my day....

11/30/2010 9:29 PM

Lupus
Divorce / Lupus & Dating

Hi hun, sorry about the divorce. As for when to tell them I guess everyone is different. Personelly I would tell them on the first date. It's not like you are going to give him some disease. Besides...

11/21/2010 4:20 PM

Lupus
Yikes! They Pulled Darvocet Off The Market

hi chynasmom, well the first most obvious thing is to discuss it with your doctor. They know what you are taking and how you react to certain drugs. The other thing I would say is a lot of people on...

11/19/2010 7:36 PM

Lupus
e-mails

anytime you post or reply to any post look at the bottom of your post it says options. one of the option is Notify me of reply postings by e-mail if you have a checkmark by it you will continue to...

11/15/2010 8:05 PM

Lupus
Medicare and tricare effected

Thanks for alll your input. I'm just very frustrated. I have medicare and champva which is not the same as champus. My champva is because my husband was 100% p&t from the service. (that's...

11/15/2010 12:55 PM

Lupus
Medicare and tricare effected

Don't know if you read this or not. I'm getting worried because a couple of weeks ago the DHS called and said they may take away my medicaid. Which covers my aid, my rides to doctors, meals on...

11/12/2010 12:27 PM

Lupus
Forum Problems

Most of my blank spots are in my head. But to answer your question I havn't been here much but everything I see looks just fine. Is it just this forum you are having problems with? love ya carol...

10/28/2010 4:50 PM

Lupus
Waiting for rheumoltologist appt and diagnosis

Hi Igail, welcome to the group. Lynnwood gave you some good advice. Actually even if you do have anxiety and depression you would not be any different then most of us. I have both. It's actually part...

10/25/2010 4:07 PM

Lupus
New Member, Hi!

Hi Ashley just wanted to say welcome to the group. I'm sure having family next door is a big help on days when you aren't feeling well. I know it is so frustrating trying to get answers and a DX from...

10/25/2010 3:52 PM

Lupus
Malar rashes and how long do they last?

Hey bumble one thing I figured out about lupus is this. It is gonna do what it is gonna do! Not everyone even gets rashes. most people will get them at least one time about only about 60% get them...

10/24/2010 10:11 PM

Lupus
ear and jaw pain ? glandular

Hi hun, it sounds like at least part of it is sjogrns symdrome. which many people with lupus have it and it is auto immune. here are some of the symptoms. Symptoms Dryness of the mouth and eyes are...

10/24/2010 10:03 PM

Lupus
Acidophilus

Hey annierae, what did you find out? I thought about you earlier I was reading about foods you can eat to get rid of inflmation. It also mentioned acidophilus pills. I can't put it on here though...

10/24/2010 9:56 PM

Lupus
pre-op

Hey RR let us know how it goes tomorrow. I'm sure hubby can live on PBJ and water for a couple of days. or they got 88 cent banquet meals all the time. then there is balogni and bread. none of those...

10/24/2010 9:51 PM

Lupus
Prayers and good thoughts for Barb please!

Just so you know Barb is home.! She is still very swollen and hurting but they have her on blood thinners to get rid of the clot. Praying she heals fast and can get a round of blood transfusion she...

10/24/2010 9:47 PM

Lupus
Just Diagnosed

Hi sweetbutterfly, I can't help you with those particular problems but many people here can. Maybe if you go back to your post and use your pencil to the side. Click on it and go back to the topic...

10/24/2010 9:44 PM

Lupus
how much steroids is tooooo much?

I've been on it for 6 years. If I have a bad flare i have to take predisone in larger doses but maintainance I am supposed to take 10mg but I take 5mg. and I have for awhile. Once a year I have a...

10/24/2010 9:39 PM

Lupus
Possible Lupus-Med Question

Hi tree, ell first welcome to the group. I don't know anyone on Sulindac. I'm surprised he/she has you on something that is not good for your liver since you are already taking lortab which is not...

10/23/2010 6:49 PM

Lupus
Prayers and good thoughts for Barb please!

update it was an ultra sound they gave her and yes they did admit her to the hospital. She should be in her own room with in the next 2 hours. but you know how the ER goes and at a military hospital...

10/21/2010 2:16 PM

Lupus
Prayers and good thoughts for Barb please!

I'm very worried about our Barb. She is in the emergency room right now. She's had several ports put in her chest in the past couple years with no real success. They decided last week to put one in...

10/21/2010 12:00 PM

Lupus
What exactly is a High Sed. rate?

Hi Ray, sorry you are having so much problem. I get so mad when doctors blame everything on depression instead of a honest I don't know. Anyway your sed rate is close to twice what it should be. 28...

10/20/2010 11:02 AM

Lupus
Acidophilus

Hi annie, they always beat in my head to always always always contact your doctor or pharmacist before taking anything over the counter. I know acidopholus is wonderful for balancing out my system...

10/20/2010 9:19 AM

Lupus
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