I'm still here. Checking in every day, but not much to say. Trying to plan interesting/fun things for the future -- either next week, next month, or next year -- instead of grieving the last year....
My rheumatologist (fibromyalgia/lupus/sjogrens) is still prescribing -- Xanax 0.25 (smallest dose available) for anxiety and -- Norco 5/325 (smallest dose available) for pain. I've been using these...
So, I went down to Fla for my father's girlfriends funeral, and decided on a bit of fun to offset the sad event. Went sailing -- boat folks didn't read the weather report and we got stuck in a...
Interesting. I wonder if changing the time you eat lunch would move it off of 3pm? I ask because I seem to always get hot at 8:30pm, on the clock. It doesn't change much depending on when I eat,...
Bucko, That is very unusual. If you have Lupus, they tend to avoid Remicade as it aggravates the disease. Are you under the care of a Rheumatologist? A more standard treatment is Plaquenil, which...
MargaritaLyme, I've been here a heck of a lot longer than you, and I assure you that you are in error. I've seen lots and lots and lots of discussions from all sides about all sorts of things, and...
Ugh, vertigo is not fun! Had it several times, in varying degrees of intensity and duration. There are several causes, I'm sure you & your Drs are on it. Hope you can get it resolved quickly!...
I tried his email a few months ago, and didn't get a response. Of course, I also searched obituaries and didn't find anything. I would love to know if he's still hanging on. Hopefully someone is in...
Suffering from the deaths of two significant friends (from completely different parts of my life) within days of each other. You know, the one you call every 2-3 weeks and the one you owe a call to....
My father was diagnosed earlier than that and lived to 96. Sorry he did not share details of his treatment with me, but wanted to let you know that if he's otherwise in great physical shape, and...
Oh, Pitmom, I'm so sorry! It does sound like hard times indeed. I will keep you in mind, please keep us posted....
Feeling down and miserable, one thing after another for the last 3 weeks. Finally decided maybe I'm having some allergic reactions and that's why so many headaches and such recently. Went and gave...
Sometimes such little things can be annoying, and similarly little things can be refreshing! I am so happy we are done with the typo in our daily thread. "Daily Tread" was dragging me down, even...
Had Covid booster #2 yesterday, April 18th. Silly pharmacist wrote June 6th as the date on my vaccine card!! Arm sore and I am very tired today. Thankfully I found they recorded the correct date in...
I think people have moved on to places with faster responses, like Facebook forums. I guess they have their place, but no way to build a real community like we've had here. I think when we lost the...
I had one with a colonoscopy at the same time. Other than some grogginess from being put to sleep, I noticed no issues of any kind. It is done so routinely I really didn't have any qualms about it....
Oy. Sorry you are losing hope, HT. A couple of days ago I woke up hopeless and in the bottom of the pit of despair. Once I showered, ate, and took a pain pill everything turned around. Sometimes the...
Stilling hanging out. I feel like I need *something* to get underneath these feelings, pry them off and throw them away. A crowbar, per se. So many aspects - food, weight, exercise, friendship,...
Quincey, My hip shots were in exactly the same place each time -- bursitis lower right side, trying to move without hurting caused some tendonitis in the same area. "Trochanteric bursitis" That's in...
I have had two steroid injections in my hip, about 5 years apart. My pain was attributed to bursitis AND tendonitis. (I would not get a shot without Xray or MRI to determine the actual source of the...
My father just passed away at 96 from complications of prostrate cancer -- he rode motorcycles from the age of 13 until 95.5, and choose his Drs based on whether they were motorcycle conversant or...
Sometimes we have to limit what we worry about to things we can control; least we drive ourselves stark raving mad! What can you do? You can figure out about how long it is till your pump needs...
Yup, the only thing left of yesterday are memories and whatever lessons we learned from it. I, too, am a little depressed, but carrying on. My hips are giving me fits and I wax and wain with despair...
Since Lyrica was mentioned I wanted to share my experience with it. My rheumatologist prescribed it last May at the suggestion of my Physical Therapist -- I had some bursitis and tendonitis that was...
Although I've had Lupus for 20+ years, I'm not that familiar with how drug induced Lupus is treated. I would probably follow the directions from your GI Dr, but push for the consult with the...
I didn't know what imitation crab was made of, but found this informative article. Apparently it contains NO crab at all, and the processing sounds horrid....
For what it's worth - I have sulphite allergies, but my reaction is more minor - red dots / rash and itchiness all over my body. I had no reactions from the Pfizer vaccines or booster. You probably...
Thanks, Buena, I had followed that journey. Glad to know you think it's still helping! Jan 24 (when you posted you'd had treatment #6) isn't that far in the past... Did you find anyone who had it...
Ugh. Year after year, I struggle thru Dec, Jan, and Feb. (Remember, low grade chronic depression here that's never responded to any medication.) Then spring comes and I do better. Considering either,...
Thanks for reporting on the Ketamine treatments. I never found an antidepressant that helped me any, have always just had to find other things to interest and distract me. In an okay spot now, but am...
A Lupus diagnosis is based on having at least 4 of the 11 indicators -- follow the link below for diagnosing Lupus. I've had Lupus for over 20 years and been active in lupus forums for most of that...
After 6 months on Lyrica (for Fibromyalgia pain), my ankles/calves started swelling, pain in center/left of chest, and shortness of breath. I had no idea what was going on, but my Rheumatologist...
Ut-oh! Hope nobody gets mixed up in this recall! Thanks Lanie for staying on top of things!...
Tricks with meds... fun times! After 7 months, I seem to be developing an allergy to Lyrica. So have to slowly cut back on it, supplement with a Prednisone dose pack while that's happening, and hope...
I'm in Atlanta, and haven't needed a separate Dr for routine gyn exams for 35 years. Now if something is out of the ordinary, yes.......
Yeah, it's not the insurance company I'm having trouble with, it's the doctor basically refusing care. Anyone ever tried a concierge Dr?...
So my primary care, GP dr retired right at the start of covid and I am just starting to try to locate a new Dr to last me the next 25-30 years. I had a so-called physical last week but she didn't do...
I had insomnia for well over 20 years, FINALLY a Dr listened to me and prescribed Trazodone. I take enough for a person twice my size, but I sleep 8-9 hours straight and often wake up refreshed!...
Woo-hoo!! Quite exciting!...
I lurk, I seldom post, except sometimes as my alter ego, "GreenBeans". Having a rough time now, waiting for a chest xray and a heart echo gram. Having chest pain and shortness of breath -- both...
Another fact, similar to HTs - You are as old now as you ever have been....
Most autoimmune diseases are not really diagnosed by tests, but by a collection of symptoms . For instance, Lupus is diagnosed by having more than 4 of the 11 symptom checked....
I found that Plaquenil (disease-inhibitor) and Prednisone (anti-inflammatory) were vital in keeping me fit and active -- neither damaged my health in any way. Prednisone over a certain amount did...
Hi PattyLatty, SO good to hear from you!!! I guess it shows I don't have a life, I tend to check HW once a day, every day. Guess it's become part of my morning routine! CNS involvement is the worst!...
So glad you are still squeezing some enjoyment out of life, David. I still miss our good friend Barbara Lee, and I check in here every few weeks to see how you are doing. Somehow my Lupus is still...
I've had Lupus since 2000 and have never heard of any preventative measures pre-disease, but I have heard of ways to avoid disease flares and symptoms once you have Lupus. I can't think of any reason...
I found Healing Well back in 2005 when I joined the Lupus Forum where I was moderator for many years. I learned about Heart Cancer when the wonderful rheumatologist who turned my Lupus around...
"Nobody has been on" is not correct when I can see that over 48 people have read this post. I don't expect compassion for the things that are affecting everyone. But protesting/rioting/looting is...
Nobody has any experience with Xanax and depression? Or any compassion for my circumstances? Sorry, but I am about done with this board....
I'm having a hard time right now and am wondering about using my Xanax more frequently. I don't have a lot, and it was initially prescribed for breakthrough anxiety that was a side-effect of...