The lip biopsy for Sjogen's can leave a scar that people are not necessarily warned of ahead of time. So beware! lol Just wanted to put that out there for anyone planning on getting the biopsy. I...
I read this and started thinking about women's body temperatures. A quick search told me women's is usually 0.4 degrees F HIGHER than men's, which I was surprised at. My personal temperature has been...
I get that from time to time -- something with the ear, balance, and vertigo. Stress and too many foods that cause inflammation are contributing factors for me....
Typically, four or more of the following eleven criteria must be present to make a diagnosis of Systemic Lupus by a Rheumatologist. 1. Malar rash: butterfly-shaped rash across cheeks and nose 2....
Ugh, Sounds like a big mess (to put it politely). Keep banging away till they make things right. I see SO MANY people these days running into brick walls getting appropriate care for the elderly. It...
So sorry to hear that. It is such a helpless feeling to see one's parents in a decline. Sending healing thoughts and energy to you both. Lynnwood...
Sorry, to the best of my knowledge we haven't had anyone here with impacted gland issues. We do have a Sjogren's Syndrome forum as well as Lupus -- but I don't recall it being mentioned there either....
NJFred, 'twas a question, not an accusation., nor did I contest what you said. Thanks for sharing your experience with us. That's what HW is about.... shared experiences! Thanks. Hoping Cilly is...
NJFred, I see you usually post in the Prostrate Cancer forum. Do you have any personal experience with diabetes? An A1C over 9 should, as Lanie says, not be allowed to hover that high for 3 months...
I thought if you didn't sign up for Medicare within a few months of your 65th birthday either you could NEVER signup later or there is a big penalty for signing up later. I forget which....
So my fasting insulin number is higher than my Dr would prefer, and I'm wondering about paying closer attention to the Glycemic Index of what I eat. Is there an app that y'all find useful for...
My brother the Nuclear Engineer says it's still 40-50 years away from being a clean, consistent source of energy. IE, not in my lifetime....
I had significant cognitive dysfunction with Lupus, and I learned that 'brain fog' can actually be tested and proven! I had testing by a neuropsychologist that proved my "fog" was so bad that I...
This guy? https://www.healingwell.com/community/profile.aspx?p=289267 ...
Hi everyone. Still hanging in here. Picking up patient status with a new Dr, who I hope can figure out why I can't loose weight. This extra 40 lbs is a HUGE drag, both physically and emotionally....
Yes, there was a chat. Unfortunately it became more and more buggy and eventually stopped working altogether and Peter had to remove it. I think he tried to find other chat software to install but...
When Healing Well started, there were already several forums available across the internet for cancers, so the owner/founder chose to just include breast & prostrate cancers then. Actually, between...
No, Lyme does not cause Lupus....
Re: "Advantage Plans are basically HMOs." Like everything, it's get what you pay for. I choose an Advantage Plan that is a PFFS, which means it covers even Drs which wouldn't ordinarily accept...
Did y'all look at the expiration dates on that stuff?...
My digestion is normal without taking anything. Regular normal stools. Unless I eat multiple super-rich meals in a row, then I get a loose, greasy-like stool. But that's like 6-8 fatty, greasy, rich...
Lazy gallbladder? Then why is my stool a normal brown but my gallbladder was removed over 10 years ago and I don't have any issues eating anything I want? I'm thinking there is a flaw in your...
Well, the dentist is the mouth expert! You can call and ask about a visit just for dry mouth issues. Tell them you don't want anything done to your teeth. Dunno if that will get you anywhere or not...
Sure hope you can find the right Dr sooner rather than later!! One thing I've done in the past is look at www.lupus.org and find the closest chapter to you. Then contact that local chapter and see...
Doesn't sound like a Sjogren's question -- but you might try Biotène products for dry mouth. I particularly like the mouthwash....
Have you been tested against the checklist of 11 symptoms used for diagnosing Lupus? I ask because the pain you describe isn't a typical Lupus flare, and you haven't mentioned other Lupus symptoms....
Bucko, When you posted earlier this year about Remicade, I advised you that it is NOT a lupus treatment -- it is known to CAUSE lupus symptoms. Have you ever addressed that with your rheumatologist?...
Most Lupus patients take Plaquenil to inhibit disease progression. Various steroids like Prednisone are used to control short-term inflammation flares. Longer term medications include Cellcept, MTX,...
Jett456, Is there a particular side effect you have read about that you are concerned about? I have been dealing with Lupus and Lupus forums for a very ling time and haven't had anyone ever stop...
A positive ANA just indicates *something* *may* be wrong with the autoimmune response. The rheumatologist is the correct Dr to determine if anything is wrong, and if so, what it is and how to treat...
What are your concerns about taking it? It inhibits disease progression with very few risks or side effects. Just need an annual eye exam, which most folks over 55-60 should have anyway. Been taking...
It seems to me that the Dr can take a throat culture. It will either show up as an infection or not....
A positive ANA is not a Lupus dx, it could be a number of other things. However, a rheumatologist is absolutely the right Dr to see, and I am astonished at a 58 weeks wait time! That is insane. Where...
Yes, I agree that this could be Sjogren's Syndrome. It is evidenced by dry mucus membranes, which certainly includes the vagina and anus. It is an autoimmune disease, which is diagnosed and treated...
I sure do miss so many of our previous members, we shared good times and bad and most of the people I was close with have passed away. We had afternoon chats almost every day that got me past some...
I've had Sjogren's for many years and haven't ever had this symptom with my lips. Not to say it couldn't be Sjogren's, but it's more often first noticed by dryness in mucus membranes - like eyes,...
SharonZ - I had no idea a bursa could be removed! (Something to look forward to, lol)...
I had an implant next to last on the top... not so much because I missed the tooth while chewing, but because I have many years left to live and I didn't want to deal with all the problems from other...
Been taking Hydroxychloroquine (Plaquenil) almost 20 years to control my Systemic Lupus. No problems, no side effects. Works best when taken with food, and a small chance of issues with eyes -- have...
I'm sorry, you've posted in a Lupus forum and we don't have myeloma or cancer or a blood disease - so don't really have any knowledge in those areas. Unfortunately Healing Well doesn't have any...
[b] It just always happens on Monday for me. I have to get up earlier on Mondays. [/i] I would try getting up earlier on another day of the week to see if it happens then. I mention this because I...
The Covid vaccinations are not known to affect Systemic Lupus. I've had 2 vaccines and 2 boosters with no issues at all. I would much rather risk issues from the vaccine than issues from Covid -- my...
Glad to hear you are doing so well, HT! Just doing the 'next right thing' here. Planning to visit Colorado for a week at the end of the month, so trying to loose a few pounds around the waist so I...
Typically, four or more of the following eleven criteria must be present to make a diagnosis of Systemic Lupus. 1. Malar rash: butterfly-shaped rash across cheeks and nose 2. Discoid (skin) rash:...
Never heard of that. Following to see the answer!...
Trazodone helps me sleep - a godsend after 25+ years of insomnia!...
I saw someone mentioned Atlanta. I would NOT recommend it. Too many people, too much building beyond what the existing (old) infrastructure of sewers, roads, etc can handle. And I don't recall the...
I didn't know about my father's situation until the day he was put into home hospice care at 95. While I 100% support his right to make his own decisions about treatment and disclosure, if I'd known...
I hope those who no longer post hear have found help and happiness in other places. I miss the activity we used to have, but am too worn and tired from Covid and the rest of life to carry the...
Well, the 'alcohol' solution isn't appealing in the least - never enjoyed that activity. Nor have I enjoyed being around those who did! Maybe I can walk laps in the pool, but it's an outside pool and...