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LupieLain

HealingWell Forum
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Member Profile
Display Name
LupieLain
Profile Created
10/10/2013 9:11 PM
Last Seen
8/30/2014 8:01 PM
Total Posts
12

Last 50 Posts

Anyone had this icy-hot burning skin sensation with no rash

I don't know if anyone can feel the heat... Never thought to ask :) But I have these sensations in my mouth and tongue, head, arms, legs... pretty much anywhere. The newest sensation was the feeling...

8/30/2014 1:53 PM

Lupus
Anyone had this icy-hot burning skin sensation with no rash

Hi! I can tell you that I do have an answer. Mine goes on and off now... BUT they are seizure/neurological in nature. I was absolutely shocked when the 4th, yes 4th, neurologist I went to actually...

8/30/2014 1:36 PM

Lupus
Frustrated over new dx

I always test positive with a high ANA, it is the others like the anti DNA and those tests that are coming out normal. The neuro was to tell me that I was actually having seizures. This is my third...

4/15/2014 8:51 PM

Lupus
Frustrated over new dx

Hi, I have posted once or twice before, and have been in denial over having an AI. Now I am getting more depressed and frustrated over new dx and no real answers. I was hoping maybe someone could...

4/14/2014 9:17 PM

Lupus
Echo results - Anyone else have diastolic dysfunction?

SouthernChick said... My blood pressure sounds exactly like yours. I woke up ill on July 30th after being a reasonably healthy and active person, and one of my many symptoms is heart palpitations...

10/22/2013 8:41 PM

Lupus
Anyone diagnosed with a positive ANA and a negative ENA panel?

My blood work is similar to yours. ANA of 1:2560, normal subtests, mine is a speckle pattern, low white blood cells, high neutrophiles, ongoing joint pain with inflammation (this flare has been...

10/21/2013 9:06 PM

Lupus
Flaring

I have yet to come off of prednisone after my first burst. Everything comes right back within 24 hours. Sorry you are feeling so bad :( Hope you feel better soon! Lainie...

10/21/2013 8:48 PM

Lupus
Echo results - Anyone else have diastolic dysfunction?

Hi, I got the results of my echo today. I am still have continuing chest pain. Well it said I have the first stage of diastolic dysfunction with inflammation and irritation. My rheum said it is...

10/21/2013 8:42 PM

Lupus
Anyone had this icy-hot burning skin sensation with no rash

I had a previous diagnosis of fibro but I never experienced this until the last couple of years. It is pretty annoying. I am feeling OK. The prednisone has certainly helped with the swelling and...

10/11/2013 9:47 PM

Lupus
Anyone had this icy-hot burning skin sensation with no rash

Hi, I am brand new to this DX. Before finding out I had lupus I went to the neurologist because of the pain and a burning sensation on my skin nearly all over my body at any given time, even in my...

10/11/2013 9:13 PM

Lupus
New to this and looking for direction

Thanks for the replies and advice! I cannot tell you what a relief it is to know that I am not losing my ever-loving mind for no reason /community/emoticons/shocked.gif . I have been searching for an...

10/11/2013 10:25 AM

Lupus
New to this and looking for direction

Hi all, I was "recently" diagnosed with Lupus and I am totally lost. I quote recently because in 1994 I was told I had a positive ANA but not to worry about it because it was fibro and to go see a...

10/10/2013 9:24 PM

Lupus
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