Hi PattyLatty, SO good to hear from you!!! I guess it shows I don't have a life, I tend to check HW once a day, every day. Guess it's become part of my morning routine! CNS involvement is the worst!...
So glad you are still squeezing some enjoyment out of life, David. I still miss our good friend Barbara Lee, and I check in here every few weeks to see how you are doing. Somehow my Lupus is still...
I've had Lupus since 2000 and have never heard of any preventative measures pre-disease, but I have heard of ways to avoid disease flares and symptoms once you have Lupus. I can't think of any reason...
I found Healing Well back in 2005 when I joined the Lupus Forum where I was moderator for many years. I learned about Heart Cancer when the wonderful rheumatologist who turned my Lupus around...
"Nobody has been on" is not correct when I can see that over 48 people have read this post. I don't expect compassion for the things that are affecting everyone. But protesting/rioting/looting is...
Nobody has any experience with Xanax and depression? Or any compassion for my circumstances? Sorry, but I am about done with this board....
I'm having a hard time right now and am wondering about using my Xanax more frequently. I don't have a lot, and it was initially prescribed for breakthrough anxiety that was a side-effect of...
You should be taking a NSAID, like ibuprofen, so help the inflammation. Tylenol is for pain only. Here is a good article that talks about it....
Still hanging in here. The last week has been hard (depression and anxiety), I think my patience has finally worn thin -- books and movies can only take even an introvert so far. First day of...
Generally I can use a series of coping skills and get by. Some work better than others at different times and in different circumstances. I wish medication worked for me but no anti-depressant has...
YES, one can appear calm while the insides are all a-quiver. basically you are talking about comparing what you feel INSIDE to how others appear OUTSIDE.... which are more often different in people...
Jamie, Do you have a secure place inside to park this fabulous scooter? The dimensions say 74 cm - are they correct and can you fit this thru a regular doorway? I'm probably worrying needlessly, but...
https://www.reefbikes.com.au/products/Bluefin-Electric-Mobility-Scooter-Portable-3-Wheel.html Looks great! Enjoy and be safe!...
Tam Tam, Foxes are small. They don't prey on cats and dogs. Of course, they will defend themselves if necessary. Another fear is often rabies, which very seldom occurs in a fox. If a fox doesn't look...
There are products for women, called Female Urination Devices (FUDs, or Pee Funnels), that allow us to pee into bottles just like you guys do! If I had to do a road trip now, I would certainly use...
When our brains are consumed by strong emotions, such as grief, it is natural for other skills to (seem to) diminish. It might just not yet be the right time for you to be employed. Is employment...
Oh, lordy! How did I miss this exciting adventure?? I can't wait for next Monday!...
Hope the scooter does arrive on time, HT. Shipping times of everything are much elongated here in the US. Frustrating!...
Thanks, wasn't sure if you were in the USA or not. Since you are, I'll have to agree with Lanie's advice. Use the social services provided by the hospital. Right now it may be difficult to get thru...
Where are you located? And where is the new hospital located?...
Packages of 96 were on sale here in February, and I bought one then. Living alone, this may last me... years? Calculate how long your current supply of toilet paper will last!...
One thing I practice to help keep my thoughts and fears in check -- I only do about 15-20 minutes of news a day, usually in the morning. Then I do other things all day. If I think of it I might do...
Took Plaquenil (to inhibit progression of Lupus) for over 10 years without any issues. Did the annual eye exams as a preventative, but never had any eye issues....
Also I’m Hesitant to see a rheumatologist as I don’t want them to diagnose me if it’s not actually the disease or treat me as a guinea pig. A rheumy will not diagnose you if you don't have Lupus or...
Since I live alone I don't normally see that many people, but now that the gym, the library, and other places I frequent are all closed.... and with an autoimmune disease and being over 60 (elderly?...
As a 61 year old who lived with a mother with cancer from the time I was 3.5 until she passed when I was 28.5, let me add a couple things. Please keep your children as informed as you can...
The neuro part of Lupus is generally caused by inflammation, and it is the work of the rheumy to decrease the inflammation as part of controlling the lupus. Rheumatologists deal with inflammation...
I was just treated by my regular Lupus rheumatologist. I don't think a neurologist could have done any better....
Cost was something like $75 for 3 oz. Not legal here to grow....
Thanks, the pain is certainly minimal enough that I *could* exercise -- it's just that the physical therapist doesn't really want me doing anything that uses the hip/glutes - which throws out most...
Some of you may recall I started having trouble with my knee in mid-December - the knee itself is now fine but the instability was actually tracked back to the opposite hip, for which I am still in...
I had to learn how to "mother" myself. And accept other people for what they have to offer, not for what I want from them. Best wishes....
HT, How's the recovery from carpel tunnel surgery #2 going? It would be nice if you could get an assistance dog -- both for the assistance and for the company. I lost my almost 20-yr-old cat in...
Check out the symptoms for Inflammatory Breast Cancer. Sounds similar to what you are describing....
Check out Sjogren's Syndrome - sounds like your symptoms match....
Posting and following this as a 61 year old daughter to a 93 year old father who still lives on his own and rides his motorcycle as he's been doing since he was 13. He's about as healthy and active...
A great book on friendship I read many, many years ago when I was feeling very along. Really helped put everything into proper perspective. "Brief Encounters: How To Make The Most of Relationships...
The Trigeminal Neuralgia I mentioned often goes hand in hand with TMJ issues. I think you should read the description of it's pain to see if it matches your symptoms. When I had a brief episode of...
Sounds like a miserable situation. I don't have much of anything to suggest, other than maybe food allergies - like no caffeine and lots of water. Seen an ENT? There are ENT's that specialize in...
Pitmom, So sorry to hear about all of the teeth/mouth issues. Sounds terribly traumatic, and while I know you can make it thru this, I also know it will be difficult and require a lot of adjustments...
Disability is not that hard, as long as your Drs agree. True, Social Security Disability does deny a huge number of people the first time thru, but it costs nothing to appeal, and if the appeal...
We've had at least 2 members in the past who tried Benlysta. Unfortunately they were both extremely ill and moved on to IVIG and still had extensive complications. We don't seem to have any currently...
Very sorry to hear of your loss and that you are suffering. I lost my mother when I was only 28 and it took years to feel whole again. (That was 32 years ago.) I always kind of hoped my aunts (my...
LOL. Fasting blood sugar with expired test strips.... 180 or so!!! Yikes. Fasting blood sugar with new test strips... 97. Much more reasonable! Make sure your test strips are still good, folks!...
Sometimes just keeping up with one's health seems harder than a full-time job ever was! Had some kind of medical appointment every day last week - exhausting! Hang in there, HT. Calmer days ahead....
Yes, the CVS brand. I checked every box on the shelf and purchased the ones with the furthest out date. No way will I use all 50 of them between now and then, so if anyone wants about 30 of...
Found some that don't expire till March 31, 2021 !! Thanks, y'all !...
Oh, they have an expiration date, I just didn't know how far out an expiration date one normally expects to find. So yours seem to have had a date about a year out from purchase. So you probably...
Ok, so a while back I got a monitor and intermittently check my glucose levels. Finally I noticed my test strips expired 08 / 2016 ... no wonder I get funny numbers! Anyway, my question is this --...
Well, the Sport Massage place was a joke. I've been getting massage, either sports or for relaxation, in this large metro area for 30+ years. This was a new place, mostly because it's closer to me....