How close are you to the Philly area? I see a GI in Ephrata area (about 1 hour outside of Phila - off the PA Turnpike....
I weigh about 125lbs and take 2mg (1600mcg) - I take with my Methotrexate - lower dose wasn't strong enough to combat the mouth sores, hair loss and headaches I was getting so my Rheumy moved me up...
about every 18 months.... due this year - blah...
Definitely hands down the Prep :)...
Oh I so understand - I have dealt with family and friends who don't get it - I don't know if I have celiac (been GF for so long that the biopsy comes back negative, labs say yes) but I do have a...
I have been using Stevia now for almost 10 years - I have not had any problems. I use the liquid and powder form. One thing you need to watch out for with the powder form is that sometimes it is...
Oh yes - me too. I have a standing refillable RX for Diflucan from my GI. I don't get them as often as I used to when I was on Immuran, I am taking Methotrexate now and if I eat low carb/low suger,...
Hello - I am one of the "Rare" ones to have BOTH Lupus and Crohn's. I was diagnosed with Lupus first - I have NEVER been on any Drugs that would induce Lupus either - no Remi, Humira, etc. I DO get...
The first 3 days after I did my 1st MTX injection I had diarrhea also - mine cleared up after the 3rd day and still occasionally I will get it the day after I do my shot (within 8-10 hours after...
Your welcome for the response - I definitely MUST take my Folic Acid (I take 2mg daily - including the day of the injection.) I also make sure I am extremely hydrated the day I take my Injection....
I have been on MTX 25mg injection weekly going on 2 years soon - minimal side effects, beginning was a bit rough until I adjusted to it - also once I started taking folic acid daily and making sure I...
I have a small recto-vaginal fistula that I pass gas through - nothing but gas at this point. My OB/Gyn couldn't see it during my yearly pap smear so it got passed back to my GI. My GI was able to...
I get spasm's pretty constantly, some days they are short lasting and others very painful and last forever - I take Levsin for them - works great and fast if I can take it as soon as the spasms...
oh yeah - I have Lupus SLE, Fibro, Reynauds and severe Gluten Intolerance (possibly Celiac but have been GF for so long they can't confirm by biopsy)....
I have a small Recto-Vaginal fistula - my only symptom is that I pass "gas" through it - I would tend to have it raise it's ugly head when I would flare with the Crohn's and also when I ovulated. Now...
oh yeah - totally understand - I am going through it right now also. I get hungry but get something to eat and by the time i have a few bites in me I am either fool or want to puke. The mornings are...
I have Crohn's and also suspected Celiac or a severe wheat allergy - I came back with positive Lab results for Celiac but when they did an endo and decided to do a biopsy to see what that came back...
Just curious - have they tried Methotrexate for the joint pain and keeping the Crohn's under control? Methotrexate seems to be the only thing that keeps my arthritis (from the crohn's and Lupus)...
That is the same starter I use for yogurt - it does work awesome and makes really good yogurt. Cheaper too than buying other starters. I am under the impression that it is one of the few "legal"...
Add me to the 99.5-100.5 range in "flare mode". normally I am in the 98.2-98.8 range. I will also spike the fever if I get extremely exhausted and my Lupus rash will pop out from the exhaustion/fever...
I take the Saccharomyces boulardii every time I get c diff - which is pretty often - my GI actually is the one who told me to get it - I have bought the Florstar Brand which is just that strain of...
I only noticed a loss of hair for the first 6-8 weeks - it wasn't noticeable by anyone. It wasn't a thinning or anything just felt like I was having a lot of hair coming out. After the 8 week period,...
I had to stop taking Immuran after having (2) episodes of Bronchitis back to back and then getting Pneumonia after those (2) infections - with being on Immuran my body just couldn't fight the...
check your vials - just found mine are in the recalled lot that I have been taking for the last 6 weeks and I have (4) unused vials - needless to say I am not happy - just totally freaks me out. My...
Roni - yes I did have a celiac panel done after I was diagnosed with Crohn's as I was still having "gut issues" even on Prednisone - I ask my GI if we could do a Celiac Panel - mine came back as...
Guess I am going home to read my vials - thanks for the heads up!...
I have one that says what diseases I have and then to see the wallet card or online ID # to a medical website that stores all my meds/allergies, etc. I have had EMT's read my bracelet and pull the...
I would DEFINITELY talk with your Dr. My MIL had shingles last year and I was not able to be near her (see her) for 8 weeks after her last blister healed. This was my GI Docs. request/orders. Now I...
a few thoughts - it can take quite a while to get ALL the gluten out of one's system and actually start to heal - I am talking months (6+) or even a year of being fanatically Gluten Free before you...
Yep - we have been doing this for the past 5 years - especially since my out of pocket expenses always hit close to $5000/year. I just keep all documentation of RX's, Dr visits, lab works, co-pays,...
Hmm...I too have a problem with being anemic a lot and when I do get below the "normal range" I crave red meat unbelievably - I can't take iron either - it just is unbearably painful to my stomach. I...
Definitely GO to Mayo - if you have the chance and the transportation, please go....
I believe for me it was within 15-20 minutes after drinking the first dose (out of the 4 I think within 1 hour?)...
Junerainbow, When I first started MTX I got horrible headaches for a few days after each injection. As my body adjusted to it they stopped. I also take Folic Acid to help with the side effects - MTX...
I LOVE my MTX! only thing that has worked for me :) I highly recommend the daily Folic Acid and being extremely hydrated the day before, day of an day after - seems to make a really big difference if...
I have this same problem some days- my GI told me that it was because I am not absorbing fat properly, especially with constant diarrhea or rapid transit :) So I guess that would be malabsorption......
I make my own also - I use the powder starter for my first batch and then use some from the previous batch to make the next 5 jars or so. It is quite sour depending on what type of milk you use, I...
for me I can't take it as it makes me literally feel as if I am going insane - for some reason it affects my hormonal make-up and just messes with my mind. I tried it many times over 2 years with...
Honestly I thought Movi-Prep was the best prep I have ever done - I flavored mine with "Sunrise Orange" Crystal Light packets and it was definitely much better that way. (My GI told me to flavor it...
when I was taking Immuran (same as 6MP), when I first started (which I did 2x) I would get extreme pain in my lower back, knees and wrists for the first 6-8 weeks as my body adjusted to the doseage -...
Dunny - the flank pain you are having could definitely be from Lupus - is it a constant or just on and off? I am guessing you see a Rheumatologist for the Lupus - have they sent you to a Nephrologist...
YES - you can have both Lupus and Crohn's Disease - I have both and have NEVER been on Remicade, Humira, or any other Drug Inducing meds. I was first diagnosed with Lupus and a year later Crohn's. It...
I'm with Nanners, whenever I taper down I get a "backlash" of symptoms and mood swings that last a few days then I even out - especially if I am on 40mg or more to taper down from - I think it also...
That is what I started at and have been at for almost a year now. I think that is the starting dose and they can adjust it per your lab work...
That is me who takes the higher dosage of Folic Acid on the day I inject - the double dosage is prescribed by my Rheumatologist to prevent the side effects that I was getting - my GI was the one that...
I have a Champion 2000+ Juicer and I LOVE it for juicing fruits and veggies - no pulp at all. It was quite pricey - but so worth it. I use it quite often to make veggie/fruit combos.......
I also do the MTX weekly injection - when I first started I had the "hangover feeling" the next day and a few days following. My Rheumy told me to take Folic Acid daily (I take 2mg daily and a double...
I keep my fistula under control pretty well with MTX - occasional issues every now and then, but it is much better since being on the MTX.... Hope this helps :)...
I will agree it is scary to start, I have been on MTX now for over 7 months and I will admit that I didn't like the thought of injecting at first, but now it is like 2nd nature. I also LOVE the...
My trial was actually done through my GI's office - they are a large practice that actually has it's own clinical Research Dept, so I was under the care of my GI the whole time and the GI that runs...