Sorry to sneak in here Marji - but I did't get to say goodbye. My email is krismcarmenathotmaildotcom. Thanks - Kristin...
Oh Brother, well at least you got some things out of the way. Sounds like heavy lifting and I hope you stay focused on your health. I'll pray for some help for you. Serious stuff that pneumonia. As...
Babs - Thanks - I could shoot myself - I meant to say Sjogren's NOT Scleroderma. Sorry about that Audrey Ann. Yeah, yeah .. that's the one. Gotta love dementia :) Ah, guess it happens to us all. The...
Hey Barb, sorry to hear about recent events. At least they seem to be checking you out good and taking care of you. Have they ran the echocardiogram. Make sure they do that also. After I had...
Thanks a lot Babs, it did help - Kristin...
Mommy25 - Sorry to hear about your struggles. It may be the beginning stages of lupus or another inflammatory disease or it may be coincedental. Originally, I had similar symptoms and also...
Yeah, gotta love the rubber room people. Creepy, huh? I was waiting for the bubble to appear. So glad to see you got outta there, even though it doesn't sound like you are feeling much better. Sounds...
Had this many of times during the beginning years. I hear scleroderma can cause problems with dry eye. I seem to get it a lot this time of year. I guess it is brought on by the cold weather and dry...
Just got back from E.R. with a diagnosis of PID. Can Lupus actually cause this or make one more suseptible to the disease? I was cleared on the sexually transmitted causes. Thought perhaps that since...
Hey strange love and welcome. Perhaps mom is having trouble coming to terms with having a chronic disease. It takes some time adjust too but she still needs to get to her doctors. Maybe explaining...
Redrose - My heart goes out to you. Both my pregnancies were complicated. A new mom has enough worries and then being ill on top of it can be overwhelming. Somehow, things have a way of working out...
That stinks!!! I finally get well enough to get back on here and you leave me. Just kidding. I hope you find a more fitting home, perhaps even better. But at least we are cuter! Friendlier too :) I...
Great Job Ginny!! Very informative. Yeah those buggers can happen. Mine come and go after years in between episodes. Also watch for those seizures that can sometimes come with the mini-strokes. They...
There are some inflammatory problems of the eye associated with lupus ranging from mild to moderate. I would contact the optomatrist right away. Been losing my vision and would hate to see anyone...
Thanks everyone for your kind words and assistance. I was checked for every neuro disease imaginable including MS and MG for years. Couldn't find anything until it started on the organs. After...
I came up "normal" for years (about 10+ years) before lupus showed up on tests. Don't worry too much about the tests. A flare is a flare. Eventually, your body will make it known what is going on...
Thanks Butterflake - Afraid it is permanent, been losing vision for 2 years now and progressing - none of it has come back yet unfortunately. Still, I hope they can stop the progression somehow. I...
/community/emoticons/eyes.gif Well, my week of denial is over so I now have to face the inevitable. Saw the optomotrist last week and was told that half my left eye went completely blind and half my...
You may want to suggest that your doctor checks your methylmalonic acid and B12, B6 and folic acid counts. Sometime there are nutrients going in to the body, but the body doesn't process things...
I would definitely make an appointment with the doctor. Sometimes a flu can cause all out havoc and sometimes it could be a flare like that. I have had some flares in the past that were weird like...
We have had several cases of MRSA in our township schools here in southern New Jersey. It is a bit scary. I had one a few years ago. Lucky for me it didn't break the blood barrier, but boy was it a...
Marji - Wish I had more time to get on here more often. You haven't been far from my thoughts though. Sounds like a nightmare with your son. My daughter has suicidal/homocidal tendancies since she...
Sharon - Welcome to the forum. I am so sorry to hear about the struggles you and your daughter have been going through. It pains me a great deal to see others suffer through similar ordeals. I also...
Wow, I never heard of an entire family with Lymes before. Kind of scary to imagine. The woods are bad where I live too. Could there be a history of any types of autoimmune diseases in your family...
Hey Marji, back again. Things are so crazy here. Got in another car accident but the car was somewhat working, stopped working yesterday before my eye appt, so I had to reschedule for 2 more weeks....
Has your daughter had an extensive work-up for Lupus? I have central nervous system lupus. Originally (for 10 years), I only had neurological signs like that of Lymes or MS. After 10 years it started...
As you know I have heart conditions and can take the Strattera. I would discuss the epilepsy with the doctor though. I have a seizure-like disorder but they have not ruled it in or out fully. The...
Marji - Sorry to hear so much is on your plate right now. Also sorry for not getting to the computer sooner to write back. Your son has so much going on medically that perhaps he is in denial and/or...
Hey Marji - I haven't been around lately and noticed you haven't posted in a bit either. Everything okay? Did the docs say what has been going on with you lately? How is your son? Been not to great...
Wow Des, glad to see it is resolved and you feel better. Thankfully, mine never ruptured, I could only imagine. Sorry you went through that, but glad for you that it is over. Take care - Kristin...
Razzle - I never had a fever with or without flares. I am sure I am in the minority on this one. If I get a temp of 98, I know I am very sick - usually severe infection, pneumonia, etc. Otherwise, I...
Yeah!!!! I am so happy for you. 1) that you have a firm diagnosis for what has been going on with you and 2) of course, that so far No Lupus!! Hopefully, no more surprises down the road, but for now...
Carol - Hate pneumonia. I am so sorry to hear you keep getting it. I had that issue 20 years ago and it started again last year. Creepy stuff. Scars the lungs pretty good. Never heard of Lupus Lung....
Redrose: Sorry to hear about your scare. Please let us know what the doctor thinks. Perhaps inflammation of an organ or something and not the baby causing it. Doesn't sound baby related, but I guess...
Pat. Hate to do the me too thing again. But I was going through heart problems at the time as the kidneys. I wonder if the heart was causing the kidney function problem. Mitral valve prolapse and...
Carol: Stinks that you are not feeling well and not being able to enjoy yourself fully. I know you missed some of the party, but it was for the best. Your body needs the extra rest. Make rest/sleep...
Beth: Personally, I think the rheumy should have some knowledge of kidney involvement, perhaps not a vast knowlege, but some. I believe that half of the lupus patients have kidney involvement. That...
Hi Pat - I don't know if you recall, but I recently went through all that myself. Sounds almost identical. My GFR had even declined to 53 and bad edema at times. Turns out it was okay but I will need...
Ginny, you have been through a lot. I think it is normal to want to go into denial mode both when you go through a near death experience and also when you have a remission. I have done it too, and...
Hi Beth, nice to meet you. I recently have just been going through the same problem where my GFR fell to 59 then to 53. I believe if it is possible kidney disease the creatine clearence/serum and BUN...
Hi Marji, sorry to hear about what you and your son are going through. You both will be in my prayers, as always. 19 is a tough age to be going through this, just starting adulthood and all. Just be...
Omega, sorry to hear about your shoulder. I have had forzen shoulder a couple of times over the years. I think once the inflammation goes down you should be fine. I hear the UK is much better than...
Denise - Guess what... I had the same thing happen to me recently, where my ANAs have been high for years and now all of a sudden a negative ANA. I swear it was a fluke. The doctors at that point...
Thanks Lynnwood - I hope you feel better soon - HUGS - Kristin...
Wow. It is tough to come up with names. Depends on the person I guess. Personally, I look at the meanings of the name and what has special meaning to me. My daughter was named after my mom because...
Razzel - I seem to go in and out of those moods where enough is enough. I never want to accept my illness. I know what I have and I know I need to keep on top of it, but just handling the basics and...
Congartulations!! I am very happy for you. Hope all goes well with the pregnancy. If it helps any I didn't flare when I was pregnant both times. You will probably need extra rest though. All advanced...
Welcome to the board! Sometimes when these types of diseases start out it takes a while for the bloodwork to come out positive. My ANA's, etc. did not show up for years, then a little, now a lot....
Just wanted to say hello to Joy. Sounds like a possibility of Lupus. Usually those butterfly rashes are dead giveaways. The suggestions made about making a list of your symptoms and diagnoses and...
My arthritis is definitely from my connective tissue disease. Even though I do not have a high SED rate or RH factor, my joints are definitely inflammed and in pain with some residual loss of...