I have a close relative who just found out that he has multiple myeloma and as I understand it has to do with cancer in the blood, and the number of red and white blood cells. I was told that it was...
I'm on Lialda,4/day; Humira, 40mg/every 2 wks; metamucil, 4 mg, 5 capsules/day. It's been 2-3 yrs since I had my last colonoscopy. I'm 82 and I've heard that drs don't like to give them to the...
It's been a while since I've been on Healing Well. I guess you could attribute it to the fact that I've been able to keep my UC under control with Lialda, Humira, Metamucil and (sometimes) eating...
Thanks for the input, I let my brother know and he's seeing his dr on 1/23....
I have a family member who had his gall bladder removed and is now suffering from diarrhea. He had a blood test and stool sample that showed no parasites. Any input? He's going back to the dr who is...
Yes, lots of gas but bowels are operating ok.(Knock on wood). I am very fortunate in that I didn't gett UC until I was 70 and retired with no kids to take care of, so the pressure of day to day...
Thanks for the input, my urologist finally prescribed macrobid which is the brand name and my gastro prescribed flagy, plus a probiotic which seems to be working. Never a dull moment!...
I've had UC for years and right now I have UTI and the dr prescribed Cephalexin which gave me immediate diarreaha. I'm afraid to take another dose of cephalexin until I talked to my gastro guy...
Thanks for the idea....that might help my weight too....
Thanks, for the input. I'm almost 80....It will be a cold day in .... before I'll agree to anymore surgeries. I've had gall bladder, hernia, fecal transplant, ankle/foot,2 hips, 2 knees,...
Google silent acid reflux...
Can anyone help me with my recent diagnosis of Silent Acid Reflux. My gastro dr. said my esphogus is swollen and it causes me to have coughing fits from what feels like a tickle in the back of my...
I've looked at some of the posts on phlegm in the throat. I went to an ENT because I thought I had post nasal drip and was diagnosed with Silent Acid Reflux which involves a swelling of the asophagus...
I'm taking vsl#3ds with yogurt for my probiotics, plus today I started fiber capsules. I saw my gastro dr. today and because of all the antibiotics I'm on, I'm to continue with the flagyl to ward off...
For the last 2 wks I've been on anti-biotics: keflex, ampicillin,flagyl to prevent cdiff and cancidas IV injections for UTI and have experienced very watery stools and I've been able to control it to...
Thanks for clearing that up for me. I pray I don't get cdiff. I've had that and the way to stop it and clear it up ain't pretty. Wonder if I should take fiber capsules...I take so many meds and supps...
I am a long time Healing Well patron, I've been doing well until I got kidney stones. My uro dr. has put in a stint to help while I fight a uti. He prescribed keflex 3/day; my gastro dr. addedd...
THANKS, SHERRY! I'M GOING TO TALK TO THE DR.'S TOMORROW AND PUSH TO KEEP THE HUMIRA....
You know, it's heart warming to know there are people out there who understand the challenges of UC and can sympathize with the motto: "Never again will you think it's 'just gas'"....
Thanks for the input, hope your surgery goes well. The prospect of a flare up is more of a worry for me than slow healing, I'll discuss with both drs. Thanks again...
Thanks for the input, my dr will be back in 3 days and I've asked the surgeon for my ankle to talk to him....
Hi, I haven't been on Healing Well for a while because things have been pretty good with my UC. However, I'm now getting ready for surgery to my ankle and from what the dr has said, I have to be off...
My gastro dr has prescribed anucort-hc suppositories for hemmroids and inflammation, bleeding. I went to my local walmart to find out that it is not covered by Medicare Part D, and costs $104 for a...
I've tried to think of other advice than what you've been given, but I think the others have pretty well covered the bases. I was fortunate that I was diagnosed late in life...70ish, but went thru a...
external. I have a tube of clobetasol ointment that I'm going to try....
I read your posts and being depressed is part of the disease. I've been on Humira for 2 yrs and it's made a difference. I can't take Imuran...low platlets...but I'm on mesalamine, Lialda, 4 every...
Although I'm not in a flare up right now, I am having small, but often BM's that have caused painful hemorrhoids. Other than Prep H, are there any other treatments that others have found to work....
Thanks for your question. I looked at the test results in my chart. The standard is .46 to 4.68. My TSH was 1.44. The ENT dr. said that my TSH was normal. Does that seem normal to you? It seems on...
I had my visit with an ear,nose & throat dr, referred by my gp. She looked at the ultrasound results that had been taken, ordered by my gp. She said that my thyroid had nodules, but everything looked...
Thanks, I see the dr on 8/11 and I'll ask about getting those tests. Appreciate the help....
I'm just beginning my journey with thyroid problems and don't know what's causing my current maladies. I've had colitis for 7 years and have it sort of under control with humira and lialda. I've had...
I am on humira for my uc, when I got blisters and itching, went to derm dr and after 2 wks of anti-biotic and steroid creams with no results, I changed drs and found out I had another auto-immune...
If cost becomes an issue for VSL#3, you might investigate VSL#3DS (double strength) which needs a script from your gastro guy. Also, there's a website National Organization of Rare Diseases (NORD)...
I've had UC for more than 5 years and have been on Humira now for 1 year. I've been in "remission", but must still watch what I eat. The immunosuppresant has caused other conditions: a skin disease,...
Thanks for the input. This is a heck of a road we're traveling! Wish you luck...
Thanks for your input. I see my gastro guy in 2 wks and I'm going to see about stopping Humira. I'm on other meds, some for UC and some for the skin condition, including prednisone which I'm at 25...
Has anyone had experience with getting off of Humira. Can it be done "cold turkey"? What was the reaction to your system? Humira has caused other problems for me--skin disease, blood infection,...
I was diagnosed with ulcerative colitis approx. 5 yrs. ago. In 2013 I began taking humira and am now in remission. I take 40mg 2x/month, along with Lialda and VSL#3DS daily. In September, 2014 I was...
I don't know if I've posted this before. My husband and I live on social security fixed income, and we have medicare and supplement plus part D for medication. I get Lialda thru a non-profit called...
Thanks for your input. I've looked at gluten free diet, and don't know if it's just out of habit, after cooking and shopping a certain way for 58 years! I'm going to check out where to shop for...
I've been diagnosed with bullous pemphagoid, (BP) which is an auto-immune disease. I broke out in blisters and then skin lesions all over my body. My dermotologist did a biopsy and I was diagnosed...
Charlie 3, I have that suspicion that the humira is allowing a fungus or infection to flourish in my system. I'm going to talk to my gi tomorrow to see if an anti-fungal med will affect my colon and...
I've been on Humira since May and recently I've been breaking out in sores that start out as water blisters and then become raw. I went to a dermatologist when they first started and he said I had an...
I'm taking Humira for about 1 year now and have developed neck pain and an inflammation of the veins in my left foot that feels like a hot knife when I lay down....
I've been on Humira for several months and am doing well, I still have loose bm's if I eat fried food, or something that doesn't agree with me...like chocolate. Anyway, I'm going to a family event...
I've had cdiff only once and was on vanco for 7 days in the hospital and it didn't help at all. Finally, my dr suggested fecal transplant and within 2 days the cdiff and diahrrea were gone! Even tho...
My husband has been a diabetic for over 40 years, he's almost 80, and lately he's been waking up in the morning with nausea and his blood sugar may be close to 300 when it happens. Is the nausea a...
I've had the gallon jug procedure as well as a liquid diet the day before, twice when I've had the colonoscopies; but my son-in-law was given 2 small bottles of citrate of magnesia. You may ask your...
I don't know if people are aware that Asacol is a mesalamine and when I was taking it, I was taking 4/day. When they discontinued the Asacol HD, I was switched to Lialda which is a mesalamine also...
I agree with garylouisville. It's your body and the scheduler in your GI's office doesn't have your comfort in mind. She's (assuming it's a female) working for the dr and wants to meet his (assuming...