EruditePaul I believe we are looking to move to Caribou,Maine....
Straydog...I've been doing pretty good sine my remicade infussions have been moved from every 6 weeks to every 4 weeks. My crohns is in remission however I have begun to develope antibodies to...
It looks like I might be moving up to Maine. I was just wondering if anyone on here is from that area and could recommend an awsome GI doctor up that way....
Well I was seen in three ER last night. My blood pressure was high so they did an EKG. I guess results were ok cause dr never commented on them. I was given prednisone and dilaudid. I feel some...
And extreme fatigue brain fog...
Lynnwood I only mentioned my pain level cause that's the worst right now. I've had lots of blood work done. I'm also photosensitivity, mouth sores, arthritis in neck and hip, anemic, very high ANA,...
I was seeing g a rheumatologist at Duke. But they no longer accept my insurance. I'm on remicade for my crohns. Which is in remission. My rheumatologist thought I was having drug induced lupus....
10 views and no comments...I'm sad😪...
I have been dealing with lupus for almost a year now. I would like to know what medication most of you are taking to keep the disease from flaring. I also have crohns disease. I'm on remicade...
I have been on remicade for 2 years for crohns disease. Back in February I had a bad lupus flare and when I got my remicade infusion the symptoms were almost gone. My rheumatologist said he uses...
After further evaluation it has been determined that I have lupus not drug induced lupus. So they are keeping me on remicade. My next infusion is not until June 8th. And I'm now Javon a lupus flare....
Just when I thought things couldn't get more complicated for me. Back in February I missed my remicade infusion. Soon afterwards I was in so much pain I literally could not move without crying. In 2...
Hello everyone I'm usually on the crohns site since I've had crohns for 7 years now. But here recently I've developed symptoms that are very much like lupus. I've been on remicade for 2 years now. My...
Thx for everyone's input. I'm over due for a followup with my urologist so I will call them to make appt. I don't think it's a uti cas I'm having no other uti symptoms. It just hurts and burns in...
I know several of you have experienced having a fistula. I'm needing more info about experiences with a vaginal fistula. I have this place on the vaginally wall that really burns every time I pee....
Well the polyps came back as normal benign polyps. I'm suppose to submit stool sample for cultures. It has to be turned in within 2 hours of collection but since I don't have a car and the place is...
First of all I hope everyone here had an awsome Christmas. As for my family Christmas was postponed til next weekend cas of flu and or covid. Today I had a colonoscopy and endoscopy. And of course...
A couple of weeks ago I had to deal with inflammation in my eye and throat. Yes crohns symptoms have returned. I was put on prednisone and clyndamycin. Now I'm having to deal with severe urgency to...
I really appreciate everyone's replies. I'm less nervous now. I have an appt Tuesday to get my vaccine...
My iron and ferritin have always been low. But now when I go for my remicade infussions I also get an iron infussion. There are no side effects like constipation. And my level is now a 13 after the...
I still haven't gotten vaccinated for covid yet. Therefore I spend most of my time at home. Due to having crohns and a few other ailments I'm afraid to get the vaccine. Who on here has gotten the...
I can relate to the bloating but not the jpouch. There are times when I get so bloated that people ask me when am I due and is it a boy or girl. For Pete sake I'm 53 and surely not pregnant. Lol. The...
I had my appendix removed 5 years ago. It was the fatty appendigis attached to my colon that became inflamed and thrombrosed. The dr said it could take 1 to 4 weeks to heal. Surgery could be done but...
The only treatment is pain management. The dr said the thrombrosed area should reroute the blood flow and resolve on its own. But if it doesn't then then it will require surgery to remove the tissue...
Well I'm glad I came to the hospital. I have epicloic appendigitis and it's extremely painful...
The costs of the meds we need for crohns is insane. I would be suffering even more if I didn't have medicaid...
I've never heard of it...
I am in sooo much pain. My lower left side just won't ease up. I can't curl in fetal position cause it hurts and I can't stand straight up cause it it hurts. I'm in tears if it's pressed on. I called...
Doing better at the moment. I was put on humor back in June. But within just a few months I developed antibodies. So they switched me to remicade. I've only had 2 loading doses so it has not begun to...
Its good to hear from you. Happy holiday to you too...
So what does having antibodies mean. Im not on imuran. The dr put me back on methotrexate...
I had a blood test to determine my humira levels. This test was done 1 day before my next dose was due. The adalimumab level was >0.6 but the anti adalimumab was 2849ng/ml. Can anyone interprete what...
Once again its a few days before my next dose of humira and my extreme bum pain has returned. Actually this time i have had a yellowish liquid expel....twice now. Not much but enough to notice. Ive...
Well i had my virtual appt with my gi dr. The issue i was having with my bum i was able to get a good pic to show the dr. But of course my phone went crazy and the screen just flashes green. So i had...
Well i called the gi clinic. There is a dr who took my drs place. I was able to get a virtual appt on oct 23rd and a clinic appt on dec 18th. Now how is the dr going to examine me virtually? Im...
I could go to hospital. However i always seem to go a day to soon. In otherwords i have an issue so i head off to the hosp and they send me home. Then 2 days later i go back to the hosp and they say...
First of all i wanna say HI to everyone. I havent posted on here in awhile. I started on humera awhile back. After a couple of months i started having some improvements with my abdominal pain and...
You can also use perianal lidacaine spray. Thats a prescription as well....
I have a tube of it for my fissures and it helps a lot. My gi dr had to write a prescription for it. You can also get it with a healing agent. That numbs it and heals it....
I know that i am very anemic. My jron stores are even low. Im suppose to get iron infusions but the covid19 pandamic has put that off...
My body is totally failing me. Im in pain somewhere every day. My GI dr finally put me on humira. Ive only had 3 doses now so i know its too soon to know if its going to work. I recently had imaging...
I have recently had a ct scan and they took extra precaution to make sure everything was sanitized....
No this will be the first. Ive only taken methotrexate. Im kindof nervous about the side effects...
Did get ct scan it just shows thickened walls, chronic inflammation. Dr is switching me to humira. I will be getting an mri done in july. Still having a lot of pain and very frequent bathroom trips...
Globetrotter...swollen lymphnodes indicate that the body is fighting off an invader. It could be from anything that the body says shouldnt be there. But i can relate to the lump you described. I had...
Im suppose to be getting iron infusions but this covid has bumped me outta doing so. Im kindof nervous about having it done anyway....
I had a dr take me off of meds in 2018 cause he insisted i didnt have crohns. Even though a colonoscopy in 2014 confirmed i did. A new doctor put me back on the same meds but its not working. I now...
I just contacted my gi dr and he wants me to get a CT scan asap. It hurts so bad. He said if it got worse than go to the er cause to schedule for a CT might take a few days...
My lower left abdomen has always been the most tender area. Well yesterday i noticed this place that when i feel in one spot it feels like a hole about the size of my finger tip. Its very tender to...
My joint pain began in my hips...