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Savedbygrace12

HealingWell Forum
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Member Profile
Display Name
Savedbygrace12
Profile Created
5/31/2019 8:34 PM
Last Seen
3/23/2022 3:30 PM
Total Posts
243

Last 50 Posts

Rosacea much likelier than Lupus

Very interesting. My frequency specialist mentioned bartonella as well causing the rash I’ve had. She said she’s seen an inhaled form that’s caused it...

3/14/2022 11:54 AM

Lyme Disease
Rosacea much likelier than Lupus

Update: I saw my dermatologist on Tuesday and he’s pretty sure my butterfly looking rash is Rosacea. He did not think it’s Lupus. He put me on ivermectin cream for the rash and I could do 40 mg...

3/12/2022 3:02 PM

Lyme Disease
Malar Rash? (Poll also)

Very good to know. My thyroid antibodies are still really high and tsh is high too. Free t3 and t4 are barely low. CBC with diff all normal and CMP basically all normal (just my chloride was a little...

3/6/2022 12:03 AM

Lyme Disease
Malar Rash? (Poll also)

Thanks so much. I have an appointment with my herbalogist/homeopathic specialist on Monday and an appointment with the dermatologist on Tuesday to get some direction and guidance. You guys are so...

3/3/2022 10:23 AM

Lyme Disease
Malar Rash? (Poll also)

I read that too and have wondered about it....

3/2/2022 9:18 PM

Lyme Disease
Malar Rash? (Poll also)

Yeah I don’t break out or anything after being in the sun. It’s just the way I have facial flushing very much resembles the butterfly rash. It sometimes won’t go away for a couple days or comes on...

3/2/2022 9:17 PM

Lyme Disease
Malar Rash? (Poll also)

Yeah my last ANA in 2019 was 1:640. I’ve truly felt decent just this redness is over my nose and onto my cheeks so it’s freaked me out....

3/2/2022 12:59 AM

Lyme Disease
Malar Rash? (Poll also)

Hey all sorry it’s been so long since I’ve checked in. I hope you all are well! I’ve actually been doing quite well which I was really happy about till I fell on the staircase about three weeks ago...

3/1/2022 3:57 PM

Lyme Disease
Runny Tummy for nearly one week *Update*

The Coptis worked and stopped my intestinal issues within a couple hours. I have not had a problem for nearly 2 days now. It’s such a relief. I hope it could work for another with this issue....

1/2/2021 11:20 AM

Lyme Disease
Runny Tummy for nearly one week *Update*

Yeah I was diagnosed with Covid over 5 weeks ago and was told I should have a 90 day immunity now and so I don’t believe it’s Covid now. Just wonder if remnants of it completely messed up my...

12/31/2020 3:11 PM

Lyme Disease
Runny Tummy for nearly one week *Update*

My Herbalogist said to get back on Coptis and so I am...

12/31/2020 2:32 PM

Lyme Disease
Runny Tummy for nearly one week *Update*

That’s the probiotics I’ve been taking...

12/31/2020 12:44 PM

Lyme Disease
Runny Tummy for nearly one week *Update*

Yeah I’m not on any antibiotics and so I don’t know what it is that’s causing it. I have not tried florastore. I will look into that....

12/31/2020 11:19 AM

Lyme Disease
Runny Tummy for nearly one week *Update*

Hot flashes and nausea are really the only other symptoms....

12/31/2020 10:47 AM

Lyme Disease
Runny Tummy for nearly one week *Update*

I may need to turn on c diff frequencies just to be safe. I had Covid a month ago and so wondering if it just left my intestinal flora in a sad state and a stomach flu has gotten a good hold of me....

12/30/2020 10:36 PM

Lyme Disease
Runny Tummy for nearly one week *Update*

Hey all ever since Christmas Eve I have been having diarrhea and have tried probiotics to get rid of it and it hasn’t worked. Any advice? Also my doc doesn’t have an opening till the end of January....

12/30/2020 6:54 PM

Lyme Disease
Bulging Disks

Wow Saraeli that’s crazy about how your brother in law had to sleep but encouraging too honestly. I am only 30 years old and the idea of living like this the rest of my life is not appealing. I am...

12/29/2020 2:31 PM

Lyme Disease
Bulging Disks

I am very thin and underweight and so weight is definitely not the issue. It does all make sense. All the providers are on the same page too. They just don’t seem confident that what im doing now...

12/29/2020 1:29 PM

Lyme Disease
Bulging Disks

Hey All, I hope you had a Merry Christmas. So I’ll get right too it. For many months I’ve had a shooting pain down my leg and I haven’t known what to do with it. After many months of physical therapy...

12/29/2020 12:49 PM

Lyme Disease
Fully Recovered from COVID - Not Getting Vaccine

Honestly I just wanted to put another viewpoint out there from someone who has actually had it. I do also know of someone related to a close family friend that passed away from it. I know it’s a real...

12/20/2020 9:46 PM

Lyme Disease
Fully Recovered from COVID - Not Getting Vaccine

Hey all I wanted to put my two cents in on a discussion I’ve been seeing going on. As you all know I have dealt with Lyme, co-infections, autoimmune processes, thyroid problems, and hormone problems....

12/20/2020 10:40 AM

Lyme Disease
Major Hot Flashes/Low Grade Fever during Cycle

Yeah I’ve been concerned my hormones have just dropped off the map. I definitely want to get them back in action. I have wondered if more inflammation has made it worse. What will selenium do with...

12/20/2020 10:23 AM

Lyme Disease
Major Hot Flashes/Low Grade Fever during Cycle

Hey all I hope you’re all doing well. I am finally past Covid and fully recovered my taste and smell in 2.5 weeks. However what I’ve realized is my hot flashes I normally get before my period are way...

12/20/2020 10:01 AM

Lyme Disease
Advice to Regain Taste after COVID?

Thanks so much for the reply! I will try some of that. Going to call a supplement and homeopathic specialist tomorrow who can hopefully help too...

12/6/2020 9:44 PM

Lyme Disease
Advice to Regain Taste after COVID?

Hey there! I hope you’re all doing well. I am now basically Covid recovered however my sense of taste and smell took a hard hit. My smell is doing well as I’ve been smell training however my sense of...

12/6/2020 5:07 PM

Lyme Disease
Covid+ and Lyme+...anyone here? No taste and smell

I will have to give that a try. I could put it in an empty capsule :)...

11/28/2020 3:37 AM

Lyme Disease
Covid+ and Lyme+...anyone here? No taste and smell

Thanks for the advice. I am taking turmeric and boswelia. It does seem to help. Doing a herbal respiratory formula and holy basil too. Never heard of dragons blood. I’ll have to look into that. My...

11/28/2020 1:48 AM

Lyme Disease
Covid+ and Lyme+...anyone here? No taste and smell

Hey all. I hope you’re all doing well. Tomorrow will be one week since I tested COVID + and today has been one week since I have had very little sense of smell and taste. Has anyone else dealt with...

11/27/2020 9:26 PM

Lyme Disease
Random Bouts of Wheezing...no asthma diagnosis.

My current doctor actually thinks I’m overloaded with toxins again. I’ll have to talk to her about all this. She can probably help me. She’s been great even though she’s not an LLMD. It’s interesting...

11/1/2020 10:58 AM

Lyme Disease
Random Bouts of Wheezing...no asthma diagnosis.

Hey all I hope you’re doing well. So for 7 months I felt pretty healthy after doing a detox and just the VAD was the only issue ans some muscle pain i really had. I did have wheezing before the 7...

11/1/2020 12:17 AM

Lyme Disease
UPDATE: Not Getting To Far (Also Female Cycle Question)

I used to ingest a lot of stevia drinking the zevia sodas and now I don't (they got so expensive). I do a lot of the diet shasta (I know not to healthy) and really my cycle hasn't really changed. I...

10/20/2020 2:11 PM

Lyme Disease
UPDATE: Not Getting To Far (Also Female Cycle Question)

Having the autoimmune stuff ruled out especially with the high ANA is great. Lots of relief. It’s just frustrating how lost everyone provider is with my leg pain, cycle issues, etc. I’ve tried...

10/20/2020 12:17 PM

Lyme Disease
UPDATE: Not Getting To Far (Also Female Cycle Question)

Hey All, I hope you all are doing well and staying well. I wanted to let you know that in August I had Lupus and Raynaud's ruled out by a Rheumatologist. My doctors (Rheum, Neuro) are convinced I do...

10/20/2020 11:58 AM

Lyme Disease
Circulation/Varicose problems ever since Bart Dx in 2018

Oh my goodness MedicalNerd I’m so sorry!!! I do understand what you’ve felt though and just FYInthr antibiotics didn’t help me much and nearly killed me. So trust me they’re not all they’re cracked...

10/15/2020 11:32 AM

Lyme Disease
Circulation/Varicose problems ever since Bart Dx in 2018

Regular lab testing is awful For Lyme and Co. I had a positive igenex for Lyme and negative for Lyme with regular blood testing. If you can find someone to do it with igenex or dna connexions I’d...

10/15/2020 12:15 AM

Lyme Disease
Circulation/Varicose problems ever since Bart Dx in 2018

Are they doing a lab test? DNA connections confirmed mine 2 years ago...

10/14/2020 10:27 PM

Lyme Disease
Circulation/Varicose problems ever since Bart Dx in 2018

Sounds so much like me!!! Sometimes I get POTS like symptoms not all the time though. I have started back on Japanese Knotweed and SOD actually for circulation. It seems to be helping. My VAD is...

10/14/2020 2:51 PM

Lyme Disease
Circulation/Varicose problems ever since Bart Dx in 2018

Sounds very similar. Do you have a BART diagnosis?...

10/14/2020 12:32 AM

Lyme Disease
Circulation/Varicose problems ever since Bart Dx in 2018

I did some research it’s definitely not vasculitis. Small fiber neuropathy seems a bit more what the pain is like. I am seeing a vein specialist in 2 weeks....

10/3/2020 1:51 PM

Lyme Disease
Circulation/Varicose problems ever since Bart Dx in 2018

I see a neurologist next week for the VAD and saw him a few months ago. He didn’t seem concerned about the vein pain and he doesn’t focus on veins to much just mostly brains and strokes. I could try...

10/3/2020 1:38 PM

Lyme Disease
Circulation/Varicose problems ever since Bart Dx in 2018

For Lyme (and the coinfections I had with it in 2014) I did: Rifampin, monocycline, tindamax, plaquenil, and azithromycin for 15 months until I quit all of them from getting beyond sick and...

10/3/2020 11:26 AM

Lyme Disease
Circulation/Varicose problems ever since Bart Dx in 2018

Hey All I hope you’re all doing well and staying well. I wanted to know if anyone has experienced major vein issues/pain with a Bartonella diagnosis? For over 2 years now almost 3 (I got diagnosed...

10/3/2020 1:41 AM

Lyme Disease
Muscle Spasms & Back Pain

My lady I work with has mentioned if you’ve had vaccines in the past and have recently been exposed to COVID-19 it can make the vaccines act up and cause muscle pain. It’s an interesting idea and...

6/30/2020 10:23 AM

Lyme Disease
Scary Month - VAD and High WBC

Thank you. I see the neurologist July 15th so I’ll be asking them about my blood. My lymphs do seem to be normally high so wonder if it’s the thyroid. Thanks for the concern!...

6/30/2020 10:01 AM

Lyme Disease
Scary Month - VAD and High WBC

Hey All, I hope you’re all doing well. I haven’t checked in for quite some time. I’ve also had a very intense month. I truly hope you all are well though. The story with June is we were living with...

6/29/2020 8:53 PM

Lyme Disease
Milk Thistle Dosage

Dang that's a high dose. The one I got from the store yesterday is only like 250 mg or something. At least I got something for now. I've been wondering if I should get this organic one on Amazon that...

4/29/2020 12:47 PM

Lyme Disease
Milk Thistle Dosage

Hey You all, I hope you’re well. I was wondering what the proper dosage of milk thistle there is a day to cleanse your liver? It seems like it’s rather sluggish lately and I’d like to take some milk...

4/29/2020 12:17 PM

Lyme Disease
Peanut Butter Colored Stool? I know TMI

Yeah the only time things seemed healthy was in January-Mid March of this year when I was on the paleo diet and started out with a cleanse. Now that I’m off the cleanse and just back to a gluten free...

4/29/2020 11:24 AM

Lyme Disease
Peanut Butter Colored Stool? I know TMI

My ALT, AST, and AP were not elevated at all the last time. Doctor wasn’t concerned with the protein or bili I just know it was at the higher end of normal. I did send my doc a message. I’m only...

4/28/2020 7:38 PM

Lyme Disease
Peanut Butter Colored Stool? I know TMI

Interesting. I just don’t often get the “milk chocolate bar” colored ones. It’s mostly the peanut butter color lately and so I wonder if I’m producing enough bile and my last protein and bilirubin...

4/28/2020 4:23 PM

Lyme Disease
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