I was given Xanax to take “as needed”a couple of years ago. I took it several times and did not like the way it made me feel. Have you ever tried magnesium? That has helped me....
That’s not necessarily a true assessment of his views. He embraces the idea of all vector borne diseases., that infection may be the trigger for autoimmune.I think it is unfair to be so critical of...
I appreciated Dr. SP’s book as well as those written by many others. Since this in not a one size fits all disease and every patient is different I applaud each and every doctor for taking the time...
Thank you all for the valuable information. I will certainly look into TMAO...have an appt with my cardiologist next week. I wasn’t aware that aspirin had antimicrobial properties but interestingly I...
Yes the aspirin is for heart disease...family history and elevated cholesterol...familial hyperchloesterolemia was the diagnosis...lucky me🤢..always was active and ate pretty much a Mediterranean...
Thanks to Girlie and Garzie for your input. Yes I am on a baby aspirin for the anti-clotting effect. The only time that my CRP and ESR were elevated was when I was in the beginning of my illness with...
I agree with you potsnpans...
I have been on daily aspirin for the past six years on the advice of my cardiologist. Since aspirin is anti inflammatory I have often wondered if it suppresses the immune system to some degree. Also...
Girlie, yes Dr Phillips is one of THE best LLMD’s! He is a true advocate for us all as well as a compassionate kind person....
I can attest to the fact that steroids definitely contribute to ulcers. They are very hard on the stomach. Some doctors prescribe PPIs along with the steroids to offer protection for the stomach. Try...
I think that is a wise decision to try and eat clean and stay away from coffee. Coffee is a definite stomach irritant. Sometimes it is the simplest things that we do that make a difference....
I had to quit Rocephin after seven weeks due to gallbladder issues..didn’t feel any different on it..then switched to IV Doxy for several weeks...felt the most improvement on Ceftin(oral) and that...
I did the Mepron Zithromax combo for three months . I started feeling better early into the treatment. They caught it early but I had periods of flares and relapses.I then transitioned to malarone by...
I was not treated specifically for Babesia with heparin but while I had a picc line during my Lyme treatment I had a daily flush of the line with heparin. Since it is a blood thinner(anticoagulant) I...
When I had a picc line for Rocephin they checked blood labs every week and that arm developed bad scar tissue which eventually got better....
We decorated inside including tree and outside a few days before Thanksgiving! I always love the holidays and was determined to not let this year put a damper on my mood! And lots of Christmas music!...
Yes I see you had mentioned two different tests for SIBO..not sure if I originally had both...it was awhile ago.. will definitely look for additional testing facilities thanks for the help!!...
saraeli No my esinophils have always been normal. I always suspected that I have suffered from MCAS though..reactions to many things meds, food etc . Is there a reliable test for that or is it based...
Astroman... last time they ran H Pylori it was a breath test ..are you familiar with that? Prior to that test I had a blood test to detect it.. I wish I was able to test for Sibo now but the hospital...
My labs for this test repeatedly come back high. The lab that tests for this has a normal range of <17.7. Mine are 34.3. I have received different explanations from allergic reaction to this being an...
Astroman thanks so much for the additional info. I do have a dr that I’m sure would be willing to do the testing and that would be nice to get it covered by insurance.!...
WBF ..thanks for your reply Garzie thank you for the explanation and info..it’s more complicated than I thought but certainly worth investigating...
I have never been tested for Candida ....not to sound completely stupid but is that a blood test? I notice the subject comes up here a lot. I have been diagnosed with sibo before but now with COVID...
MedicalNerd. Just curious how you were treated for the pancreatitis? I have had several bouts that mirror your exact symptoms. They keep giving me antacids and PPIs that do nothing....
SickKitty I also did home infusion of IV Rocephin with a picc line. All of my costs were covered by insurance...including weekly visits by an RN...she would change the dressing as well do blood work....
What??? Is this for REAL?...
IV Rocephin for Lyme, especially neuro Lyme is used frequently....
Girlie....😀thanks for sharing that!!!...
It took me awhile to notice the difference with B12 and for my levels to improve. I would say give the B vitamins some time. I was diagnosed with celiac in 2008 so the diet to me is second nature. It...
Two things I feel have helped me a lot to have more good days and diminish my symptoms are supplementing with vitamin B12(I was very deficient) and magnesium....
aphysicalwreck I understand your fear of treating and feeling worse..that is always a risk we take. The antibiotics certainly can create gut issues ..especially for someone like me who already deals...
I have experienced many of your same symptoms during the course of this illness. I have yet to figure out how to get rid of them. I do know that doxy intensified all of my symptoms. IV Rocephin...
Girlie in response to your question...There has never been a national response to this pandemic since it started and there still isn’t...so yes the states are basically on their own...some do better...
Girlie... maybe approved is the wrong word. Researchers at Stanford are apparently still studying the drugs effect on Lyme....active and chronic. The drug is only available as IV .They are working to...
I noticed that Solaris719 had mentioned azlocillin. I have read a lot about it’s effectiveness against Lyme. Just wondering if there was any progress in getting this approved for Lyme and being...
I agree with you Girlie...I think I got the flu shot once in the past twenty years!...
I don’t know if Bart can cause gallbladder function to be low. I have a liver cyst that was discovered having an ultrasound for my gallbladder 3 yrs ago. Some people are apparently born with them and...
I asked my doctor about getting the flu shot. He basically said what dcd1203 mentioned. He felt that it would be a light flu season with all the precautions we are taking now due to Covid....
saraeli. Thank you ! I couldn’t agree more. We are here to help each other with Lyme....
Thanks for sharing your good news! So glad you changed from you previous position.. sounds like the new job may be less stressful and a better schedule....
Thanks so much for the info on the magnesium spray. I will definitely give that a try....
Hi tashmash, Yes I definitely experienced an increase in symptoms and still do if I try to take more. I have to remember to listen to what my body is telling me!!! I would be interested in what your...
I was found to be extremely deficient in B-12 a couple of years ago. My doctor insisted on an injection and I had a pretty severe reaction...many of the same symptoms as you on supplements.It was...
Vsquare not a very nice reply to Girlie’s comment. No need to make someone’s response into a political issue....
We converted to gas over twenty years ago..much cleaner more efficient..I actually have less allergies!...
Just curious what are the symptoms of a folate deficiency?...
sdarrah Yes I do continue to have ataxia symptoms but they come and go...trying to figure out what makes them worse is almost impossible and frustrating..could be trace amounts of gluten or could be...
Yes I am tested regularly and my numbers are fine. My antibodies were extremely high before I was diagnosed as well....
sdarrah.... I was diagnosed celiac in 2008 through bloodwork and endoscopic biopsy. I have never had any doctor tell me for sure that is the cause of my symptoms. I follow a very strict gluten free...
I have been on Malarone in the past and tolerated it well. I was never told to supplement with B vitamins but my level of B 12 was quite low before taking it. I just continued to take B12 throughout...