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Stones

HealingWell Forum
>
Member Profile
Display Name
Stones
Profile Created
3/22/2006 12:05 AM
Last Seen
3/17/2021 2:40 AM
Total Posts
14

Last 50 Posts

Benlysta - anyone here used it and had any luck?

I just had my first shot a few days ago with the preloaded pen. A little nausea was all I can report at least thusfar. My MTX shot is far worse, I'm out for most of a day with that....

3/13/2021 10:26 PM

Lupus
Benlysta - High Hopes! Advice?

Also my signature is old - needs updating. They took away the plaquenil last year, I'm one of the rare ones that after 14 years of having it...it started damaging my eyes. Other drugs are different...

3/13/2021 10:23 PM

Lupus
Benlysta - High Hopes! Advice?

Hi there. I have nearly always been a lurker here. I am hoping that things are still active as I haven't been here in a while. I have Lupus with Serositis. Things have gotten a lot worse so they are...

3/13/2021 10:21 PM

Lupus
How is everyone? Check in!

Thank you so so much Butterflake. <3...

9/28/2016 1:59 AM

Lupus
Thinning Hair

I was losing quite a bit of hair which I figured was from the MTX I am taking (rheumatologist agreed). They changed me from a folic acid supplement to a thing called Rheumate which is apparently for...

9/26/2016 1:26 AM

Lupus
Humming sensation throughout my body

That's really interesting. I have no answer for you but I CAN say that I experienced this for about a week straight around the time my husband got sick and stress was extra high. It almost felt like...

9/26/2016 1:22 AM

Lupus
How is everyone? Check in!

Thank you couchtater <3...

9/26/2016 1:13 AM

Lupus
How is everyone? Check in!

Hello, I haven't been around in quite a while, though I should have been. My diseases are pretty much okay, with the occasional flare. Stress is out the roof. My husband has stage 4 metastatic...

9/25/2016 2:19 AM

Lupus
SSD - DECLINED

It took me three tries - I got approved when I called a congressman. He asked to look at my file. After he did he had "congressional interest" stamped on it and a judge finally read it and approved...

8/26/2010 12:53 AM

Fibromyalgia
Lump in bend of arm....

I have the same thing. The folks that take my blood every month said they think it is scar tissue from having the blood taken from the same spot so often. Not a real dx, but they may be right ^^...

8/26/2010 12:21 AM

Lupus
Vitamin D Deficiency????

I think the rheumies are on a Vitamin D kick. Yesterday at my visit my test results came back way low too, and I left w/ a scrip for 50k a week of it and also am to take 1000 over the counter daily....

5/14/2009 3:45 PM

Lupus
New Position - Hope I Can Handle It!

That's really great! Congrats on your new position....

6/10/2008 1:52 PM

Lupus
Newbie

just wondering Joinery, how did you discover the fatty liver issue?...

6/9/2008 2:25 PM

Lupus
Ever go off plaquenil?

I've never been off of it, been taking it for over 2 years. Sounds like it will be a lifelong deal unless there's a cure. I feel very fortunate to not have any symptoms that I can directly attribute...

6/5/2008 2:00 PM

Lupus
anyone on methotrexate injections?

I swapped to injections after a while because my stomach couldn't take it anymore. Went from 6 pills to .6 cc. My hubby gives me my shot in the arm or hip if he's home, if it's me I go for the thigh....

4/15/2008 12:57 AM

Lupus
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