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Dagger

HealingWell Forum
>
Member Profile
Display Name
Dagger
Profile Created
4/11/2008 8:15 PM
Last Seen
1/30/2015 9:36 PM
Total Posts
1522

Last 50 Posts

savella and pregnancy

Savella hasn't been in use in the USA long enough for there to be solid information on pregnancy, however it has been used in Europe since the late 90's to treat depression. The European drug labels...

2/9/2014 1:32 PM

Fibromyalgia
Rhumo ruled me out? Now what?

You don't need to be diagnosed if you can get your symptoms treated. Since there is no cure and no set treatment, it doesn't really matter what you call it. Work on ruling out other diseases so...

2/9/2014 1:09 PM

Fibromyalgia
Endometreosis?

Hysterectomy does not always "cure" endometriosis and comes with its own problems. If you have endo all over your organs, just removing the uterus and ovaries does not always help. All of the endo...

2/9/2014 12:54 PM

Fibromyalgia
Resection surgery tomorrow.. Eeek!

Chapstick! Your lips will get really dry and the gift shop charges a fortune for it. Get more than one because you will probably drop it and it will roll under the bed where you can't get it and it...

1/28/2014 12:43 PM

Crohn's Disease
Serotonin syndrome

Serotonin Syndrome can be fatal and is very dangerous. You should call you doc immediately. I understand you don't want to mess with your pain control but death doesn't sound like a good option...

1/23/2014 11:01 PM

Fibromyalgia
Bowel resection scheduled- any advice welcome!

I had my terminal ileum and cecum removed about 7 years ago due to a small tumor. I didn't have an IBD at the time so I wasn't sick or in pain before the surgery. Even though it was laproscopic, they...

1/5/2014 12:45 AM

Crohn's Disease
Blood pressure and Lyrica and also Savella question

I was in the clinical trials for Savella and had to drop out because it increased my blood pressure and heart rate. Other people from my support group were in the trial and all but one (of those not...

1/3/2014 12:32 AM

Fibromyalgia
Tramadol

I took it for a few years and it helped a lot. Withdrawal was so awful I won't take it again....

12/10/2013 6:59 PM

Fibromyalgia
Endometeriosis?

Luvzminis, You might have been given Lupron. It works well for some women but it can have horrendous, permanent side effects. It can actually cause chronic pain and tooth loss. I know a few women...

4/26/2013 12:55 AM

Fibromyalgia
Tramadol hell

Tramadol withdrawal is awful. I followed my doctor's advice on weaning off of it and it was still awful. I was down to 1/4 pill for a few days and felt fine until I stopped and then - argh! The best...

4/15/2013 9:15 PM

Fibromyalgia
Studying during a flare

Most online classes are a lot more work. The only two advantages are that you can use your notes if your brain is foggy and you usually have a window to take your tests so you can try to test when it...

1/17/2013 6:25 PM

Fibromyalgia
Crohns and college

I went back to college last year after a break like yours. Registering with disability services is a great suggestion and I am in the process of doing that right now. My only issue so far was with an...

1/17/2013 6:15 PM

Crohn's Disease
Conscious Sedation

We went out to eat after my husband's colonoscopy. He kept insisting he was fine and there was no reason he shouldn't drive. Anyway, after about 10 minutes in the restaurant, he stood up and said...

1/17/2013 5:54 PM

Crohn's Disease
Chronic Pelvic Pain and IBS

Laken, do some research on endometriosis. The only way to actually diagnosis it is with surgery. Good luck...

11/14/2012 7:56 PM

Chronic Pain
Fibromyalgia and female hormones - has hysterectomy made a difference?

We had this conversation a few times in the fibro support group I used to go to. Most of the women didn't feel it was worth it, the surgery didn't even help the problem they had the surgery for. They...

8/30/2012 12:04 AM

Fibromyalgia
Biaxin side effects????scared to take after reading about it

The metallic taste started quickly, after the first or second pill. It really wasn't that big of a deal. It was annoying but easy to tolerate. You can get sick from any med immediately or after...

8/12/2012 2:49 PM

Lyme Disease
Biaxin side effects????scared to take after reading about it

The only negative side effect I had was the metallic taste. I got used to it. The positive side effect was that it helped give me my life back. Biaxin was the med that worked the best for me....

8/12/2012 12:22 PM

Lyme Disease
Tramadol - feeling buzzed?

Momwithfibroteen, you might want to do a little more research on tramadol. It is as addictive as narcotics for many people. It can and is abused just as narcotics are. Withdrawal can be miserable...

8/12/2012 12:10 PM

Fibromyalgia
UPDATE: Insurance company sending me for functional assessment.

If they ask questions, answer using your bad days, not necessarily how you feel at that moment....

5/18/2012 4:50 PM

Fibromyalgia
A good doctor AND savella?!?!

Be careful with tramadol and Savella together, especially since you already have seizures. Read up about serotonin syndrome....

5/18/2012 4:46 PM

Fibromyalgia
Need advice for long car trips and how to handle the pain

You can get an adapter that plugs into a cigarette lighter so you can plug in your regular heating pad in the car. They are not too expensive and are probably cheaper than using the disposable ones...

5/17/2012 4:59 PM

Chronic Pain
Small Bowel Resection Questions

1) No food, not even clear liquids until you start passing gas. Then it was liquids. Then solids. 2) Pain was not bad at all. The second day is the worst. It feels like you did about 12,000 sit ups....

5/7/2012 8:08 AM

Crohn's Disease
any with crohns and endo?

Lupron doesn't cure endo or "dry it up" and some women end up worse off after they take it. It does help some women but the side effects can be horrendous and permanent. Surgical removal of...

5/1/2012 1:07 AM

Crohn's Disease
Lupron treatments linked to Fibromyalgia?

I remember reading about a link between Lupron and fibro or fibro-type chronic pain but I can't remember where right now. A few women in my fibro support group believed chemo triggered their fibro....

4/24/2012 11:45 PM

Fibromyalgia
How did you come up with your username?

I get severe pain in my lower abdomen from endometriosis. It feel like someone is stabbing me with a knife. Dagger sounds a bit more mysterious than Knife....

4/9/2012 4:39 PM

Fibromyalgia
Anybody working?

I work full time in a school. I am currently working with kids with disabilities. i have a lot of control over my day so I can sit, stand, or move around as needed. I am also taking 4 classes in...

4/7/2012 5:21 PM

Fibromyalgia
Botox for chronic pelvic pain

Do you have a diagnosis? Have you had a lap to confirm/rule out endometriosis? I'm pretty sure botox is used when your pain is caused by pelvic floor muscle spasms. This can also be treated by...

3/12/2012 5:49 PM

Chronic Pain
Discontinue Birth Control Pills?

I suggest getting another opinion. Nature's course could take another 10 years! Birth control pills don't delay menopause but they may mask the symptoms. This doesn't sound like a very good reason to...

2/29/2012 8:10 PM

Fibromyalgia
Cutting Tramadol Pills in Half

I used to cut the tramadol all the time. Your pharmacist is probably telling you not to cut them because if they aren't scored, there is no guarantee that you are getting exactly half of the medicine...

2/22/2012 8:17 PM

Fibromyalgia
Possible relapse and months until I can see my former GI

I agree with Kazbern, have them copy your file or have them send it directly to your new doc. Around here, they charge for copies but will send files to another doc for free. I'd get a copy just to...

2/21/2012 12:33 PM

Crohn's Disease
Savella

Wean down slowly. Maybe you will find that a really low dose will help more than hurt. I was in one of the original clinical studies and was surprised at how many people had to drop out due to...

2/21/2012 11:54 AM

Fibromyalgia
Bad Tramadol experience

Wow, that is a high dose! I was originally prescribed 50mg and I ended up cutting them in half for the first few months. I could never take it before bed, I'd never sleep. It gives me energy for the...

2/21/2012 11:47 AM

Fibromyalgia
Savella

You listed a lot of really bad side effects. It sounds like it is reducing the quality of your life, plus possibly putting you in danger. What benefits are you getting from the Savella? Are the risks...

2/21/2012 1:06 AM

Fibromyalgia
Fibrofog and hospital gowns...

I had to have a minor medical procedure today. I'm in my little hospital room all by myself and the nurse pulls the curtains by the door closed and leaves so I can put on the hospital gown. I strip...

2/21/2012 12:58 AM

Fibromyalgia
Can any of my Meds be causing these symptoms?

It is always a good idea to think of meds whenever symptoms increase or change. It sounds like you've been on everything except the methenamine for over 2 months. How long have you been taking the...

2/21/2012 12:40 AM

Fibromyalgia
Has the fog ever caused you a fashion blunder?

I've worn two different shoes often enough that I now remember to check. One I went to work wearing my husband's hiking boots that were 4 sizes bigger than mine and had to take a group of kids on a...

2/16/2012 5:49 PM

Fibromyalgia
Apparently you can win a colonoscopy...

CBS is having a contest where you can win a trip to NY and get a colonoscopy. I was half asleep when I heard Sharon and Ozzie Osbourne talking about winning a colonoscopy, I thought I was...

2/12/2012 4:35 PM

Crohn's Disease
Has FM ever been cured ???

I had Lyme and took antibiotics for a few years, plus I took some herbs and supplements and made lifestyle changes. When I stopped improving, the docs (unofficially) called the left over symptoms...

2/12/2012 12:21 PM

Fibromyalgia
What are the most effective non-opioid pain relieving drugs available?

I agree with newname. Stay away from tramadol if you had a problem with opiates....

2/10/2012 6:35 PM

Chronic Pain
my blood work

Here it is in clickable form: http://www.labtestsonline.org/understanding/analytes/cbc/test.html ...

2/10/2012 6:21 PM

Fibromyalgia
poor dr's advice...

I had an ileocectomy years ago due to a tumor, not for Crohn's. I was never told fiber could be a problem and it hasn't been. I hope others can help you a bit more. I agree with tinxabella, I suggest...

2/9/2012 10:19 PM

Crohn's Disease
Can back issues cause pelvic pain ?

If your gyn tells you it can't be endo, make sure to ask why. If she tells you it's because you are menopausal, I strongly suggest you get another opinion. Far too many docs believe that...

2/9/2012 10:10 PM

Chronic Pain
Gastric Emptying Study

Ask your doctor. The test is one of the easiest I've had. It is a bit weird to have to wear gloves so you don't touch the food you are eating. Bring a book or something to keep you occupied. I was...

2/6/2012 7:14 PM

Crohn's Disease
Which Protein Bars are Best?

I carry nuts, usually walnuts or almonds, but sometimes other nuts. They are great for hypoglycemia. You can put some in one of those small snack size backs and they don't take up any more space than...

2/2/2012 11:12 PM

Lyme Disease
Menstruation after ileocecectomy

One of my surgeons (female) warned me my cycle might be screwed up a bit due to the stress of surgery. She said to expect a change in the timing and probably more cramping. I had previously had...

1/27/2012 12:07 AM

Crohn's Disease
Tramadol

tsitodawg, I never said I stopped in one week, I said I felt bad for a week after I stopped. I tapered down over about 6 weeks. At the start of the taper, I was taking 100 mg/day. I lowered the dose...

12/25/2011 8:05 PM

Crohn's Disease
opioid holiday questions

Do not stop the Ultram ER cold turkey. Depending on your dosage and how long you've been taking it, it can take 6 weeks or more to stop it. I followed my doc's directions to taper off yet still had...

12/23/2011 7:27 PM

Chronic Pain
Tramadol

If you take it regularly, you may have withdrawal symptoms when you stop. I was taking it 2 weeks on and 2 weeks off and after a while I had withdrawal symptoms on the first day or so when I stopped...

12/18/2011 2:36 AM

Crohn's Disease
Benicar anyone

Benicar lowered my blood pressure too much. It made me dizzy. When I would roll over in bed, I felt like I was going to keep rolling forever. I also had a very unusual side effect. About 45 minutes...

12/14/2011 8:23 AM

Heart & Cardiovascular Disease
Tramadol not working

Be careful taking Savella and tramadol together. Read about serotonin syndrome in fibro 101....

12/5/2011 5:04 PM

Fibromyalgia
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