It has been a while and I haven't gotten any replies from her to my e-mails and am wondering if she is okay? Bev...
Don't want to discourage you, the CC is very good at most things. Heart, Breast Cancer and several other areas. I don't believe Lyme is one of them. We live in Cleveland and I was treated there six...
I read your post and sorry I do not have an answer for you concerning the itching your daughters problem, however part of your post about the loss of your daughters hands is the same problem my...
my dad did! the acid was coming up the esophagus and landing in his trachea causing bronchial spasms(very hard to get air in or out)...very scary! he started on prevacid and it made a world of...
Cmacaran: Do you know what kind of results the interaction would cause? We were wandering if it contributed to the progression of his slurred speech? Or was that just another stage of Lyme? All other...
For us the answer is, we don't. We have spent everything we have and have even filed bankruptcy. My husband is asking how low can we go. It is physically, emotionally and financially draining. You...
Thanks for your reply. I guess we knew that but just needed a confirmation from someone who has been through this terrible disease and knows what it can do to you. He is off cat's claw for now and we...
Has anyone else experienced this? My husband is about 2/3 of the way thru IV Rocephin 90 day treatment and is seeing some improvement. Mild herxing only now and is able to walk with assistance. Not...
Lisa, I believe Ed has Babesia however we live in Ohio where doctors say there is no Lyme. We have one doctor that the Ohio Lyme Chapter recommended but he is the first to tell you this is new to him...
Lisa, Sorry for the typo, it was azithromycin 500mg and flagyl 500 mg for orals. Bev...
Lisa, I agree with you being sixteen and going through this is just not right. This should be one of the best times in her life. I hope that in some way it will make her a better, stronger...
My husband started abx in July 08 and has just started walking again with assistance in the last 3 weeks. Before abx his walking was bad but after several very bad herxes he had swelling and very...
I agree, you need to find an LLMD to treat your Lyme. Good Luck, Bev...
D, yes that is the same insurance. My mom was on the phone with them for 30 minutes crying and they stated iv antibiotics are investigational and can't be used beyond 4 weeks. good luck to you. cheryl...
my dad has anthem senior care and medicare,he just finished his 28th day of IV antibiotics-they refuse to pay for any more drugs at all(IV or oral) does anybody else have insurance that pays? He cant...
Hi Maggiemoo, I would not suggest HRT to anyone. At age 52 I was put on HRT because of breakthrough bleeding. Doctors thought that it would help. I was under a lot of stress at the time and believe...
My husband did zithromax and flagyl for 90 days but not much improvement. Lots of herxing....Doctor then decided on IV Rocephin, he has been on it for 4 weeks now and seeing more improvement. But...
Hi King, We are new to this and still learning. My husband has been ill since last august and has been down the same route. I can hear in your questions how fearful you are. My husband had spine...
have you sent bloodwork to igenx for lyme?...
To Really Lyme: Treatment is still the same and we have just started a second round of antibiotics. First try didn't due a lot. A lot of herxing but not much results. We are now on 4th week of...
My husband was diagnosed with many things one being ALS. His new doctor an LLMD believes it is Lyme induced MS. He has been clinically diagnosed with that and is being treated. Please follow up as...
it's a definite possibility! good luck to you. you said you have a lyme literate doctor? check out the lyme forums on healing well. very informative... cheryl...
I don't want to step on any toes but have you looked into lyme disease at all? It mimics MS and ALS. Just a thought. cheryl...
where do you get a doug coil and how much does it cost? cheryl...
My husband was on flagyl for 90 days, the first 60 days he herxed almost constantly so llmd pulsed 4 days on and 3 days off. At the end we started IV Rocephin which has been only 11 days now and no...
has anyone experienced this with herxing? my dad started iv rocephin 11 days ago and this is a new symptom. thanks,cheryl...
lita31, I googled Neurontin and I am assuming it is something I need to ask the doctor to prescribe? I will mention it to him. Ed also has the problem in his shoulder and knee. The shoulder restricts...
lita31, Thanks for your reply. My husband said you hit it on the head. It is not just painful but impossible to bear weight on the ankle. We will talk to the doctor about it. Maybe there is no...
Does anyone have any ideas to reduce swelling in the ankle? 5th day of IV Rocephin for my husband, he can not stand and put weight on his foot for several days now. The ankle is swollen and painful,...
We live in a suburb of Cleveland Ohio. We have only one LLMD in Ohio and he is very new at working with Lyme disease. Most people that I talk to travel to Pennsylvania. NY and Ct. to an LLMD. It...
Yes, we had many problems with getting a correct diagnosis, ten doctors and other diagnosis. The doctor that diagnosed ALS will still not admit a mistake was made. Many of us have the same problem...
Yes, my husband was diagnosed with ALS and later tested for Lyme and diagnosed by LLMD. He just started IV Rocephin 4 days ago and we are seeing slight improvement.Have you been tested for Lyme? When...
i saw my dad today-haven't seen him in a few weeks. his speech was sooo slurred. my mom says there are days when it's really clear. he had his third dose of iv rocephin today. His LLMD feels his...
the hospital that put the picc line in gave him his first rocephin(to ensure there wasn't any reaction)now we are waiting approval from anthem plus he has medicare(just turned 65) so we aren't sure...
has anyone experienced medicare picking up what the insurance companies don't?...
my dad had his first dose of rocephin iv tuesday and felt really good-unfortunately were not sure if insurance is going to cover any more(and financial resources are sparse). i know he had...
what about the generic form?...
does a picc line have to be flushed everyday? my dads was inserted on tuesday and we have no meds yet-we don't want it to clot up!...
my dad, who has now been bedridden for 3 weeks has a picc line put in on tuesday and his first dose of rocephin in the hospital. my mom and he have been waiting for insurance approval since then and...
thanks ticker!...
hi all! does anyone know how to contact dr j for a conference call?...
Thanks for all your input. He is still herxing.....His left foot and ankle are badly swollen this week, red and very painful. He can not put any weight on it. Speech is slurred a good part of the...
Ticker, I will keep you posted. Thanks for your help and your concern. It gets pretty frustrating sometimes! Trying to keep positive. Talk with you soon. Bev...
Has anyone heard or know about Dr. P in Buffalo, NY?...
Ticker, Did you get my e-mail? We are trying to decide weather or not to try and find a new llmd. We are so confused. I sent you some details. I hope you received it. Thanks, Bev...
My error Ticker, he is in Ct. Our Dr consults with him. He admits he is new but is learning and talks as often as he can with him about his cases. We may consider going to hermatige, Pa what are your...
Ticker, He is presently taking Azithromyacin 500 mg 1xday and Flagyl 500 mg 2x day, he has not been tested for co-infections, but I think he could have babs. Low grade fever, chills, headaches, dry...
My husband is not taking steroids now but before he was dx with lyme he was given 2 rounds of steroids. I asked because I referred someone to our llmd and she says he wasn't sure if it was lyme and...
Can anyone tell me what effect Prednisone has on Lyme and how quickly would you see an effect from it?After 1-2 weeks of taking it would you see an effect?...
hiker53 or anyone else: We are fairly new to Lyme, are you saying that this combo is not appropriate to treat Lyme? or just co-infections? thanks, Bev...