leah, cute post. My list of five symptoms to get rid of would be: # 1: The extra 30 + lbs that came from being sedentary for so many years. # 2: The pain in my feet gone so I could wear sexy shoes...
Dowa, did you have lab tests such as liver enzymes checked? I wasn't sure what ascites was so I "googled" it. I don't have any of the symptoms but found the text on wikipedia very interesting. I...
I had a dose of iron on Wednesday and now I have a sinus cold! It's not fair! My body is reeling with energy from the iron and I can't enjoy it!!! I'll have another one on Tuesday before Christmas,...
Have you seen "PS I love you" I cried from beginning to end. Maggie moo...
My Blood pressure has been normal the last couple days. As you can imagine this is on my mind all of the time. Not anxiety crazy like on my mind, but how could I not have known crazy. I guess that's...
I saw this post the other day when it was first up. I suddenly remembered that I used to play the "SIMON" handheld game of my son's. I used to be pretty good at it with up to 12 steps sequenced...
Wow, talk about a wake up call! I have a history of high blood pressure and a very strong history of heart disease in my family. I look at the B/P meds as not a thing to take when ever I remember but...
Christmas theme: As mentioned above: Family Stone Other favorites: A Good Year / French Kiss / Under the Tuscan Sun (my favorite movie to transport me to another place) Lara Croft Tomb Raider (I like...
alfers- It was my chronic anemia and intolerance to OTC iron that finally brought the dx of babesia. My iron levels have been very low for the last 15 years and the docs just rationalized it as my...
judy3- Spoke with my LLMD today and sure enough that high potent iron IV I had 2 weeks ago today, did not improve my feratin levels, so I will definitely be going to the hospital once a week for 6-8...
Frango- I'm in Missouri. Have a wonderful LLMD in KC. He's actually supporting the idea of my going. What happened was I was dx'd with lymes 15 years ago. Dr. B found it and I was under his care for...
needshelp, I've taken diflucan off and on for 15 years. I have my liver enzymes checked on a very reg basis. My LLMD rx'd for me to take it: 1 tablet daily for 3 days, I do this every 21 days. I'm on...
runningiri, thank you for your input. I don't have thousands of dollars to toss out the window nor do I have time to go and sit for tests and labs I don't need. I know I have some serious sleep...
Welcome Vin, Wow, what a time you've had. As you know from looking at all the message threads no 2 people are alike, which really makes this journey we are on very difficult. My suggestions would be...
I am interested if anyone has had any experience with the doctors at Mayo Clinic in Rochester, Minnesota. Prior to having my DX of babesia, i was having some cause unknown sleep problems and while...
judy3- I'm been watching for someone to talk about ferrotin levels, just never got around to doing it myself, part of that being anemic. I too am anemic and I started oral iron capsules (ferrex)...
king1234 anything new with you? I just saw your post and noticed the date summited. Your story sounds very interesting and I know personally how frustrating it was be to have this weird stuff going...
KeepHope, look at the messge: hello lymies from charcotman maggie...
This is so good to hear! maggie...
KeepHope, I was on ABX for 8 years! Was it fun, we all know the answer to that, but I hung in there and you do too. From my own personal expericence I can say it does get better. Did you see the...
jennie48- this is so normal. your body is telling you something and you have to listen. My suggestion is to find something you like to do while you are resting to help spend the time. I wouldn't...
Bella, maybe it's a nerve or muscle spasm. It would be interesting to document how often they come, how long and what you are doing at the time. maggie...
What's crazy is that last week while I was herxing so bad I notice the symptoms of PMS and after 2 years of being post menopausal , I thought NO way. But Yes Way!!!...
thanks for info, learn something new everyday maggie...
Thank you for that post. When I received my first bottle of Mepron my pharmacist had never dispensed it before and basically just read what the insert said. I called my brother in law (a pharmacist...
Masonsmom- I have always steered away from HRT because of exactly what you mentioned. I go in to see my GP doc next week, so I'll ask her. I am already anemic and I can't afford any more blood loss...
I became very dyslexic with words! I would say "Pass me the scissors" at the dinning room table instead of "Pass me the salt". I was always using the wrong word for things. And yes, sometimes just...
I'd like to hear what members think about this... I am 52, post menopausal. It's been 2 years since my last memes. I have not taken hormone replacement. I started Mepron/Zithro 4 weeks ago, I've been...
I would agree that there are so many variables with Lymes that can give you false positives and also false negatives on your skin tests. I have a friend who was a med student and doing an internship...
Bobby74 I live daily in unbelievable foot and leg pain. In fact it's this chronic pain that finally brought about the diagnosis of the babesia in my blood. I first saw a podiatrist who sent me on to...
This morning I was walking by the laundry room and I thought to while I was here I would place the clothes from the washer to the dyer. When I opened the dryer I was so surprised to see there were...
King1234- I was tested and positive for Lymes in 1993. At that time there was no thought about testing for all the co-infections. After I finished the meds for lymes (8 years!!), I was doing...
Frank, Thank you for getting back with the site to update. I'm relatively new to this forum but from what I have seen there are so many requests from people who want to hear from a "well" Lymie. I...
Unbeknownst to me I had the co-infection babesia. When I started feeling bad again and was losing ground my daily question was: [b]Is it "I'm doing well, but my !@#$ still hurts like hell"?...
woodswalker- OMG your post today really hit home . At first I laughed and then cried. Your list brought back so many personal stories about my life. You know the name tags that people wear at...
Am I the only one? /community/emoticons/cry.gif maggie...
Wow, I'm excited to hear that I'm not the only one who had cardiac issues. I also have had them during the night and tests after tests all proved "normal". I certainly see that when I'm going through...
I was wondering if anyone out there has babesia only. I was biten in 1988 and dx 5 years later (1993) after 8 years of tx I was lyme free. NOW after becoming increasingly ill the last 2 years, tested...
LupnerRN Welcome aboard. Sorry to have to meet you this way. This is an excellent site with information you can't find everywhere else. Don't be afraid to ask any question you wish, there is always...
Hey there - I found a yellow teaspoon and calibrated it with my dosage cup to make sure they are the same. I'm able to lick it off easily and not waste a drop. I know I need to eat something with fat...
Razzel You have such a great way of explaining things. I follow a gluten free diet since the dx of celiac dx. My allergy includes dermatitis herpetiformis, so I'm extra careful with gluten. I look at...
Hey, my question of the day... How you do get your Mepron down? It's so thick and gooey, it sticks to the dosage cup and it's hard to get down. I place it in the dosage cup and then I feel like a...
2long4this- Welcome to this wonderful, supportive and informative sight! You are NOT alone. As you follow the blogs and read every one's story you will see bit's and pieces of your life (ups and...
Martha's vineyard, Thanks for all that work typing the list of foods to eat and also avoid. I've followed a total gluten free diet for 2 years now and it's overwhelming at first, but once I changed...
Petma, Hi, my LLMD was my last resort after seeing 4 neurologist and a rheumatologist who couldn't find what was wrong. I never thought that my problems were anything related to my lymes since I was...
Thanks ruby joe I saw a web site that carried the gel you mentioned and you're right, it's affordable. Last night I was up until after 1 am with all the kicking. IF I could stop kicking, jerking and...
The gluten free version was in a recipe link to gluten free breads. maggie...
celestia, My LLMD has had me take both at the same time. I had a monthly routine, after I would finish my menses I would take diflucan 1 daily for 3 days. I was on Biaxcin at the time and had no...
LF1980 WOW! I can really relate with you. I was bitten in 1988 and went undx for 5 years. the little critters invaded my spinal fluid and did a job on my frontal lobe. I lost my memory, dizzy all the...
nuntrio I'm not sure what "madman" is but it doesn't sound fun. I'm like petma mentioned with seizure like activity. My symptoms also wax and wane and sometimes I do go very pale but my LLMD thought...