Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

twingirl

HealingWell Forum
>
Member Profile
Display Name
twingirl
Profile Created
2/20/2007 6:07 PM
Last Seen
10/13/2020 1:50 PM
Total Posts
323

Last 50 Posts

Lesion on MRI, LP negative - thoughts? Neuro says no MS.

I would suggest a test for lyme disease. Symptoms for Lyme mimic MS and many other illnesses. Your symptoms sound just like mine and I was diagnosed with lyme about 6 years ago. You need to get...

3/7/2012 12:08 PM

Multiple Sclerosis
Heart beats funny....difficult to breathe

I had these symptoms and they went away after finding out I had both Juglar veins were collapsed. I had a vein surgeon open them no more palps, or loss of breath. Fatigue is also better as well as...

3/1/2012 7:07 PM

Multiple Sclerosis
I'm I experienceing symptoms of MS?

There isn't always a characteristic rash with lyme. In fact my rash was very uncharacteristic and over 50% do not ever get a rash at all. Ticks are very tiny. Some are the size of a sesame seed and...

4/19/2011 2:20 AM

Multiple Sclerosis
lymphnodes

I have had swollen lympth nodes. The first time I noticed they were under my arm near my breasts and I thought I had breast cancer! They were so painful. I had some lympth node massage therapy and it...

4/14/2011 4:47 PM

Multiple Sclerosis
Do you think I may have MS?

Wilma, most of your symptoms sound like MS except the joint pain. Joint pain and all your symptoms can be symptoms of lyme disease. Most neurologists will give you a western blot to rule out lyme...

4/13/2011 5:04 PM

Multiple Sclerosis
Strange skin oil odor, my liver and my MS

I take milk thistle everyday in the recommended dose. You could try taking it to see what happens. It is not toxic and was recommended to me by my alternative health doctor. Other things you can do...

4/13/2011 4:36 AM

Multiple Sclerosis
Feel Like I Am Slowly Dying

I had lyme disease for many years before I figured it out. My organs did not fail nor did I have a heart blockage. I did have knee pain, but not everyone dose. Don't listen to that kind of crap. Find...

4/12/2011 12:38 PM

Lyme Disease
Anyone diagnosed with MS then have the diagnosis changed to CFS?

Lyme disease is everywhere and should be ruled out. Expecially since you had the flu like experience. I'm a bit annoyed with the way your doctors have been treating you. It is irritating to not get a...

4/12/2011 5:00 AM

Chronic Fatigue Syndrome
Could it be MS instead of FMS?

MS is usually diagnosed by a neurologist who specializes in it. Some MRI machines are better than others at detecting lesions, and some do not use the contrast. I would suggest seeing a neuro and go...

4/10/2011 2:05 PM

Multiple Sclerosis
I'm I experienceing symptoms of MS?

I'm sorry you are having such strange symptoms. Did any of your doctors do a lyme western blot? Do you remember ever having a tick bite? Lyme disease is a very strange and hard to diagnose illness...

4/9/2011 11:23 AM

Multiple Sclerosis
low dose Naloxotrene

I notice a subtle difference with LDN. It's not dramatic, but I do feel a bit better while on it. And it took over a month to feel better....

3/29/2011 12:44 PM

Lyme Disease
MS YOUR GUESS IS BETTER THAN MINE! WHO THINKS YES?

I'm sorry that you are having these problems. It's a lot to have to deal with. I don't have any answers for you, but wanted to wish you well in figuring out what is wrong and how to fix it....

3/29/2011 12:40 PM

Multiple Sclerosis
needing your advice please

The slurred speech does not sound like fibro. I would suggest seeing another neurologist as many of your symptoms do sound neurological. Some MRI's are better than others in picking up lesions. The...

3/29/2011 12:36 PM

Multiple Sclerosis
cis

atwin, I found the card for the NP I went to and the treatment I had was called Bioresonance Balancing which I think is different from biomeridian....

3/23/2011 12:41 PM

Multiple Sclerosis
cis

EM is electromagnic energy. The stuff from cell phones and electronics and appliances, computers. It's really not healthy for anyone, but some people are more sensitive than others. I bought some...

3/22/2011 4:15 PM

Multiple Sclerosis
cis

Thank you for your input atwin. Yes I am identical. I love my sister!! I have also done metal detoxing and have tried the gluten free/dairy free diet. The metal detoxing was very helpful but the...

3/22/2011 2:32 PM

Multiple Sclerosis
cis

I know I had lyme before because of the tick bite, rash and positive test. I also had typical symptoms like joint pain. But now ALL my symptoms are neuro and the typical lyme symptoms are gone. So...

3/20/2011 12:30 PM

Multiple Sclerosis
cis

Thank you Gretchen. I am still treating the lyme with alternative methods and think I will stay with the LDN and copaxone for now. It's just so frustrating to be told I should feel normal when I do...

3/19/2011 3:01 PM

Multiple Sclerosis
cis

OK I guess I do not have an official MS diagnosis but did have a CIS episode with left side muscle weakness, numbing, tingling, brain fog, fatigue and blurry vision. According to my neuro, the...

3/19/2011 7:23 AM

Multiple Sclerosis
Question about remissions

Thank you for your response Aldez. The reason for much of my confusion about symptoms is that my neuro seems to think I should be able to work but there is just no way I can do that. I've been trying...

3/16/2011 10:03 AM

Multiple Sclerosis
scared

There are infections like Lyme disease that can also cause eye problems like ON...

3/13/2011 3:58 PM

Multiple Sclerosis
Can you help?

Any of these symptoms you mention could be lyme disease. Neurologists do not understand lyme. It is a controversial disease and to rule it out you would need to see a doctor specializing in the...

2/20/2011 2:04 PM

Multiple Sclerosis
Question about remissions

I am seeing an ms specialist. He does research and is considered one of the best in the area. I'm not completely happy with him, but from what i understand, the others around here are really poor...

2/16/2011 5:20 AM

Multiple Sclerosis
Question about remissions

I am newly diagnosed and have a question. Can't get a straight answer from my neuro. I had left side muscle weakness for about 6 months which my neuro says was due to a relapse. Now on copaxone and...

2/15/2011 3:21 PM

Multiple Sclerosis
Zooming in the head

I have this symptom frequently and I have low blood pressure....

1/5/2010 11:33 AM

Lyme Disease
What else could Chronic Fatigue be?

LYME DISEASE thyroid issues hormonal imbalance Viruses, EBV, HHV6, etx Mycoplasma Fungal/yeast infections ALL OF THE ABOVE AT ONCE!!! or any combination...

11/14/2009 6:36 AM

Chronic Fatigue Syndrome
Fibro and CFS centers

Treatment there didn't work for me just made me sicker. They misdiagnosed me with cfs and fibro when I really had lyme disease. I now see a doctor who treats my lyme and I'm so much better. I went to...

11/14/2009 6:34 AM

Chronic Fatigue Syndrome
Fibromyalgia and Fatigue Center

I went there in 2007 for 7 months. Initially I felt better so I was encouraged, but then began to feel much worse. My twin sister had been diagnosed with lyme disease so I asked for a test for that,...

11/14/2009 6:30 AM

Chronic Fatigue Syndrome
Lyme-Literate practitioner in MICHIGAN

There are several doctors here in Michigan who treat lyme disease. You can call the Michigan Lyme Disease Association to get a referral. 1-888-784-LYME(5963. Linda is our president and she can help...

10/24/2009 5:28 AM

Lyme Disease
Samento

I had a strong herx reaction to samento a few years back. This is strong medicine!! I increased my dosage too quickly and got really sick. What you are describing sounds like a herxheimer reaction to...

8/26/2009 6:41 AM

Lyme Disease
MD called and said results were negative, but just got my copy and WOW

cajungirl this is right from the order form: EHRLICHIA CHAFEENSIS (HME)  203 HME IgG & IgM Ab  750 HME PCR – Serum  770 HME PCR – Whole Blood I have my results from Igenex right in front of me....

8/25/2009 8:41 AM

Lyme Disease
MD called and said results were negative, but just got my copy and WOW

Cajungirl, Igenex does test for Ehrlichiosis! I had my positive test done by them. They test for all coinfections....

8/25/2009 4:36 AM

Lyme Disease
Have I been infected with Lyme Disease? (picture)

lovemuffin, That looks like a classic lyme rash. Please dont' be afraid to take the meds!! You need as much as melaB is talking about. That is not a lot of meds comparted to what the rest of us have...

8/16/2009 8:05 AM

Lyme Disease
Is this a lyme symptom?

It's called Raynaud's syndrome and is common with people with autoimmune illnesses such as lupus, sclerderma and others. It is also common with lyme. It happens to me on occasion....

8/16/2009 7:57 AM

Lyme Disease
"Deer, ticks and Lyme disease in Cranford--an important clarification" Cranford Chronicle

Very interesting article ticker! We have deer all over the place where I live. It makes me worry....

8/10/2009 3:10 AM

Lyme Disease
Detox and 'cleansing' our systems

I agree with Frango on the humaworm suggestion. I use this product at least twice a year and it works well....

8/6/2009 6:30 PM

Lyme Disease
where to buy rife machines and emem machines

Brookshire, I have information on where to buy an EMEM. If you email me I can give it to you....

7/30/2009 9:17 AM

Lyme Disease
H1N1 vaccine this fall anyone?

No, I will not be taking this vaccine. I don't trust any vaccines. Plus they have mercury in them. My LLMD says no to vaccines....

7/24/2009 11:16 AM

Lyme Disease
Rifampin and Zith for bart

Jess, Yes I still go to Dr. Z and so does Molly. You are from Michigan right? Are you going to the conference? Molly and I will be on vacation, so we can't go! James, go for it man! Let me know what...

7/22/2009 3:04 PM

Lyme Disease
Rifampin and Zith for bart

I took my first rifampin last night and already woke up with a headache and sore muscles. But I am starting at 300mg. So I'm going to wait another day to start zith. It wouldn't hurt for you to start...

7/22/2009 9:24 AM

Lyme Disease
Rifampin and Zith for bart

Yep. It looks like bart alright!! I get those as well....

7/22/2009 9:01 AM

Lyme Disease
Rifampin and Zith for bart

James, Let me know how it goes with the rifampin. I just started last night. Do you know how long you will be on it??...

7/22/2009 2:35 AM

Lyme Disease
Rifampin and Zith for bart

Lymekiller, I had a test by igenex that was positive. Testing is not reliable, it is usually a clinical diagnosis. I have most of the bart symptoms and was tested for bart after getting a streaky red...

7/21/2009 5:26 PM

Lyme Disease
Rifampin and Zith for bart

Minerals, Thank you so much for the info! I looked back at my old scripts and I can now see that when I was on 500 zith that I took it twice a day on a lower dose I only took it once. So I will take...

7/21/2009 3:46 PM

Lyme Disease
Rifampin and Zith for bart

Thanks Ticker. I think I need to take it all at once. Last time I was on zith that is what I did. But I will ask to be sure. Just wanted to know how others did it. dar...

7/21/2009 2:23 PM

Lyme Disease
Rifampin and Zith for bart

I have just been put on this combination. I am to take the rifampin 300 once a day at night for a week then increase to 600. The script says to take the zith 250 twice a day, but I thought it was to...

7/21/2009 2:00 PM

Lyme Disease
fibromyalgia or lyme

If these symptoms started after being bitten by a tick, I would say it's lyme. In my opinion, I don't think there would be any doubt here. You were bitten by a tick, ticks carry lyme, you have lyme...

7/8/2009 3:07 AM

Lyme Disease
Hair Loss and NO ONE can help - can you?

My hair loss was due to extremely low testosterone levels. The hair on my legs completly disappeared and the hair on my head became very thin. Since taking the testosterone, my hair is back to...

7/1/2009 8:09 AM

Lyme Disease
Where to buy zhangs stuff

Thank you so much GraciesMom!! You are always so helpful and kind!...

6/23/2009 12:00 PM

Lyme Disease
Where to buy zhangs stuff

Thank you Graciesmom!!...

6/23/2009 7:22 AM

Lyme Disease



HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.