How about adding Rifampin? Or going to Zithromax plus Rifampin?...
I had this as a regular symptom before abx. The Rifampin did make me much dizzier on the first dose. Even for a few months on the full dose, I would have increased dizziness about an hour after the...
Yes...
We see the same doc! Bvb= Bartonella vinsonii berkhoffii (types I,II,III) I have not been retested since testing positive, but I have BvB I and II....
Which antibodies are rising? I have also seen good results w/ Zith/Rif, though it took a while....
With Zith/Rif, I had relief from my muscle pain after a month, but that came back. I thought, ok this is not working. My doc told me the pain may come back after I told him I had relief from that...
Thanks for this. I have the same problem and found Selsun Blue to also work....
pcpc said: "Thyroid (TSH, free T3 and free T4). TSH should be over 2.0" I think this is supposed to read "TSH should NOT be over 2.0." I struggled to find a doc to treat my "subclinical...
I get this as well. Usually the temp is never above 99.4. I also have Bart. My doctor has not specifically said what the reason is. I see him tomorrow and intend to ask, as I have had low fevers for...
Cajun Girl- No, I don't think so. I have been nauseous off and on anyway. I currently take Biaxin and Plaquenil. Adding Rifampin next week....
I take 1 tab in AM and one at night....
kwahraps: Never initially treated for Lyme. Two docs feel my immune system is just not making the antibodies or they are in complexes. PCR's done through MDL for 4 species of Borrelia. All neg. PCR...
15 years ago, I had a bulls eye rash after camping, followed by swollen knees and vertigo in the few months following. The vertigo had come and gone over these years. After a round of steroids in...
I was on 40 mg Benicar a day from December until February. It was then that I noticed near fainting spells due to low BP. I had to totally stop taking it. I was worried about it's effects on...
Quest also does the test. They send it out to a reference lab....
I was previously unaware as well. This is the list from the bottle: Shitake Mycelia Biomass Reishi " " Maitake " " Turkey Tail " " As well as a blend (long list) of other mushroom mycelia and...
Mushroom Immune Defense by Source Naturals. Amazon has good prices. My doctor recomended I take 3 per day to try to increase my CD 57 levels. Mushrooms are known to be beneficial for the immune...
Sorry to hear that. Steroids this time around also did me in. This was before the Lyme was diagnosed. The CD57 count can vary, but it seems to be a good indicator over time of progress. My doctor...
We often talk about our CD57 count. CD57 is also known as a NK (Natural Killer) cell. The only references we usually see are to Stricker. I found this: "Other functional immune system compartments...
I am in Maryland as well, but not seeing Dr. S. I am having trouble adjusting to the minocycline. My main symptom is dizziness and the mino causes the same type of dizzy, except increased. I am...
http://biz.yahoo.com/bw/090318/20090318005979.html?.v=1 "The research proposal involves testing a newly discovered mechanism in which bacterial infection with the pathogen, Borrelia Borgdorferi,...
I had a negative Igenex result. Completely negative, save a faint + 41 band, which is really nothing. Just want to clear up the comment "My uncle whose an internist has said the same thing about...
I saw this on the Sloan-Kettering Integrative Medicine website http://www.mskcc.org/mskcc/html/69189.cfm ...
Wow- you daughter has 2 Euro strains? As you said, a melting pot it is!...
Thanks, I am very excited as well. I feel hope for the first time with my illness....
MDL does a PCR for B. lonestari, but PCR's are rarely positive. Mine was negative, of course....
My doc has sent my blood to the vet doing this research. Still waiting as animals have first dibs!! Doc said the results will take months. 20% of my doctor's patients are testing positive with the...
The Lonestar tick is also found in the south. This is from tickinfo dot com: "The lone star tick, Amblyomma americanum, is found throughout the southeastern and south-central states. The...
Outer Banks, North Carolina- camping...
This is from the IgeneX website: [b]IgM Western Blot [2]"This test is a very sensitive indicator of exposure to [i]B. burgdorferi . It may be positive as early as one week after a tick bite, and will...
Even with sucessful treatment, the test may remain positive for a long time....
They follow the IDSA guidelines. If your tests are negative, they will say you don't have Lyme. Emphasize the bulls-eye rash....
Not this this is all inclusive, but a search on PubMed pulls up nothing on Lyme/Borrelia and magnesium....
Mino is much better at crossing the Blood Brain Barrier. They are both in the tetracycline class of antibiotics....
I noticed I mis-spelled Benicar. (forgot the R)...
Yes, the theory is that the long term infection with Lyme has messed up my HPA axis. (hypothalmic-piuitary-adrenal axis). Treating and clearing the infection should, in time, fix it. Time will tell....
I do have other neuro issues, but the dizziness is the everyday disrupter! I have had brief paralysis, numbness, muscle fasiculations everyday and everywhere, headaches, head pressure, mild hearing...
My doctor suspects my recent insomnia may be caused by a cortisol level that is too high at night. Until my tests come back, he recommended PS-100 (phosphatidylserine) 2 capsules 2 hours before bed....
I know how you feel! My doctor said to keep in mond that I had the most positive test of all- the bulls eye rash 14 years ago. My IgeneX showed only 41 as positive. My doctor said that after many...
chief: My doctor is using minocycline (crosses BBB) and Benica. The Benicar reduces inflammation, allowing the antibiotics to better penetrate. he said this is a powerful combination. (Benicar is a...
Hi Vibrant: I was also initially confused about the TGF B1 levels. I found this on cytok dot com. "Increased production and activation of latent TGF-beta have been linked to immune defects associated...
Hi and thanks! I try to post scientific evidence. There are too many theories out there that have no research to prove them. (Can you tell I am a scientist by occupation? lol) Yes, The Benicar is to...
My doc runs C4a and TGF B1 every 3 months. They should decline as treatment progresses. These are biomarkers of inflammation. He runs CD57 at 6 months. It should generally increase over time. He said...
Relaxed. Just wanted to clarify. The deer fly can also carry the bacteria that causes Tularemia, though it is a less common vector. Landscape workers are at high risk for this disease. I am sure no...
ria- I forgot to say I am only in week 7 of treatment. Also, those tests are not used by many doctors. My doctor is a rhematologist as well as a Vascular Inflammatory Disease Specialist, so he is...
The key to knowing if your are in "remission" from Lyme is to know the results of certain tests, known as "biomarkers" 1. How high is the CD57? My doctor will measure this at 6 month intervals to get...
Thanks so much for this link!...
I just saw this post. Sorry so late. MV: This is from your post above: "Who this nasty little virus was named after. He got lyme that was from a rabbit. " Lyme is a bacteria, not a virus. I just...
It is OK to start off on low doses to get the body used to it. In the past, I have reacted very strongly (ER visits) to normal doses of antibiotics. My doctor and I are taking the more cautious route...
Dowa- OTC. It is a bit $$. 60 pills (30 days for me) was ~$30-ish. beths- Interesting the Sephros is nearly the same thing, but maybe better?? The site cals it "Phosphorylated Serine". It says it is...