@Lynnwood- I took Lunesta for 6 years. Then quarter Klonopin for 6 years. I quit both last year and had a terrible time falling and staying asleep. I just recently started taking quarter Klonopin and...
@pitmom- I have my thyroid checked ever six months because I am hypothyroid and on medication. I had my cortisol levels checked five months ago and they were perfect. I also recently had the ACTH...
Hi Trina- The problem is I have been struggling with fatigue since 2004. Back then before I knew I had Lyme it was more of an exhausting feeling. The fatigue I have had for the past ten years is...
Hi Karen- I cant take Effexor as it was on my genetic “no” list. Pristique I think was okay to try. I have never seen the psychiatrist so I don’t think she would recommend anything. I was given...
Hi Karen- I am thinking now about discontinuing the Prozac as yesterday I was so tired I couldn’t function. I am going to take it later in the day like during lunch and see if the tiredness is as...
Karen- It’s true that in the past many doctors didn’t believe in Fibromyalgia or CFS . I have a friend who is on disability because of Fibromyalgia . It took years for her to be diagnosed and then...
@Karen- I will keep posting on my journey with Prozac. It’s only been a week but at least the only side effect I have is more fatigue. All I want to do is lay down as I feel so tired. I just went out...
@Karen- I don’t have fibromyalgia...I do have neuropathy in my left calf but it’s not bad enough to take medication for it. The only real symptoms I have is the chronic debilitating fatigue and poor...
I am on day 7 of Prozac 10mg with no side effects which is promising. I will up to 20mg in another week. My main symptom which I have been dealing with for more than 8 years is chronic tiredness. I...
@Karen- I just looked over the genetic test and Effexor was also on the NO list so that won’t be an option. I was taking 150mg Wellbutrin twice a day but had bad side effects of metallic taste in my...
@Karen- I am only on day four of restarting Prozac so I am in the very beginning. I so hope I get some relief within a few weeks. I am going to do my best to stick through any bad side effects. I...
I posted last fall when I was diagnosed with depression by my functional medicine doctor. She wanted me to do the genetic testing before prescribing anything since I am extremely sensitive to...
Hi Karen- Well it is still cloudy here with a chilly wind. I haven’t attempted to walk outside yet. It is very humid here from June to September so in order to walk it’s either early morning or after...
Hi Karen- I really am thinking too far ahead. I first need to take the Genomind DNA test to find out what would work best for me. I am not sure just taking supplements would work as I am pretty bad...
@ NiceCupOfTea...I have had a lot of mental trauma in past years but I felt I had overcome it all. I feel that moving from our home of 33 years to a different state NH to NC played a big factor in my...
Hi Karen- Thank you for taking the time to reply to my post. I am lucky in the fact that I had almost always been able to do things physically like walking everyday or chores etc. I have more...
Believe it or not after suffering for 8 years with chronic symptoms I was just last week diagnosed with severe depression and anxiety. Not one doctor ever did the assessment to find out if this was...
I did check with the pharmacist and he looked it up on a special website....YES Rifampin does make the Klonopin metabolize quicker than normal and he suggested I switch to Ativan for sleep. Anyway...
@Traveler- My rashes also welt up....I have been bit twice, once in 2004 and then in 2012. The first time I had a positive Bartonella titer but no rashes. The second time I was bit I had a negative...
I am once again treating Bartonella with a different combination which is Rifampin/Levaquin. I started almost three weeks ago and since then I have been unable to either fall asleep until 1or 2am or...
I have the EXACT same rashes but they are mostly on my upper back and sometimes on my chest area. I was actually bit on my back almost 3 years ago and this is where the rashes usually appear. They...
To me it feels like a whole bunch of cell phones vibrating behind my chest area. Sometimes it goes down to my abdomen area as well....I get it mostly when I am really tired....
Yes on the Rifampin dose...I also take 100mg of Mino am and pm....
I am currently on Bart treatment as well. I am taking 300mg rifampin in the am and 150mg in the pm along with minocycline. I am going to work my way up to 300mg in the pm also. If anyone has problems...
I have different thoughts on Metametrix testing. I had it done about 3 years ago and it came back with a very postitive gluten intolerance reading. I mean extremely high...I was told I had celiac...
I think that after being on prescription sleep meds for a long time makes it harder for any kind of herbal medication to work. I was on lunesta for 6 years and within the past 8 months it just...
Bluebird- I am on this forum because my neighbor was just diagnosed with prostrate cancer but in addition my husband was diagnosed in 2001. I am going to give you in summary how our journey went and...
I haven't been on here for a while but I do have experience with Kavinace. It does help me but in order for it to help I have to take 2 capsules every 6 hours. It doesn't really work if I only take...
seekanswers - I recently had my EBV tested and it was 640 which is a different number from yours. I was told it was extremely elevated. My test didn't have a range on it so I have no idea what the...
I know this is an old thread but I wanted to say that when I had Lyme (not sure if i did) I never felt as bad as I do now with high HHV6 and EBV antibodies. I had been tested for both again and again...
I had a larger nodule on my left side and two smaller on my right. My first endo didn't want to biopsy it but because it was a solid nodule I knew that it should be. So I had to change...
Hi- I also had Lyme but was unsuccessfully treated but..never had thyroid problems before I had Lyme. I was treated for hypothyroidism for years. Last year my glands became swollen for weeks so they...
I am currently seeing an endocrinologist and she always tells me to make sure I have the cortisol done as close to 8am as possible..As you probably know the cortisol levels are suppose to decrease as...
Hey Georgiagirl- I am so sorry you are still having a bad time...I have been through all the treatments too. I went for 30 months on abx combos-IV rocephin and the bicillin shots. In all I was on...
BP- I do remember when I had mine tested they wanted to make sure I did it on a monday or tuesday so the blood wouldn't be sitting in a lab over a weekend. I am pretty sure that as long as the blood...
There is not very good tests for Lyme..unless you actually see a rash when you are bitten can you really be sure. Most of the doctors go by symptoms and usually will test anyway...I am not in...
I have these types of flucuations too. I started seeing my endo in Oct 2009. My Lyme doctor had me on too much levoxyl and it was totally suppressing my TSH so the endo had to start from scratch. She...
springsjean- the only a/d I could tolerate was Wellbutrin. It works on the dopamine in your brain rather than the serotonin. For some reason I have a terrible time with the ones that target that. I...
BP- I totally agree with you about the labs...makes no sense. I just wish I had known more about this disease before having repeated tests over and over.. I have learned alot online forums and that...
BP- all my CD-57 testing was done through LabCorp.. I was seeing a top LLMD and he said he doesn't even test it so I guess it never really mattered to me what the results were. I have read about so...
I still am unsure of the CD-57 test. I had it done 4 times during treatment because the doctor wanted to see if I was making progress...First 21-38-60-45. So by the time I ended treatment it was at...
I see the doctor next month so I will ask for those tests. I think my doctor gave me valcyte because he didn't know what else to do. I had just finished 30 months of abx for Lyme and it didn't really...
BP- I am glad you found out what was wrong..I have never had and EBV panel done. I think just the single test so I will look into that. I was put on Valcyte for a short time last year and started...
I am confident in my endocrinologist in that she knows what she is doing. I have been on steriods for almost 4 years and it doesn't really matter what the dose is...you have to taper slowly. Maybe I...
Rose- a stim test is when they inject you with something (i am not sure what) which is suppose to stress your adrenals. Then after 30 minutes they take a blood test..then again after 60 minutes. It...
I am in the process still of weaning off cortef. It has taken me 8 months to wean from 15mg to 5mg. It has been horrible. I have been on cortef for almost 4 years. I was told my adrenals were also...
When my husband and I vacation in Hawaii I always had to wear a wet suit to swim because I would get cold very quickly. The water temp there was running around 83. Even wearing the wet suit I could...
BP- just wondering what your doctor uses to treat your EBV. Although I have never had a high test I still believe that is my problem. It seems as though every other time I have a WBC blood test done...
I am so sorry to hear this..I don't post much here anymore but remember reading alot of her messages. I send prayers to her family and hope she is in a better place now.....
Well, I had my appt. yesterday with my endo. My TSH was 2.89 and she wants it down closer to 2.0. She has increased my levoxyl to 44mcg daily to see if that will help relieve my symptoms of weight...