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sojourner

HealingWell Forum
>
Member Profile
Display Name
sojourner
Profile Created
4/19/2006 8:24 AM
Last Seen
4/29/2010 3:42 PM
Total Posts
1173

Last 50 Posts

Philly, PA area- Please share your story- Philly Daily news article focusing on Local Lyme Disease

Thank you Julie, for helping to broaden the education in PA. We're S.Central; but cheering our Eastern friends on to get their stories published. If u need additional support, feel free to email me....

9/29/2009 9:18 PM

Lyme Disease
Does anyone know about flying with a picc line and meds. and/or having a picc line and doing HBOT?

Jennifer, Did you talk with your doctor about your questions? If not and you need to speak with an HBOT expert, let me know - float me an email at my home email address and I will give you a number...

9/29/2009 9:15 PM

Lyme Disease
LLMD or LLND in/near West Virginia. Please help

Dear Ticksick, I am sorry that you are suffering and now have learned that your mother is as well. You may email me (click the envelope below my name to the left) and we can discuss a trusted and...

9/29/2009 8:59 PM

Lyme Disease
Lyme Disease Cases Reported To The CDC- From 1980-2009

thank you CG for posting this updated map. Blessings, Sojourner...

9/29/2009 9:59 AM

Lyme Disease
DX with MS on 08/25/09 by Neuro: DX with Lyme by LLMD Today- READ THIS :)

Hi Mokey! Did the Neurologist follow through with the request from Dr. J.? I am sorry I missed this earlier; I would have suggested (and for future reference), Dr. J. needs to write the order for you...

9/4/2009 12:22 PM

Lyme Disease
Finding an LLMD in New Hampshire

Dear lobolassie, I am sorry that you are in need of additional treatment. I believe these POCs can guide you and help match you with the appropriate physician:...

9/2/2009 12:59 PM

Lyme Disease
Anyone see Dr J in Maryland?

Dear Kamala, The book title is: "The Lyme Disease Solution". To be considered as a patient to the practice being discussed, you must write a letter and fax it to the physician's office; then, wait...

9/2/2009 12:50 PM

Lyme Disease
What the Germans have to say about the IDSA

nailed it to the wall!...

9/1/2009 9:48 PM

Lyme Disease
What Supplements can I take to get rid of fluid in the body?

Gentle lymphatic massage is the most practical approach to moving the fluids, esp. when your extremities are the end carrier of those fluids. Combining this with EMU in the massage - weekly - will...

9/1/2009 12:24 PM

Lyme Disease
So, I tried Emu Oil:)

www.thunderridgeemu.com is where we purchase. If you call to order, tell them Heather's mom sent you. We do not benefit in any way; but we do know the owner now and she does a wonderful job...

8/30/2009 8:58 PM

Lyme Disease
Is there any Lyme / Thyroid connection - medical research

Hope these help: 1.) American Society for Microbiology Human Granulocytic Ehrlichiosis Agent Infection in a Pony Vaccinated with a Borrelia burgdorferi Recombinant OspA Vaccine and Challenged by...

8/29/2009 2:27 PM

Lyme Disease
Writer seeking parents of children with Lyme disease

TY for shedding light and seeking true stories regarding the travesty in late diagnosis, particularly for children. You may contact me. I can offer other referrals if u are seeking that as well. My...

8/27/2009 8:27 PM

Lyme Disease
So, I tried Emu Oil:)

YW and I am so glad it has been a blessing for you! We would not be w/out our EMU either. One of those golden nuggets. We use this for Heth's lymphatic massage; talk about detox and moving that...

8/27/2009 8:24 PM

Lyme Disease
Where is everybody from?

Diana from S. Central PA. PA members, would appreciate if you would email me so we can stay in touch. Blessings, Sojourner...

8/27/2009 8:22 PM

Lyme Disease
SOJOURNER - I SENT YOU AN EMAIL

Hi Jennifer, Sorry to be late in responding. I am really seeing a high volume of calls/emails from potential patients. My family and I did 'the map' and there are now only about 7 states we have not...

8/20/2009 6:34 AM

Lyme Disease
Lyme Patient wins against Insurance Co.

TY Saxmar....

8/13/2009 11:39 AM

Lyme Disease
David Letterman - Anaplasmosis

It should be noted that human granulocytic anaplasmosis (HGA) was formerly known as human granulocytic ehrlichiosis (HGE) or its common name, ehrlichiosis.)...

8/9/2009 2:25 PM

Lyme Disease
Keep hope alive; IDSA panelists will receive copies of Under Our Skin

What a gr8 blog update from Kris Newby. Be encouraged while being informed...there are so many working on behalf of the Lyme community. Towards the end of this July 30 blog update: "...the IDSA just...

8/5/2009 11:24 AM

Lyme Disease
LLMD in Minneaplois, Minnesota

Hi Beth, I am sorry to hear about your Mom!! One of our ILAD teaching (not treating) physicians recommends u contact: www.mlasg.com You can contact Rachel at: http://www.mlasg.com/contactus.html...

8/5/2009 9:40 AM

Lyme Disease
Infectious Diseases Society of America Lyme Disease Review Panel Hearing Webcast

Oh THANK U so much for explaining that. I thought all along that someone saw THEMSELVES as a 'rotten dog". I never thought of real puppies being spoiled. That's so funny! And what a relief!...

8/5/2009 8:57 AM

Lyme Disease
Chicagoland's first "Create Footprints" Walk with Turn the Corner Foundation

Dear Lauren, This is a beautiful outreach to support Lyme education and research for a cure!! I pray that the numbers of able bodies that walk alongside those suffering but, determined to be there...

8/5/2009 8:09 AM

Lyme Disease
Infectious Diseases Society of America Lyme Disease Review Panel Hearing Webcast

YW RD. I just hate calling you that! :)...

8/4/2009 10:58 PM

Lyme Disease
Emergency HELP!!

JiJi, You really need to go in to see your doctor ASAP and discuss the details of what you experienced and he needs to listen carefully and in addition to telling you he does not believe it to be the...

8/4/2009 7:33 PM

Lyme Disease
Infectious Diseases Society of America Lyme Disease Review Panel Hearing Webcast

http://webcast.you-niversity.com/idsaArchives/ There you go! IDSA Hearing Web Cast available for you to watch - either for the first time.... ...or all over again. Blessings, Sojourner...

8/4/2009 12:17 PM

Lyme Disease
Tribeca Films behind the scene discussion....

http://www.tribecafilm.com/news-features/features/Watch_Under_Our_Skin_Panel.html Blessings, Sojourner...

8/1/2009 3:54 AM

Lyme Disease
Sojourner I need to talk to you.

no problem - i will wait to hear fm u. Bear w/me for a couple of days. I promise to get back to u. I'm already praying about our conversation and for guidance. Please give Miss Firefly a big hug from...

7/31/2009 8:35 PM

Lyme Disease
David Letterman - Anaplasmosis

I just wrote him an 'educational' letter from our family! I hope his treatment is effective and there are no further concerns. Blessings, Sojourner...

7/30/2009 9:08 PM

Lyme Disease
David Letterman - Anaplasmosis

Soooo, we just finished watching "Gone With The Wind" and were looking for Cosby or something light for a few minutes. We saw that Letterman was going to have an elephant on the show (I am just a...

7/30/2009 8:24 PM

Lyme Disease
Can you record Dr appts ?

Hi Beth, I hope ur appointment goes really well and I agree that calling ahead is the way to ensure you have coverage. If you have a laptop, you are also allowed to request that you take notes...

7/29/2009 10:15 PM

Lyme Disease
Only a few more hours!!!!!!

Jendays, Go to the thread entitled IDSA hearing and follow the steps (you can get a quick picture on page 3) of the thread that links anyone interested in following the IDSA hearing w/ILAD and ID...

7/29/2009 10:13 PM

Lyme Disease
does anyone w a mac know how to set up the first step for the webcast

you will need to call tech services listed on the ID Society page where you log on to run the test. They will return your call and advise you. Blessings, ~d...

7/27/2009 8:11 AM

Lyme Disease
Off Topic: Did anyone see the breast cancer rountine on "So You Think You Can Dance?"

This is Heth, Ticker!! I was IN LOVE with that dance!!! Up to this point I was not a big fan of Tyce; but, this dance has in a sense restored faith in his work. He usually doesn't attach himself to...

7/25/2009 3:06 PM

Lyme Disease
Very sad news....

Hi Denise, I am glad that you decided to share the loss of your brother with us. I am really touched that you have so much love for him but very sorry for the difficult impact this has been for you...

7/22/2009 5:30 PM

Lyme Disease
Ok is it time to register for the webcast? PLEASE SOMEONE TELL ME HOW TO DO THAT!

Keep an eye on my original thread for news of when registration is open to the public. We'll keep bumping it up over the next week. Registration is not until a couple of days prior to the 30th,...

7/21/2009 10:42 PM

Lyme Disease
Need to find a llmd around the Chicago area

www.chicagolyme.com as well if seeking another local source. Scroll down to the bottom of the home page for contact information. Blessings, Sojourner...

7/21/2009 8:36 PM

Lyme Disease
Hashimoto's

where r u located, im_so_sick? Blessings, A fellow Hashi girl. Sojourner...

7/20/2009 10:15 PM

Lyme Disease
An elephant is sitting on my chest

Dear Marie, I am sorry to read this. So sorry that your husband has chosen this way. I have information for you to help re: mothers, children, Lyme, the law. Send me a note, if you'd like the info...

7/19/2009 9:59 PM

Lyme Disease
Klonipin?

Miss Martha! This is your conscience speaking - you know, the softer side of you. If you'd like to send me an email, I will forward the info to you of the dear one in CT who treats the children......

7/19/2009 9:50 PM

Lyme Disease
C6 Peptide Test

Slide 3/4 of the way down through this article to where it begins: "The C6 Lyme Peptide ELISA" : http://www.personalconsult.com/articles/summaryoflymediseasearticles.html and this also:...

7/14/2009 9:49 PM

Lyme Disease
Sonic did not let my daughter park in handicapped spot and she has a hang tag and ID grrrrrrrr

As your daughter's advocate, here are a couple of additional appropriate steps you can take: Handicap-accessible parking was mandated by the Americans with Disabilities Act in the early 1990s....

7/13/2009 9:10 PM

Lyme Disease
Frequently Asked Questions. How can 'my' doctor receive education on Lyme disease?

bumpity bump...

7/13/2009 8:42 PM

Lyme Disease
Sojourner Do we have to register for the IDSA webcast july30th if so how?

Let's try to keep one thread for this subject so that we can all be on the same page w/reminders for July 30th. This is the title of the thread that I posted the original information on... "IDSA...

7/11/2009 1:28 PM

Lyme Disease
Sojourner Do we have to register for the IDSA webcast july30th if so how?

Per ID website: Information on how to attend via webcast will be posted on the IDSA website no later than one-week prior to the hearing....

7/11/2009 8:27 AM

Lyme Disease
Frequently Asked Questions. How can 'my' doctor receive education on Lyme disease?

bumpity bump...

7/9/2009 9:58 PM

Lyme Disease
Prayers Needed Plz

Our family will hold Shawn in prayer. Please update us periodically as you know and please tell Shawn that the there are many, that even though she cannot see us face to face, who care very much and...

7/9/2009 9:01 AM

Lyme Disease
Great prevention info from director of Columbia University Lyme and Tick-Borne Diseases Research

TY for sharing this, Ticker!! What an in-depth publication they have researched. Good resource. We encourage everyone to check it out. It is a huge volume, so bite it off in small pieces to digest...

7/6/2009 8:38 AM

Lyme Disease
Swollen rib cage

Dear James, Your ribcage itself would not be swollen if costochondritis. In that case, it is the cartilage in between that would make ur ribs feel painful. Touch your rib, then feel between the rib...

7/5/2009 2:44 PM

Lyme Disease
non-llmd docs who believe in lyme?

Oh dear - I am in so much trouble. I just saw how long that post really is. Sooooo sorry. Neuro Lymies may wish to pass it by or bite it off in small nuggets. It took me a couple of hours between...

7/5/2009 11:40 AM

Lyme Disease
non-llmd docs who believe in lyme?

This was a gr8 thread generated by Gracetiger. I just read through everyone's responses and could not help but appreciate, once again, the articulate, intelligent, wise, well-researched, respectful,...

7/5/2009 11:38 AM

Lyme Disease
My head hurts from crying.

Jane, your follow up comment regarding tears and detox was pretty good icing on the cake! Y'know, I'm not allowed to write this stuff unless I have personal experience, a heart seeking truth, a cup...

7/5/2009 9:52 AM

Lyme Disease
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