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seeingstars

HealingWell Forum
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Member Profile
Display Name
seeingstars
Profile Created
4/29/2008 9:48 PM
Last Seen
4/7/2009 9:14 PM
Total Posts
266

Last 50 Posts

skin changes from bart

Neffer- can you refresh my memory on what you are taking for your bart? Can you explain how your bone pain feels? And one more ?, did you get a + bart test and did it say what strand you were dealing...

4/7/2009 1:14 PM

Lyme Disease
Conference in KC, Fry Labs

I would appreciate that. Thanks. I ask because I think all the abx clear your blood of many of the bugs and thought that Fry wouldn't be able to see anything even if you were dealing with an...

4/6/2009 6:43 PM

Lyme Disease
Mycobutin opinions

I don't know if too many people have tried mycobutin as few responded. But I have been having issues with yeast and was on mino, biaxin, and hydroxy. I don't know if the hydroxy lowered my immune...

4/6/2009 6:39 PM

Lyme Disease
Conference in KC, Fry Labs

Wiregrassman- I have a question if you don't mind. Will your doc make you stop abx before taking the fry test? If so, how long?...

4/6/2009 5:49 PM

Lyme Disease
Conference in KC, Fry Labs

I have another question. By chance is there a picture of this bug available?...

4/5/2009 10:16 AM

Lyme Disease
Conference in KC, Fry Labs

thanks for the info. one more ? can't bart show up as 41 too?...

4/3/2009 10:50 AM

Lyme Disease
Mycobutin opinions

I am wondering what peoples opinions are on using mycobutin. What did you take with it and how long did you take it for?...

4/2/2009 11:08 AM

Lyme Disease
Conference in KC, Fry Labs

So are you saying it is gram negative? It can be found outside of the blood? Do you think it actually could show up on the Western Blot as 41? (having a tail?)...

4/2/2009 8:26 AM

Lyme Disease
What have you found to work for Muscle stiffness and Pain that is natural

I would offer Oil of Oregano. If you mix it with a little of olive oil and rub it on your sore muscles it gives a warming effect and has helped with my back pain....

4/2/2009 7:17 AM

Lyme Disease
Conference in KC, Fry Labs

Do you know if this stuff stays in your blood stream or is it gram negative?...

4/2/2009 7:12 AM

Lyme Disease
Herx, relapse, drug reaction?

Unfortunately I don't think any of us can tell you if you are getting worse. I would offer my opinion tho. I think you are smart to stay at half doses for awhile. I know I have had die off where my...

4/2/2009 7:04 AM

Lyme Disease
Anyone being treated with just Fluconazol?

1bitten-have you tried oil of oregano? That is a good anti-fungal....

3/26/2009 12:55 PM

Lyme Disease
Grasping for straws here

How was your CBC? I know some of the coinfections can inflame the pancreas and liver....

3/25/2009 9:24 AM

Lyme Disease
Mycoplasma

very interesting dorit. I too hope someone is able to share some info on testing....

3/24/2009 7:29 PM

Lyme Disease
Mycoplasma

Anyone know the symptom list for this. I can't find a good one and know there are very knowledgeable people on here. Also are there good tests for this?...

3/24/2009 4:20 PM

Lyme Disease
burning behind ears / what causes this?

I don't know if i have read posts about this before or not. I felt feverish all afternoon yesterday and not really so today but the muscle or tissue or whatever is behind the lower part of ears about...

3/24/2009 7:52 AM

Lyme Disease
babesia treatment ????s

can you tell me how safe this is on the liver?...

3/23/2009 2:09 PM

Lyme Disease
Plaquenil questions

nefferdun I just wanted to offer my opinion on the burning tongue. I had this happen to me last monday and it wasn't quitting. I believe it is yeast/fungus as I started diflucan and in a few days the...

3/23/2009 11:05 AM

Lyme Disease
babesia treatment ????s

I know there are some threads on here for babs but the search site on this website is not very thorough. I am treating just yeast/fungus right now with high dose diflucan and just this morning (been...

3/23/2009 6:29 AM

Lyme Disease
NATURAL Anti Bacteria Fungal Viral and Parasitic Treatments??

I need to bump this to do a little research. And I don't know if I'll find this again if I tried....

3/22/2009 3:04 PM

Lyme Disease
Systemic Fungal infection????s

Actually I was more interested in other fungal infections than candidia. I was reading that those with aids and compromised immune systems can get fungal infections in bones, spinal cord, joints,...

3/18/2009 6:54 AM

Lyme Disease
Systemic Fungal infection????s

There are many on here who know blood tests well. So I was wondering if any of you know if there is a blood tests that shows systemic fungal infection? I googled it but couldn't find my answer....

3/17/2009 9:06 AM

Lyme Disease
All of my doctor's are "retiring"

I am sorry you are having all this crap going on. When my primary doctor left where I was at, they let me pick someone else who was practicing in the same group. Is this an option or did your doc...

3/16/2009 11:00 AM

Lyme Disease
Newly diagnosed Lymes - HELP!

Welcome pabowhunter. I am going to assume your doctor is not an llmd. 6 weeks of doxy will not rid you of it. You need to be seen by an llmd. you may have coinfections....

3/16/2009 6:17 AM

Lyme Disease
indeterminate result

gracietiger- NO, the coinfection tests are just as bad as the lyme tests if you aren't sending them to a special lab like fry-he looks for the bugs in the blood by microscope. And apparently Clongen...

3/16/2009 6:14 AM

Lyme Disease
Body smells of chemicals

Thanks for the replies. I am on mino, biaxin, and plaquenil right now. I am taking chlorella, and garlic almost everyday for 3 weeks, milk thistle, vit c. No, I don't think it smells like ammonia....

3/16/2009 6:08 AM

Lyme Disease
indeterminate result

Did they test you for babs or bart? The tests are not very accurate but some say clongen and fry could find them for you. That would cost $ but your rush of symptoms sound like a coinfection. Not...

3/14/2009 10:53 AM

Lyme Disease
To which infection do you attribute your head buzzing?

I will give you my opinion however it is only based on my experience since I can't get a + test on coinfections. I think the buzzing is either babs or bart. I have had that off and on thru my 3 years...

3/14/2009 7:20 AM

Lyme Disease
How do you herx with Bart/BLO?

I wanted to add that at this time I have been having HUGE die off in my head, neck, back, and back of head. It was really messing with my brain and CNS bad and the only drug that really crosses the...

3/12/2009 8:50 AM

Lyme Disease
How do you herx with Bart/BLO?

my eyes and forehead and back of head feel pressure. and yes, mine cycles but I can't tell you what is what. plus it is just my guess but I think the combo of different bugs may encourage different...

3/11/2009 5:52 PM

Lyme Disease
Body smells of chemicals

I know posters will tell me I need to detox but I need some advice on this. My skin smells of chemicals and I know I need to detox better but other that sweating what will pull this safely from my...

3/11/2009 1:33 PM

Lyme Disease
Flagyl ????s

I do not feel well at all right now and don't want to do the research. Hopefully others here will be well enough and know the answer for me. I am having major spine issues. It feels swollen, gives...

3/7/2009 4:12 PM

Lyme Disease
Garlic, Lumbrokinase, Nattokinase, Serrapeptase to address biofilms

I asked earlier about EDTA and don't think this is a possibility for me since I have lots of silver fillings. And someone said the oral would not be useful. So, How well do these 4 things: Garlic,...

3/7/2009 11:43 AM

Lyme Disease
EDTA Question

Thank you Dowa. What allowed you to do this for a year? What diagnosis? Was this out of pocket or did ins. pay?...

3/6/2009 4:23 PM

Lyme Disease
EDTA Question

I am totally out for a candidate for this then. Way too many silver fillings :mad: What would be the alternative? Anyone have any ideas? I haven't heard of detoxamin. I'll have to look that one up. I...

3/6/2009 2:37 PM

Lyme Disease
Minocycline dose

I am wondering what the dose is for mino. I have seen 100 2x a day but I thought that was low according to top llmds....

3/6/2009 2:33 PM

Lyme Disease
EDTA Question

I just got back from the health store and they had EDTA in pill form on the shelf. It did say it should be taken along with (I don't remember exact words) something that made me think other medical...

3/5/2009 12:10 PM

Lyme Disease
Ordering prescription meds on line?

I am bumping this for the poster who asked about this....

3/5/2009 10:16 AM

Lyme Disease
Hair Loss ?!?!

This is an update for those looking up hair loss. My hair has finally stopped falling out and I attribute this to being on the right meds. But instead of the month I thought it would take it has...

3/5/2009 10:08 AM

Lyme Disease
EDTA Question

My doctor mentioned this briefly and said he was going to look into this more before he discusses it with me more. Is this an oral thing or only IV?...

3/5/2009 9:07 AM

Lyme Disease
Immune ?????s

Is there any blood tests that just show how well your immune system is working? I don't know if this is too broad of a question but I sure would like to know at what level mine is functioning. I feel...

3/5/2009 9:05 AM

Lyme Disease
The body that cannot rest

I too have a horrible time sleeping. I was just thinking about asking my doc about Xyrem. But Tallison, it sounds like you did not like the drug. Can you give me any feed back about it?...

3/5/2009 8:53 AM

Lyme Disease
so frustrated.

Hello MZQ, welcome. You sound like you've had quite the ride. The tests for lyme are horrible and if you don't see an llmd you will not be treated correctly. I believe you've still got it and your...

2/22/2009 7:53 PM

Lyme Disease
Snake I've got a question

Why all the secrecy about the fry break thru? Your dangling the carrot in front of the rabbit but keep pulling it away....

2/22/2009 2:23 PM

Lyme Disease
blood/brain barrier and coinfections

Can anyone tell me what drugs for babs and bart are good to cross the bbb? People are always saying improve your immune system so it can fight the bugs on its own. The thing is, your immune system is...

2/22/2009 1:42 PM

Lyme Disease
western blot?

I agree with IH8ticks. You need an llmd. Infectious disease docs are notorious for missing lyme. What band did you have turn positive? That will be a good indicator. That test that she is talking...

2/13/2009 2:27 PM

Lyme Disease
Good or bad?

My opinion: The biggest part of your die off should have already occurred. The fact you've been on this combo for 5 months and your head issues are getting worse I feel means you are missing...

2/13/2009 8:18 AM

Lyme Disease
Need some input..

Just so you know you are not alone, back in November I got short of breath going DOWN stairs. I don't have that anymore. Thank goodness. Give it time....

2/9/2009 3:14 PM

Lyme Disease
Antibiotics and Bart

What coinfection are you targeting? If it is bart you may benefit if you'd add bactrim to your biaxin. Zithromax (oral) was the most worthless abx I've taken. However others claim it worked well for...

2/8/2009 5:28 PM

Lyme Disease
Biaxin--Anyone have tinnitus or hearing loss?

I want to add my thoughts on this. It actually could be from the plaquinel. This drug is an anti-malarial catagory just like qualiquin (sp?). It's Hydroxychloroquin (plaq) and there's chloroquin and...

2/8/2009 5:23 PM

Lyme Disease
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