You might check and see if one of your supplements has DHEA in it ... hehe .... that will do it. In theory men can take up to 100 mg/day and women 50 mg/day (could get hair growth problems etc. over...
If you work for a larger co. (50 or 60 employess?) then you are eligible for FMLA. By Fed. law you're allowed up to 12 weeks/yr. So maybe do that while you're checking with your Dr on STD paperwork?...
I've just started looking into this and it's not that easy to figure out. It depends on which state you live in, which meds you take, are they brand or generic. Then there's the whole question of if...
There are different kinds of disability. For SSDI, the fee is fixed by the SSA and is something like $6000 max (may have gone up this year). If you're at the hearing stage for SSDI, a lawyer or...
I don't have experience with any of the TBI co-infections (fortunately), but I was wondering if the night sweats are more common with the co-infections? Or maybe Lyme + co-infection?...
Just an observation, but if Lyme or other infection is the cause of the problems, your previous treatment would have really made things worse. Prednisone and steroid shots reduce inflammation - by...
I wonder if this is something that is strain dependent. Sucks for him to have Lyme, but very good that you found it. Always rough at first if the Herxes are bad, but as it clears up all kinds of...
My step-son got in the other night, and we still have a 21 yr old at home. So should be fun. My wife always cooks a standing rib roast on Xmas eve. We've done family gifts for kids/gkids since...
Grats Trav. You've always been supportive of everyone and always have realistic, reasonable ideas for people....
Sorry I just have time for a short answer - but it's not the spirochetes. That's the problem. It helps to understand a little about the bacteria. As my Dr says, it's a smart bug that doesn't want to...
This really sounds like it might be the post exertional malaise that is the keystone symptom of chronic fatigue syndrome. Might read thru this and see what you think:...
Working part time can cause a lot of problems. It resets your baseline income and hours worked and can have a negative effect on the benefits you may be entitled too. I sure understand wanting to...
Well .... the goal of treatment is to get well enough that we don't have to focus on our health so much. The success stories just move on. There are some people who have done well with treatment. A...
Depression is an emotional black hole that sucks you in a little at a time. It's like looking at the world thru "negative colored" glasses. Good riddance! Hope it stays that way. We all need positive...
Sorry your daughter is having such a bad time with this. There are a couple of good Lyme Dr.s here in the Seattle area. One treats many people from BC and maybe Alberta. There is a Canadian pharmacy...
Hi Tinkity - Didn't read every response in detail. But to answer your question, no - no everyone has joint pain as a symptom. Tests are unreliable because they look for antibodies rather than the...
I used to carpool with my manager where I worked. He was very good at working with people. He used to say, "If you laugh, it puts everyone at ease." Who said, "If I were two faced, would I be wearing...
I was just wondering if anyone has done the 2 day Steven's protocl testing for ME? Post exertional malaise is my continuing problem. Here's an interesting link: http://web.pacific.edu/x31845.xml From...
Have you been keeping a pain journal? I think that can be very helpful at the hearings. The ALJ can see how this impacts your life every day. It's not too late to start. There are some sample forms...
This is just a guy's perspective, so you know ... You only have so much energy to go around. Simplify the meal all you can. Do you want to spend your energy on dinner or actually enjoying her...
Sorry to hear your appeal was turned down. You have 60 days I think to appeal for an ALJ hearing. There's no reason to wait - you're going to have a year and a half or maybe longer to develop the...
I've taken Omnicef and Flagyl together and it was an effective combination. The Flagyl was pulsed for 5 days, every 3 weeks. Omnicef was a little easier on my kidneys than Zithro. I have no idea what...
You could have an MRI to check out all of the structural stuff in your brain. But the neuropsychological tests check out how the brain is actually functioning. There are a whole variety of tests. It...
We have to deal with so many losses - I just feel bad reading these posts and knowing you might have to deal with another one. about your husband - I'm thinking his anger comes from the grief...
Well, I guess I'll be brave and give a dad's/ gdad's perspective on this. This is a very personal choice and feelings vary widely. I know a number of women who would be really upset with me for...
Is one of your Dr's supportive of long term disability? It would be good to get input from them in making your decision. I understand the problem of wanting to go back to work - on the good days. But...
Can you get a copy of your Western Blot for Lyme? Usually CDC tracking criteria are used for diagnosis - even tho they were never intended for that. The "normal" WB could actually have Lyme specific...
I don't have enough left tonite to do a good write up, so a few notes: do you have short or long term disailbity thru your work? there's some fine print but if you're working and making much you...
Doxy can make you very sensitive to sunlight and you can get rashes from it. Have you been getting much sun?...
These are the best guidelines I know of and various abx are discussed. Not sure if there is a later version? http://www.chroniclymedisease.com/burrascano_lyme_treatment_guidelines Amox. is used to...
You did a good thing. And you're certainly no idiot. By all means start the Doxy. Just a couple of questions. Did you show the ARNP the picture of the rash? Did you ask how many cases of Lyme he has...
Just have time for a couple of quick notes. Take a picture of the rash. It could save you tons of angst later on. It's really important to jump on this quickly. You have the chance to catch this...
I'm not from the S orginally, but have lived in DFW, Greenville, and Houston areas of TX. I suspect I may have contracted LD in the Clarksville area of NE TX. At least I had tick bites there. Never...
You might consider working up to the max dose in increments. Could discuss it with your DR. Mine has always thought it was ok to start with a smaller dose and then work up to the max dose over a week...
This might be a good question to ask on the Chronic Fatigue forum since EBV is common in people with CFS. Unfortunately, it doesn't seem to be a very active forum. Maybe people with CFS have even...
It's great that you're seeing improvements. I think Rocephin is injectable? So maybe IM injections might work and be much less expensive cause it avoids all the expense associated with the IV? There...
Oh wow. As someone who ended up in really tough shape after years of struggling - I'm sorry to hear that you're in a similar place. Take sick leave while you check on FMLA? Maybe you shouldn't go...
Definitely pursue FMLA and see if your company is large enough that you're covered under the Act. There are provisions for intermittent leave so you could take days off as needed. You will need a...
This might be helpful if you haven't been thru it before. You've suffered a loss - and a possible Lyme diagnosis has obviously been something of a shock. It would be worth the time to read about the...
For whatever it's worth, bands 31 and 34 were the ones used to develop the experimental Lyme vaccines for humans. Many people have gone on abx for 4 - 6 weeks, taken a couple weeks off from abx, and...
The form is for a "Third Party - Adult". It doesn't have to be a family member, just someone who is familiar with your situation. The purpose of the form is to see how you're functioning - activities...
If I remember what I've read correctly, it takes about a year for bands 31 and 34 to show up together. That's the only indication I know of. When the spirochete form is stressed, it protects itself...
Oh wow. You're in a tough spot. I can relate to most of what your saying so I'd like to try and provide some perspective. And maybe it will help. You have the perspective now of someone who feels...
Relative to neurological problems, this a link to an interesting report. It was linked on the boards here .. umm.. first of the year I think. So for those that didn't see it...
OK .... so I'm going from memory and you know how that can be ... I think there are 3 strains of Lyme in Europe - not sure if Finland is included in that. They do have a little different "band...
My wife checked online and found that there was a big markup on the mattress we liked the best. But I'm not so sure about ordering one online from a store I don't know. Seems like most stores will do...
Is your mattress old and worn? Buy a new one - are you torn? Does your mattress have a lump? Do you lie there like a bump? If you lie on your side, Does your mattress hurt your hide? So you roll on...
It'd be a good idea to take a picture of the red spot or of any rash that develops. Appts can take a while and not all Dr's are well versed in Lyme disease. Sometimes there is a "we don't have Lyme...
Yeah, I used to hike, hunt and horepack all over the place. I think I had Lyme for so long before we figured it out that, between Lyme and the chronic Cpn infection, I don't think I'll ever recover...
I believe the endo was referring to people who were becoming Addisonian. He has seen people improve (feel better) in a few days. Measuring cortisol is helpful but is only part of the evaluation. The...