Hi, I'm sorry you haven't received a response yet. It seems this board isn't very alive on the weekends. Feel free to submit your questions to the Lyme forum as well. People are very knowledgeable...
Went to my PCP today and I just have to say that my PCP makes up for any awful doctor visits I may have ever had. She is so wonderful. She listens no matter how long I need to talk (and today I...
Denise, Are you fully functional now and are you absolutely positive that what you had was lyme? I have no idea what is wrong with me...and I wonder what illnesses Jernigan products will treat. Jen...
Denise, I have the neuro-antitox (sp?) CNS whatever...I got it over a year ago though...not sure if it's still good....
Hi guys...no I haven't been here...I posted on the MS boards a couple of times and they told me you all had posted here wondering about me...thank you. It makes me feel really good. I'm not on any...
Well...it's been 10 hours since my appointment...and I'm still in shock. The doctor (who I have only seen once before and he did not leave a big enough impression on me to remember him) came in the...
This is so weird...CNS depressants are the only thing that help me to feel somewhat normal...alcohol, valium, whatever it is... I don't want to sound like I had a drinking problem, but when I would...
Hi, I am using a phone so I am not going to worry about punctuation. Gretchen - did you have documented flare ups and remissions in order to be dx? I had migraines with aura as a child and have had...
I also wanted to add...besides ppms, what else can present and progress like this? I take b12 every day and it helps with my focus and attention...sometimes it helps with random things like speech...
Hi Gretchen, Yes, I saw an MS specialist probably two years ago...symptoms weren't as bad then but the MRI still showed the lesions. He suggested nerve conduction testing but I never had it done....
Hi everyone, I haven't been here in AGES. If any of you frequent the Lyme board, you may know me from there. I'm going to see my neurologist on Thursday for the first time in 18 months. I have been...
I get this in my thigh muscles after not really doing anything at all...I have lots of weird nerve stuff sometimes. Sorry I can't explain it, but you're not alone....
I'm about halfway through my bottle of Doxycycline. As I stated in my other post, almost 24 hours after my first dose, all of my symptoms increased. Then I had a Flagyl pulse and they got even worse...
Just curious....
Alright, before you all go off on me :) I'm following ALL of the Doxy 'rules'. Still, I am having bad acid reflux and today my throat feels very sore...it's not burning like normal...it feels like I...
What a heart warming surprise to see my name here... I am really speechless. Thank you all so much for your thoughts and prayers....
I've been on LDN for over 3 years now. The website listed above will tell you everything you need to know. It is very important to go through one of the pharmacies listed on the site because...
Hi everyone...I haven't been posting lately...I'm on different tx now...I tried Amoxicillin 3000mg/day but didn't really notice much. Now I am on Doxy and within 24 hours felt awful...I can barely...
Oh, and the website containing the info about Parker didn't really minimize it which I was happy to see...it said Lyme can be cured if treated early but if not can become chronic with lifelong...
I just posted about this earlier...I guess my subject line was not as interesting! Sad isn't it...maybe it will get some publicity....
Just heard this...Parker Posey had to step down from a play she was doing because she was dx w/Lyme....
It means not to take a drug daily...many of us take an antibiotic every day, but we 'pulse' some drugs. For example, I pulse Flagyl for one week every month. I take Flagyl only the last week of every...
James...there is great controversy when it comes to tests 'always' being one way or another...I don't think anyone will tell you that once you feel better, your positive bands will disappear. I'm...
James...my WB results are as follows: IGM: 30+ 39 IND 41 IND IGG: 39 IND 41 +++ 58+ I had this test done after almost three years of being sick...so I would think the IGG would be the better test to...
Okay, so as my signature states...I started treatment in June. I did a Flagyl pulse immediately along with the Biaxin. No change. One month later, on my second Flagyl pulse, I noticed great...
Thanks everyone...it was business as usual here at home tonight. She gets in from work and not a word is spoken for hours...then she goes to bed. I sat on the couch reading while she ate, watched tv,...
Chantel...I seriously thought about asking you to call her earlier but I'm sure she would embarass me with her ignorance or make me look just awful. I know you know me well and have a solid opinion...
I don't even know if I can sit here long enough to type this, but I haven't really been around and wanted to post something. I had to stop my Biaxin because it was giving me bad heart...
I think your pain sounds worse than mine...but I get a "tight head" feeling all over and it makes me feel dizzy...my cervical spine is all messed up and I get a lot of headaches stemming from the...
Jess...the stuff I have but don't really use - is called Neuro-Antitox by Jernigan Nutraceuticals. Denise will chime in soon and tell you all about it....
All the same thing? Perhaps each causes the other or something like that? I have been reading about different protocols that are used to treat all three illnesses...they are a combination of...
Oh, and as far as viruses go...HSV 1 was positive and high and EBV showed past infection. Parvo was negative....
Okay...just kidding about that...I'm having insurance trouble AGAIN...been sobbing my eyes out all day long trying to get it resolved, so my doctor decided to take the cheap route to help me out and...
Thanks youguys...I really appreciate it. The doctor said since the Flagy helped last time and since my lyme tests are inconclusive that it may in fact be a parasite or virus of some kind....
Anyone on an Augmentin XR/Flagyl combo? I just got switched to this today. It's 1000mg of Augmentin...I believe it's (2) 2x/day. That seems like a lot but I've read of people on 4000mg/day. I feel...
I'm starting to wonder if I have Carditis caused by these infections or toxicity. For the past two years, on and off, my heart will feel like it's swollen in my chest...makes me feel like I have to...
I know there is no cure...but for lyme, you can reverse your symptoms. With MS, the damage is done unless you have a relapsing remitting type, which I do not fit the criteria for. I fit criteria for...
I have spoken with probably hundreds of people with MS as this was the diganosis I was sure of since the beginning...one day I came across lyme disease so I decided to find a doctor and get tested....
I worked my way up to the 4.5mg...the only thing I believe the LDN did is lessen my allergies, which is good. Some doctors first suggested taking LDN for three weeks and then a one week break, but a...
I've had every other test done for MS...I don't know what else to do. The brain fog is getting unbearable to the point where it feels like I'm forgetting who I am and who other people are...even...
I've been on LDN for 3 years now and I have just gotten worse and worse...I don't know what to think about it anymore...I was taking it because I thought I had MS and I got a doctor to prescribe it...
I've heard that Minocycline is good for MS because it prevents t cells from crossing the blood brain barrier...the only thing that concerns me about it is that I wonder if it prevents them from...
Beth, I think I'm going to request this test from my LLMD. I think it's time I know whether or not I have the O Bands so I know if I'm treating the right disease. I've always wondered if I had Lyme...
It is a possible SERIOUS side effect of the med...and according to the script insert, CONTACT A DOCTOR AS SOON AS POSSIBLE if this happens....
lol, it took me about one second before i realized what she was talking about! i got it now, thanks :)...
I'm lost...what? lol...
I really wonder if you are herxing...or if this is your thyroid causing this. I'm really thinking thyroid. You had been having weird stuff w/your heartrate just a couple of nights before (remember?)...
hm...sounds like it could be toxins coming out through your skin...?...
nope...completely random...i would agree it seems like an allergy but why would i suddenly be allergic to the shirt i've had on all day lol or the paper my arm was resting on while i wrote...
they disappear in 15 or 20 minutes...but they appear out of nowhere...yesterday i was just sitting at the computer typing and my arm started itching and then came the bump...