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3whiteroses

HealingWell Forum
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Member Profile
Display Name
3whiteroses
Profile Created
6/5/2009 5:33 PM
Last Seen
11/24/2010 9:19 AM
Total Posts
184

Last 50 Posts

Test results in, is it Lyme?

I just want to say I'm one of the 20% who never saw a tick or a rash...and I tested positive for Lyme after getting really sick. The diagnosis took me by surprise because at the time I thought that...

11/22/2010 9:15 AM

Lyme Disease
Great information about Bartonella

I purchased my books from Amazon...you can get them cheaper is you buy them used. No need to spend $100.00 that is way to much money. I tried Bactrium for Bartonella, but my tongue began feeling like...

11/11/2010 9:47 AM

Lyme Disease
Great information about Bartonella

The books by Dr. Schaller on Bartonella have lots of images of Bart rashes. Bartonella is difficult to get a positive on the test. There are multiple strains, but the labs only test for two. So if...

11/3/2010 6:37 PM

Lyme Disease
Great information about Bartonella

Thanks for the link to the article. I'm in the process of getting treatment for Bartonella. I purchased some books on Bartonella, and I feel that this bacteria is very scary. My current treatment is...

11/3/2010 8:30 AM

Lyme Disease
IV Rocephin - what dose how often?

I was on 1 gram a day for a month...It really helped me a lot....

11/3/2010 8:03 AM

Lyme Disease
Do I have lymes disease?

springsjean What treatment(s) have you done for Bartonella. My llmd says I have this coinfection based on my symptoms. Is your Bartonella gone?...

9/19/2010 3:51 AM

Lyme Disease
an abx observation

It is funny you mention antibiotics and acne, because a coworker of mine was telling me he was on antibiotics for over a year for acne. No one ever questioned it....

9/19/2010 3:44 AM

Lyme Disease
Constipated anyone?

It does not have to me complicated...just eat Fiber One cereal. I mix it with plain yogurt. If you eat a cup of it a day you will not have any problems....

9/18/2010 5:24 PM

Lyme Disease
Antibiotic Question

madrivergirl30 thanks for your post. I sometimes feel like I'm the only one who seems to have so much trouble with medications, although I know in reality I'm not. Taking these medications is scary....

9/18/2010 5:22 PM

Lyme Disease
Antibiotic Question

I can deal with nausea and pain, because I have been living with it for awhile now. If my tongue had just tingled I would have considered a herx since I have had that as a symptom for many years. The...

9/18/2010 4:08 AM

Lyme Disease
RE-TESTING

I agree with Razzle. You should seek out a llmd to help your daughter....

9/18/2010 3:55 AM

Lyme Disease
Antibiotic Question

Caldonia Sun did you stop the antibiotic after you developed the rash?...

9/17/2010 4:34 PM

Lyme Disease
B12

I have read that B12 deficiency is common in Lyme...for me personally I have not had an issue with it being low. Actually my B12 is higher than the normal range. The last time I had it checked it was...

9/17/2010 4:33 PM

Lyme Disease
Antibiotic Question

Razzle I did call the dr. office, but they were closed. So I had no choice but to call the pharmacy. The pharmacist told me it was an allergic reaction. I have taken sulfa drugs in the past and never...

9/17/2010 4:28 PM

Lyme Disease
Hickman or Port-A-Cath? Who's had or have one?

I have a picc in right now. I'm on my third month of having it so far. To date I have only done 30 days of IV Rocephin. I just starting seeing a new LLMD, and he wants me to take oral antibiotics for...

9/17/2010 4:23 PM

Lyme Disease
bulk epsom salt - great price

Thanks for sharing...I go through a lot of Epsom salt...and peroxide....

9/17/2010 4:16 PM

Lyme Disease
Antibiotic Question

I was recently started on Bactrim DS. Yesterday I took my first dose. I seemed okay when I took it. Later in the evening my tongue started to feel painful and burning. I took some benedryl and was...

9/17/2010 4:00 PM

Lyme Disease
Positive IGM (23, 39, 41, 31, 34) Negative IGG (no bands)

I have not tested IGG positive either...I have only tested positive IgM. My doc said it was an active infection. Not sure why some of us don't convert to IGG. The way I see it is there is still a...

8/19/2010 8:38 AM

Lyme Disease
BAD DEPRESSION!

I don't take anything for depression, and likewise I have been told I have Bartonella. I'm hoping to address this when I go to see my new doctor in September. I hope you feel better soon:)...

7/30/2010 8:08 AM

Lyme Disease
Day Eight on IV meds

Thanks for the response betterhealth...I too hope I start to see some improvements soon. How long have you been getting treatment. I see a variety of antibiotics listed, are you still on antibiotics...

7/30/2010 8:00 AM

Lyme Disease
Day Eight on IV meds

I'm now on day eight of IV Rocephin...I feel really exhausted, and a lot of my lyme symtpoms seem more intense. Today I really feel wiped out and I'm wishing I could be home sleeping instead of...

7/29/2010 8:18 AM

Lyme Disease
Wifes got it too! What next!!

I can not imagine how life would be if my husband had Lyme too. He takes good care of me and without his help I would fall apart completely. I will pray for you and your family. Regards,...

7/28/2010 8:11 AM

Lyme Disease
Do you take anything to help yourself get some sleep??

Well it seems we are all on the same page as far as sleeping goes. I to have a difficult time getting to sleep, but I choose not take anything. If I'm really restless I will take a hot bath with...

7/26/2010 8:21 AM

Lyme Disease
Something interesting about Bartonella....

Thanks for sharing! Great articles....

7/24/2010 6:03 PM

Lyme Disease
Length of treatment of Lyme

@ bucci I will ask her when I see her how long she had it before diagnosis, and what stage she was in. She is my neighbor and has so much energy and is always on the go. I think she does not stop...

7/24/2010 8:03 AM

Lyme Disease
Gallballder removal/ Lyme Disease

I'm on IV medication now, I was not prescribed anything for my gall bladder. I will only be on it for a month. Does the gall bladder have issues when someone is on it for a long period or sooner....

7/24/2010 5:34 AM

Lyme Disease
Length of treatment of Lyme

I just want to say that I have a dear friend who was diagnosed with Lyme several years back. Today she is a thriving healthy person. If she had followed the CDC guidelines and only taken a month...

7/24/2010 5:30 AM

Lyme Disease
Whole lotta shakin going on...

Does anyone know if Bartonella causes sweating?...

7/23/2010 9:46 AM

Lyme Disease
Whole lotta shakin going on...

I have not had this happen to me...What I have experienced is internal vibrations. A lot of twitching and spasms. I have also experienced pouring sweat and afterwards I feel like I'm freezing....

7/23/2010 9:03 AM

Lyme Disease
ceftriaxone

needshelp thanks for the information...I always check before I mix anything. Worst case I can take the medication when I'm finished the course of antibiotics. I do wish I could take probiotics, but...

7/23/2010 8:58 AM

Lyme Disease
ceftriaxone

Thanks for the response...I was nervous about starting the new medication...however, after two doses I'm not as nervous about the medication. The phlem in my throat started after the first dose...I...

7/23/2010 8:32 AM

Lyme Disease
ceftriaxone

I think you may be right...I need to get a prescription for some diflucan. I'm trying to eat yogurt, but I guess it is not enough. I can not take probiotics...because they make my throat itch. So I...

7/23/2010 5:12 AM

Lyme Disease
ceftriaxone

Day two on ceftriaxone.... I started with feeling phlemmy this morning...and after my second infusion still feel likle phlem is stuck in my throat. I called the Pharmacist and was told this is not a...

7/22/2010 4:55 PM

Lyme Disease
Feeling Nauseated

I did call my doc and he said it should pass in a day or two....

7/22/2010 8:27 AM

Lyme Disease
New to Forum

Welcome, and thanks for sharing. I'm sorry that you have to suffer with Morgellon's along with Lyme. I could not imagine having two issues...Lyme alone is a horrible road to travel. How are you...

7/22/2010 8:13 AM

Lyme Disease
Feeling Nauseated

No preganacy...had a hysterectomy. I do think my nerves are playing a role in my gut issues. This has been a stressful week so far. picc line inserted with no numbing medication due to allergies...

7/22/2010 8:09 AM

Lyme Disease
If anyone wants to Moderate this forum...

I like coming hear and I appreciate all that you do. I think that we should all respect each other regardless...take what you want and leave behind what you don't want. Ultimately we are responsible...

7/22/2010 8:04 AM

Lyme Disease
RIP Jennifer

I was wondering too what caused her death. I felt really freaked out when I read she had passed away. I hate seeing someone so young go so soon. It is very scary...because we all are inflicted with...

7/22/2010 8:02 AM

Lyme Disease
Feeling Nauseated

nausea...no cramping. I have felt it for two days now. I can barely get food in me....

7/21/2010 7:25 PM

Lyme Disease
Long Term Antibiotics

Insurance has paid for my meds to date...and I feel extremely lucky that my 30 days of IV is covered at 100%. I feel so grateful, especially knowing that some people don't have insurance....

7/21/2010 7:17 PM

Lyme Disease
Starting IV Rocephin next week, how does this dosing sound?

Hi motox1027 - I was diagnosed with Lyme last year after many exhausting months of trying to figure out what is wrong with me. I had an array of symptoms that did not make sense. I never found a tick...

7/21/2010 7:06 PM

Lyme Disease
Starting IV Rocephin next week, how does this dosing sound?

I had my first dose tonight and I will be getting 2grams for 7 days a week for a month. And I had an anxiety attack while getting my first dose....

7/21/2010 6:27 PM

Lyme Disease
The last vestiges of chronic Lyme disease

I feel so sad...I have tears. People with Lyme disease should not have that much stress. The Illness is stress in it self. From what I read I can see many caring and loving people on this board. And...

7/21/2010 6:22 PM

Lyme Disease
RIP Jennifer

Very sad...was Lyme the cause of her death. She was to young to go:(...

7/21/2010 1:14 PM

Lyme Disease
I've just published my 2nd article on the Hushed Truth about Lyme disease! Speaking out!

Thanks for sharing...I wish you all the best with your treatment....

7/21/2010 10:52 AM

Lyme Disease
Feeling Nauseated

I Feel nauseated since yesterday when I got the picc line inserted. I let it go thinking it was my nerves and they got the best of me. However, today I still feel sick to my stomach. I called the...

7/21/2010 4:49 AM

Lyme Disease
Picc Line Is In

Thanks everyone. I appreciate your kindness. I feel like I just need to get over the next hurdle...on at a time. I will only get the IV antibiotic for 1 month per doc...I'm just hoping it is enough...

7/20/2010 4:31 PM

Lyme Disease
Picc Line Is In

I have not had any antibiotic yet...I'm waiting for a nurse to call me and set up an appointment. Hopefully, I can tolerate it well after going through this ordeal this morning. I'm feeling off...

7/20/2010 9:38 AM

Lyme Disease
Cutting out carbs makes me get sick

For me I'm not sure if it is cutting out the carbs or losing weight. When I eat like that I start to lose weight and everytime I lose a few pounds I feel extremely sick. My theory is that the lyme is...

7/20/2010 8:12 AM

Lyme Disease
Picc Line Is In

I have to say it was not a fun morning for me. My nerves were so wracked I could not eat anything. The first nurse tried two times and could not get the picc in so I had to go to Raidology. Lucky for...

7/20/2010 8:09 AM

Lyme Disease
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