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CherylSue

HealingWell Forum
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Member Profile
Display Name
CherylSue
Profile Created
7/11/2007 7:25 PM
Last Seen
9/21/2015 5:36 AM
Total Posts
211

Last 50 Posts

Now I understand how LDN is useful for Lyme

I am really sensitive to drugs, so my LLMD prescribed .5 mg of LDN. After 3 days I was so loopy and fatigued and beginning to get depressed. Yesterday I didn't take my dose, and already starting to...

9/21/2015 5:36 AM

Lyme Disease
byron white formulas

Don't mix them together in the glass. You can take them in the same day, preferably an hour or more apart, but 30 minutes will do in a pinch....

11/5/2014 7:35 PM

Lyme Disease
Late diagnosis, CD-57 of 23, and doc wants to do herbal remedies

Antibiotics are what saved me after trying Traditional Chinese Medicine, Cowden, and Buhner protocols. Antibiotics are what brought me around. After several years of abx, I am trying wean off them...

11/5/2014 7:32 PM

Lyme Disease
Byron White Formula Users

Thanks for sharing. Rowingmom, I'm glad that symptoms are 98% resolved for your daughter. Probably, everything in combination worked for you. Changing herbal tinctures probably was probably a good...

4/23/2014 8:53 AM

Lyme Disease
LLMD in Chicago or South Wisconsin Area

There are several doctors who treat Lyme in Chicagoland. You no longer have to go out of state. The Lymenet forum will also privately message you with doctors upon request. Forget Mayo Clinic, Univ....

4/22/2014 8:51 AM

Lyme Disease
Byron White Formula Users

For those who have taken Byron White formulas, do you take one formula at a time, more than one? And for how long? I was able to convince my LLMD to order the formulas for me. I have been on abx for...

4/22/2014 8:39 AM

Lyme Disease
AL or back to doxy? Yucky herx?

For those who have taken Byron White formulas, do you take one formula at a time, more than one? And for how long? I was able to convince my LLMD to order the formulas for me. I have been on abx for...

4/22/2014 8:36 AM

Lyme Disease
iSpot Lyme

Yes, I am very interested in this ISPOT test to determine if I can stop treating borrelia. I've been on abx for 6 years. I'm much better, but I'm worried about abx resistance. I've made an...

10/15/2013 7:32 PM

Lyme Disease
New test, more accurate, is out and available

Healing98, I'm glad to hear you like Dr. B. I was considering going to him after my LLMD lost his practice in July. He seems to be up to date with the current and latest Lyme protocols. Is this true?...

9/20/2013 2:01 PM

Lyme Disease
Is the CD57 test always accurate?

Hmmm, most Lyme people do test positive the Igenex western blot. The CD57 is just indicative of how well you are doing on treatment, but even that can vary as much as 100 points depending on the lab....

9/20/2013 1:43 PM

Lyme Disease
Getting My Life Back - In Remission

What is an i-spot test? I haven't heard of it. That's wonderful you no longer have lyme. Congrats!...

9/20/2013 1:33 PM

Lyme Disease
can tooth pain be a herx?

Yes, my strong teeth have deteriorated since I've had Lyme. They are so much weaker and I do get occasional discomfort. And yes, Listerine does help a great deal. I use it before I go to bed, but...

9/17/2013 8:37 PM

Lyme Disease
Herxing bad-advice please!

Green tea is also helpful. If the herx is intolerable, take two charcoal pills every few hours. Cut back on your abx dosage per your doctor's instructions. Don't do too many herbs/ medicines at one...

9/2/2012 8:18 PM

Lyme Disease
Getting worse or herxing ?? Leg pain and weakness... Babesia ?

I use fresh limes. They are juicier than lemons, too, and I think work just as well or better. They are usually cheaper. too. I use Truvia to sweeten the juice and add water and a straw. Really helps...

9/29/2011 3:24 PM

Lyme Disease
How can I get a diagnosis?

Lymester, How are you doing now 3 months later? How many drops did you get up to? Thanks for sharing the above info. CherylSue...

8/19/2011 2:33 PM

Lyme Disease
Deseret Biologicals

Any one here have any experience with using Deseret Biologicals? My LLMD wants me to try the bacteria combo one for my Mycoplasma coinfection. Thanks for your input....

7/15/2011 1:49 PM

Lyme Disease
Need a Doctor in Michigan that treats aggressively.

You have a great resource in the Michigan Lyme Association. They can be found online. They will give you recommendations from Michigan and also around the U.S....

7/15/2011 1:40 PM

Lyme Disease
Can zithromax do anything by itself?

zithro is used for other coinfections as well, mycoplasma, bart, and babs. It is combined a lot with other drugs. I'm very sensitive to it, and can only do small amounts....

6/5/2011 7:55 AM

Lyme Disease
Have u ever felt better on just Zithro?

I've been on Zith a month now - worked up from a 1/4 tablet to one 250mg tablet. Herxing really bad with a lot of depression. Zith can do that to some people. I will have to pulse. to every other day....

6/5/2011 7:51 AM

Lyme Disease
Mycoplasma

My LLMD determined that my recent relapse is due to mycoplasma pneumonia. My Lyme and babesia are under control. Dr. B calls mycoplasma the "chronic fatigue germ." You can read more by visiting Dr....

6/1/2011 4:02 PM

Lyme Disease
Cortef/Hydrocotisone

My current LLMD put me on Isocort. It was cheaper from the endfatiguedotcom website hosted by Dr. T. She had tested my adrenals and they were on the low side of normal or just below normal. She...

4/13/2010 6:34 PM

Lyme Disease
I just started the condenced Cowden protocol.....

Hi Georgiagirl, I just popped in this forum after being away for several months, but I do recognize your name. So sorry to hear about your accident, but you seem to be doing better Lymewise which is...

9/3/2009 6:54 PM

Lyme Disease
burning pain on hands, feet and face?

I get burning sensations, too, when I'm flaring. However, I think in your case you got too much sun exposure with the doxycyline. That can really hurt! I've been there. My hands were on fire, and my...

7/7/2009 6:50 AM

Lyme Disease
nightsweats and babs

I get mild sweats at night, too. My relapses and illnesses have a lot of neck pain, but I thought that was the Lyme. I get slightly nauseiou and lose my appetite. The fatigue and flulike malaise...

7/7/2009 6:42 AM

Lyme Disease
OFF COWDEN

I did Cowden for 10 months and then saw an LLMD and did abox. The cumanda raised a cytokine storm, and I felt awful all the time. If I had to do it over again, I would have skipped the Cowden...

7/7/2009 6:32 AM

Lyme Disease
I'm Scared to sleep

Our vet says she sees several cases of Lyme in a year. Doxycycline always helps them. Your dog will get better quicker than you! Yes, Lyme can cause anxiety and nervousness. That, and the fact you...

7/7/2009 6:24 AM

Lyme Disease
Going to LLMD on Thursday!!!

Yes, this is my LLMD. Good suggestions above. Bring a pad and pen with you and take NOTES! He'll give you handouts, but it's always better to have notes to review. He pretty much does monotherapy one...

7/7/2009 6:19 AM

Lyme Disease
Houttuynia for Bartonella?

Has anybody used Houttuynia (HH) one of Dr. Z's chinese herbs for bartonella with any success? How much did you take? Did you herx? Did you build up to it? How long were you on it? Thanks, CherylSue...

1/25/2009 4:15 PM

Lyme Disease
Should we be treating Viral Loads with Lyme

go to Lauricidin.com You can purchase it online or call them. CherylSue...

1/25/2009 8:50 AM

Lyme Disease
Should we be treating Viral Loads with Lyme

My LLMD suggested I take Lauricidin pellets or colloidal silver for viruses. Lauricidin is stronger, and you have to go slower and build up slowly. CherylSue...

1/23/2009 4:18 PM

Lyme Disease
cowden protocol while no doxy

I did a modified Cowden protocol for almost 10 months. I wish I had done the abx first. Faster positive effects with the abx. I would skip the Cowden until I were in remission and then just use them...

1/23/2009 4:15 PM

Lyme Disease
Teeth turning black with doxy!

I developed some slight discoloration on my cheek. I can cover it with makeup and blush. So that's from the doxy? I'm not surprised. CherylSue...

1/23/2009 4:08 PM

Lyme Disease
Off Topic ~ Being tested for cancer

Deejavu, First get all that mole out, and get a surgeon to go deep. There's basal cell and squamous cell carcinomas which are not quite as dangerous. I know quite a few people who had melanoma years...

1/13/2009 6:04 PM

Lyme Disease
Would you contribute your best Detox Methods for us?

Activated Charcoal (two hours away from supplements and abx) Nutramedix burbur drops in water...

1/12/2009 5:52 PM

Lyme Disease
LDN Naltrexone

Has anbody any experience with this. In Ken Singleton'w THE LYME SOLUTION he mentions that this can help many, though not all, Lyme sufferers. Can anybody shed light on this? Thanks, CherylSue...

1/12/2009 5:49 PM

Lyme Disease
Please Help Need Lyme Treatment Info

Burrascano's 2008 guidelines are now available. I was able to read them from betterhealthguy.com website. I've done both the herbal and abx route. They are both rough with lots of herxing, etc. I...

1/12/2009 5:46 PM

Lyme Disease
Lyme cold?

Good question. I have the same symptoms and thought I was having a relapse. However, my hubby is recovering from a bad cold with lots of fatigue. I'm beginning to think it's a cold virus aggravating...

1/12/2009 5:40 PM

Lyme Disease
Who went to Dr. Jernigan's clinic?

My LLMD only uses IV abx as a last resort. He seldom uses them anymore. He switches abx around, and there were many I couldn't tolerate, so we just tried another. He does this so we don't build a...

1/10/2009 3:42 PM

Lyme Disease
DOXY AND FLAGLY COMBO.

Yep, I read that in Dr. S's book THE LYME SOLUTION, and elsewhere. I think Dr. S (FLA) talks about that in his babesia book, as well. Doxy can be taken with a macrolide, but not with Flagyl CherylSue...

1/10/2009 3:32 PM

Lyme Disease
Does Anyone use Activated Charcoal for detoxing?????

My LLMD advocates the use of OTC adtivated charcoal. It's cheap enough and works, especially when herxes get difficult. My LLMD does not believe in hard herxes. Sometimes you have to back down some....

1/10/2009 3:11 PM

Lyme Disease
Best/most Lyme literate major medical center

Lance, I remember you when I first joined this forum. I don't come here often, but I remember you were about 90% or more and were using Cumanda and other Nutramedix products with abx. I've tried...

1/10/2009 2:54 PM

Lyme Disease
Do you need to take probiotics on the Cowden protocol?

I wouldn't rely on the Cowden protocol only to cure you of Lyme. Make sure you are on abx, too! CherylSue...

12/29/2008 4:53 PM

Lyme Disease
Does this sound like good advise from LLMD? Getting concerned....

My LLMD says Flagyl is the cornerstone of his treatment. He gives it down the road for the cyst form of Lyme, but he also says he's pretty sure it goes after babesia, too. He's been seeing this in...

10/8/2008 7:32 PM

Lyme Disease
Valtrex (CFS patients with history of EBV)

Amy updates on Valtrex use? My doctor just prescribed some for me. I have diagnosed CFS. I'm to start out slowly and increase gradually because I herx to so many things. I'm eager to hear your...

7/27/2007 7:37 AM

Chronic Fatigue Syndrome



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