Hey I used to be on here regularly, four years ago. It has been quite a journey, but wanted you all to know that I am better. I have been off all antibiotics since the end of July and I have no...
I was in a similar place and decided yo see Dr K in DC and am doing better on a whole other level. I think you have not had good Bart treatment. Dr J gave me IV Levaquin in a pulsed manner (M, W,...
Lamictal and neurontin work well for this. I do believe that people should be medicated to survive herxes. I used to experience this but I sm now on strong IV therapies with stable moods. We can not...
If you look up Lamictal it can look scary but the adverse reactions (not to be confused with side effects) mainly only occur in children who have used the drug too quickly. Lamictal should be started...
You name it - I did it- Chinese herbs, infrared sauna, glutathione infusions, liver herbs, NAC, amino acids, theanine, hormones...... I have been a holistic doctor for over 20 years and I have had...
I have had great results with Lamictal and Lyrica or Neurontin. You must go very slowly with Lamictal, 25 mg/day and after 5-7 days increase to 50 mg... Eventually getting up to 50 mg twice daily....
Okay, this is maybe for those of you out there who are thinking "I will NEVER do IV therapy." I was one of you. I was certain that I would get better quickly with oral antibiotics and herbs and...
Bartonella can also be treated with Bactrim and Levaquin, (the drug of choice), there are more drugs that can be used intravenously. It is important to treat. I think those of us who are chronically...
I know! I just don't think women should be allowed to walk around with hormones that low in this day and age!...
Cortisol is variable in Lyme- will blog on this next week. It is often high late in the day when it should be low- contributing to insomnia and weight gain and low in the morning when we need it for...
Yes, levels can be too high sometimes due to Lyme, liver congestion, or imbalances. The ranges for a postmenopausal woman are very low so 4X this is not bad. It may be that your binding proteins are...
(This is long but it was my blog from my Lyme site, wanted to share with all you ladies!) Lyme and co-infections affect ALL hormones by interfering with the parts of the brain that control hormone...
Many think so. I am not a fan- ask on the board I think there is someone on this forum that had a problem with him. I'm sorry I wish I had better news- Boston is not a good place for Lyme treatment...
He wouldn't give me the recipe and charged a lot for it. I know he was using Pleo Sanum remedies from Germany. Google Pleo Sanum and see if you can locate a biologic dentist in your area who could...
I would not see him! I know many bad outcomes from him. email me and I can help you with referalls if you are in the Boston area....
As most of you know I was incapacitated from dental sensitivities due to Lyme. These were wrongly diagnosed as neuropathic pain. A biologic dentist in California explained to me that I had Lyme...
hope_29, His treatments are aggressive but the good part is that the treatments are pulsed- usually you are on antibiotics M,W, and F. For the first time I feel I have some control of my life- I know...
sorry I don't recall- other than first visit with him was $700 and I think $500 for the NP. Can't recall followup prices- when you are on IV's the office visits are included in the monthly...
It's when the antibiotics are not given everyday. Most of Dr J's protocols use antibiotics, (multiple antibiotics in high doses) on M,W, and F with weekends off and every 2-3 weeks a week or 2 off to...
No you do not stay there. You do travel to the clinic every 6 weeks or so. So travel is costly. My insurance covers my IV drugs and some of my office visits (80%). If you are on IV therapy he charges...
FYI I am "diarying" my progress on Dr J's protocol on a blog site: http://lymeandtheco-infections.blogspot.com/ When I first investigated pulsed therapy I was interested in reading about and hearing...
Oh and I forgot I am also getting help from using Malic Acid. In my medical practice I routinely gave fibromyalgia patients this and found it helped most. I now use Allergy Research, Magnesium Malate...
Lyrica at bedtime helps my sleep and pain and I dint have a hangover. Started with 25 mg and gradually increased as needed. 100 mg is working Doing yoga, simple , restorative and lots of fish oil...
If you do treatment with antibiotic you wil at some point need Flagyl or some form of treatment for the cysted form of Lyme. Many docs pulse it in- using it say on the weekends or for a week at a...
Jelainep- what dose were you on when you became depressed?...
My friend was on IV Doxy and didn't notice any amazing improvement over oral. Have you had any luck? My advice is to stay on Babesial treatment and consider IV Clindamycin or Claforan- both have...
I am happy on Lyrica- I am using it for shoulder pain. I started with 25 mg and gradually increased ever 5-7 days. I am now taking 100 mg each night- daytime use caused too much dizziness and fatigue-...
I would recommend Dr H (newton)- she is an excellent LLMD although I also use Dr J (SC) as I am a complicated case- but Dr J works with him and is likely to become a satellite center for his...
Hey Nefferdum, sorry you are still struggling. I made good progress with using IV Claforan. Did 3-4 months of it and become functional. I am now doing Dr J (SC) protocol eith Clindamycin & Zithro IV...
Chronic Lyme ( and by this I mean all 3 infections, particularly Bart) affect our brainstem ( limbic system). And cause emotional instability called Limbic seizures. This used to be my primary...
Yeah we are all guinea pigs and it makes me very angry that there are not more intelligent clinical trials going on. We need to push for this. Please ask you doctor about joining a research protocol....
85 is not a great CD57- most docs now look for a CD57 count to be 120-150 or better. How can you be in remission if you still have symptoms and positive tests for Babesia? This is not Lyme remission....
Razzle this isn't fatigue-- have it checked out- so many things could cause it...........
I lecture about this and I wrote a book, The Natural Hormone Makeover- about this (may as well get a plug in as I'm not our lecturing lately! LOL)......Your number indicates a slightly...
Willow rose, even though I'm an MD any new drug has to be given with an IV nurse and epi pen near by or in a dotor's office. Regarding Mepron dose-- the dose I am doing is double but is only given...
Currently South Carolina, but the medical board is forcing him to move to DC next month! I used to think it was a matter of finding "the drug." I now see treatments as a dance. Multiple drugs need to...
Were you on Mepron a total of 4 months? My understanding is this is the most difficult to eradicate and I have been plagued by persisting Babesia also. Perhaps you should be on Artemesinin or Zhang...
I can't find it- went back 7 pages-- maybe I;m Lyme blind?? Do you want to bump it up would love to read it..........
Wanted to pass this on.......According to Dr J, infectious disease/Lyme expert, those with chronic Lyme should NOT get vaccinated by swine flu vaccine or any other live (attenuated vaccines). Now...
I am working with infectious disease specialist, Dr J (SC) and am excited to share his concept of "pulsed antibiotic therapy" and how he is treating me and hundreds of others, successfully, For the...
Wow this is great. I woke up this morning so mad about this illness and how little is being done. We must start a movement. I have so much to say.. Will post more later....
James- Why'd you quit? What dose did you use/ Could the marks on your stomach be Bart?...
This works well for Bart. You will herx from the Rifamipicin and my herx was mostly emotional so go slow. I advise starting with 300 mg/day for 4-5 days. Take it late in the day. Good luck and get...
Hey guys, It's been a while since I have posted. I am doing really well and wanted to share my experience for Mycoplasma and how I am doing with it. I think of Chronic Lyme as layers. First I treated...
Nefferdum, First let me say how sorry I am that you have back slided. As you know I was struggling with BLO in the spring, doing HH cpasules with Rifampicin and doxy. I was having emotional symptoms...
email me and I will let you know of a woman near NH (upper MA)...
I would ask your LLMD about covering you for Lyme and Bart. Did your doctor treat for Lyme cysts and L forms (ie flagyl pulsed in and Azithromycin for L-forms or herblas for cysts...) Also ask your...
Yes you can use Mepron and Azithromycin with Rifampicin and Minocycline. That would probably be the best mixture- some docs use Mepron in lower dose 3x/day as Rifamipicin lowers the actrivity of...
Anitbiotics will not interfere with Coinfection testing as these tests are looking at antibodu responses. Lyme Western Blot that detects spirochete proteins and these can be altered by antibiotics....
I had understood that air travel is hard on Lyme but now that I am better I am able to see what the effects are like. The last time I flew I had much more confusion for about one day- difficulty...