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+Lyme

HealingWell Forum
>
Member Profile
Display Name
+Lyme
Profile Created
4/19/2009 9:00 AM
Last Seen
8/6/2017 4:38 AM
Total Posts
1304

Last 50 Posts

Is there a test??

[purple] Please tell me more bluelyme [b]...

8/4/2017 12:02 PM

Lyme Disease
Is there a test??

Yes, after believing I was cured, symptoms furiously returned. [purple] Please tell me more bluelyme [purple] ...

8/4/2017 4:12 AM

Lyme Disease
Is there a test??

Was infected in 2007. Is there any reliable test for Lyme if you want/need to know if you still have it and/or relapsed?...

8/3/2017 11:14 AM

Lyme Disease
Is there life after Lyme? And now maybe Lupus?

Thank you, Dude, I will email you. And to all of you above, no, I will NOT take steroids regardless of any dx!...

8/3/2017 10:21 AM

Lyme Disease
Is there life after Lyme? And now maybe Lupus?

Thank you for all the advice and links. The Dude: yes, I reside just outside of AVL....

8/3/2017 4:14 AM

Lyme Disease
Is there life after Lyme? And now maybe Lupus?

Does anyone here believe, or have an opinion that Lyme can cause Lupus?...

8/2/2017 11:54 AM

Lyme Disease
Is there life after Lyme? And now maybe Lupus?

Thank you Nic. As I can't get a test w/o a Dr's order, I will by necessity work on my immune system. That's why I posted questions about Lupus....

8/2/2017 11:27 AM

Lyme Disease
Is there life after Lyme? And now maybe Lupus?

I do appreciate your optimism, mpost. However, as I stated, there are no LLMDs in my area and I cannot even get a test for it. Therefore there are no abx to take. I believed I was cured and then...

8/2/2017 11:16 AM

Lyme Disease
Is there life after Lyme? And now maybe Lupus?

Hello fellow sufferers, I am not new here but it has been several years since I have been here. Was diagnosed with Lyme in 2009 (tick bite was 2007). In Kansas City I was fortunate enough to have an...

8/2/2017 10:43 AM

Lyme Disease
Please help! desperately need LLMD in Asheville, NC

I have moved from the Kansas City area to Asheville, NC. I have found a family Dr who has been searching for an ID Dr to help me. You know how THAT will go! I have been on abx for about 3 yrs and am...

7/11/2013 8:00 AM

Lyme Disease
Disability? Anyone have experience with this?

Gosh, thank you everyone for your help, suggestions and links. This will be MUCH help! goody goody, thank you@...

4/3/2013 7:21 PM

Lyme Disease
Nicotine

The Easy Way to Stop Smoking by Alan Carr. $15 bucks and worth every cent. On the UK best seller's list for a long time is what I heard. I have not succeeded, however thru no fault of this book. The...

4/3/2013 7:16 PM

Lyme Disease
My Microscope pics...

Thanks, Patho -- you are indeed a wealth. I will consider looking up and asking bout the Crypto, but my biggest question is whether or not I still have the Babs. I really don't want to keep treating...

4/2/2013 7:30 AM

Lyme Disease
just expressing my sadness

Also, Wellbeautifulspirit, you mentioned your mother is in the health field. I do not know what she does, but am learning very quickly how few people in this field truly care. I say 'few' because I...

4/2/2013 7:24 AM

Lyme Disease
My Microscope pics...

OK, Pathogen, you've got it over most of us because you have learned to actually SEE what is in your blood and infecting you. Do you have a theory of how everything is related, meaning tied together?...

4/2/2013 6:46 AM

Lyme Disease
My Microscope pics...

Pathogen, I sure wish you would set up shop and look at our blood (and stools, yuk). Hey, you could have that little scope of yours paid for many times over! I for sure would send blood to you!...

4/1/2013 6:41 PM

Lyme Disease
just expressing my sadness

wellbeautifulspirit, my heart goes out to you, sincerely. Mothers are human and make mistakes. However, your mother has failed you and I am so sorry. I am sorry for your loss. But regardless of what...

4/1/2013 6:37 PM

Lyme Disease
My Microscope pics...

Pathogenkiller, are you saying you have Morgellon's? That the blue fiber was yours? I did not realize that this was seemingly tied to Lyme. I once thought I might have it because of the sores all...

3/31/2013 2:26 PM

Lyme Disease
Disability? Anyone have experience with this?

Thank you so much Deja. This is very encouraging....

3/30/2013 9:19 PM

Lyme Disease
My Microscope pics...

Pathogen, HOW did you find a blood analyst? Don't suppose this is someone our insurance companies would allow us to see? Strange you mentioned your fungi. Since starting activated charcoal for the...

3/30/2013 7:53 AM

Lyme Disease
Disability? Anyone have experience with this?

I am a 60 yr old female. I am currently working full time but cannot continue like this. I miss a lot of work because, frankly, there are days I cannot make myself get out of bed. Thus I am far...

3/30/2013 7:03 AM

Lyme Disease
My Microscope pics...

If spirochetes (amongst other stuff) can be seen so easily thru such an affordable (except for me) microscope, then why aren't our Dr's offices using these? Why so much rigamarole in getting other...

3/30/2013 6:43 AM

Lyme Disease
Babesia Experts please? Many questions

Thanks everyone --I guess I'm going to push my doc on the testing again and meanwhile continue w/ the mepron....

3/29/2013 6:16 PM

Lyme Disease
My Microscope pics...

Great job, Pathogen! What magnification must you have and how expensive is a microscope w/ that magnification? ANd I want to add: How come it is so difficult to get reliable lab results if they can...

3/29/2013 6:07 PM

Lyme Disease
Babesia Experts please? Many questions

I don't know. My basic Bart test from Quest -- like an Eliza -- was negative. My Dr knows better than this about those tests, unreliable, but he stated I was negative for Bart. So I haven't looked at...

3/29/2013 5:48 AM

Lyme Disease
Babesia Experts please? Many questions

Gosh, what a mess. Positive for Lyme, Babs (couple yrs ago), CEBV, HHV6, the Parvo Virus 19 or whatever, and now the 2 most toxic mycotoxin groups. You know how you can kind of distinguish many of...

3/29/2013 5:29 AM

Lyme Disease
MOLD or LYME

Thanks, peggster, I will definitely go there. YES, I have debilitating depression, fatigue and mostly horrific anxiety which paralyzes me. Of course, this is also a symptom of Lyme, Babs, and CEBV...

3/25/2013 6:01 AM

Lyme Disease
Like an emotional joke...

I am 60, MarieLS, and I completely understand how you feel. I was never a brilliant world saver, but was able to bust butt, touch lives, and be a positive factor in people's lives. But a huge part of...

3/25/2013 5:32 AM

Lyme Disease
MOLD or LYME

I was glad to find this old post. I think I had posted before, that just like when you were poisoned, but he found enough mold in the basement, he felt it would serve my purpose. We found my furnace...

3/24/2013 11:26 AM

Lyme Disease
Need LLMD in NC PLEASE!!

Hello,Been a long time since I've been on here. Keeping up w/ life is just too much. My LLMD, who happens to be an Infectious Disease Dr is on to something. States that 7-8 out of his Lyme patients...

3/16/2013 9:27 AM

Lyme Disease
LDN: WHO IS KNOWLEDGABLE?

I am on LDN, not only for my Lyme, but in the hopes of preventing MS and a multitude of cancers (look it up) Would this be a life long or very long treatment or is there some point (when the immune...

10/3/2012 6:47 AM

Lyme Disease
Desperation

? Do you know if I would be able to transfer my script? I have been getting it from a local compounding pharmacy, Stark Pharmacy. I could better handle 17/ month! If you were taking it, I think you...

9/29/2012 9:51 PM

Lyme Disease
EBV & Lyme - What's the deal? And An Update...

My labs indicate active, chronic EBV. My LLMD is not treating this w/ antivirals because he believes that if I will take care of myself and if the abx will kick the Lyme, the EBV will resolve. The...

9/29/2012 8:13 PM

Lyme Disease
do i have lymes or am i delusional??

Yes, majikz10, your Western blot indicates you have Lyme disease, or at the very least, an active spirochetal (is that a word?) infection. It has not gone IgG yet and indicates you should get...

9/29/2012 8:02 PM

Lyme Disease
Mepron availability?

Kern, I am in the US, w/ average insurance, and I pay nearly $50/ mo for it. I believe my LLMD has said that it is $1000- $2000 per month w/o insurance, altho I admit it is possible he was referring...

9/29/2012 7:49 PM

Lyme Disease
Putting off antibiotic treatment?

Brainfogged: I will be anxious to see what others say, but I believe I would recommend following your PCP's orders. I am no Dr or professional, but might round about suggest you consider upping that...

9/29/2012 7:40 PM

Lyme Disease
Desperation

Oh, Trav, I meant to say 'ole buddy', as I've known you from way back. /community/emoticons/rolleyes.gif You are always such an 'up'. You too, Deejavu. /community/emoticons/smilewinkgrin.gif The day...

9/29/2012 7:19 PM

Lyme Disease
Desperation

ps: I am literally crying rivers. Won't that help de-tox??...

9/29/2012 11:44 AM

Lyme Disease
Desperation

Thank you so much, OK and Trav, old buddy. No, I do not detox and I do not take care of myself. I am trying to prepare a schedule that will give me more sleep as I've been deprived for more than...

9/29/2012 11:40 AM

Lyme Disease
Desperation

I am sorry to have come back here only to ask for help -- that has been my pattern for awhile now and I am guilty of it, just as I am guilty of a multitude of wrongs. I do not know where to turn --...

9/29/2012 10:01 AM

Lyme Disease
BLACK MOLD

Thanks guys -- Razzle, I was thinking of just a drop in a real petrie dish....

8/24/2012 10:08 PM

Lyme Disease
BLACK MOLD

I posted something about this awhile back and have a question. My LLMD states he has been researching this for about 1 year. He has stated that he has seen studies and also learned this from his Lyme...

8/22/2012 8:48 AM

Lyme Disease
(no subject)

I cannot find my post from the other day which was asking a legitimate, concerning question. It regarded Lyme mortality. I think some of us need to know the answer. Was this post removed and if so,...

7/30/2012 12:42 PM

Lyme Disease
Homeless Lyme patients now have a place to go to get treatment!! Spread the word!

Trav, when one dies from Lyme disease, what is it that kills them? Was this man's death and cause of death publicized?...

7/30/2012 5:40 AM

Lyme Disease
Black Mold: Must read, maybe I can help this time....

Sunnyman, sorry, and thanks for checking because I was just re-reading my post and the part you have bolded is not what I intended to say. Appx 80% of his chronic Lyme patients who have been treated...

6/7/2012 8:00 PM

Lyme Disease
2? 1. Lyme affecting lungs? And 2. Sign of babesia?

Babesia has caused me difficulty breathing and sometimes very scary. Maybe it is the Lyme, I don't know, but I found a lot of symptoms of Babs and air hunger and difficulty breathing were always...

6/4/2012 5:58 AM

Lyme Disease
Black Mold: Must read, maybe I can help this time....

Apologies for not coming here more often, and when I do, just whining. I have not gone thru old posts to see if this has been discussed, but even if it has, it may well bear doing so again. Please...

6/4/2012 5:46 AM

Lyme Disease
New infection?

If I have already posted this question, I apologize. My daughter removed a tick from my back appx 10 days ago. He was not engorged but was firmly attached and I have a small sore as evidence that he...

5/13/2012 12:43 PM

Lyme Disease
+Lyme

Thank you, Praying. I finally posted. I deeply appreciate your concern and caring....

5/13/2012 12:37 PM

Lyme Disease
GIVING UP: WHAT WILL HAPPEN?

I apologize for not getting back on here and responding to all the supporting, sympathetic and informative responses to my post. I have had to work some nite courts and running my dog back and forth...

5/13/2012 12:36 PM

Lyme Disease
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